TIME TO CIRCLE THE WAGONS GIRLS
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I'm here, I'm here!! gonna copy and paste....
OK...so is no news good news? Actually, I have a bit of good news. The scan yesterday showed that both my lungs and liver are clear. The 2.5 cm node that they were so worried about from November has SHRUNK to 1.3 cm now. That is great. The surgeon said it was too small to worry about now. He also said even if it were still 2.5 cm it is in such a mass of scar tissue that it is not a good candidate for biopsy anyway. The 2.5 cm node that is on the left side is also in a place that makes it major surgery to remove. It is behind my clavicle and sandwiched right next to a major artery. He said that both the size of that node and the fact that I have a bunch of new nodes showing up on the left side (all under 1.5 cm) is "worrisome" and needs to "be addressed"....BUT that he did not see anything that he could easily biopsy.
SO...I still don't know exactly what is going on, but I feel like the node in my auxiliary area shrinking has to be a good thing. The surgeon said he was handing off to my onc for a decision, but his advice would be to scan in 4 to 6 weeks and compare again. We talked about a pet scan, but he said with all the scar tissue, arthritis, and assorted aches and pains will most likely cause a bunch of false positives.
I am flat worn out. I don't know exactly what to think, but I am too damn tired to panic any more. I wish I had a definitive answer, but at least there was some good news. I have an appointment with my PCP's office tomorrow afternoon. My doc is still out of town, but the guy who is covering is a good egg and familiar with my case. Maybe he will have a good idea, or a magic wand....or at least a refill for my Valium....
I don't how to express my thanks for all the hand-holding, good wishes and prayers. You guys are all the best of the best....
Huge hugs
Deb C
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I keep looking for an update from Deb ... I'm praying that all is good...
Colleen - wow ... that was a long post!! stay away from google until after you've talked to the rad onc ... I'm glad that you got to have such a nice day with Warren!!
Gina - Congrulations on being finished with RADS ... that's huge and has got to feel wonderful!! I'm praying that you never have to step foot in that place again ...
Nicki - gosh you just got home from work - that was a LONG day for you. Did you have a meeting that went long ??
I'll be back later ... it's soooo nice to see the Circle active again ...
Doreen
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Well, Deb, I think that is good news. Or like you said, it's at least not bad news. I hope you can find out something else tomorrow.
Colleen, I hope everything is ok. You kinda have a lot going on.
hugs
susan
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I, too, go with the mantra "no news is good news"!! Have a glass of wine, put your feet up, and try to relax Deb. It's been a long week.
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It's nice to see everyone in the circle again. I was looking for a post
from Deb and it looks like you got some good news. I think the axillary node shrinking is definitely a good thing!Colleen, I hope your dad it ok. You certainly don't need any more on
your plate.Pat
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Deb - I'm going with the no news is good news. I'm glad to read about the node shrinking. The others - see what the doc says. Of course I'll be in the room with you but you might want to remind me what he says here tomorrow.
I hope you can get some rest tonight.
Hugs
Liz
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Well, I am so glad to hear that you at least didn't get "bad" news Deb!!! Yay for you!
Seems like tonight calls for a little glass of wine (or a valium, whichever you prefer) and a small celebration.
I'll be thinking about you tomorrow and in the days to come.
Love ya
Me
PS: I think it's time to break out the....HAPPY PRANCE!!!
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Hi Deb, I will go with the "good news" too. Happy dance for you. Lord, knows we need the happy here in the circle.We will rally around for your appt tomorrow. Have a restful night's sleep...you must be exhausted.
Colleen, prayers that your dad is ok. And you,too. Is that a skin cancer that you have? Be careful reading the internet...we all know too much reading is not good.
Gina,congrats on finishing rads!!!
I just worked a 9-9 day again. Making me a cup of sleepytime tea and puttin on my pj's to relax a lil.
So glad to see the circle up and moving again.
Colleen,where in NJ is your dad?
Have a restful night's sleep everyone!
Hugs and prayers,
Candie
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Deb-I am so relieved for you. I like going with no news is good news.
