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CMF Question

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  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    Hi ladies, hope all are well and healthy!!

    Harley, good to see you, thanks for the hello, and right back at ya!  I hope your gyn appt. goes very well and that you have nice low levels.  Will they then put you  on Arimidex or Femara? (don't know the difference between these two if any, Carol, shout out to you, if you do)

    Hi Rita!  I was also wondering since you are our arimidex lady, if they put you on a biophosphate for your bones as well?  Great news on that Zometa, only I have a couple of root canals I have put off for chemo, and am allergic to both aspirin and tetracycline, and have asthma, some stuff I think is not indicated with biophosphates.  Just wondering what they did for your bones or if they just monitor them.  I have a bone density test next wednesday, I am supposing it is a baseline.

    ,,,and stupid question time, did they say no to a glass of wine while on any of this stuff?  I shouldn't in general at all, but I do miss the occasional glass with my hubby on the deck I must say.

    Well, time will tell, Carol and Ginny and all I hope you guys are feeling great!

    Julie, hang in there!

    love to all

    annie

  • golfer779
    golfer779 Member Posts: 410
    edited September 2008

    Hey Ladies,

    Been reading the post, sorry for just lurking.  I spent quite a bit of time over the weekend, coming up with a thank you letter for family/friends that donated to the 3 Day.  I've also been logging a few more miles this weekend.  Now at this point, I hope I'll be ready. 

    Annie, noticed your last in regards to Femera.  I'll be totally honest with you, I don't really know the difference in Arimidex and Femera.  I just know that they both are Aromotase Inhibitors (AI).  When the ovaries are not the main producers of estrogen then the AI are recommended.  If the ovary factory is still up and running then Tamoxifan is usually suggested.  Atleast this is my understanding.

    I did ask my onc about having alcohol while taking Femera (no problemo !!!)  I am happy to report as well that I have had no side effects at this point.  Every once in a while I think "do my bones ache"?, then I usually decide it just from working in the yard, or something along those lines.

    I did have the Zometa infusion last week, no se's from that either.  Who knows, maybe I'm just one of the lucky ones. 

     Speaking of lucky, hoping that my path report on this darn mole comes back B9.  That would be a real sh*tty deal to cope with.  If I don't hear anything by tomorrow, I'll be calling the Derm office.  The stitches don't come out until next week, the tenderness has subsided quite a bit.  Should be swinging a golf club soon!!!

    Know that I think of you all often, although I may just sneak a peak.  When I think I should pick up the phone and make a call or two for a chat, its usually dinner/bed time in the east.   Maybe I'll get some time from work to yak it up.

    Be well my friends, Carol

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008

    Carol,

    Still hoping that you get the news soon that the mole they removed is B-9!!

    My gyn onc appt. was cancelled and rescheduled for Sept. 8th... 

    Oh, Annie,  I am hoping that I get HIGH numbers, so I can switch to an AI...  no worries there.  I have long since accepted that it's GOD's plan for me not to have any children of my own, and I am getting kind of old to be having to raise a child at this point.  If I don't get HIGH numbers, then I will have to insist on a hysterectomy, and I really don't want another surgery right now. 

    Well, we are anxiously awaiting the arrival of Hannah, and she should be here on Friday and Saturday maybe.  We are expecting high winds, and rain.  This will be the first hurricane we've had since moving to NC in 2006!

    Hope everyone is doing well.

    Hugs,

    Harley 

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2008

    Hi gals....We went away for the holiday weekend and it was so nice just to get away.  We hit some casinos, golfed a lovely golf course, and just explored the area.  Now it's back to the regular routine.

    Annie...I had the routine bone density test before I started the Arimidex.  He insinuated that he would scan me again in March to see if there is any bone deterioration.  In the meantime, I am only taking calcium, magnesium, and Vitamin D3. 

    I think there is very little difference between Arimidex and Femara.  Femara is newer and has not been tested as heavily as Arimidex..........the main reason that my onc prefers Arimidex right now.  However, he did say that if I couldn't tolerate the Arimidex, he would switch me to the Femara.  This leads me to think that there is very little difference between the two.  He also said that I could drink alcohol in moderation.

    It's late and I need to get to bed but wanted to check in and see how everyone has been doing.  It looks like everyone has been busy.........and that's good.

    More tomorrow..........good night.

