TIME TO CIRCLE THE WAGONS GIRLS
Comments
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(((((Lisa))))...not a metster, but wanted to give hugs & positive energy.
Hugs
Peggy0 -
You guys are great. I've been laughing reading through the last day's posts. Thanks so much for the support you bring so many people. As for me, clean mammo results today, so I'm in a good place. Keep the fire going!
Paula0 -
NS - I wish we had some of that endless rain here - we need it so badly!
I'm still staying towards the middle of the circle. Had MRI & CT this week, also lab work. The tech had a terrible time finding a vein for the CT, so in addition to not having full use of my right arm, because of the carpal tunnel or whatever it is, my left arm is bruised and sore also. Lordy I hate this cra&! Monday I see the neurologist, Tues. the oncologist. I'm hoping to move to the outside of the circle by Tuesday night. We're just trying to remain confident & hopeful here. And then, maybe I can get a good night's sleep again. I'm so tired.
It's cooling off a bit here in Kansas. Leaves are starting to turn, a little early for that! I need to go check the almanac, but am afraid we're in for a rough winter. We'll deal with it if that's what happens.
I'm praying for all of you tonight. And me too. If I can get back up to snuff, I can do some serious cookin!
Going to try a bierock casserole tomorrow night. All y'all are invited! Of course I've heard that cabbage can make ya gassy too, so stay away from the fire!
Wish there was a way to point you to all our cooking pictures. If you want to see any of them, pm me & I'll tell you where to go look at pics. I need to find someone who can do me a website I guess. Ronda0 -
NS, what a great song! I shall twirll it htru my head as I try to drift off tonite.
Rondab. what is a bierock casserole? Any fancy ingredients or can we just go foraging out on the prairie?
My prayers are for Trenton but my heart is heavy.
Niki, I hope you get the energy to go looking for that job on MOnday. You can look - don't have to take it until offered - and the offer comes with chocolate fuge and whipped cream on top.
To all my sisters who are strugling = my thoughts and prayers and a wish for a lullaby to ease your sleep.
Jeannette0 -
Morning is here. The sun has not yet begun to peak over the horizon. Its quiet with a soft wind, that gives you goose bumps if your not dressed properly. So make sure when you awake to wear a sweater when you come to the fire this morning.
Ah, its my day off. Finially! I can talk to everyone here without any time restrictions. I jsut made some strawberry breakfast pie. Its cooking and the aroma should be infiltrating the wagon circle soon. And lots of coffee for everyone.
Jeanette: yes, I sure did miss you. Glad your back. Hoping each day gets better after the surgery. You just stay in the middle of the circle for awhile. Make sure you go to the medic wagon. Lots of stuff there to make you feel better.
Yes, we all need to gather and help Lisa. She is having a rough time of it right now.
Time for me to go for an early morning walk. Want to catch the sun peaking over the horizon. And if I meet a stranger - Im gonna do something kind to them.
Nicki0 -
Good Morning Ladies,
Nicki I put coffee on for us,I can't believe I beat everyone up this morning !I am Sipping my coffee and sending love hugs and prayers to all the dear ones in the middle of the circle ~
Amy I hope that the pain is getting better each day
JoJo, Tracy and her little ones,Robin, Mena , Tina and John, Karens son Andrew , Flea , Tbytes, Pennylane , Puppy ,Tim, Rondab Cookie , Jeannie,little Trenton.
Pinky still waiting for her surgery (that just stinks!) Deb hope the Rads are going well, and I am so amazed you have seen whales wow! not too many whales in Ohio.
Christine fluid, I hope the Dr.s are watching that and your pain goes away I know how irritating it is .
I hope I have not left anyone out, incase I have,I am sending an extra dose of love to you all and a big big
hug to all the circle girls.
Update for Denise~ the surgeon called yesterday and said
she has a right ceberal vasular anerysm (I swear I can not spell that) and wants to see her first thing Monday morning. NS said that vasular is good if you have to have one in your brain!
Denise and I are going to saddle up and go into town to watch our town parade, the kick off to our sausage festival is today. Last year Denise was feeling so crappy from chemo and her counts were way too low to go , so she is very happy and so am I we will be all together this year.
Oh my gosh Cookie I am starving!
Love to all the circle girls ~
Carrie0 -
Nicki good morning lady!
You beat me , I forgot to add that I am thinking about that new job and I hope you can do what ever makes you happy !
Yummy strawberry breakfast pie! okay now I am really starving!
hugs,
Carrie0 -
Oh Carrie and Denise! Ihpe you enjoy your day. Sounds like fun. Sausage festival. Hmmm yummy. Bring some back for dinner will ya?