Colleen-Sorry about your dad,hope the blood transfusion helps.
Puppy-How are you doing? I am praying for you too.
Slonedeb- I just wanted you to know I am thinking of you all.
It's been such a draining week. Think I will have that wine and go to bed. It is suppose to be snowing/sleet here in the morning. Real joy getting out in that. At least it's Friday and not Monday.
Hi Nickie,Vickie,Sheri,Peter,Madison,Gina,Bren,BMD and everyone else I missed. Have a peaceful night.
Love to all,
Joyce
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I can't keep up with everyone, but I want to let you ALL to
know that you're All in my thoughts and prayers.
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Peggy! I feel so honored!!! You broke out the happy prance guy for ME! LOLOL....I love that guy.
I do feel relieved, or at least too tired to worry any more. I am eating a huge burger, watching a Monk with my dd and dh. A Valium and a good nights sleep is in the plan
Colleen, send you and your dad a hug. Puppy and SloneDeb....sending you extra hugs too.
I really do love you guys
Deb C
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Deb, what a couple of days you have had!! I've posted to you elsewhere. Glad that you can sit with your DD and DH for a bit. Don't you just love Monk?
Colleen, hope your Dad is ok. I've posted to you elsewere also. Hugs.
Barb, I can't keep up either. Lots of places to read and post. I'm finding that I am not fully reading only skimming and then missing things and feeling awful later.
I know that many are experiencing nasty weather. We are just at the edge of a system and not sure if we are going to get freezing rain/ice or just rain. Everyone stay safe.
The last few days have been draining; I'm tired. If I go to be now and not stay up and get my second wind, maybe I can get a good nights sleep. I am to have my two grandsons for the weekend and believe me, I'm gonna need my energy.
To everyone suffering a loss or having some difficult days health wise - there are brighter days ahead. If we are on top of the mountain; that will pass. If we are in the deep, dark valleys, that to shall pass. I pray those in the valleys, walk into the warm sunshine very soon.
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Okay Miss Deb,
That burger sounds really good. Mr. Tim made something they eat in here in the south called 15 bean soup with a part of a pig cooking in it. All I know is it makes Mr. Tim fart.
I've been checking on you all night. We're making progress aren't we. One node down and a couple to rule out on the next visit!! Let me know what time I need to pick you up for the next doctors appt. I'll bring Maggie next time. She'll like Buffy. Somewhere in the Bible, Jesus talks about praying without ceasing, you probably know where, anyway ... that's what we're doing.
Charlie - my heart is with you.
Colleen - stop googling, I'm doing it for you!
Slonedeb, Peter, Puppy, Valerie and Bill, Pam, Vickie, Amy and all with heavy hearts, my prayers are with you.
Love,
Bren
PS - Big hugs to Madison and Liz
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Colleen: Glad you got to spend some time with Warren unexpectedly today. Sometimes those are the best days. I am sorry to hear about your Dad, I certainly hope he's okay! Please let us know. You just have too much going on girl. Of course we'll all be with you on Wed. and every day you need us before and after!
Deb: Well that's great news about the tumor that shrunk! I would definitely get that Valium refill. I love the happy prance dance for you! Glad you have a good evening planned with the family. Monk is great!
Thinking of everyone having difficulties tonight and hoping for better days tomorrow ..
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Thanks Charlene....it's not a tumor in the auxilary (I hope)...just a fat lymph node. And yep, the Happy Prance guy always makes me smile
Brenda - I just discovered Monk a few weeks ago....boy he makes me laugh!
Bren - 15 types of beans and pig parts? Boy, I bet that makes for some good farts! Actually, I love bean soup and if I eat papaya tablets with it I don't get gas. Maybe you need to feed Mr. Tim some
Hugs everybody
Deb C
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Colleen-sorry to hear about your dad and you have so much going on right now. Thinking of you and if there is anything I can do, dont hesitate to ask.