    Rita

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    Hi girls, hope everyone is feeling well tonight....had a nice day, my onc hugged me and said "we did it" which felt great, but odd, I've been doing this now for a year (as you all well know also) and to have someone say 'we are done" is so weird....

     Now come all the monitoring tests; heart (echo) bone scan, lungs (had and OK) etc. etc. followed up by a mammo on remaining girl and the exchange for the permanent impant....all good things, moving onto better days!

    I did not get the bone drug, only reccs to take Vitamin D (800 mg. fine in a multi) and 1500 mg. daily of calcium for bones.  Will get arimidex after bone scan I guess.  It's tiring, but good to get thru to this stage of things.  Am quite confident that after 6 mos. of chemo the remaining girl will be cancer free anyway!

    Carol, you sound great, so glad no SEs for you.  As i understood it today, there is no difference between femara and arimidex, it's only that arimidex has been around a little longer and femara is the one that usually does not have side effects.  So you sound like one of the lucky ones!

    harley, so glad to hear from you and that you are well.  I am hoping for high numbers for you, then so you can do the AI.  I want a hysterectomy, I can't wait to get this stuff out of me.  So far, they will only talk about the ooph, prob. in December timeframe.  More lupron, oh good.

    rita, great that you got away, glad you are feeling well, hope that foot is doing OK too.

    I had two glasses of wine tonight!!! Surprised Whoo, I feel naughty!

    love to all

    annie

    Hi ginny, wherever you are!!  And Julie, always keeping you in my prayers, kiddo.

  • golfer779
    golfer779 Member Posts: 410
    edited September 2008

    Hi Ladies,

    Happy to report that my "freckle" biopsy came back B9 !!!   I felt pretty strongly that it would be, although I definitely never expected to have bc when I had a physical last year so in the very back of my head the nerves we're a bit on edge.

    My focus over the next week will be preparing for the 3 Day.  As it gets closer, I'm thinking that I must have been crazy to commit to it.  Yesterday I went to an "Adult Novelty" store looking for "boob" relating stuff to decorate our tent.  Trust me, I must of had a very red face entering/exiting that store.  Did find some goofy stuff, balloons, necklaces that will be fun.

    Okay, I'm at work so GTG ... thanks for the nice kind thoughts being sent my way ... I feel each and every one of them.  

    Carol

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2008

    Carol...so glad the tests were B-9!  That's what we like to hear!  Now it's onward and upward for you.

    I have been having computer problems and can only use my laptop right now so I haven't been posting much. 

    We had a great weekend away....just what I needed, I think. 

    It looks like most of you are doing well.

     Annie...what a great onc you have!  I think he's a keeper.  YOU ARE DONE!  Doesn't that sound good?????

    I'll be back later.

    Rita

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

     Carol..........

    WHOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOHOOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!

    Hurray For B9!!!  Whoa that's gotta feel great.  Love the boob decor story, I like your style girl!

    Hi Rita, yes, that onc is a very kind man.  YES I am done.  Will keep on repeating that to myself, cuz I sure don't feel done.  Still have all those damn follow up tests, but I need to remember that they are FOLLOW UP TESTS/  A bit gunshy I think from the "surprise" this time around after 6 years.  However, doesn't mean I cannot go another 40 years without a thing, right?  to be honest, the recon takes so long that you just can feel kind of stalled. 

    Still have quite a month of monitoring ahead...echocardiogram (since the other test was fine, I am assuming this will be too), bone density (a big nothing, right? like a big x ray?), follow up mammo on the other girl, etc., blah blah.  It's an interesting thing I notice tho...that now we have had "the worst" happen, in that we all had mastectomies, and we have found out that we are still standing and life is good, it is almost as tho I have an attitude of "oh yeah? So what." about it.  Not that it doesn't get me nervous, it does.  But that I am perversely determined not to let it run my life, if they find anything, well then, it just gets fixed, that's all.  I've been "fixed" twice now, and I intend to just keep on fixing things should they turn up.  But am keeping my head screwed into life not, ducking stuff.

    big talk, let's see if I can stick to it!  Esp. with a heart test...however, I certainly need to know if there is an issue before I have any more surgery and I can't wait to get my girl finished up and those ovaries outta here.  Leggo my Eggos, indeed.

    Rita, so nice you had a great weekend away, always such a good thing to do.

