This is a safe place to share your experiences of others considering or on hormonal treatment.
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
I was diagnosed in 11/2022, had bilateral lumpectomy 1/2023 and finished radiation 3/2023. I’ve been taking an aromatase inhibitor for over two years. At first I was on anastrozole and I recently switched to exemestane to see if a switch would help some of my side effects (joint pain, mood swings, anxiety, insomnia). I was…
How long were you on Tamoxifen before you started to notice any side effects? Also, what was your age when you started Tamoxifen
Hi, I just met with a new oncologist after the retirement of my previous one. I have been on an Aromatase Inhibitor for six years with worsening bone loss. Taking Fosamax. The new oncologist suggests switching to Tamoxifen. Total treatment time would be 8 years vs. target of 7 if I stay on AI. Has anyone had or considered…
Hi. looking for opinions. I was diagnosed with invasive carcinoma of breast the breast. My tumor was 4mm. I was HER negative. Estrogen Receptor 60%, Progesterone Receptor 40%, KI67 proliferation no longer marker 3%. I had a lumpectomy. When they did the surgery the tumor was already gone from the biopsy. Nothing spread to…
Just finishing 5 years on Tamoxifen. Tried AI's before but had horrible side effects. Saw MO today. She said I could continue the Tamoxifen after the 5 years if I wanted. Would love to be rid of the SE's but I am thinking, what would I be gaining if you know what I mean staying on the drug. Wondered what you all think🙃?
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
I had a bilateral salpingo oophorectomy (BSO/ovary removal) on March 4th. I had not begun menopause (based on MO ordered hormone tests). The side effects I've had since that surgery are debilitating. I'm supposed to start taking Letrozole tomorrow. I'm trying to find out (no response from SO or MO) if the symptoms will…
There’s a chance I will switch from tamoxifen (2 1/2 years now) to an AI. I am premenopausal but contemplating hysterectomy then switching. I haven’t had much trouble with weight gain or hot flashes on tamoxifen, and I wanted to know if that for sure will change if I switch. Also, is it a dramatic change in side effects or…
I had a lumpectomy last month with clean margins, no lymph involvement and an Oncotype of 17. I start radiation next week and it has been suggested by my MO that I start a 5 yr course of Tamoxifen upon completion of my 21 radiation treatments. The Tamoxifen side effects I've read about seem real quality of life destroying,…
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