Deb-well no news is good news so I am sticking with that option. Valium and a burger sounds like a pretty darn good date if you ask me. Shrinking node, regardless of the reason is a good thing. Big hugs to you.
Amy
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Deb, I knew we were talking nodes and I'm sorry I typed tumor .. my mind is all over the place tonight. Papaya tablets for gas huh? Does eating papaya fruit help with that also? I love that fruit!
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Hey Deb- give your mind some rest tonight. Shrinking nodes sound good.
cmb- sorry to hear about your dad. You have had too much to deal with this week. Keep in mind that next week has to be easier.
My culinary compadre, Gina- Long time since we talked, but I think of you so often. Congratulations on finishing the rad tx.
Sige, so great to see you here. You always post the best pics.
Brenda- have a great weekend with your grands, don't let 'em run you ragged.
We are covered with ice, although I did scrape myself out for abit. Our restaurant closed for the first time in 13 yrs due to weather.
Hi and Hugs to all, Vickie , NNN, Sheri and all from A-Z
This circle really comes together when we need each other. Thanks to everyone for being there.
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No worries Charlene....Papaya has papain in it....I can't remember why, but it helps digestion. The fruit works too, but I think you have to eat a lot to get the effect of the pills.
Colleen - I forgot to send you a hug....hope you can get some rest.
Amy - Hope you are not itching too much!
OK...I'm tired ...full tummy and it's bedtime for bonzo.
Hugs all around
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Gina is done with rads? How did I miss that???? MAybe because I have been WAY too self absorbed!!!
YEAH GINA!!!! WOOHOO for you!
Hugs
Deb C
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Deb you had every right to be self absorbed. We get to do that ever now and then.
Oh where do you buy papaya tablets? Not that I ever need them or anything,,ahem.
Amy
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Deb, we are staying with good news........
Colleen, oh my goodness........how is your Dad? So much going on in your life.....big hugs
Amy, I sure did miss ya.....how is our Mazer doing? I hope you are feeling better.
Gina, NO MORE RADS.....HIP HIP HORRAY
Joyce, it is good to see you also.......
Bren, I also make a 15 bean soup......and yes, I do add ham.....it is yummy for the tummy, especially on cold days......
Christine, be careful in that weather. Liz also said they were iced in today. We are expecting horrible weather in the early morning hours
Slonedeb......you are in my prayers. I am so sorry you are having such a rough time.......
Candie.........hope you get some rest because working 9 to 9 must be exhausting
Brenda, my daughter received your package........she was so excited. Thank you so much. She asked me to include a "little extra" in my next package for one of the airmen who has not received ANYTHING since his deployment. It makes me sad to think he has no one at home that mails letters or packages to him.
Liz, Kay received your package also......she is sharing everything with her group of airmen.......thank you so much
Barb, lini, alwayshope, Pat, Suzola(Susan), Biker/Jan, Margo, Sue/Boo, Gus(Guzzler), Doreen, Neesie, WildJan, MB, Charlene, Nicki........... hello to EVERYONE (Oh, now I crying....gosh I missed you all).......putting more logs on the fire
Puppy......saying prayers for you dear friend
Odlays, I know you are still hurting.....we are still holding your hand
HELLO TO ALL I MISSED, I'm gonna sit by the fire, remember our CY's smile, and be very thankful for your friendship
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Deb - sounds like good news to me - at least very hopeful news. So glad that node from November has shrunk - now will pray that the rest will have shrunk on the next scan. Could the nodes be swollen from your LE - I wonder. Anyways try to relax. Yay for clear lungs and liver!
Colleen - when it rains it pours. I hope that your Dad will be okay. Glad you got to spend the day with Warren.
Gina - congrats on finishing rads!
Amy - you can buy the papaya enzymes at GNC for 2.99 a bottle. Last week they were buy one get the second 50% off. They were sampling them at the checkout counter. They were so yummy I bought two bottles. Guy said they were good if you had digestive problems. I just think they taste really good.
