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No hormone therapy vs hormone therapy
hello. My wife is about one year out from a double mastectomy. The pathology showed that her right breast had LCIS and DCIS. The left breast was benign, but she had it removed as a precaution. The right had multifocal invasion, with the largest tumor being small about 3 mm. She did not need radiation or chemo therapy, as…
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Tamoxifen and periods??
I have been on tamoxifen for almost two years. A couple of months after I finished chemo, my periods came back pretty close to regularly... Do periods get irregular on tamoxifen the closer we get to being put into "menopause?" My period came a week early last week and lasted about 3 days, but all of a sudden, I'm bleeding…
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Quit Tamoxifen Cold Turkey?
Hello everyone, Wondering if there are any thoughts on stopping tamoxifen cold turkey vs. tapering off. Is there any evidence of one being better than the other? I'm at 5 years on tamoxifen, just received results from the Breast Cancer Index that said there is no benefit to continuing anti-hormonals, so I'll probably stop…
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BCI questions
Hello, I am in year 4 of tamoxifen and have struggled the entire time. I have profound fatigue and just feel flat, as if someone took away my ability to feel joy. With that being said I recently tried a break and went on 10 mg to see if it would help. I felt the same on the 10 so I am back on the 20 mg. I spoke to my MO…
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Start tamoxifen, Yes or No?
Hi all, I had performed unilateral (left breast) mastectomy + DIEP FLAP end of May and now in my recovery. I was suffered from high grade DCIS. One month post-op, i had my follow up visit in my oncologist office. He advised to start tamoxifen to prevent my right breast cancer risk. The advise is to take it for 5 years. I…
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Arimidex shortage?…
Just got a phone call from Express scripts regarding my refill of Arimidex. They told me it is not available at this time and uncertain of availability. I have enough for awhile since I get 90 day supply, it this does sound good. I have a call in to my oncologist Has anyone heard anything Thank Ber
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anastrazol
i am 3 months out from my last kadcyla. just had bloodwork and all looks pretty good except alk phos and calcium slightly high. i have read anastrazol can cause this and have been taking since march. anyone else?
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Just had MO appointment
what an overwhelming appointment. Nurse navigator, NP, social worker and then Dr. it hit me pulling into the parking lot, right by the Cancer Center sign. When nurse navigator asked some cancer questions the tears came. The NP came in, was very "stiff" but okay. but the Dr? He flaly refused to work with me. I had questions…
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How to discuss declining endocrine therapy with your oncologist
I have decided that given my priorities, the specifics of my cancer, and medical history, I have decided not to take tamoxifen. (I did try AI's and was a train wreck). Do any of you have advice on how to discuss refusing endocrine therapy with your oncologist in a productive way? She really has been great in every other…
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Hysteroscopy and D& C Question
Hello, I have been on tamoxifen for about 15 months. I developed an enlarged uterus. I went to obgyn today and had an ultrasound. It showed uterine thickening, when I asked Dr how thick, he replied and said a 4..not sure what that means..He scheduled a d&c and hysterscopy. Has anyone had this done? What was your recovery?…
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Young Women Can Safely Pause Hormonal Tx To Attempt Pregnancy
Young Women Can Safely Pause Hormonal Therapy To Attempt Pregnancy Dec 15, 2022 Young women can safely stop hormonal therapy temporarily to try to become pregnant. Read more...
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Benefits of Verzenio After Surgery for Early-Stage BC Confirmed
Benefits of Verzenio After Surgery for Early-Stage Breast Cancer Confirmed Dec 15, 2022 The benefits of Verzenio after surgery for early-stage, hormone receptor-positive, HER2-negative breast cancer with a high risk of recurrence were confirmed with longer follow-up. Read more...
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Acupuncture Offers Long-Term Relief for Joint Pain Caused by AIs
Acupuncture Offers Long-Term Relief for Joint Pain Caused by Aromatase Inhibitors Nov 15, 2022 In a randomized study, acupuncture eased joint pain caused by aromatase inhibitors in women diagnosed with early-stage, hormone receptor-positive breast cancer for 40 weeks. Read more...
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Mark Cuban’s Cost Plus Drugs prices Anastrozole& Letrozole
Not sure if it's been posted on the forums as of yet but Mark Cuban's on line pharmacy 'Cost Plus Drugs' has 90 days of Anastrozole and Letrozole for only $11.10 plus $5.00 shipping. If anyone pays more even with insurance, this is a good resource to perhaps save some money. Website is www.costplusdrugs.com.
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PCOS
Hi, I have polycystic ovarian syndrome (PCOS). I have not been officially diagnosed but I most likely have HR+ breast cancer. I also have a serious history of depression. Tamoxifen interacts with my medications. I understand that ovarian function needs to be suppressed in pre-menopausal women which is why aromatase…
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How many of us took Birth Control Pills?