Cerebral Aneurysm - yep it sounds scary. I have known and taken care of many who had the aneurysms removed and did great! Ahh gee, another medical issue to deal with. Sure stinks. But I know Denise, your gonna be ok. Carrie is by your side and so will all of us be when you see the surgeon Monday.
I myself am waiting for results of my Tumor Markers that were drawn on Monday. The results will determine whether I need scans or not. This is so crazy! I feel so good and strong right now. The tumor marker elevations must surely be a fluke.
Peggy: I went for a walk and couldnt find any strangers to be nice to. But I found a baby deer and fed it some corn. Does that count?
Nicki0 -
This to triple neg Lisa: Come to the center and talk, honey...I know you are petrified, in shock, numb, paralyzed from fear, feelings things you've never felt. Let yourself feel them. This is natural. And you're angry. You'll get angrier, too. Let yourself be angry, sad, whatever. And if others don't understand, tough crap! I do! Any metster does! And you talk to us! We will take care of you. I promise you that sister, and I never break a promise.
I am so very sorry to hear of another sister gone mets, and this makes me cry; that's how much your hurt hurts me, because I know what you're feeling, sweetheart.
Just let the grieving of your old self begin. It will take awhile. It's OK...then you get ready to do battle! You saddle up your horse and you refuse to give up! There is hope and I am proof. I am 2-1/2 years into this mets mess. When I first found out, I had myself dead in a month! That's how morbid my thoughts were. I hope yours aren't that bad, but if they are, I understand and will not judge you in any way. You can tell me anything, and I will understand. Please, please know that!
Oh, my heart breaks for you, but I'm not going to let you do what I did, because I am here to get you through this...You are going to fight like an S.O.B. and take this on as a mission. If I can do it, anyone can...trust me on that!
Be kind and gentle with yourself. If you have to cry, cry...don't feel like you have to be strong for everyone else. You do what you have do to for YOU. This is YOUR life. And I want you to live it! It's not over...there are still plenty of options for trip negs...please get to [Email]bcmets@bcmets.org.[/Email] Post to the list, introduce yourself. It's one of the best things you can do for yourself. Again, trust me on this.
Our dear, sweet, late Karen, guided me there, and today I guide you there. Don't leave here, not by any means. I never did and never will. But that setting is for metsters only and there is so much information over there, it will blow you away. I'm there everyday, too...It works differently than here, but you'll get the hang of it.
Pm me anytime you need anything...never give up HOPE...my love and prayers to you...Mena...xo0 -
No fancy ingredients Jeannette, although we might have trouble finding cream soups out on the prairie! Sam91 posted the recipe in the recipe thread the other day. It's ground beef, ground pork sausage, cream soups, cabbage, with a crescent roll crust. Sounds pretty good - I'll let you know how it turns out! Ronda
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Got a ton to do today, so no time. I love reading to see what I have missed.
Paula and tbytes, of course you are welcome, pull up a rock and act like you own the place.
Lisa, I'm so sorry to hear your new dx. I wish I could say and do more. but we will be here to comfort you. Mena's post is great. I would totally listen to her.
Yes, Peggy, I'm a big bottom girl. Told yesterday that I am "very obese" sheesh.
Nicki, good luck with tumor markers. If you want to crawl in the middle for a while it's ok.
Do we need to send money for Trenton. Is there a fund?
Carrie, hope you are feeling better. Bad Bad Nasty Pain.
And Denise, I'm praying for an aneryism that disappears.
Love to all,
Susan0 -
I'm here sisters, although it is early for me after a very late night. The posts here from early today have touched my heart and I am feeling really....I don't know, melancholy. (sp?)
The strawberry breakfast pie sounds so delish.
Carrie and Denise have fun. We'll be waiting for a variety of sausages. You can think about that new dx on Mon, til then enjoy the day. Hope is pain free for Carrie.
Susan, I no way think you are obese, but according the charts I am too! What are those cakes from Philly called? I could use a few now.
Mena, your post to Lisa is great, I believe that is what these boards are all about. Reaching out and pulling someone thru.
I was gonna list special thoughts for each of those in the center of the circle, but I want to include everyone here, so I'll leave it at that, I'm thinking of each of you today, I am just so mad at this disease for taking Karen, and I never even talked to her, but there are so many dealing with so much, so...
brightest of healing lights, sweetest soft prayers and strongest of postive energies to all.0 -
Quote:
Yes, Peggy, I'm a big bottom girl. Told yesterday that I am "very obese" sheesh.
Sorry Susan, didn't mean to offend...was just responding to a pic request! I can't read the tone in your post, but I hope you're not mad at me!
And yes, Nicki, deer/corn works lol (as I say to my kid...you're such a DORK).