    Harley, you around and OK lady?  Ginny hope all is well.  Julie, as always, thinking of your upcoming surgery which means you will be cured!!!

    love to all of you

    annie

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2008

    Annie.....How well I understand that "it doesn't feel like I am done" feeling.  I'm the world's best worrier....I worried myself sick about every test that I've had since I have been "done."  Heck, I even worry about the routine check-ups and appointments, the mammos, etc.  I'm so good at worrying that I will be glad to do your worrying for you!  LOL   All kidding aside, we have every right in the world to be apprehensive about these tests.  That's what most people who haven't been through this journey don't get.  If you have gall bladder trouble, they remove your gall bladder and after you recover from the surgery, you don't have to worry.  It's fixed.  The same might be true for us but we don't have that peace of mind because there's no real guarantee with the big C.  So when it comes time for those routine dr. trips and the tests.......we get apprehensive because what if???????    So I will be thinking about you, sending good vibes and prayers for you as you move through these tests.  I admire you so much for all the way that you faced your second bout with this terrible disease because I really don't think I would have been so strong. 

    I have to admit that I had a terrible time when all the treatments were over....dealing with the "ifs."  I'm doing better now.  I find myself signing up for bowling leagues and planning things in the future.  Dave and I are thinking about heading west in May to the Grand Canyon, Vegas, and the Colorado and Arizona sites.  I guess that's what you're talking about when you say that you're "keeping your head screwed into life."  If we spend our days worrying, we waste those days.  Gosh.....I wonder how many years I have wasted over the last 61?  LOL

    So hang in there gal.............you're on the last lap with these tests and think how good we're all going to feel when they come back good and clear.  :-)

    Ginny....I'll see you one week from today!  I can't believe that day is almost here!!!

    Hugs to Julie, Harley, Ginny, Jill, and all you other CMF gals!

    Rita

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008

    Carol,

    YEAH.... B-9!!   I have been busy, working mostly, and I missed your post.  So glad to hear the good news!

    Annie,

    I'm here... just quiet.  I've been working alot.  I'm tired now... but I have 4 days off in a row!  YEAH!

    We are still waiting for Hanna to arrive.  It will be our first hurricane since moving to NC 2 years ago.  They think this will remain a tropical storm or else become a very weak cat. 1 hurricane, and that it may not hit us direct... it may make landfall at or near Wrightsville Beach, near Wilmington, so no worries there.  But, the next storm, IKE, is a concern.  They aren't quite sure where IKE is headed, but last report, he was headed directly west... if he continues in that direction, it looks as if he may hit Florida, but we will just maybe get some rain and wind. 

    We shall see....

    Hope everyone has a great weekend!

    Harley

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2008

    Harley...hope you have avoided and do avoid the worst of the hurricanes!  Are you working in the same place or did you find another place to work?

    Rita

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008

    Rita,

    How are you doing? 

    Yes, I'm still working at the boutique, in town, and it is ok, but I just can't stand for so many hours!  I only work part of the day, and that seems to help.  But, business has been slow lately, because of the storm coming, but also because of the economy.  People are just not spending money on these 'luxuries' as much anymore.

    I am considering maybe applying for a job in the school system, so that I can have summers off. 

    I still haven't heard from the Reach to Recovery program people, but the woman I spoke to last month told me that she is planning a training session in October. 

    Well, hope everyone has a great weekend!

    Harley 

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2008

    Harley.,..the school district would be great.  They are always looking for good teacher aides, library help, kitchen help, etc. around here.  Most of these jobs come with benefits, too.  I'd certainly go get an application and see what evolves.

    How bad did you get hit with this last hurricane?

    Rita

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    good AM ladies;

    I certainly hope everyone (Harley esp.) missed that weather...Harley did you get hit by the hurricane?  I hope it was minor if you guys did.

    We had a tornado watch last night.  Spent 1/2 hour in our basement with my hubby, sister and her two kids.  And the cat.  Nothing hit as far as I know, but have not heard reports of damages etc.  This happens so rarely here that it was very odd, I had a hard time convincing my hubby that yes, they were telling us to get in a basement and that yes, they were not kidding.  Fun eve.

    Was going to pop down to see my daughter this AM but she called and said too much work to do. :(  Perhaps that is her way of saying she would like some space.  I am respecting her boundaries, as she does have her bf and it's good for her to call it.  I'll see her next weekend.

    Still, ouch :(....

    I hope everybody is feeling well and doing their thing...Harley, good to see you on here, I thought you had quit that job, but I am glad you are doing it if you like it.  We know they like you!

