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CMF Question

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  • ritajean
    ritajean Member Posts: 4,042
    edited July 2008

    Oh my gosh, Jill!  That's just SUPER!!!!   See the CMF did its trick!  I wish I was closer so I could jump up and down with you and give you a big hug!  You are right!  That rock is gone and you're on your way to many more years of NED!!!

    Breathe in, breathe out and get on with the rest of your life, gal!

    Rita

  • golfer779
    golfer779 Member Posts: 410
    edited July 2008

    Hi Gals,

    First off a very big WHOOOOOHOOOOOOO to you Jill. I'm so glad that you shared the best news you could possibly have with us all. Your story is an inspiration to me.

    Wow, I just went back to re-read some of the posts, I didn't notice how MIA I had been, looks like another WHOOOOOOHOOOOOOO is in order for Ginny as well. Reading the success stories of my fellow CMF-er's has me on cloud nine this morning.

    Harley, I apologize in advance if you have already mentioned about getting a second opinion in regards to your female plumbing issues. What is the reasoning behind your docs decision to not recommend a hysterectomy?

    I'm so sorry to hear of your friend's dh, there is definitely nothing fair about this dog-gone disease.

    Rita, sounds like your as busy as ever, attending class , BTW I'm sure you would be great at doing the Look Good Feel Good seminars as well. Sounds like your foot is atleast not getting any worse, glad to hear that. My golf swing has been temporarily put on hold, the skin on my chest is just a bit too tight to be swinging a golf club. I will be using that time away from the links to put in more training walk miles.

    Oh, I reiterated your PacMan comment to my friend Debra, she really liked the analogy!

    Annie, I loved reading your post and support to Julie, you sound like the veteran CMFer you are. Its so cool how the support works full circle and keeps on giving.

    Julie, hang in there gal, as you can see from our success stories your getting the upper hand and are showing cancer just who's boss here.

    So I'm down to 3 more "regular" rad txts, then 7 boost area txts. I'm definitely toasted, but thankfully as of today, no open sores. I have really had no fatigue, in fact I made a 18+ miler walk again yesterday. I was given some gel pads to use and between them and a wet bandana draped from my shoulder hanging over my chest inside my shirt, I really felt pretty darn good.

    I truly appreciate you all ... what more can I say but LIFE IS GOOD!

    Carol

  • Annabella58
    Annabella58 Member Posts: 916
    edited July 2008

    Jill"

    YAYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1

    Fantastic!!!!!

    love to you!

    Annie

  • Annabella58
    Annabella58 Member Posts: 916
    edited July 2008

    Good  monday Am ladies:

    Just a quickie before I begin laundry et al....have been reading up on arimidex, did anyone who is on it also experience the thinning of hair?  I'm a bit worried after the CMF experience re: hair.

    Also: Anyone feel nausea etc.? 

    Have a good day all, Carol, you sound like you are plugging along.  Glad you are not tired!  You are the poster girl for getting thru treatments!

    Oops! Forgot to also ask: Rita and Carol, you guys talk of color for your hair, is there a space of time I need to wait for this?  i want a full head of highlight lowlighting and it's still shedding a bit.

    love to all:

    annie

  • Annabella58
    Annabella58 Member Posts: 916
    edited July 2008

    p.s. I find on re reading this post, that it makes me laugh...there is nothing like some good old frivolous beauty treatment to cheer a gal up Cool

    xoxo

  • Juliechicago
    Juliechicago Member Posts: 179
    edited July 2008

    Hi,

    Just a question-- am curious.  For those of you who were on the IV 3 wk schedule, do you recall how many mg Cytoxan you received?  I know it's based on height/weight...but wondering what the average is. 

    And Annie-- I agree on the frivolous beauty treatments-- ridiculous what a pedicure can do for me!Smile

  • 3ofus
    3ofus Member Posts: 201
    edited July 2008

    HURRAY JILL!!!!!!!! Awesome, congratulations!  CMF has helped many ladies over the years.  My aunt also had it 27 years ago!  Here's to living life large!Laughing

     All the best Julie.  Rita is right, every treatment can be different.  You should find this more manageable as you learn what are the right meds to take, what to eat, what to drink... And you learn how to cope better.  I also agree with Annie---this is temporary!!  It doesn't feel like it now, but as you start to check off (maybe on your calendar) your treatments, you see the end in sight! The fact that it is effecting your body with s.e. means it is working (pac men) if there are any stray cells.  You can do this!  Hang in there!