Hugs
Peggy0 -
Cool, if deer work, my turkeys do too! Bonus points **grin**
A guy that lives about 5 miles from us has been raising wild turkeys and letting them go here. We had a momma turkey raise 7 babies here by our house and I go feed them every day. They are SO cool. The sounds they make are kind of like doves trilling when they are happy. They come running or flying out of the woods when I whistle like a Bob-White. My hubby is worried I will make him build a heated turkey coop next to the heated chicken coop for this winter ***grin***
Hugs to everyone this morning!!
Deb C.0 -
Dork - Schmork - should I eat with a fork?
Yum - Yum - will ya give me some gum?
Crunch - Crunch - whats for lunch?
Run and move - help me find my grove?
Smile - smile - I will be back in a while.
Nicki
BTW Deb: Baby Turkeys sounds so cute. I am so jealous. Whales and baby turkeys.0 -
Hi beautiful circle girls ~
I have just a few pics of the parade .We had such a nice time. Everyone came back to my
house for breakfast afterwards and just left to go back down town for the party.
Hubby went to the hog roast and I am resting catching my second wind and rest for tonight when they have
balloon glow and the bands.
Balloon Glow
Me and Denise
Men in Kilts
For Nicki ( I tried to find a pink one and a purple
one for shel and rhyme !?)
Koyri kicking back
This one made me think of Vera
Central State marching band Denise's favorite one!
Koyri waving to all the circle girls
Hugs,
Carrie0 -
Carrie...splendid! Thanks for sharing. I love it...got goosebumps and everything. Damn, girl...How's Denise holding up...please convey my thoughts, prayers, positive everything...to both of you!
And who is the adorable little girl waving at us?
Oh, looks like such fun! Never thought a parade would pass our Circle...how cool...I can hear bagpipes...
Has anyone heard from Triple Neg Lisa? Or anything about Trenton? I've been watching news channels and haven't seen anything since last night...when/if I do, I will let you all know...
Did I miss dinner? Cookie? Are there leftovers? Is there cheesecake? Because I don't need dinner if there's cheesecake...Mena...xo
Oh, PS...I fell asleep on my bf last night..well, not "on" him, but in the middle of a movie...and I talked in my sleep...omg...at least I got my sleep. Thanks NS for putting me by that Chamomile...it helped immensely...xo0 -
carrie........those pics are fantastic!
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Carrie! I loved those pics!!! ESPECIALLY seeing YOU TWO!
mena, I am so glad the chamomile worked. Thank you for the beautiful and inspirational words you wrote to lisa. You are the best.
I have GREAT NEWS CIRCLE GIRLS!!!!
i have just come from the Trading Post
IT'S MALLOWMAR SEASON!!!!!!!!!!!!!!!
I bought us FIVE CASES
That should last until tomorrow- right?0 -
The pics were great, thank you for thinking about me~!~!
just vera0 -
ok, what is mallowmar??? Is it anything like marshmallows?? I love marshmallows.
And Peggy, absolutely no offense taken by the big butt sign. I was just reacting to being labeled "very obese". (by my exercise physiologist) Well it really wasn't him, just this chart he was carrying around. I don't feel that big!!! harrrmmph
Carrie, thanks so much for the pics. So nice to see you.
xo
s0 -
I'M BACK!!!
I missed you all this past week while I was in Florida. Had a wonderful vacation and hated to come back to New York...missing my daughter so terribly tonight. She needs me so much right now with Trenton still missing...she and her sister in law are beside themselves with worry. Spent a good deal of our vacation waiting for word from the police and FBI and Melinda's funeral was Friday...so very sad and no answers yet. Thanks to all for your prayers for him...
Tired, sad, lonesome tonight...going to bed.
Talk with all of you tomorrow.
Hugs and I missed you all,
Vickie0 -
How was the plane ride?
sure am sorry and sad for Melinda's fam and friends
Glad to have you back~!~!
At least you didn't have a time change~!~!
just vera0 -
Carrie,
Great pictures! Koyri is adorable. YOu must have had a great day. Thanks for sharing.
It is evening and th autumn winds are blowing. Feels more like November than September. I shall go back and look at those campfire pictures and think warm thoughts.
Shepherd's pie for dinner - been a while and it tasted good - especially when the son of the house got to put the potatoes thru the ricer to make them all smooth (just like the instant kind!)
Am going to another sweat lodge in the morning and shall take all of your prayers with me.
Jeannette0 -
I actually survived the plane ride!!! Wow, I was really nervous about that. JFK was a nightmare...two hour delay and constant threats of cancellation but made it home in one piece.
