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Treatment Zoom Meetup (Tuesdays) place to keep chatting
Update: Hi all! We apologize -- in thinking about creating these threads, we actually thought it might be more practical to have all groups (Tuesday and Thursday) to post on the same thread. This way, if you attend more than one meeting, you won't have to submit any updates to more than one thread to reach all of your…
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Treatment Zoom Meetup (Thursdays) place to keep chatting
Hi all! We apologize -- in thinking about creating these threads, we actually thought it might be more practical to have all groups (Tuesday and Thursday) to post on the same thread. This way, if you attend more than one meeting, you won't have to submit any updates to more than one thread to reach all of your friends.…
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New Guidelines: Treating High Calcium Levels in People W/ Cancer
New Guidelines on Treating High Calcium Levels in People With Cancer Jan 4, 2023 The Endocrine Society has released the first guidelines on treating high calcium levels in people diagnosed with cancer. Read more...
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Cachexia / extreme weight loss
Wanted to share this recipe/article for anyone having trouble keeping their weight up. I found this for a friend recently who is struggling w stage 4 Lung Cancer and cachexia http://www.anticancerbook.com/post/The-best-way-to... This smoothie is designed to provide nutrition AND address reducing inflammation in the system…
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AIs and blood pressure
Hello, I am taking exemestane for 2.5 years now. And noticed that have elevated blood pressure often: 140/90. Do you, dear all, have this issue? I am not sure it is a side effect at all, but would like to know from others? Also if you do, how it is controlled? thank you!
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Anyone want to commiserate about scar tissue?
For three and a half years after my lumpectomy and radiation I felt like I'd gotten off really easy. My surgeon concealed the scar so well that in certain positions it wasn't obvious anything had happened. Then in May I noticed a small patch of reddened skin at the end of the scar, kind of like a lollipop on a stick. The…
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Anyone try acupuncture for neuropathy?
I’m about at my wits end with this neuropathy. It is throughout my leg; hip to toes. I’ve had scrambler therapy, that worked, just didn’t last. I could do it again but it a bit of a hassle as it is everyday and is not exactly close by where I live. I’ve read acupuncture helps, but wanted to see what your experience was. I…
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Bisphosonates - strange side effects
hello Has anyone suffered strange side effects? I've been on Actonel/ Riseondrate for a couple if months. Suddenly I have irregular heart rate and strange back and hip pains (all to be investigated of course). Angie
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anyone have cherry angiomas??
I've been getting these red dots on my skin..they look like blood moles. I looked them up and found out they can be a sign of "estrogen dominance" and be related to breast or ovarian cancer....they're mostly on my torso. Does anyone else have these?
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Erythema Nodosum
Has anyone experienced erythema nodosum? I developed 2 red tender lumps on my shin then added 2 more this week. It took a couple of doctors to figure it out but they have no idea why I got it. They have advised it will go away in 4 to 6 weeks. It's making me anxious as they have no explanation why I got it. Two weeks into…
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Podcast: Fezolinetant: A Non-Hormonal Treatment for Hot Flashes
Fezolinetant: A Non-Hormonal Treatment for Hot Flashes July 22, 2022 Genevieve Neal-Perry, MD, PhD, discusses her research on fezolinetant as a treatment for hot flashes. If you've been diagnosed with breast cancer before menopause, some of your treatments, including chemotherapy and hormonal therapy, can bring on…
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Fatigue- Tamoxifen?
I have pretty decent energy until around 3 every afternoon. Meaningful interactions with people after 7 pm seems impossible. I'm skipping social activities scheduled in the evening because of it. Copious amounts of strong coffee helps some, but then I wake up all night. To me, checking out of humanity at 6 is better than…
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Letrozole side effects: numb hands?
I started Letrozole (after 5 yr on Tamoxifen) last Fall, almost a year ago. First few months side effects were much like on Tamoxifen, hot flashes, tiredness, nothing too bad. Then, in March, about 6 months in, hand joints started acting up, and progressively now my fingers are stiff and painful, also feet and knees are…
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Cancer Survivors Have Higher Risk of Cardiovascular Disease
Cancer Survivors Have Higher Risk of Cardiovascular Disease July 11, 2022 Cancer survivors have a higher risk of developing cardiovascular disease, including heart failure and stroke, than people with no history of cancer. Read more...
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I would love your input!!
