TIME TO CIRCLE THE WAGONS GIRLS
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i agree with alaska deb ... put a can of the liquid protein drink by your bed and just keep sipping on it ... a little at a time .... hugs and thinking of you
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It was worth the drive through the smoky ruins to meet all of you wonderful SD ladies and lovely kato from LQ. Thanks for a great afternoon!!!
SoCalLisa - I PM'd you. Your pic is much better than my two, but I can send them to you if you still want.
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Sloan Deb I agree eat just bites at a time. I keep the peanust butter jar handy and take just a spoonfull several times a day. You still get the protien you need and it's easier to eat just a spoonfull. I'm maintaining my weight this way.
I have trouble eating things I use to love. Fact is my husband wanted to know who I was and what I did with his wife when I wouldn't even eat my favorite donuts are anything with bread.
Candie good to see you again. How's the knee?
Alaska Deb. Good advise on eating for slaon Deb.
I've managed to maintain my weight for a few weeks now. I'd like to lose more but not the way I have been. I'm actualy within 45 pounds of my goal weight. I'n just waiting for the Dr to ok me going back to the gym. But as it is I think she thinks my working is enough of a workout for now.
Scott won't let me go back to the gym either. says I do to much as it is.
Hi Madison, hows the DD doing from her surgery? Isn't living in the barracks fun? I did that with my first husband for a couple months. But that was back when women weren't suppose to be in the barracks. SHH don't tell!
I had a great time at the Komen Brunch! If you haven't gone to one you should check out one in your area. The go over what was raised at the last Komen run in the area and the dates for the next one. The author of "it's not about the Hair" was there and she spoke. She is actually the Chaplin at the clinic I go to and is herself a survivor as is the daughter of a survivor. She was DX 5 days after her Mom.
She signed copies of her books for all attending and even did one for each of my girls!
It was good to see Jan as I haven't seen her in almost a year.
Then I went to a holiday food and gift festival and walked around for hours with my sister. It was fun!
But I was exhausted by the time I got home.
So I've slept and watched a movie and read today and not much else.
Gina I think of you all the time and wonder how you are doing. I know this round hasn't been very nice to you. I wish it was over and done with. I guess I still don't understand why they are giving you so much chemo this time. and so many different types.
Shrink How are you doing? I just relized you are from the June 2007 Chemo thread. I haven't been very good at keeping up on there since I started it. i really didn't want to scare those going through it for the first time so I backed off of it.
Going to make some rounds and may check back in later. if not have a great evening and morning
Hugs & Prayers
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Question, my hair is grwoing back and so are my eyelashes. Only the eyelashes are growing into my eyes! how do I stop that It's driving me nuts! Scott is trying to pluck the worst of them but It scares us both for him to have tweezers near my eyes!
I can't see them but he can!
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Popping in at work for a quick hello to all
Busy Monday as its payroll day (yuck).
SloanDeb...you've gotten lots of advice. I hope you can start gaining soon. I lost a lot of weight during chemo and rads (was down to 108)and my saving grace was peanut butter cup ice cream! I ate that stuff three times a day LOL. I also craved sweet potatoes and ate a lot of those with tons of butter. Find what you crave and go with it...Hugs to you.
Cheryl...ouch! What the heck...that has to hurt. I have no idea how you would stop it...can't even imagine who to call.
Deb...we will all be with you on your two year appointment and all will be well. Holding your hand and sending prayers your way.
Lisa...what a beautiful picture...everyone looks so wonderful!
Lini...I can't imagine what it looks like in California right now...so sad. Hugs to you and all our socal girls.
hey to BMD, Margaret, Jenni and Sheri...have a grand day.
Love and hugs
Vickie
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Cheryl - Ouch!!
Actually some of my eyelashes were growing in the wrong direction too when they first started to come back in. They seem to all be facing the right direction now. I can't imagine pulling them!I am going to try to attach a you tube video some one sent me. If you are a mom you will love it.
Hugs ,
Sue
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Good morning Vickie. Better get that payroll done or you'll have a bunch of unhappy and unpaid coworkers after ya.