    Annie, I so hope you are having a fantastic mini break.  The weather is getting so nice---what a great time for a break!

    I just got my mammo results, and it looks like I am dancing with NED too!  So thankful.  Now I have the energy to take care of my dh who has to have back surgery this Friday.  He was so supportive and wonderful with me and I am so glad to be feeling healthy now, so I can help him.  God is so good!  If my dh had this problem last summer, wow, that would have been sooo tough!

    Rita, hope you are getting a golf game in now!  What great weather this week!

    Carol,  hope all is well with you.

    Blessings everyone,

    Ginny

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2008

    Julie....I had 6 CMF treatments and got the cytoxin every time.  I was under the impression that ^ CMF = 4 AC treatments in success rates and strength.  I imagine that each oncologist has a different opinion on this, though.

    Annie...I colored my hair all through the CMF treatments and never had any trouble at all.  As for the Arimidex, I noticed no hair thinning.  In fact, mine is now back to the thickness it was before treatments.  My main side effects were insomnia for the first 3 months....major at times.....a few hot flashes but not like I had anticipated....and of course the joint problems in the bones on the top of my feet.  So far, I've learned how to work through all of these.  I'm keeping my fingers crossed!

     Carol... I'm sending good vibes for your last few rads!  Hang in there.  I never had to use the gel pads but have heard that they are true "blessings."  It will be over soon for you.  You're on the home stretch of the journey now!  Doesn't that sound good?

    Ginny..always good to see a post from you.  I am really looking forward to meeting you in September. 

    Well, I need to get the market for some decent produce and then fix some dinner before we bowl this evening.  The summer bowling league is about over.  It's a couples league and we've really enjoyed it.

    Hope you're doing well, Julie.  This is treatment week, isn't it?  Please keep us informed!

    Rita

  • Shirlann
    Shirlann Member Posts: 60
    edited July 2008

    Bump

  • Annabella58
    Annabella58 Member Posts: 916
    edited July 2008

     Ginny yAAAAAAAAAAAAAAAAAAYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYY!

    this is wonderful news......CMF seems to be doing wonderful work for all on this board.  I have since read that it is considered just as effective in the long term as AC from the ACS.  I think it must depend on  how swiftly things need to get done for AC vs CMF or something.  I don't know, but those pac men do a good job!  All congrats to you, Ginny!

    My being healthy for my hubby who has been wonderful to me during all this is my priority as well.  Poor guy has put off a needed colonoscopy, a rotor cuff injury that needs a fix.....I know he doesn't want to do anything in case he is needed for my stuff.  I so hope the lung thing turns out to be nothing to I can schedule finishing things to be there for him too.  All the best to your hubby, he's in good hands, I can tell.

    Everyone sounds so good, I love to read these posts this summer.  It seems to be most of us are in a healing place, and Julie, you'll be joining us soon.  I am still in the woods, but I can see the clearing, (I hope and pray)   I know Carol will kick rads butt, no question on that front!

    Rita, if you colored your hair, then i am going to also.  It seems like your treatment plan worked well for me, so I'm going to go get a full head of highlight and lowlights to blend in the white and grey.  Too much hair and too much of a pain and it grows too fast to single process it, it's back in a few weeks.  Ugh.

    Everybody have a great week, I am not even going to think about the lung thing until next wednesday when I see the onc when i will flat out tell him how terrified I am.  I hope he can reassure me enough to get in the "donut" to scan myself.  It's so weird, I have been brave thru the whole thing, but it seems like chemo knocked the stuffing out of me, one of my reasons for taking a "head break" so I can get back in the running and deal with it.  I will.

    love to everyone! 

    annie

    p.s. Shirlann, who is this lovely black fellow?  I have a very nice stray black cat I have turned into my boy on the deck.

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2008

    Hey Annie,  I have a long-haired black cat that's lived with me now for 14 years.  He's called Ash and was a great cuddler when I was recouping from the surgeries and chemo.  Then about 3 months ago, a very ugly stray black cat....short haired, skinny, with a large head....appeared on the front porch.  He had been dumped by somebody because he was friendly.  We call him Roscoe and he shows up regularly for meals.  Sort of a coincidence, isn't it?