I am a former cancer caregiver for my mom and going through the breast cancer care journey with her gave me a passion to work with the breast cancer care community! I am finishing my doctoral degree in occupational therapy, and I have committed my final project to address the unmet needs of women with breast cancer to…
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Hormone-Free Medicine for Hot Flashes Shows Promise
Hormone-Free Medicine for Hot Flashes Shows Promise June 21, 2022 Fezolinetant, an experimental medicine that doesn't contain hormones, has successfully treated hot flashes. Read more...
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My toenail just came off!
I had AC followed by weekly Taxol but finished in December 2020. I was just rubbing nail polish remover on my big toenail and the nail peeled most of the way off. I’ve admittedly been wearing polish for way to long without giving my toenails a breather. Has anyone heard of this happening 1.5 years after finishing Taxol? I…
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BC Treatment Linked to Increased Risk of Diabetes and High BP
Breast Cancer Treatment Linked to Increased Risk of Diabetes and High Blood Pressure May 25, 2022 Women with a history of invasive breast cancer had a higher risk of developing high blood pressure and diabetes than women without a history of breast cancer. Read more...
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Chemo induced Neuropathy
After my last treatment of chemo I ended up getting chemo induced neuropathy. After a while it went away. Now I think it is back again. Is this normal? My last treatment was on August 11th. Also, can it be just in part of you foot/feet? Mine are just in a few of my toes. Thanks
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Anastrazole
I have extreme stiffness and pain in my hands. I have very little strength in them. Is this Anastrazole or arthritis? It is getting worse every day.
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Light Therapy May Ease Fatigue and Improve Sleep for Survivors
Light Therapy May Ease Fatigue and Improve Sleep for Breast Cancer Survivors Mar 31, 2022 Wearing a light therapy visor cap at home improved sleep and eased fatigue in women who completed treatment for early-stage breast cancer. Read more...
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Tool May Help Predict Fatigue After Breast Cancer Treatment
Tool May Help Predict Fatigue After Breast Cancer Treatment Mar 23, 2022 Researchers have developed a tool that may help doctors figure out who has the highest risk of fatigue after breast cancer treatment. Read more...
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Women More Likely To Have Severe Side Effects From Treatment
Women More Likely To Have Severe Side Effects From Cancer Treatment Mar 22, 2022 Women are 34% more likely to have severe side effects during and after cancer treatment than men. Read more...
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Anemia - after chemo, before rads?
I finished chemo (4 AC, 12 Taxol) on 4/14, and I start rads later today. Adriamycin gave me some cardiotoxicity, and I take a beta blocker to slow my heart. I've consistently felt worse since completing chemo than while I was going through treatment, but when I last saw the MO he wanted to wait about six weeks to see if…
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HELP! Heartburn is intolerable!!
Hello, I am desperate and in need of ANY tips to help. I rarely had heartburn before getting chemo (and after the first round it took me a bit to even realize that most of the symptoms were even heartburn that I was experiencing) and this is as bad as it can get. After every chemo session I lose 10-15 lbs before I can…
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Pneumonitis, groundglass, consolidative opacities
Hello all. I had a CT yesterday to evaluate a blood clot that I got from my port-a-cath. It is my3rd CT since December. They noted a non-cardiac finding: "new multifocal peribronchial groundglass and consolidative opacities in the upper left lobe which may represent multifocal infection or drug related pneumonitis." My…
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Hair loss from Head
My 52 yr. old daughter has recently been diagnosed with stage 2 breast cancer. She will be starting Chemo in the next week or 2. No one in our family has ever had this kind of cancer and when the family did it was lung cancer back in 88'. My hope is someone can help me on how to respond or help my daughter. Her hair on her…
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Tamoxifen - bruising - diabetes
since mid 2019 started tamoxifen. Bruising on lower legs started. And am type 2 diabetic now. If I take long walks bruising increases Planning for keto diet
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Taxotere/Carboplatin/Herceptin and Permanent Partial Alopecia
Would anyone here have been through the TCH regimen for HER2+ and also not had their hair come back normally? Any feedback on what you have tried, if so, and how it did or didn't help? I knew going in that a tiny percentage of women never get any hair back after Taxotere. And a small but more significant percentage end up…
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Ocular migraines
I've had some migraines in the past, but not too often. Since starting tamoxifen I've had more, one lasting ten days in December. Oncologist is aware I've had them, plus cognitive issues and some dizziness. In the last month, I’ve had 6 episodes of seeing dark flashing, along with dizziness, and a headache three of those…