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http://www.youtube.com/watch?v=anSpBUxsgAU
Sorry - Uggh that didn't work.
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Now it works!!!
If your a mom you'll love it!!
Hugs all,
Sue
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Sue, that was a great video! I just loved it. Thanks for sharing it with us.
It's good to see you.
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Evening all. I'm pretty tired tonight but wanted to throw a few logs on the fire to keep us all warm and light the way home for many we haven't seen lately.
I miss Cheri and wish she was still with us. That girl has sure got spunk. Can some of you that still hear from her update us here about how she's doing?
Going to make the rounds and probably turn in early
Hugs & Prayers
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If you want to get updates on Cheri, then you can see her on Gina's website. This is just beating a dead horse.
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"11 minutes ago
Edited 7 minutes ago by AlwaysHopeIf you want to get updates on Cheri, then you can see her on Gina's website. This is just beating a dead horse. "
Ouch!
Hey Cy,
How are you my friend?
Thanks for asking about me. I am on again off again with the Xeloda. Had a really bad reaction last week so he took me off and now I start up again on Weds. I have that same thing with my eyelashes! But they fell out again so I didn't have to worry about it too long. My eyebrows came back tho! Almost overnight!
How are YOU feeling??? I hope stronger!!
Cheri is fine. She has a mammo tomorrow on that new lump so everyone is saying a prayer for her.
Charlene also needs some prayers as she has her ooph tomorrow too.
Boo! Hey girl! Just to report- The Fluffman survived his big adventure!!! Thank you again for calming down this very nervous mommy!
Sheri? How is your arm feeling?
Vickie, I sure hope you gave yourself a raise when you did the payroll!
All you Cali-girls look so great. I love that pic.
Deb, can't wait to hear how you made out today.
Slonedeb, putting you in the center of the circle next to the chocolate fountain so you can keep your calories up!! ((hugs))
It sure is getting cold here! There will be frost on the pumpkins tonight. It is the first time I have turned the heat on.
I want to buy my Halloween candy so badly- but if I buy it now I will eat it all and have to get more! I have to wait until the last minute.
Wishing everyone a cozy and peaceful evening.
Love,
g
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Jaz, I was just wondering about a friend. Not trying to start something.
Gina thanks for the update on Cheri, I get so tired that going to several place to check on MY FRIENDS is hard. I can't sit very long by the time I get on the computer at night.
I hope the treament will better for you this time. Maybe they will lower the dose. That's what they did with the Abraxane for me.
Sounds like we need to round up the Magic Carpet
To make sure the Docs are treating our sisters right!
I have my Bone Scan and CT set for Nov. 21 and will get the results Nov 28th
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b445.....I'll be thinking about you.....my sis just went thru bone scans and a bone biopsy. She's o.k. I hope with all my heart, yours will be too!!
Boo46, although I do not have any kids of my own, I do have 12 nieces and nephews and that video had me laughing so hard I had to rewind and listen again because I missed stuff.
Thank you so much for the much needed belly laugh!!!
Traci
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Thank you Traci, They bone scan is a repeat to see if there are any changes since May. I praying there isn't. and I'm praying the CT shows more improvement in the liver. I've held a lot of treatments this summer so am a bit nervous about it.
Well I'm really sore and need to lay down.
Hugs & Prayers to all Nite
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hey Cy, anything I can ever do for you - you know I am there.
I am happy to keep you up to date on our friends!
I know how hard it is to post when you are feeling poorly.
ANYTHING I can do for you is my pleasure.
Cheri is a good friend to all of us and she is concerned about how you are feeling too, so I will let her know you were asking for her.
I am going to start praying now for good scan results....
I don't know if you can see it... but I THINK that MAY be Ned over there in the distance.... November 21 is a long way off but I know Ned when I see him and I think that is him and he is looking for YOU.
Love you,
g
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Hi girls, dropping in to see how everyone is doing.