Love the ocean...think I just may need to move to be nearer to my daughter. We did have some fun, went to Adventure Island and Animal Kingdom, ate tons of food (even had frog legs!), had a few drinks and believe it or not I actually went boogie boarding!! Now that was an experience!! 6 to 9 foot waves when we were there...can anyone say "sand burn"...ouch!
I'll try to post some pics in the next couple of days...glad to see the wagon circle still active and circling.
Hugs
Vickie0 -
Mena...no news on Trenton. I do know some things that aren't public knowledge but nothing that really helps as it isn't information about where he is or what's happened to him. Just praying constantly.
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I just came to the circle. Im rubbing my eyes and you can tell I just woke up for a minute. I got wake up hungry so Im looking for food foood foooood.
Carrie the pictures are priceless. So nice. The horses were beautiful. I just want to know one thing - what were the guys wearing under their kilts?
Ok - I woke up and had a feeling I should come check on how everyone is. Too sleepy eyed to stay. Good night, Stay well, see ya in the morning.
Nicki0 -
Stawberry breakfast pie sounds wonderful!
Denise sorry to hear about the anyerisums, sorry can't spell. My mother in law had two and did just fine. You will too!
I'm still fighting the back pain. Icing and heating and icing. gotta say the heat feels best. hope it goes away soon.
I can't wait for next weekend, I'm going to a BC retreat for the weekend. The only thing I'm not sure of is the menu is all vegitarian? I don't like many vegetables. Should be interesting.
My prayers are with everyone tonight. I'm prating that those with mets will soon be free of it, thouse with tests willl come back with only good results, those with pains both physical and emotional will be in pain no more.
Hugs and prayers0 -
Thank you all for your support. I returned from MD Anderson this morning and spent the entire day with my children. Playing games, going to lunch, crying, hugging, trying to explain and answer their fears. I am so frustrated as I went to MDA thinking it was just in my pec muscle and left not 100% sure but dr. thinks that it is also in my upper hellium (sp?) on my left lung.. How does this happen? I did the most aggressive treatment (6TAC, radiation and Xeloda) then 3 weeks after xeloda my pet scan glows... I'm still holding out hope that it isn't in the upper nodes of the left lung but realize that this spot was hotter on the scan than my pec. muscle. I look at my girls and just cry. I start down that dark path wondering if I'll be hear when they get their ears pierced (Dad wants them to be 13 --might have to move that one up:)) to be here for them when they get their period, first boyfriend, highschool.. The dr. only gave me the 2 year stat when I asked point blank. Not sure if I really wanted to know, but needed to know..crazy?!?! I went from being bummed at having this disease to wanting to be back to where I was a few months ago. I'm feeling robbed and angry at myself for thinking I might not be here..vs. thinking I will be here and will kick this things butt. My doctor wasn't very encouraging as she said I had the most aggressive chemo. and radiation and my cancer seemed to be resistant... Still in shock and denial and praying God will help me through this time. Ok maybe even a little more selfish... That I will be cured. I pray for all of us and hope for a cure before my girls are old enough to deal with this thing!!! I appreciate your support and prayers more than you know. I will be back here soon.. I'm trying to spend every moment I can with my kids. Much Love, Lisa
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Hey Lisa,
I just answered you below in Triple Neg... but
i wanted to make sure that you know that you did NOT get the most aggressive chemo-YET!
There is still Gemzar, navelbine and Avastin.
Let me tell you about Avastin, it is saving my friend's life! She is also triple neg like us, had two recurrences, was told she wouldn't see her daughter's wedding...
we switched oncs and got Avastin. Not only are her TMs down, but her tumors are shrinking and some have disappeared.... and her daughter's wedding was lovely! She had a great time!
Please, please, please do not accept any time limitations. The only thing you should accept is an aggressive doc who is willing to fight for the drugs you need and is flexible enough to change the combos until the right one is found for YOU.
Avastin is an Anti-angiogenesis drug. It is UNLIKE ANY OTHER CHEMO. It stops the process of a cancer cell from creating its own blood supply... which makes the cancer DIE. Angiogenesis is how cancer spreads. It is a function of healing and of pregnancy and of CANCER... in that it has the ability to create its own blood supply in the body which feeds and nourishes it. That is fine for pregnancy and healing but deadly for a tumor. Avastin STOPS that process.
And sometimes it is combined with gemzar and that has shown incredible results!
So get a doctor who is willing to be nimble- who will fight this disease by trying to always stay ahead of it... not one who says you are done before you have begun to fight!
I am so glad you came to the Wagon Circle... We will help you. you can scream, rant, cuss, laugh and do anything you want here. And we have a playground too- so bring the girls.
Welcome Lisa- we got your hand. We won't let go.
love,g0
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