    Carol, I finally broke 50 on the back 9 today.  Had a 49 and thought I'd accomplished a miracle! 

    Hope everyone is doing well today.

    Rita

  • golfer779
    golfer779 Member Posts: 410
    edited July 2008

    Rita, you go gal ... sounds like your game is doing well.    Do me a favor and hit a few rounds for me ... my darn chest is as tight as can be, so much for enjoying the summer months on the links!!!  I'll have some making up to do next year!!!  Hitting the boosts starting tomorrow, I'd have to say that rads have definitely gotten me a bit down ... was cruising along until this week, had a heck of a time getting my arm in my mold this morning.   Off to lube the ol' chest before bed tonight ...

    Carol

  • Annabella58
    Annabella58 Member Posts: 916
    edited July 2008

    I don't know what happened to my other post girls, but if it shows up, I'll have two!

    Carol, this doesn't sound like you, hon.  I am sorry rads is giving you such a bad time.  For you to even voice this..............hugs hugs and more hugs (gentle ones, I know that rads tight feeling)

    Favor that arm for awhile, I am praying for you that things ease up a bit.  I know you will persevere, you always do.  Carry that moisturizer with you and do it constantly.  I had this too, it is quite uncomfortable, but the good news is, it ends really quickly as soon as rads ends.  I can see your end in sight...............

    Rita, that is weird about your kitty.  This am I found a visiting vet who will come and stick a rabies vacc into that little con artist.  I'm keeping him, we are both a little battered. 

    Wish me luck gals.........I spoke to onc yesterday and tho he was more than reassuring, he wants me to schedule cat scan while he is around so "he can tell me the good news and not have me wait for results"  of course in my anxiety brain at the moment this translates as.."in case it isn't good news he wants to be there".   Oh I am so paranoid, this is no good.  But at least I managed to make an appt. for Monday the 11th at 10:  wish me luck, I sure don't need lung cancer at this stage of the game.

    In any case, I hope everyone is still floating on cloud nine with all this good news about scans and MRIs coming out well.  Perhaps we have a very lucky bunch here. 

    Carol hon, hang in there, love to you, it will all work out.  You just keep that go get 'em attitude, tho I know you must be so tired of all this.  But your good work will pay off, I know it will.

    love to all

    annie

  • Harley44
    Harley44 Member Posts: 2,126
    edited August 2008

    Carol

    Sorry you are having tightness issues from rads.  Sending GENTLE HUGS your way!

    Annie,

    Don't worry... I have strong feelings that your tests will come out all GREAT! 

    Now I have to follow my own advice, but I am also scared.  On Aug. 11th I will go and sign consent forms for the endometrial biopsy, and I'll be having the biopsy at the hospital on Aug. 13th, in the morning.  I am still very scared, because Tamoxifen can cause uterine cancer.

    Hugs to everyone,

    Harley

  • Annabella58
    Annabella58 Member Posts: 916
    edited August 2008

    Hi Harley, that is great, thank you for your "feelings", I'll take that as a sign from an angel!

    You go put your warrior goddess hat on and kick that biopsy butt!! You don't have uterine cancer I bet, (remember how slight the chances are?) but you sure want to have all the cards in your hand.  I will pray for you on Aug. 13th that all will be well.  Be sure to let us know, OK?

    We'll both do this together, you with your biopsy and me with my lung scan, alright?

    love to you

    annie

  • ritajean
    ritajean Member Posts: 4,042
    edited August 2008

    Annie and Harley....the buddy system is the way to go!  It's always nice to have somebody to lean upon and how well you both understand the anxiety that each of you will be facing in a few weeks here......as well as the anxiety the rest of the CMF gals will be experiencing as you wait for your results.  August must be THE month for checks.  I went in and did my bloodwork yesterday morning and will see the onc this coming Thursday for results and the usual check. 

    Carol.....my heart goes out to you.  I can't imagine how painful that tight skin must be and feel so sorry that you are having to go through this.  You are about done, hon so just hang in there and the next time that one of us tells somebody that radiation was SO MUCH EASIER than chemo, you have my permission to tell us to shut up!  Thinking of you each day now as you head down the final stretch.

    Jill, hope you continue to celebrate your good news and continue to stay around this thread.  We need to hear all the good news that is out there.