Brenda/BMD, great pic - looks like you all had a good time.
sheri, how's the play?
cy, haven't seen you in awhile. The holiday food and gift festival sounds fun. I've had one of those weekends where I literally did nothing. Can you use an eyelash curler to curl your lashes out and up? Cheri is nervous about tomorrow so it cant hurt to say a prayer for her even though we know it's scar tissue. Anytime you want to know how Cheri is doing and are too tired to look for her, let me know.
Vickie, peanut butter cup ice cream...yum.
Going to read and Dancing with the stars is on.
Margaret
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CY: I always come here to see how you are doing. I will be sending special prayers your way for the scans in November.
I think you are a wonderful woman, with unbelievable strength. I always smile when I see that picture of you in the glenda dress from Pinkstock.
I had the opportunity to talk with Cheri in chat over the week-end. She is sounding good, despite having all the issues with the infection in her leg. Discovering a new lump is scary for all of us. The mammogram is today. I think now that its here, fear may have become more real, but we are all chanting B9. I miss talking to ya.
Nicki
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good morning family....
Cy thinking of you as always...
Nicki...so how have you been?.. I actually have a minute to catch up... still exercising... and hope you found an indoor pool..lol.. brrr...
BMD what a great pic... hey did Lini really have flip flops on... lol...
Lini met a woman yesterday from CA.. she had flip flops on and it was only 30 in the AM...brrrr... she wears them all the time... hmmm... must have really big boots to go over them ...lol... hugs my warm friend
missing way too many... prayers and warm thoughts all around... snack time cooking today...
Chillie cheese nacho's and chicken wings... nothing good cuz it doesn't warm you up .....
hugs MB
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Cy its great to hear from you. I check in here often just to get an update on you and how you are doing. I can so understand the chemo tiredness 1st hand. So sorry that you feel so bad and then come here to ask about a friend and receive negative responses. That is not what the circle is about. Feel free to ask about Cheri anytime cause there are many of us that love and care for her.
Amy
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Hi Sheri - Good to see you too.
Cy - Hope your resting up some. Will add your upcoming scans to my prayer list.
Gina - I knew Fluffman would be just fine
. Glad you made it through ok too
. I know what you mean about the Halloween candy. Mine is hidden in a closet till tomorrow night!Traci - I'm so glad to hear about your sisters great results. Happy the video gave you a belly laugh also.
Hi to Margaret, Jaz, Nickie, MB and Amy.
I went to a new PCP last week. I really liked her. Got a flu shot and a bunch of labs drawn. She's testing for lipids since I'm in my 40's. Also testing my thyroid and B vitamin levels since I'm still so tired and having such a hard time losing weight. Also having Vit D levels tested because I requested it. There has been a lot of research lately about Vit D levels and cancer. When we discussed it she was willing to test but said we need to interpret results with a grain of salt. Seems she has had a lot of patients tested reciently for Vit D levels and not one has been normal. Very few have been cancer patients. No lack of sun down here in Florida. So what's it all mean? Go figure
Also dealing with neck pain and stiffness the past couple weeks. Just when I get to the point where I'm scared enough to call my onc. things get a little better. So the last couple days the pain has eased up so I'm feeling a little safer. Ugghhhh I hate that BC is such a constant fear in my life!!!!!
Hugs to all going for tests and proceedures.
Sue
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Boo/Sue -- sounds like you found a GREAT primary care doctor. Mine has become my go to doc now that I'm out of treatment. I think we all have 'canceritis' pop up and that probably won't ever totally go away.
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Good Morning.
Haven't gotten to post for a bit. Went to a Women of Faith gathering over the weekend in Charlotte. I so needed that. These women have had some really bad life experiences and have risen above them with a growing faith and the most important thing - they haven't robbed them of their joy. They enjoy life!! That is a lesson we've learned too.
Deb - can't add to the advice others have given but just know that you can come talk here (or at our other place/Gina's) and we will be there for you.
Cy- Don't worry about asking for friends that can't or don't come here. They haven't stopped being friends or not caring about you either. It is hard with jobs and families and illness to go to several places. I think most of us go where things are easy to navigate and where there is a warm, cozy feeling.
