Illinois ladies facing bc
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Thanks again, Jackie, for always stopping by each day to leave us some inspiration. It is so refreshing!
We are going to golf today again. My first time out yesterday was not pretty but it was so warm and beautiful.
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Brrr and jealous that Rita is in Fla. but happy for you too. Our furnace is out for the second time this season. Dh has a part ordered to put in it which should come on Friday. Just as the weather gets better. It will be warming up. Thank goodness we do have a couple of heaters that do a credible job -- but do not circulate like a whole house furnace. Of course this leaves me thinking of that person named Murphy. I think should I run into this person, we both would be shocked about what I'd have to say -- good that it is a fictional reference, eh.....
Jackie
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I dreamed last night of Sanibel Island......the surf, the shells, the grouper sandwiches, It was so hot--- (I woke up drenched under the covers with Esmerelda laying on my chest---I keep the temp about 69 at night.......sometimes I can feel her feet are cold when she does this and I am awake..... Went back to sleep, but not to Sanibel. Bummer.....
.
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Oh RedheadedI Sanibel Island-ahhhh. We were there once, would love to go back. However, we are heading to the Outer Banks in March for our 40th anniversary. I know it will be chilly but the prices are much better and it won't be as crowded...I just want to walk on the beach for awhile.
Jackie-that stinks about your furnace-talk about lousy timing. At least it is supposed to be a little warmer the next few days.
Hoping everyone has a peaceful, pain free day.
Mimi
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All ages have said and repeated that one should try to know one’s self. This is a strange demand which no one up to now has measured up to and, strictly considered, no one should. With all our study and effort, we are directed to what is outside, to the world about us, and we are kept busy coming to know this and to master it to the extent that our purposes require. How can you come to know yourself? Never by thinking, always by doing. Try to do your duty, and you’ll know right away what you amount to. And what is your duty? Whatever the day calls for.
Johann Wolfgang von Goethe0 -
Hi everyone!
Redhead....I think that kitty has settled in well with you! What a loving companion you've found!
I love Sanibel, too. We sometimes fish on the causeway and have friends who live on the beach. We will be heading back over there next week as we have friends from home coming to stay with us for a week and they have never been to Sanibel. Some of you might remember Mary Jane who posted on here several years ago. I'm looking forward to having her hubby and her here and we'll have lots of fun.
mimi..I have never been to the Outer Banks and would love to go there. Isn't that where the wild horses are and the Misty horse books are based or am I confusing that with somewhere else?
Jackie...I'm glad that the temps are going to be a bit warmer for you this weekend since that dang furnace has decided to act up again. Brrrrrr.............
Well, I am going to get out of here and make a pot of soup in the crockpot so it is ready for us when we get home from fishing later this afternoon.
Hugs to all of you.
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Rita, yes the Outer Banks way up on the northern end is where the wild horses are. You usually have to drive out on the beach after the paved road ends to see them. We will try to do that this trip. Can't wait to hear the ocean again. My month long break from the AI is done, I will start Tamoxifen tonight. Here's hoping the SEs aren't as bad as with the AIs. Most of the bone/muscle pain is gone but for my hands, they are a mess...4 trigger fingers and the pain that goes along with that and numbness in some of the finger on my right hand, lovely...guess a visit for some injections is in store-yikes!
Hope everyone has a great weekend! Take care ladies.
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When we’re helping other people, we’re nourishing our souls. Depression or unhappiness means we’ve got the wrong goal. We have forgotten that peace of mind is our only goal. By concentrating on helping another person, we renew contact with our soul and with God. We can feel peaceful again. . . . Peace of mind has nothing to do with the external world; it has only to do with our connection with God. Love really is the answer. We’re here only to teach love. When we’re doing that, our souls are singing and dancing.
Gerald Jampolsky0 -
Mimi,
Hoping things go well for you on the Tamoxifen. It feels so good to have SOMETHING else, extra insurance wise, to do with this diagnosis, but a real disappointment when the se's become too rugged. Here's hoping and sending lots of positive vibes that this attempt of the extra insurance goes well for you.
Awaiting the furnace part. Dh took my car and will feed the feral cats for me on his way to work. It is much nicer ( fairly chilly in the a.m. ) weather coming today, as was yesterday. Got up to 40 yesterday and could surpass that by a couple of degrees today. Got lots planned to do in the house since I'm not out and about for feedings.