    Rita, Carol, Ginny, Julie, how are you guys doing?  I hope that the quiet board means all is great for everyone!  i go for echocardiogram tomorrow and it has me a tiny bit nervous (any dr. visit does)  Funny story:  the cardiologist came up as Augenbraum on my caller ID....that was a boy my daughter was very friendly with in high school and still is...I asked, and yup, it is his dad.

    Small world!  Everyone enjoy this pretty day, and I hope all are well and happy!

    love to all

    annie

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008

    Rita,

    Thanks for checking on me!  We were right in the path of Hanna, so she was directly over us, but we didn't get any damage, just some high winds (about 72 mph!) and some heavy rain, at times.  It started around 12:30am, and the worst of it was over by about 2:30am. 

    I have to check to find out where I need to go to apply for a job in the schools.  I guess it's too late for this year.

    Annie,

    Thinking of you, and all those tests you are having...  I know it can be very nerve-wracking, worrying about the 'what if'?  I admire you, and how you faced this demon head on, not once, but twice!!  I think I would just hide under the bed with my cat, Spike.

    Hope everyone has a great day! 

    Harley 

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    oops hi to Jill also! 

    xoxo

    annie

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    Hi Harley, so glad you came out OK...scarey stuff!

    Believe me, I am a total chicken with all this stuff, I just figure I have to either fix it or let it "fix" me, and that ain't gonna happen.  I play to win.  But if I had my druthers, Dave would come back and I would also get under the bed with him and Emma as well!  Except for all the dust bunniesSurprised

    But really glad to hear you are all OK!

    xoxo 

  • golfer779
    golfer779 Member Posts: 410
    edited September 2008

    Hi Ladies

    Boy the weekends just goes by too fast.  Spent Sat packing my bag for the 3 Day, and then the dh and I stained the deck.  Kinda late in the year to be doing that, but better late than never.  Had friends over for dinner as well.

    Today we hit the links for a round of golf with my boss and co-worker.  I was hoping that the stitches in my back would be okay, and they appeared to be no problem.  I'm looking forward to getting those buggers out on Weds. 

    I had been thinking of those in the path of some of that nasty weather on the East Coast.  Seems like every morning there has been a new storm making the news.  Glad to hear that all is well Harley and Annie too.

    So Rita are we still golfing or is it time for bowling?  Aren't you going to be meeting Ginny soon? 

    I have a short work week, heading to Seattle on Thursday, and gearing up to walk starting Friday morning.  I think I had chemo brain when I commited to do this walk.  I am pretty stoked that I was able to raise just over 4K for the Komen Foundation. 

    Hoping for a decent Sunday night of sleep, for some reason I usually don't sleep well on Sundays. 

    Be well my friends, Carol

  • 3ofus
    3ofus Member Posts: 201
    edited September 2008

    Hi CMF friends,

    Sorry I have been MIA for awhile.  The day of my dh's suprise 50 +1 birthday party I got strep throat and it went into the roof of my mouth where I had burned it a few days before.  So tough to eat for a week---far worse than any chemo mouth sores I got---go figure!  About the same time, my dog broke a ligament in his knee.  Poor guy is having major surgery the day I leave for Chicago!  The vet is going to call my cell and let me know how he does.  He is strong and healthy for an 11 year old Jack Russell, so I am not too worried Undecided I'm asking St. Francis to say some extra prayers for him!  Never a dull medical moment in our house. (LOL)

    Carol, YAAAAHOOOO that your "freckle" is b9. I so agree with Rita, I was also really nervous the first, probably 10 months, after finishing treatments.  I think it was a tougher time emotionally than even during treatment.  Thank God, all things do pass.  The "what if's" do lower in intensity and like Annie said, the "So What" attitude starts to emerge.  Really makes you realize you can get through some pretty scary stuff and over time, it even begins to fade!  So here is to "moving ahead" girls!!!!  So many blessings to enjoy each day---thank God!

    Rita, I am really looking forward to finally meeting you in person, this Thursday!!!  I will send you an email today to confirm our meeting.  To think we met here over a year and a half ago!!!  My 2 year diagnosis coincides with my Chicago trip---after I got home from my dh's convention 2 years ago, on September the 11th!  (my Sept. 10th flight was cancelled and I flew that day instead)  I got home to a phone message from my doc. saying I had a "suspicious mammo" and needed to have a core biopsy asap!  Wow-----2 years later I am meeting you, Rita, on September the 11th---a much better day, for sure!!!!Laughing So I think we should have a great celebration, for all of us that day!!!