    Ginny....September is going to be here before we know it.  I'm going to check out train times and tickets this next week to get a better idea about where I would actually arrive Chicago in relationship to your hotel.  In the meantime, enjoy these summer days!  Can't wait to give you a gigantic hug "in person!"

    I'm off to get something accomplished around here.  Catch you all later.  Have a good weekend.

    Rita

  • Annabella58
    Annabella58 Member Posts: 916
    edited August 2008

      Hi all:

    Good morning to all, Harley I hope you are hanging in there, I know how scarey this is.  I am certainly sending good wishes for a great outcome your way!

    Carol, hope you are continuing to stay upbeat...I am sending you some very gentle hugs!  As for telling you rads is so much easier, guilty as charged, I guess.  I guess we each have our hard times with any of these awful treatments, I quite envied your success with CMF and did not have it myself as to SEs.  Working thru it is amazing, I could never ever have pulled that one off, let alone having a party after the last one!  Good for you!!   For me, rads was indeed so much easier compared to chemo,  altho I too, had all the skin issues you are going thru with blisters and all that.  I think we are similarly complexioned.   I was the only one out of my group (6 of us) that had skin issues, and I wasn't going to volunteer that to you upfront, as I had hoped you'd avoid it, I seemed to be the exception rather than the rule. 

    I certainly feel awful if I mislead you on this, in the experience of myself and all my rads buddies I went thru this with,  we each felt a sense of relief on these SEs as compared to chemo.   Everyone is so different in what is better for them as to coping with and I need to remember that.   I am sending you lots of love and great wishes for an easier time going forward.  My sincere apologies if I am responsible for making you think it'd be easier than it has been for you, not the intent at all!  I was hoping for better things for you in this experience.  No one else in my group had the skin issues and out of the 6 I was the only one who experienced fatigue BUT, not till the whole thing was over.  And I kept on going right thru the fatigue, my kid was only in 6th grade and life was hoppin', so no choice.  The good news was the fatigue was doable.  Hopefully you won't get it, a lot of the gals didn't.

    As Rita put it so eloquently, you are almost done and on the final stretch! 

    Ginny and Rita have a marvelous time together, how exciting to be able to meet in person!  Rita, great wishes for your onc visit and results.  This is a lucky thread, believe in that.

    Jill, hope you are still doing the happy dance!

    Harley, hang in there, I see onc on Wednesday and try to figure out a game plan to go forward as to oopharectomy/hysterectomy/lupron etc.

    Everyone have a nice sunday, OK?

    love to all

    annie

  • 3ofus
    3ofus Member Posts: 201
    edited August 2008

    My hopes and prayers for only great news for you Annie, Harley and Rita!

    Carol, sorry rads has been so tough for you.  We are all so different.  Chemo was really rough for me and rads was not.  The best thing about all of this is that it is temporary.  Hang in there!

    Rita, I'm really looking forward to giving you a big hug in person too.  We weathered the treatment storm together and helped each other through---now we get to meet--fantastic!  Wish we could have a get together for this whole thread.  You all are invited to Canada!

    Hope everyone is enjoying this wonderful summer weekend!

    Ginny

  • Juliechicago
    Juliechicago Member Posts: 179
    edited August 2008

    Hi everyone,

    Just checking in after CMF #2 yesterday.  Wandering around the house for most of the day feeling pukey.  Haven't- just feeling not right. Things went better this time-- we reduced the antiemetics to just one Kytril and one Emend and I did not have the frightening anxiety reaction I did last time. (Supposedly one of the "rare" side effects--- figures-- me.)  THey slowed the C drip down to 45 minutes and combined it with water, so I also did not experience the "kidney freeze" that I did last time either.  Went to an acupunture appt this am-- it really does seem to help with the nausea.  Placebo effect? Maybe- but if it helps, I don't really care.  Funny though--- I left with one of the needles still in me-- did not notice for hours later! 

    One thing that bothers me-- bloodwork was done first and my white count was not back up into the normal range.  Normal is about 4000 to something-- mine was at 3200.  Onc wanted to go ahead with treatment anyhow, thinking that my count will continue to rise toward normal until the "nadir" point at 10 days post treatment when it drops again.  I, of course, am worried about what risk this puts me at for getting sick....I work in a large office, have small little germ carriers running around the house....  Just wondered if anyone else had this scenario?

    Hair continuing to shed....Rita and Annie assure me I won't go bald...but hard to see how this can continue without it becoming noticeable. So far, it's not.  But I have that wig on hold......

