This is a safe place to share your experiences of others considering or on hormonal treatment.
I'm coming up on 5 years of anastrozole... After lumpectomy and radiation for stage 1 grade 1 idc. My oncologist knows Im always anxious, but he isn't really definitive on whether or not I should stop the AI. He said I should probably stop it but knowing how anxious I am maybe stay on it for another year or so... I'm a…
I recently got a hold of my doctor's notes for each follow-up I had with him since 2019. I reviewed everything, and saw how my dosing of Tamoxifen was all over the place. For intervals of a year or several months, I was taking 20 mg, 10 mg, or 10 mg every other day (effectively 5 mg). I did have some endometrial thickening…
I just came from the oncologist and after looking at my BCI and having been on letrozole for six years he told me to stop. I am terrified to do that. Has anyone stopped after 6 years? He said new research says 5 years is enough and now I'm just getting the side effects, not any real prevention of cancer from continuing to…
I was wondering if anyone can fill me in with the procedure for a uterine biopsy? (Just don't scare me, I can barely get thru a pap smear!) How long does it take? Post menopausal, started low dose Tamox/dcis for a month only, and my uterus went crazy. Achey, discomfort, heaviness….. I stopped the medicine and within 24…
Trying to find some solution to weight gain. Has anyone had any experience with anything to help lose weight and help with the hot flashes? I have read on so many different things out there that are supposed to help with the hot flashes and weight gain but wanted to check in here to see if anyone has any success.
An interesting study. I'm hopeful! Abstract P1-12-15: Intermittent dosing of aromatase inhibitors (AI) to improve tolerance in post-menopausal women Clinical rationale: A significant proportion of post-menopausal, patients treated with AI reports side-effects, especially bone pain. In such patients, the difficulties to…
I've only been on a low dose of Tamoxifen (5mg) for about a month and I've noticed a 'heaviness' in the low pelvic area. I've never felt it before, so obviously it's from the medicine. I know that Tamox is estrogenic to the uterus, but I didn't think I would feel anything so fast with such a low dose. So, if anyone can…
FYI I was on estrogen blockers 20 months till end of 2023. I stopped after non-specific leg pain became crippling and my increased life expectancy from drugs was small. While I had SE and long term concerns, joint failures have been the impactful journey after my BMX. After two months off meds and the leg pain decreasing,…
I have had a dry cough since chemo and starting Arimidex in 2015. I have been to many kinds of doctors for the cough and no reason has been found. Sometimes the cough is really bad. Has anyone else had coughing?
Hi! I had some imaging done today because I’ve had pain on my left side. The report came back with this comment - “Unusual 2.1cm thick walled peripherally enhancing possible cyst in the left adnexa.” Not sure what that means other than there is some kind of mass/maybe cyst on or near my left ovary. I know tamoxifen can…
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