    Carol, I hope your walk goes really well and you have lots of fun (and are not too fatigued).  You are amazing!!!

    Annie, your posts always make me smile--you are so funny!  I hope we get to meet someday too!  Anyone interested in a CMF reunion in Toronto? (you are welcome to stay at my place). 

    Harley, I'm glad you did not experience harm from the storm---yeah!

    Hi to Jill, hope all is well and everyone else who visits here.

    Hugs,

    Ginny

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2008

    Ginny....You're so right!  We will special things to celebrate on Thursday.  I can't wait!  Hmm....a CMF reunion in Toronto????  Interesting!  That might be worth thinking about in the future.

    Gotta run...Catch you all later.

    Rita

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    Hello ladies, it's raining here, I hope it's sunny where you guys are!

    Hm, a CMF reunion in Toronto?  Definitely worth thinking about!  I'd love to meet everyone in person.

    Ginny and Rita, have so much fun together on Thursday.  We CMFers have a very special bond, kind of like war vets almost.  Ginny we had one nutty jack russell for about 5 years, Amy.  Those dogs just bounce.  They are so strong and energetic, I bet he'll heal in a nano second.  Hope the hubby is doing well, and strep top of the mouth!!! OW!!! I hope you are all better!

    Carol, I think it's wonderful what you are doing for the Komen walk.  God speed to you and feel well, pace yourself hon.  Please fill us all in when you get back!

    Well, test #2 (echocardiogram) down for me...have no results yet (oh such fun that is) but I highly doubt there is any problem with it.  I have prayed to St. Theresa and I have alot of faith things will be fine.  Now it's onto 2nd lupron shot tomorrow and bone scan.  I am not too worried, I'll just put the head down and get on with it.  I know if they removed my ovaries, that'd be a super crash into menopause and tho lupron has some nasty SEs, (achies and such) it's not as bad as instant meno.  So that's this week! 

    Hi to everyone else I missed a shout out to, Harley, Jill....Jill, I hope you are hanging in there and just keeping busy til your surgery.  Remember, this is a good thing you are doing to ensure you will be having a good, long life.  I am getting expander out on 10/10, (god willing the mammogram on the other girl is AOK), and I'll let you all know how that went and if the foob looks more like a boob, she'll still have her eye shut til after the oopharectomy in Dec/Jan, then nipples can happen in Jan.  I told my husband, fipple for valentines' day!  Getting there.........recon does take forever with all the other stuff that has to go on simultaneously.  You know you have to laugh about this stuff, or you couldn't do it, or at least I sure couldn't!

    And certainly, thanks to you ladies, not have been strong(ish) or sane(ish) during it all.....my heartfelt thanks again for the support, love and kindness I have met with here to all of you.

    xoxo

    annie

  • golfer779
    golfer779 Member Posts: 410
    edited September 2008

    Hey ladies, just a quickie ... I'm heading over to the Seattle side of the water today.  The 3 day event starts tomorrow morning at 5:00 with opening ceremonies, and concludes 60 miles later on Sunday.  I'm very nervous in an excited way ... I'll have a report and hopefully some pics to share next week. 

    Be well my friends ... Carol

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008

    Annie,

    I am still praying that your tests will all come out ok, and I am sure that they will be fine.  
    I saw my pcp dr. on Tuesday, and told him that I have just been SO TIRED lately!, so he ordered some bloodwork, and gave me a B-12 shot.  OUCH!  I guess it helped, since I am feeling less fatigued.  I still have this stiff, sore neck, and am wondering what is the deal with that.  Next week, it will be one month that I had this neck pain, and I am not sure if I should call my dr., and anyway, which one should I call?   Also, I had my pcp dr. check out a lump on my new breast; it's where I found the lump which led to my bc dx.  I'm concerned about it, but my dr. and I think it is scar tissue.  At least, I hope that is all it is.  I am supposed to go back to see him on Oct. 10th, and he'll check it again.  Any ideas?   

    Carol,

    Good Luck with your 3 day event!!  Please send some pics!!

    Hugs to all,

    Harley 

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    Hi ladies, Carol, good luck with your walk, and good for you!! Can't wait to see pics!

