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Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

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Posted on: Nov 3, 2014 09:47AM

Posted on: Nov 3, 2014 09:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Jan 28, 2017 09:16PM danix5 wrote:

Thank you 💞

Dani 2 time BC winner😜Triple + Surgery 1/17/2008 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant Dx 1/10/2017, DCIS/ILC/IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+, Chemotherapy 2/24/2017 Taxol (paclitaxel) Targeted Therapy 2/24/2017 Herceptin (trastuzumab) Hormonal Therapy
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Jan 28, 2017 09:50PM - edited Jan 28, 2017 09:53PM by zjrosenthal

Any positive survivor stories from those with extensive node involvement? When I had the axillary dissection they found many positive nodes, about 20 I think. Love, Jean

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2- Surgery 8/10/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Chemotherapy 9/7/2014 AC Targeted Therapy 11/2/2014 Herceptin (trastuzumab) Targeted Therapy 11/2/2014 Perjeta (pertuzumab) Chemotherapy 11/2/2014 Taxol (paclitaxel) Hormonal Therapy 1/26/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/18/2015 Lymph node removal; Lymph node removal (Left): Underarm/Axillary Radiation Therapy 3/15/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2- Immunotherapy Immunotherapy
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Feb 1, 2017 02:35PM lkc wrote:

me..... 12 positive nodes out of 14. Axilla and sentinel nodes totally replaced by tumor, extensive lymph , and vascular invasion, ducts lobes nipples affected, Her 2 positive AND no clear margins after final surgery.That was almost 12 years ago, and I am well and thankful every day.

There are others out there, with similar stories to me, but they are busy living there lives beyond BC. We keep in touch

My verybest to all those who are going through these early days. They are hard, but our will get through it!

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Feb 1, 2017 05:55PM zjrosenthal wrote:

ILC thanks so much for the encouragement. It means a lot. Love, Jean

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2- Surgery 8/10/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Chemotherapy 9/7/2014 AC Targeted Therapy 11/2/2014 Herceptin (trastuzumab) Targeted Therapy 11/2/2014 Perjeta (pertuzumab) Chemotherapy 11/2/2014 Taxol (paclitaxel) Hormonal Therapy 1/26/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/18/2015 Lymph node removal; Lymph node removal (Left): Underarm/Axillary Radiation Therapy 3/15/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2- Immunotherapy Immunotherapy
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Feb 2, 2017 08:12AM fightergirl711 wrote:

danix5 I am so sorry you are going through this again. I'd definitely be asking about chemo too.

You may want to ask about Taxol + Herceptin AND Perjeta (this article doesn't reference Perjeta, but it is indeed administered with Herceptin.)

http://www.breastcancer.org/research-news/hercepti...

Diagnosed at 44. NED after re-excision and ALND. Herceptin thru Feb. 2017. Surgery 12/11/2015 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Dx 12/14/2015, IDC/IDC: Mucinous, Left, 2cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2+ Dx 12/14/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 4/4 nodes, ER+/PR+, HER2+ Targeted Therapy 1/7/2016 Herceptin (trastuzumab) Chemotherapy 1/7/2016 Taxol (paclitaxel) Targeted Therapy 1/7/2016 Perjeta (pertuzumab) Chemotherapy 3/30/2016 AC Surgery 6/7/2016 Lymph node removal: Left Radiation Therapy 7/14/2016 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/29/2016 Femara (letrozole) Surgery 12/30/2016 Prophylactic ovary removal
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Feb 2, 2017 11:21AM rebzamy wrote:

Diagnosed June 2007 at 31 years old. Have just had my six-monthly check up and all good. I hope this gives you some hope. I had chemo, Herceptin, rads, double mastectomy and reconstruction. Can't believe it's almost 10 years ago now!

Diagnosed June 2007, IDC, Grade 3, 4-5cm lump, several lymph nodes involved, HER2+++, 4 months of high strength chemo, mastectomy and lymph node removal, radiotherapy & a year of herceptin and recently had preventative surgery to other breast.
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Feb 2, 2017 11:44AM momasheila wrote:

Hi I am new to this blog although I was diagnosed a year ago. I have stage 3 her2 pos breast cancer. I have been on herceptin next week being #13. I am also on xgeva every 4 weeks. my tumor shrank from 8cm to 2.5 cnms. then there was a small difference of 9 mm. my onc sent me to a radiation therapist who suggests that I do not take the radiation but to continue with what we were doing since it seemed to be working. he says with that small amount of growth that radiation would do more harm than good. I go see my oncologist today to see what he says. also it seems as if ill be on Herceptin till it stops working. the cancer had spread to my lower back but is now gone too. would anyone know why I am not being suggested any kind of surgery? any help, info experiences would be so helpful. thanx in advance.

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Feb 2, 2017 03:06PM moderators wrote:

Dear momasheila,

Welcome to the community. We are so glad that you reached out here. We hope that you will find support and information to help you with your diagnosis and treatment. If you do not get any responses here, feel free to start a new topic in the HER 2 Forum. Let us know via PM if you need help navigating around the boards. Stay connected here as you can. Let us know how your Oncology Appointment goes today?

The MOds

To send a PM to the Mods: community.breastcancer.org/my/...
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Feb 3, 2017 01:20PM AliceS wrote:

Does anyone know anything about the following breast cancer prognosis sites? I've looked on Adjuvant! adjuvantonline.com  AND  lifemath.net/cancer/breastcancer/therapy/index.php

The sites are interesting-- the stats seem to be more positive than others I've seen. Would love to have comments from someone who can interpret better than I can.

Dx 10/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-/PR-, HER2+, Dx 10/9/2014, Right, 1cm, Stage IIIA, Grade 3, 4/24 nodes, ER-, HER2+, Targeted Therapy 11/12/2014 Herceptin (trastuzumab) Chemotherapy 11/12/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy
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Feb 16, 2017 02:55PM - edited Feb 16, 2017 02:56PM by Mitch

For all those Her2 Positives out there - have just this week reached my 12 years NED and am every so grateful. Have seen my daugher's 21st, her engagement, her wedding and now she is pregnant I'm a grandma. Make the most of each day. Best wishes to you all - stay strong.

This site helped me and I return regularly to keep updated.

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