Yeah for Mary Jane and Dh getting to have some Fla. in their life this yr. and with such good friends. I would imagine their weather has been worse for being so much farther to the North than you and I Rita. Have fun and relax and enjoy.
Blessings
Jackie
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Mimi,
So many fingers! I got a cortisone shot in my right thumb almost 9 months ago and it's still fine. Make sure you get lidocaine before each shot. W/o that other women have complained that the shot was very painful, though usually successful.
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A well-developed sense of humor is the pole that adds balance to your steps as you walk the tightrope of life.
- William Arthur Ward0 -
Its been a very long time since I have posted here , it's nice to know you can always go home
I had my 5 year anniversary last January , and this year on my mammogram I have a Bi Rads 3 calcification that showed up on the same side as my lumpectomy/radiation and now I get to go on the *watch* list back to mammos every 6 months for 3 years on *the* side , has anyone had an experience with anything like this ? In all my readings I cant find anything bad about this, and my Onc/surgeon says the usual its better to err on the side of caution but of course it stirs up the fear beast once again . I would like to think this is scar tissue or rads. damage but I would also like to not have to think about it at all........
Always onward and a sincere and warm hello to everyone
jan
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bc sucks
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Jan,
Big congrats on your five yr. mark. Always wonderful to arrive at that place. Was wondering what type of mamo's do you get ? The reason I ask ( and likely the Chicago area is way large enough to do it ) is that two or three yrs. ago, the Center I go to started using Digital ( 3-D ) mamo's and they show soooo much. It gave me a great sense of confidence in my results. So thinking that maybe equipment improvements have allowed something to "show" that maybe was there and un-seeable before and is really ok. Of course, you can't feel safe, until you are safe -- we never really get to let our guard down too far -- but I'm hoping with you and for you that it all turns out to be fine.
Jackie
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samedaynurseJan send you a PM
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Well I am home from a hair raising experience. I suddenly became so dizzy yesterday I couldn't walk straight. Fortunately, after calling my best friend who wasn't home, I called my next door neiaghbor who said she would take me to the ER. I had extrememdizziness, a little chest pain and nausea.
they slapped a EKG machine on me, and I kept telling them, no I am DIZZY the DIZZY" is worse. an they said they knew whata they were doing first. and I was ok.
I thought I was going to die----even closing my eyes didn't help. Well they did a chest x-ray and gave me a pill for nausea and long as I didn't move it was ok. but then I had to go to the bathroom and they made me use one of the side chairs, and as soon as I was done and sitting on the side of the bed, I started trying to hurl....and the nurse came back with something and put it in my IV and then they did a CT scan, and then uerologoist came in and did an assessment and the ER doc kept thinking it was benign vertigo and I needed a procedure and the Nuero said no----I want an MRI , so they ordered more meds and some dinner for me, and I had just about got done eating when the MRI tech on call showed up , so off I went for that and then they said, we are keeping you overnight. They hooked me up to a heart monitor and gave me fluids all night. The Nuero came in and said he was so sure he would see a small stroke, but he said my brain was "beautiful" and he really didn't know what it was besides maybe dehydration. He thinks my nec discs show some bulging and I should have a nuero surgeon consult and he suggested a spinal tap==I asked why and he said maybe some cancer cells were moving and sometimes they show in spinal fluid. So I said not without talking to my MO first..... I am home I think it may be more migraine type stuff. I couldn't get the docs to agree but the night nurse said her hubby is always dizzy before he gets one....
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Redheaded 1,
I too know "migraine" people and think your on the right track there.
Jackie
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readhead from what I have seen the spinal fluid is the LAST place the cancer would go, I think even after the brain. They are nuts. My thought was dehydration, vertigo or food poisoning but hey I'm not doctor. Migraine is a definite possibility too.
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Oh redhead.....what a scary ordeal you've had. How are you feeling NOW? I would not have wanted a spinal tap either until I had another opinion. Please keep up updated!
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Oh Jan, how well I understand the fears that this has caused. The new mammos zero in on everything......not just cancer. One of my friends went for her mammo.....20 years out from bc......and it came back showing atypical cells. She had them removed but they were not cancer. That was great but the trauma wasn't very pleasant. If the doctors were really worried, I think they would be checking this out more aggressively now instead of waiting 6 months. As your doctor says, "They are erring on the side of caution." Hang in there and try not to think about it too much and if it is bothering you more than you can handle, get another opinion to ease your anxiety. Hugs to you.