    My husband took the kids today to pediatrician appt and to the park. He's taking them to a birthday party tomorrow (just one place I figures was NOT a good place for me to be-- 4 yr old's swim party). I've slept most of the day-- odd for me as I usually manage on 5 hrs sleep a day and never nap. But he's grumpy and tired now-- getting a taste of what I usually manage.  This is turning out to be a rough summer for us all. 

    As always--- thanks again for everyone's support.

    -julie b.

  • Annabella58
    Annabella58 Member Posts: 916
    edited August 2008

    Hi there Julie,

    Glad #2 wasn't as bad for you.  I found that by the time they figured out what worked best, I was done!

    I was told to in general, avoid crowds, parties, indoor gatherings, the mall, or schools or nursing homes.  I couldn't avoid much of the time, so I kept a bottle of purell, and was like Howard Hughes.  This is a good time to institue a family rule.  Everyone including hubby, drops everything when they come in the door and heads off to wash hands.

    My hubby also went during flu season to places like the drugstore where you might pick it up.

    I think Carol managed it well as far as this goes, I believe that she was never sick or got anything and she worked thru it! (god knows how, but that girl is amazing!! I was in awe).

    I also always needed a nap (which I just don't do in general, never need them) the day after chemo.  It helps!  Remember to get 15 mins. of sun to keep your bloods up and if you can manage to stay active, that helps with bloods too. 

    I did not see how the hair would work out myself....yet it did.  I did go shorter and more layered (traumatic for me, but needed) and it was easier to hide any thinner parts that way.

    Hubby will be grumpy.  Mine was.  I stopped it with "I'd change places with you any day.  Just say the word". 
    A bit outspoken perhaps, but it stopped it cold and his attitude changed completely.  In general he was great, but our daughter is 19, if we had two little ones, he'd be a lot grumpier!

    Hang in there kiddo, you are doing great!

    love to you

    annie

  • golfer779
    golfer779 Member Posts: 410
    edited August 2008

    Hi There ...

    Best idea I've had in a long time ... taking today off from work!

    My weekend of roughing it went very well.  Ginny, Jenny (a new acquaintance, and fabulous woman) and I starting our weekend off by having a great lunch in the small town of Coupeville on Whidbey Island at the "Mad Crab".   From there it was off to Fort Ebey State Park.  We arrived at 4:00 and within about 1/2 hour had our little home away from home erected.  We shared a four person tent, and then we set up another little pink tent as our "Arizona Room" as we liked to call it.  Actually it housed our bags and made for much more room in our sleeping tent.

    Friday night the group of about 40 went on a short walk/hike from camp out on some trails which eventually led us to the beach.  We arrived with about 15 minutes of sun left in the day which hopefully on some cameras made for some great shots.  I've decided my camera sucks when it comes to pictures without good light.  We made it back to camp after about a 6 mile trek, some had smores around the campfire, then off to bed.  Why three grown ladies would decide to get the giggles come bedtime was a kick.  It seemed as if each of us would get settled in our bag and then remember something they forgot to do (such as take a pill, have the alarm clock out and set, or suddenly decided that it would be a good idea to pee one last time)!

    Personally I slept pretty darn good, thank goodness for my air mattress and Lorazepam.  There was a crew of four women who prepared breakfast, lunch and dinner for us.  May I say they did an outstanding job, as we we're in camp sites with no power and they pulled it off flawlessly.  We started our walk at 8:00 am and the group I paced finished up at almost 5:00pm.  We walked 22 miles in total, stopping for lunch, and at many pitstops to potty.  Hydration is the key to success, so if your not drinking enough to be needing a potty stop, your not hydrating enough.  The same crew who cooked for us we're out on the walking route throughout the day, some of the walkers we're "swept" or took a ride back to camp if an issues occured (blisters, shin splints).

    Again come bedtime Saturday night, we sounded like teenagers with the giggles once again.  Just trying to get situated in our sleeping bags was eventful as your legs we're pretty darn tired.  Yesterday, we had to pack up our tents and belongings prior to our walk, ended up heading out at about 9:00am in a heavy fog for our 13 mile jaunt.  Within the first hour the fog had burn't off and there was not a cloud in the sky, which was the case for the rest of weekend as well. 