This same question may be burried in the 2 thousand other posts but I haven't found it. I was diagnosed at age 44 and had been taking birth control pills for the previous 13 years. Once I was diagnosed my doctor said to stop the pill immediately....even mid cycle! I at that time had not had a period in a year but was not…
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Blue Stain on Toilet Seat: The Mystery
OK, friends, this is NOT a photo of my own toilet seat, but one I borrowed from google, and a good illustration of what I'm talking about. A couple of days ago my hubs said, what's with the blue stain on the terlit? it's a light indigo, almost a shadow effect, but(t) the exact shape of my own patootie when I park it there.…
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Say NO to hormonal therapy!!!
The ATLAS Study out of Oxford was massive. it resulted in the recommendation to go from five years to ten years for hormonal therapy after BC treatment. The figurehead Harvard researcher is quoted " if it is being tolerated well, why not ?"He was referring to AIs in the article I sent him a picture of my face, two years…
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Has anyone here developed Pre-Diabetes during Hormone Therapy
I see BCO has an article about this https://www.breastcancer.org/research-news/link-between-hormonal-tx-and-diabetes My story so far - after always having fasting blood sugar in the 80s or even the 70s, my last two readings at the oncologists office, three weeks apart, were over 100. The first time, I had a smoothie not…
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Anyone had uterus thickness??😭
Hello sisters! Please help i freaked out. I was diagnosed in 2010When i was 38. I had dmx and chemo and radiation and i had hormon blockers for total of 10 years( 5 years Arimidex 5 years Tamoxifen) cancer free since then. I stopped Tamoxifen last year. I never had my period since chemo and the meds put me on chemical…
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The upside of coming off tamoxifen
Hello ladies! I will be completing my 5 years of tamoxifen in May-June and I’m wondering if any of you have any good stories about getting off this Med. When I first started tamoxifen I was 34, so it was hard to deal with the weight gain, the water retention and the loss of muscle tone. I also feel like it aged me a bit in…
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Response to Neoadjuvant HormonalTx Differs in Black& White Women
Response to Hormonal Therapy Before Surgery Different in Black and White Women Sep 26, 2022 Stage I and stage II hormone receptor-positive breast cancer was more likely to shrink after hormonal therapy before surgery in Black women than in white women. But Black women had worse outcomes than white women if the breast…
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Letrozole and Digestive Problems
Hello All - I would greatly appreciate hearing from any and all regarding any digestive problems they have had that can likely be attributed to letrozole/Femara. The long list of side effects for this drug includes "digestive problems", but I cannot seem to find any more detail as to what those "digestive problems" might…
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Cannabis to manage AI SEs
Anyone out here willing to share their experience using Cannabis to manage SEs for AIs? Has anyone discussed it with their MO? If so, what were the MOs thoughts on it?
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Changing Medical Oncologists in Same Clinic?
I had my first meeting with an MO that my hospital assigned to me and it was at most a lukewarm experience. I had to wait an hour past appointment time (past closing time, the reception desk people left before I even got to see my MO) because she had pushed back her appointments for 2 earlier people who went to the wrong…
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Question for those post Arimidex therapy.
I'm curious of those that stopped Anastrozole after 5 years that had significant side effects while on drug. How long did it take for symptoms to dissipate/ or did some remain?
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How many times do I have to try and decline hormone therapy.
Hi, My BC started in 2008. I don't want to add a pill that increases my anger., plus I get terrible migraines. I've seen several therapists and have used multiple drugs for depression, anxiety, and mood disorders. The AI's increase my irritability. There must be something other than AI's. Thank you for listening. Take care.
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Letrozole dry mouth, lips , and palpitations
I am only two months into taking letrozole. Struggling. Hot flashes night sweats with palpitations extremely dry vagina and now dry lips and mouth! I wake up with the tip of my tongue sore and have a rancid taste in my mouth . I’ve been drinking extra fluids and using biotine gel, which is a very temporary fix. I’m not…
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What’s your Tamoxifen dosage?
I’m currently on 20mg tamoxifen daily for the past year. The main side effect is fatigue and it’s killing me. It’s something I’m having a really hard time getting past and I feel my quality of life is suffering. i see my MO end of this month and I was going to ask her if I can take a break from the Tamoxifen for a few…
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Hair Issues and Tamoxifen
i was wondering if anyone has experienced a change in hair texture while on tamoxifen. If so, any solutions? I have talked with my hairdresser about it and she has recommended different products, but it just doesn’t seem to help. I know this is a relatively minor side effect, but it does affect how you see yourself. Just…