I drop in to catch up with some and encourage new gals - it hasn't been the same to me or many since the change over. I've dealt with many computer changes myself over the years and learned to live and like them - maybe, sometime I'll feel that way here again. I know your scan is a few weeks away but we are holding you close and sending hugs and many prayers for good news.
Lisa, thanks for sharing the picture of a good looking group of women. Glad so many of you could get together with all that has happened in California. I know all of you just needed some time away from all of that.
Gotten cool here too - droped from 85 to 65 like a rock. Kind of drop you feel through and through. We did get some much needed rain but not enough to really improve the drought. Asheville - about 65 miles west of us was in the news yesterday with lack of water/wells going dry.
Haven't bought Halloween candy or even put any pumpkins on my porch. I live off the main road, in the woods, and we just don't get any kids here. Grandkids live far enough away that they can go in their neighborhoods or to church and get far to much candy there. I decorate at Christmas - love to do that - and then have a party so folks do come and enjoy that with me.
My daughter is due Dec. 5th with another little girl. Her C-section was scheduled for Nov. 28th. Yesterday on her visit, she was told that the prevous two weeks they didn't say anything but again yesterday she is measuring at only 31 weeks - she is 35 weeks. They are thinking something is wrong with the placenta for the reason the baby isn't growing. At this point, the baby is still moving. She will be having an ultrasound on Wed or Thurs so we will know more then. Hard when your child calls crying that her baby isn't growing and you are 5 hours away.
Hope everyone enjoys their fall day. Will check back later. Brenda
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Double posting cause I know not everyone reads at Gina's...sorry for the repeat
OK....The Dr. appointments went well. My Rad onc spent almost an hour with me. I had some real worries about the damage the Rads did to my skin. He went over me with a magnifying glass and said that although the damage is at the extreme end of normal, it is all ok. The problems are just cosmetic, and that is no big deal...so that was good.
I saw a new doc in the practice that had LOTS of info on LE as it is related to rads. He was very encouraging that I may still experience slow healing and improvement in the LE. He said I was doing a good job keeping it under control.
The most interesting part of our conversation was about my shingles. I am still getting little blisters, one or two at a time on my hands and arm. This doc thinks I might have a very rare expression or variant of the chicken pox virus that causes shingles. Because of all the chemo, my immune system is most likely still compromised and he feels that may be why I am having this mild, but LONG outbreak. He also thinks it is the most likely cause for the pain I am having in my shoulder and ribs. I am hoping he is right about the weird shingles, because the other explanation for the pain would be mets to the bone....DON'T like the sound of that....SO we are doing blood work, nuclear medicine bone scan and a chest and shoulder X-ray. He said this is the only way to rule out mets...so here we go. I will schedule the tests ASAP.
My medical Onc visit was also very good and very informative. She is ALWAYS the negative Nelly. For the first time since I was Dx she had NOTHING dreadful or negative to say!
We had a long talk about the type of testing that was done on my samples that showed the triple negative status. She is asking for some back-up details from one of the tests that was done and is actually ordering a second FISH test to reexamine my Progesterone negative status. She still thinks I am at a true 0, but since things are changing in treatment, and they now are recommending AI's for even slight positive status, she wants to quadruple check.
I love this Doc, even if she is usually kind of pragmatic and negative because she is very willing to listen to MY theories and research I have done. Last time I talked to her we had a huge conversation about Vitamin D, turmeric and CoQ-10. She said after a lot of research of her own she now has them all on her information list for people to consider taking J It made me feel good that she valued MY input.
She agreed with my Rad doc wanting the tests but she reassured me that most of my pain is in my shoulder and that is not a typical first bone for mets to land in. She told me not to worry (Ha-Ha...funny lady)
She also knew about a new study being done for the Pten gene expression that allows for the testing to be free. I have been fighting about the cost with my insurance and have been delaying my genetic testing (I know...my bad). My Doc called the genetics consoler who had time for me to drop in. Long story short, she walked me through the whole process and even walked me to the infusion center, hunted down the best vampire and got my blood drawn (12 tubes!!!!) with one poke and NO pain. I swear there is going to be a special place in heaven for the wonderful nurses and technicians that can get blood out of us turnips! SO my blood is winging off to be tested for the regular braca texts and the new Pten one.