    By the finish of the day yesterday about 2/3 of the group had completed just over 40 miles for the weekend.  I am happy to report that I was able to finish, kinda forgot about my chest feeling cruddy since my feet we're aching pretty bad.  Once we we're heading back in the car towards Ginny's house I then really realized that my chest was not looking so spiffy and felt even worse.  What an interesting concept as I was so focused throughout the weekend to accomplish my goal of walking that my chest was secondary, but within an hour of completion it was forefront on my mind. 

    Anyway, I sheepsihly walked into my rad appt this morning, stopped at the nurse's desk and asked her if she'd take a look at what I thought was a mess brewing on my chest.  To my amazement, she said that it looked as if I had done everything I could have done over the weekend to combat the burn.  I did take my arsenol of "products" with me and used them as much as I could throughout the weekend.   I was given a scrip for some anti-bacterial cream and another kind of compress soak today, in fact I've just finished applying both and feel much better at the moment.

    I'm planning on taking tomorrow off from work as well, I'll be taking the time throughout the next few days to make sure that I follow the advice for compress soaks, etc., getting my arm in its mold this morning was a doozy, but I know I can endure 4 more zaps and then it will be on to healing.

    The picture below was taken Friday evening (hench the crummy brightness with my camera), Ginny whom has been such a support to me is on the far right with the pink hat, and next to her is Jenny whom is an extraordinary person that I just met this weekend.

    Hoping my Sis friends are doing well.

    I'll be checking back in a bit ... although I should be kicking back, my puttering instinct is kicking in.

    http://i271.photobucket.com/albums/jj150/kms842/100_1329.jpghttp://i271.photobucket.com/albums/jj150/kms842/100_1329.jpg

  • ritajean
    ritajean Member Posts: 4,042
    edited August 2008

    Carol....great picture!  What a wonderful-looking group of ENERGETIC ladies!

    You continue to amaze me!  You are one fantastic lady!  I'm so glad you accomplished your goal.  I really had no doubts about you doing this!  Hugs to you!

    And now...it's time to finish up those rads and put this beihind you!

    Rita

  • Annabella58
    Annabella58 Member Posts: 916
    edited August 2008

     Wow, Carol what a terrific picture!! Looks like you had a blast.  You go, girl!! Sooo proud of you!

    love to you

    annie

  • Juliechicago
    Juliechicago Member Posts: 179
    edited August 2008

    Hi,

    It's Monday and I'm mostly back to myself...except-- uh oh. Diarrhea just started. Everyone has written about constipation-- did anyone have the opposite problem?  I had a problem with a bad C-Diff infection while on A/C and the stuff they gave me for that (Flagyl?) was almost worse than the chemo. Hoping it's not that again!  Taking lactobacillus and will again tomorrow...hoping this is a temporary bout. 

    Big thunderstorms rolling into Chicago area.....love to watch them.  The kids buy the "God bowling" explanation for now.

    -julie b

  • golfer779
    golfer779 Member Posts: 410
    edited August 2008

    Julie ... it would be the GI distress gal here ... if it wasn't constipation, it was diarrhea ... I kind of just rolled with the punches ... hate to say it, but after a bout of the big "C", a bit of "D" was a welcome relief!!!  I did make sure that I knew at almost any moment where a potty stop would be available (as I was also working) and drove truck!!!  I had to do the shuffle more than once to the next potty stop ... hate to say it, but I would still take that se over the ones that totally wipe you out and add nausea on top of them. 

    Here's hoping things settle down soon ... Carol

  • Magellan2007
    Magellan2007 Member Posts: 1
    edited August 2008

    I've been getting AC every two weeks, and have found the chemo fog and fatigue debilitating for about three days. After this last round, I began having increasing difficuty swallowing. Any thing I managed to get down felt like razor blades in my stomach and intestines. Since I live alone and have no one to look in on me, I just crashed on the couch without eating or drinking. Initially, I just thought it was the chemo, BUT NO! By the time a friend came by to visit, I was in pretty bad shape. I was dehydrated and in tachychardia. It was because of the antinausea stuff:Thrush. Who knew? So no matter what- drink and eat something.

  • ritajean
    ritajean Member Posts: 4,042
    edited August 2008

    Magellan...thanks for the good reminder about the food and water!  Hope you are doing better!

    Carol...how's the skin doing?  When is your last rad?