    Harley, hon, it certainly sounds like scar tissue.  You could always ask for an ultrasound ahead of time if you are concerned, but it really sounds like scar tissue.  There's always that "surprise" out there, but I am sooooo much in the minority,you shouldn't go by that.  You are also on tamoxifen aren't you?  This cuts risk bigtime.  You are probably just tired from working so much which you did say you were doing.  Neck pain....what are you doing at work that stresses your neck, reaching up too far?  Too much tension?  Usually if you think what you've been doing, you can find an answer.  After bc , the challege is to find the "ordinary" again...not every ache and pain means something, in fact it's usually nothing.

    Thank you for your very kind thoughts on all the tests...my halloween skeleton (that is what it looked like, ugh) was fine, they said normal! yay! And have not heard on the heart test, but I am pretty sure if there was a prob. I'd have heard by now.  And I would think they would not let me out of the office if I had a heart issue.  That'd be nuts!

    Just the mammo to get thru at end of month and onto permanent implant exchange.  I cannot wait.  This expander is so uncomfortable.

    Everyone else, I hope you are all busy and happy and the quiet board means just that!

    Love to you all, Harley, I will send an extra prayer up for you to have nuttin at all!!!

    annie

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008

    Annie,


    Thanks!  Glad that your tests are all ok, so far.  I'm sure that the heart is good, and I know that your mammo will be just fine, too.

    I didn't mention the stiff sore neck to my pcp when I saw him on Tuesday.  I guess it won't hurt to wait until next month to check out the lump.  I really think it IS scar tissue, but if it's still there, and if we think it seems to look suspicious, I'll ask for an ultrasound, and a referral to see my surgeon, who I just LOVE!   I know that he will know just how to make me feel better. 

    I can't think of anything I may have done to cause this neck pain, except...  one night, I was laying in bed, and I got up suddenly, and there was this SHARP pain in the left side, in the back of my head, and I've had neck pain and pain in the back of my head ever since.  I keep thinking that since it gets better, it should be ok.  It seemed to get better on the left side, but now the right side hurts! 

    When I was in high school, I bent over to get into my bottom dresser drawer, and MAN!, did my neck hurt!  ALL day, I couldn't move my neck, so if I had to turn, I would just turn my whole body!  My sister took me to see an osteopathic dr., who put heat on it, and then he cracked my neck, and it felt better!  I wonder if I need to see a chiropractor or another osteopathic dr. again. 

    Thanks again!  When is your exchange surgery?  Will it be in early October?

    Hugs,

    Harley 

  • Annabella58
    Annabella58 Member Posts: 916
    edited September 2008

    Harley, I was kind of chuckling as I read your post (never bec. someone is in pain) but because, smart lady, you've already figured out why your neck hurts!

    I have a "crick" in the neck as well, it goes out on me sometimes and then I walk around like Igor.

    For now, you could try a good warm long shower on it and gentle stretches.  mine ususally resolves itself in a week or so.

    But honey, if you are worried about the lump, go see your surgeon by all means.  Life is too short to spend it in anxiety over anything.

    thanks for all the good thoughts, I'm hoping all goes well with the mammo on the 29th.  My exchange (fingers crossed for mammo) is 10/10, I am very glad to get there.  Having a lat flap discussion on the recon site now about the tight bra feeling etc. altho I was really really helped by the exercises the pt gave me. 

    love to all my CMFrs...thinking of Carol walking today and mentally cheering her on.

    xoxoxo

    annie

  • ritajean
    ritajean Member Posts: 4,042
    edited September 2008

    Hi gals!

    I just couldn't wait to tell you how lovely, energetic, and fantastic our Canadian Ginny is!   She has this marvelous little accent and is so slender and gorgeous...........and JulieChicago, her hair looks wonderful!

    As you know, I took the train up yesterday to meet her.  I panicked big time when my cell phone would not call her cell phone number (maybe because I just have a TracPhone and it's a service out of the country???? Don't really know but I'm sure going to check it out!).  So.....I grabbed a cab and went to her hotel anyway and explained my situation to doorman, who whipped out his fancy cell phone and dialed her up!  :-)   

    We went for coffee/tea at a neat corner bakery near the hotel and chatted and chatted and chatted.  Then we started to walk the streets  (now that sounds real good doesn't it????) and decided shortly that we'd do lunch and talk some more.  She treated me to a VERY special lunch at the top of the John Hancock Building on the 95th floor with a fantastic view of the lake and the city.  We started with wine, progressed to a great buffet, and ended with some sinful dessert.  We talked and we talked and we talked and spent most of our time there.  It's strange how two people who have never met in person could share such a strong bond and have so much to talk about.  We really needed more time so that we could actually "do something" other than eat, drink, and talk.  It was SO wonderful!  We really do need to think about a CMF reunion in the future.  Ginny volunteered Toronto but if that won't work, we could come to the east coast.  Keep that in the back of your minds.

