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Elevated alk phos
Hi everyone! I was diagnosed in August of 2016. I had a double mastectomy, radiation, complete hysterectomy by the 1st of the year. I was 46 at the time and premenopausal. I began arimidex January 1st and have seen a rise in my alk phos. During radiation my levels were 69, 88, 78. The next blood test was in march which I…
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Why am I so afraid of mammograms?
Tomorrow I have my mammogram. If all is well, I will be 10 years since my diagnosis. Each year, life stands still until I get my mammogram. I don't plan and my anxiety goes off the wall. I wish I knew how to control this, I know the odds are good. Does anyone also experience this? Any coping mechanisms? Lola
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Swollen bilateral axillary lymph nodes post mastectomy
I had a mastectomy on my right side only in late June 2021. Had revision surgery 5 weeks ago. My calcium level in my blood has been elevated all year so my oncologist ordered a CT scan and bone scan. CT came back with swollen bilateral axillary lymph nodes. My oncologist wants to see me first thing Monday morning. I had 3…
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Intermediate Oncotype Test - Dilemma!
Hi All (you very brave Gals and Guys), New to posting here. Unfortunately not new to breast cancer. Had contralateral breast cancer diagnosed December 2016, mastectomy (no recon) in early January. My first breast cancer was nearly 20 years ago (right side). I was only 48 at the time, had mastectomy, chemo and tamox for 5…
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Lumpectomy site changes after weight loss
Hey everyone! It’s been a while since I have posted here. I lurk from time to time. I am scheduled for a diagnostic mammo and us in late Oct. I have noticed some changes in both breasts here recently. I went in for a check up with my BS and she said my right (unaffected) breast felt nodular so she ordered the mammo and us.…
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Should I have chemo
I am 68 and in good health. I had my oncotype done twice..the first time came back at 31 and the second time 27. I have a stage 1b lobular carcinoma, 1cm, node negative, grade 2, er+PR-, HER2-. I am BRAC negative. I have been told the benefit of chemo would be 1-3% with a chance of recurrence in 10 years being 10%. I have…
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Stage 1 IDC without any hormone treatment after surgery?
Diagnosed as IDC three moths ago and had mastectomy in July. Stage 1c, node-negative, tumor size 12mm, ER+, PR-, HER2-, Grade 2, Oncotype 21. One MO prescribed Arimidex and another Letrozole. but I don't want to take it due to existing medical conditions-osteoporosis, high cholesterol, poor liver history, frequent rashes,…
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RSClin oncotype scores
I have heard there is a new way of looking at the oncotype score that is a tool that takes into account your clinical features and gives an even more accurate predictive and diagnostic score. Does anyone know how you can find your RCSlin? I have a one centimeter ILC, node negative, grade 2 tumor and was 68 at diagnosis. I…
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Stage 1, grade 1—Did you have a recurrence years later??
Hi Friends: Just curious how many of you are IDC stage 1, grade 1 and had a recurrence after your initial dx? Also, can you share how your recurrence was found? Manual exam, mammogram, ultrasound, MRI, etc? Please share your stories with us. Thank you.
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How can someone jump from 1A to 4 quickly?
So I'm lurking on all the boards and I keep seeing women with my type of numbers suddenly being diagnosed as Stage 4 fairly quickly. Yet, according to the SOFT study, 98.6% of Stage 1A women taking Tamox and no chemo don't have any Distance Mets at 5 years. Why am I seeing such a disconnect? One of my concerns is that…
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Oncotype scores
Could people who are ER positive, PR-, Her2negative share their oncotype scores. It seems like if you have PR- you will have an oncotype above 25..did anyone have PR- and have a low oncotype score.I was Er+, PR- and had a 29 oncotype.
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Anyone reject the Hormone Treatment
Onco 23% with no Hormonal Treatment 15% per the doctor if I take Hormonal Treatment only 8% if I did take it. Breast Cancer 1cm Stage1A, Grade 2, ER+ PR+ Her2- Had a bilateral mastectomy no cemo/Radiation needed. May 2015, Reconstruction complete December 2015. Anyone out there reject Hormone Treatment and still a…
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How many years have you been a Survivor?
Hi Ladies, I see this topic was posted in the Stage IV forum and I thought it would be interesting to see how it looked for our group of Stage I ladies. I will start by saying I'm a 4 year survivor. Have a good day!
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"Dumped" by my oncologist after 3 years
Well 'dumped' may be too strong a word, but that is how I felt. As my oncologist was leaving the room after my last appointment, he casually mentioned that I would be seeing the Nurse Practioner instead of him from now on, though I would still be under his care if I needed further treatment. Then he just walked out the…
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Anyone ER + taking Metformin alone or in addition to Tamoxifen ?
I am ER positive and I like to take Metformin in addition to Tamoxifen, or maybe instead. My position is, why should I wait for years for the clinical trials to be finished. This is not an expensive drug, and it has been around for a long time, why not take it? What do I have to loose? Has anyone else ER + considered…
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Lower inner quadrant?
Im going for my core biopsy tomorrow and am looking to find any women who have been Dx-ed with breast cancer in the lower inner quadrant of the breast? Im looking to find the basic "what to expect" if test results come back positive. My mammorgram and ultrasound showed a sold mass at about the 4'o clock position. Im…
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Pain after Lumpectomy
I am entering the third week after a lumpectomy and removal of lymphnode. Does anyone know how long before I can use my arm without it stabbing me with needles. Even goosebumps and chills wake up my arm and armpit area. OUCH! I can't even graze it with a blanket or touch it. It has this unexplainable pain and discomfort.
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Adjvnt Therapy: Destroys or delays growth of stray BC cells?
So this question popped into my head and has been bugging me. Can't get any info out of Dr. Google and I'd ask my Onc , but my next appt isn't until September. So if chemotherapy/hormone therapy can not cure metatastic breast cancer..only hold it at bay. Is that the same for adjuvant chemotherapy and hormonal therapy after…