    Annie...enjoy this week.  Do whatever makes you happy and keeps your mind occupied.  I've been sending good vibes to both you and Harley, as well as prayers for "non-eventful" scans, tests, etc.  Hugs to both of you!

    I see the onc tomorrow again.  These check-ups and blood work roll around too fast for me.  It seems like I was just there! 

    How's it going JulieChicago?  I had the same problem but mine was controlled with Immodium.  Hope you're doing O.K. now!  Keep in touch!

    Ginny, I sent you an email about confirming the date you want me to arrive in Chicago.  Please respond as I need to get my ticket before all the seats are gone!

    Hugs to all of you! 

    Rita

  • Annabella58
    Annabella58 Member Posts: 916
    edited August 2008

    Hi ladies, hope everyone is feeling well..........Rita sending good thoughts and prayers for your appt. to go well tomorrow. 

    I just had onc appt. today, I am officially in menopause thank god.  About time too!  However, I will be prob. getting ovaries yanked around november due to my daughter wanting to be here for it.  She feels very strongly about this, I do understand.

    Onc feels it is in my best interests to get monthly lupron shots to gradually get me thru menopause and keep me safe from estrogen ...he tells me some 20% of women still show estrogen traces even during menopause and since my cancer was so heavily estrogen related, it's my safest bet.  He does want a bone density scan before beginning arimidex.  (I can begin that as soon as I have a lupron shot or shortly thereafter, depending on blood tests).  this will be for a marker for possible bone loss going forward to monitor it.

    I am wondering if any of you gals have done lupron and how you did on it.  I had it years and years ago for fertility treatment, non eventfully.  I guess I'll just get hot flashes, but sure haven't seen any of those yet, tho I test as menopausal.  No moodies either.  I figure I should get off easy here, somewhere, right?

    I rescheduled the lung scan for the 25th and onc unconcerned that I did so.  He even bet me 5 bucks that it is benign stuff, so I felt comfortable doing that.  Did it for my kid, she will freak out and must get her off to college in comfort.  She doesn't need to see me all  worried or pick up on any of that.

    Julie, I had that, briefly, yeah, immodium worked like a charm. 

    Carol, when is that last treatment?  You should be "well done" there girl, and good and cancer free now.  You looked so beautiful in your photo, whatever you are doing is working for you.

    Oh, Magellan, I did that too.  After the second chemo I didn't eat or drink and I also got thrush.  Nasty stuff to get rid of I must say.  I didn't do the A/C tho, that is the tough stuff, I hope you are doing well now.

    Well, will sign off girls, seeing ps tomorrow to talk foobs and then I am getting my hair low and high lighted.  Sick of this mop of crappy hair I have.

    Good luck tomorrow rita!  Please post how it went for you.

    xoxo

    annie

  • ritajean
    ritajean Member Posts: 4,042
    edited August 2008

    Annie...I had the bone density test too before I stared Arimidex.  I imagine that I'll have to have another one this to compare the se (or lack of se) of the Arimedex over a year's period.  There's nothing to the bone density scan.  Easy, easy!

    Sorry I can't help you with the Lupron but maybe somebody will pop on who can do so.  If you don't get an answer shortly, just start a thread and see if you get any responses.  It sounds like you've got a plan in the works now! 

    Well, I'm off to find the recliner!

    Hugs....Rita

  • golfer779
    golfer779 Member Posts: 410
    edited August 2008

    Hi All,

    My good fortune of tolerating my rad txt has quickly come to an abrupt halt.   By yesterday afternoon I was hitting my med chest looking for those post surgery drugs that I never touched at the time.  I had a 5:30pm zap yesterday with a 7:00am chaser this morning.  I swear that when they removed my bolus this morning a layer of skin came with it.

    Needless to say I called into work to let them know that I would not be working the rest of the week, I'm hitting the pain killers and have spent most of the day today in bed.  So NOT me!   My dh has accompanied me to these last couple of appts. and will be staying home from work with me tomorrow.  I had anticipated being burn't but had know idea that the cumulative effects would be so drastic with these last few txts.   As I was laying down I did think about how lucky I had been to have had such tolerable surgeries and chemo, may I say I have renewed admiration for you all who had such difficult times with your own txts.

    Off to apply another compress and I'm sure I will be dozing off again ... what a waste of a beautiful day.  I'm so hoping that this short term pain is for a long term gain.

    Two to go !!!

    An early good night ... Carol