    It was an afternoon to treasure and both of us had tears in our eyes as she turned to go back to her hotel and I grabbed a cab to Union Station to catch the train.  (and it's a good thing I went when I did, Ginny as the station was a mess and the lines were horrendous.) 

    I have pictures and will post them soon when I get time.

    Harley....I had a stiff neck last night, too.  I know mine was stress.  I worry about everything and was worried about getting into the city, locating Ginny, and getting back on the right train home.  It went so well and I had nothing to worry about.........I will use the train more often instead of driving up to a suburb and then taking the subway system into the city.

    Annie...so GLAD that all the tests are coming back good.  That's what we want to hear!  HUGS to you!

    I need to get moving.  I've been lazy this morning!  I'll get those pictures posted when I have more time to fool with them.  For some reason (maybe my positive vibes????? LOL) I never seem to get it right on the first try!

    Love to all of you!

    Rita 

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008


    Annie,

    Still thinking of you, and praying that the rest of your tests will come out ok.. I am sure they will all be fine.

    Well, I made an appt. to see my surgeon on Tuesday!  They are so nice there, and they always 'fit you in', if you call to see my surgeon.  Not only because you said to do it, but I saw my MIL today, and we had lunch together.  She said, "You better go see Dr. Greco!"  So, I am going because 'Mom' said so.

    Harley

    My neck is feeling better, maybe because I took THREE Ibuprofen this morning, and I think I'll take THREE more tonight and see what happens.  It just didn't seem like they were helping, so I had stopped taking them... and, ever since chemo, I get these horrible bruises whenever I take it.

    Rita, glad you had fun with Ginny!  I wish I could meet everyone, but for now, I have to settle for seeing one of the ladies from bc.org, when I go to Wilmington to see my onc.  Shirley is very nice, and we always have fun whenever I go up there.  My neck has been stiff for almost a month now, so I was getting worried, since nothing seemed to help.  But it IS feeling better now, so maybe it is going to finally go away. 

  • Juliechicago
    Juliechicago Member Posts: 179
    edited September 2008

    Harley..

    For what it's worth, I had terrible neck pain for nearly a month and it finally got so bad that out of desperation, I picked a chiropractor out of the phone book. She turned out to be wonderful-- and having nursed her mother and other relatives through cancer treatment-- knew to send me for an MRI immediately.  I was convinced it was mets to the spine.  And- it wasn't.  Just a plain old herniated disc at C5/C6.  She works with very gentle manipulations and massage and within 2 weeks the pain was gone. 

    Sometimes....it's good to hear stories about what pain is not....I know I definitely looked for them.

    -julie b in soggy Palatine.....

    *There's a lake in my backyard.  Last time this happened, we had ducks visit.............

  • Harley44
    Harley44 Member Posts: 2,126
    edited September 2008

    Julie,


    Thanks for the advice about your herniated disc and your chiropractor...

    I went with my dh to a HOME show, and there were vendors selling hot tubs/spas and pools, and grills, patios, hurricane window treatments, and all sorts of stuff.  There was a chiropractor there, and he said that I definitely have some issues with my neck... but I think he said that to everyone, because he even tested my dh...  he made us step on some kind of scale, and I think things were a little off balance, because EVERYONE who stepped on that thing looked uneven, and one shoulder looked higher than the other.... 

    I do know that I have a herniated disc, but lower... I think it is L1 and L2.  I was having some lower back problems in March and my surgeon ordered an MRI which showed the herniated disc.  The neck pain is back today, but I am taking Ibuprofen, every 4 hours or so...   I bought some new pillows, and I don't know what else to do.

    I also look for stories about neck & back pain that are not cancer... I know that most aches and pains are NOT...  It IS very encouraging to hear these stories!

    Sorry it is rainy and wet...  We used to have ducks come in our backyard when we had lots of rain, when I lived in Maryland.  We have a pond here, with ducks, but even though I see them around the neighborhood, they don't come into my yard.  : - (

    Harley