I just got back from my book club. I didn't read the book - it was just good to get out of the house - so sick of winter. Did see a couple of flocks of geese today - spring cannot be far behind (I hope). Supposed to get up to 35 this weekend - at this rate it will feel like flip flop weather! It was a balmy 27 today.
Getting late and I need to get to bed or I will not be able to get up tomorrow morning.
Love and hugs to all from A to Z!
Suz
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Good Morning! Had to come here first to check on DebC and all our other friends who are having difficulties right now. I barely have my eyes open and hoping this coffee starts to work quckly.
Colleen: Good to see and glad that Warren was home. I hated to think of you laying in bed or on the couch by yourself. So much is happening to you. I would agree - just the fact that you have to see a Rad Onc is pretty overwhelming. I think Im still shocked about this unexpected and unwelcomed outcome to what seemed like something that would be a simple thing to fix. You must be thinking of a gazillion things - cause I know I would. I wish you would stop going on the internet and looking this up. There isnt alot of information, and what is there just doesnt exlain things enough for my liking. Yes - everything that you are reading isnt very encouraging. Cause Ive been reading it too. But! I think the information is vague and misleading. Sorry to hear about your dad now too. That black cloud is really dumping on your head right now. You know we love you and will be with you.
Janny: Its good to see you and Im letting your words echo in my brain. We do need to be strong for each other. Times right now are so difficult for so many. Yet, Im reading this morning, I can see we care about each other and how much we want to help.
Peggy? OMG! My eyes are still blurring and the sleep hasnt left my head yet. This is the greatest surprise - to see you. You have no idea how often I think of you. Hahahaha so good to see the happy prance man.
DebC: I bet your are emotionally exhausted. Im smiling right now, as I think your news is wonderful. The node shrunk, the scans were good. I dont like the wait and see options very often, but this time it sounds good. Im so very happy for you.
Doreen: We had the Chamber of Commerce meeting where I work yesterday. So after putting in a full day, I had to greet the people as they came in. I walked 4 miles yesterday! Just for work. I was so tired when I got home. Thank goodness it wasnt a meeting, cause I would have fallen asleep in it.
Amy: I have been thinking of you all week. Hate the fact that you are now having to deal with shingles. Sometimes it seems like its never ending. Hugs to you and hoping you are feeling better soon.
Gina: Im rubbing my eyes. Still trying to get the sleep to leave me. Im so lost with what is happening. I just read you are finished with RADS? Definitely time to break out the bottle and celebrate.
So many I want to say hello to. I have to leave for work a bit early today. I need to drive to Wisconsin to evaluate someone. And be home in time to bring my "Wesley" to the vet. Poor guy still has to wear the hood.
Have a wonderful day. So good to see so many of you. You have filled my heart with love and warmth.
Nicki
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Popping in to spread some love and hugs. Overslept and have to get a move on! Snowing once again...grrrr.
Its nice to see the circle unbroken once again.
I'll catch up later...no time to read...
Love and hugs from A to Z
Vickie
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Vickie: Its twilight zone once again.
Nicki
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Morning all
Just popping in to say hi.
Deb and Colleen hope you got some good sleep last night.
Gina Done with rads!!! Yipppeeee
Hugs all
Sue
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Good morning,friends,
Snowing here inNJ and no work today!!! We are closed!!! What a beautiful day...lol.
Just gonna putter around the house today and pick and choose what I feel like doing not what I need to do. Gonna catch up on General Hospital,too.
To everyone having bad weather today...be careful!
Have a great day everyone.
Does that soup some of you are talking about really have 12 kinds of beans? I would love to have that recipe and try it. Someone send it to me please.
Hugs and prayers,
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Hi Madison,
This is just a quick P.S. to add that Mr. Tim is a good cook and made cornbread with the 15 bean soup. It just wasn't my favorite ... think it was the lima beans.
Next time, we'll get some papyra BEFORE he has dinner!! Thinking of everyone today.
love to all,
Bren
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Good morning Circle Ladies.
Candie -- I love a day to just putter around the house. But I got to tell you that I just don't envy you all that snow. Stay warm.
Running a bit late..but I will be back later.
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