So that is it on the medical front. I won't be 100% comfortable until I get a clean scan, but I am actually not feeling too bad. I was a mess when I got into the Rad doc's office. I was in the exam room right next door to the actual treatment room. I could hear the huge thick door opening and shutting...it makes a dull deep thump every time it shuts. I was sitting there waiting for the doc, listening to that noise and it totally unhinged me! I was actually crying by the time the doc came in a minute late. My favorite nurse was with him and just wrapped me up in a huge hug. She knew what was wrong and was SO understanding. I got my crap together in a minute or so, but whew...not a fun little flashback. Remember that special place in heaven I talked about for nurses that do a good job with blood draws?? Well, there will also be a lot of room there for nurses that give good hugs.
OK...I will be back later with other non-medial stuff about my trip, the story of my cat Missy's emergency trip to the vet yesterday (she is OK) and news on Zach (he is still missing), but I need coffee and I want to read what is up with all of you. Thanks for everyone that crammed into the offices with me for these appointments. Mazer was good. My favorite nurse always carries Jolly Rancher candies in her pocket and she shared with Mazer. Amy, I hope you can get the red candy stain off Mazer's teeth...teehee J
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Deb, it sounds like you are in very good hands. Good luck with your scans.
CY, so good to see you posting. Don't push yourself too hard. I know that you worked all through treatment, so listen to your doctor about getting back into the gym. As Brenda said, it is hard to check two sites. So much is going on everywhere, it is hard to catch up. Please know that we think of you every day. As the others said, Cheri is getting a mammo today, but we all know it is just a little scar tissue. Right???
Gina & CY, your eyelashes are coming in towards your eye??? Yikes!!! Both of you take care and I hope you are feeling better soon.Love and Hugs!!
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Good evening, Circle,
I am trying to get back in the habit of being able to come here while at work since I have no internet at home for the time being. But the time just gets away. And for some dang reason, every time I get on the boards, my boss wants to come in and sit behind me. Imagine That!!!
At any rate, hope you all have had a good day. There is so much going on everywhere and I am tired. Tired of it all. But we do all
we can do.
Blessings to all my sweet sisters... and Vickie... the lodge sounds wonderful. Let us know when it is complete so we can gather round that fire for some hot chocolate. Give Nate a hug from me.
Hope all tests and surgeries went well today. Always only the best
wishes! It is supposed to be girls night for me tonight but one of our trio isn't coming and I think us other two just might opt for a night
of rest and relaxation. Boy am I getting old!
Have a wonderful evening. This Georgia girl is lifting you all up in prayer. Pam
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I don't mean to beat a dead horse, but has anyone heard from Cheri? Or Charlene?
CY, I know you talk with Cheri on the phone so if you talk to her please come on and let us know. Susan said she is now hoping to hear that the lump is "hard lard" LOL Guess that means she is hoping for "hardening of the fateries" hahaha I know it is going to be B9!!
Charlenes' Karl is suppose to check in online to let us know how she is doing after her surgery.
Hugs, Marsha
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CY - I miss you! Wish I could help with the eyelashes. I know a lady who had that happen and she had to have a doctor remove them! Tell Scott to be careful (which I know he is because he loves you bunches).
I did read on another site that Charlene is out of surgery and doing well. I'm glad to hear that.
Haven't seen anything on Cheri yet. What's this about a dead horse? I didn't think Cheri had a horse. Guess I need to read back.
BBL
Hugs
Liz
Hmmm I just read back - all I can say is OUCH as Gina said. Was that comment really necessary?
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L iz, read back too and JMHO - no the comment was totally out of line - especially made to Cy with all that she has been having to deal with. People wonder why so many have left for warmer surroundings.
Just to let everyone know that Cheri got an all CLEAN - Mammogram was Ok
Further note on Charlene/Angel - was able to do the surgery vaginally so will make for a shorter recovery time. Karl was going to post more later so if we hear more, will pass along.
Everyone have a good evening - need to start dinner getting a little late.
Brenda
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