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Redhead: possibly a vestibular migraine??? Very uncomfortable problem. Mine started in September 2013. Most recent episode was 3 weeks ago.
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Navymom--is this the kind of migraine where they treat you with like 3 different types of drugs continually? Like a channel blocker and a antidepressant and something else? Several years ago I was in the ER thinking I was having a stroke when my face went numb after having neck pain for like 2 1/2 weeks......I am feeling no dizziness now, but I sorta feel like a headache is wanting to start...
And I am sure I was dehyudrated... I don't drink enough, never have...... I don't know how many bags of fluid I got between 11:30 Friday and noon on Saturday, but I can't stay out of the loo today.........HA
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Rita, SO good to hear back from you ! My good friend Lisa, originally met on this board reminded me that this is the Roller Coaster ride of survivorship.....and I thought, how true. I just didnt want to open the BC box on any level again now every six months for 3 years back to the high high stress level that used to be so familiar, I had reached the point that I didnt even give my yearly mammogram a thought I just did it . Better to be safe than sorry is the correct mantra , this i know, just didnt want to be safe OR sorry
Will keep you posted.....jan
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Samedaynurse I am posting my famous speeches for you:
seat belt speech:
You don't assume you will get into a car accident every time you get in your car. You do put on your seat belt and drive carefully. Same with breast cancer. Eat right, maintain a healthy weight, exercise, and take your hormone therapy (if prescribed). No reason to think you are going to get mets until they actually tell you.
shit happens speech:
Some people win the lottery and become millionaires too but do you really think that's going to happen to you? Shit happens. Sometimes good shit, sometimes bad shit, but most of the time shit doesn't happen. Don't assume shit is going to happen to you.
Life Speech
Remember the word "if" is in the middle of the word "life" for a reason. As long as you have life you will always have "what ifs". It's your MO's job to worry about those cancer "What Ifs"BTW I still haven't won the lottery
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Many people live as if life were a dress rehearsal for some later date. It isn't. In fact, no one has a guarantee that he or she will be here tomorrow. Now is the only time we have, and the only time that we have any control over. When our attention is in the present moment, we push fear from our minds. . . . Practice keeping your attention on the here and now. Your efforts will pay great dividends.
Richard Carlson0 -
Wow !! I think another good quote turning up at the right time for me ( before I came here to read, ) though I have used it before. It is hard not to think of some of the what if's that life always presents -- we just can't let ourselves fall deeply into all the what if possibilities. We can hear them, see them -- just because they may have come up for some reason but then -- throw them into a box, put the lid on, and just set them far, far back out of the way. They do not apply to us.
Of course, I don't want to do that to the "Lottery" one. Just have to keep that one a little closer --- but then it is a 'possibility' you can have fun with and enjoy --- even if it never happens --- some of the things you can do, or just the thought of them can make your insides sparkle and twinkle a bit.
Since I don't know how long I may be hanging around for sure -- I make sure to give thanks for every day I have and mentally recall all the specialness that the day shared with me in any number of ways -- a pretty sunrise, some great laughs with a friend, even the glitter of frost on the ground in the a.m. Nothing is too small to be a special gift. If you can savor life and learn something -- even if today it is only gratitude for the day, then you have had a gift. No returns needed or wanted and tomorrow you will try again to make your life great -- and if you do that it is very likely that someone close to you will have a better one as well.
Go out and have a great day.
Jackie
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Jan, I understand every word that you said. Hugs to you...and please do keep in touch. I will keep you in my thoughts and prayers. Your friend is right! This is indeed a roller coaster ride from diagnosis through the survival years. I get pretty complacent most days but when those yearly check-ups roll around, I get pretty nervous. Hang in there!
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Redheaded1 -that sounds like the migraines I have/had. I struggled for about 4 years with horrible veritgo. After way too many tests/doctors/drugs I was diagnosed with vestibular migraine-migraine without headache, but with vertigo and sometimes the visual aura. They finally figured out Effexor held them at bay, I have been taking 150 mgs a day and haven't had an episode in probably 2 years! Once in a while I will feel the beginnings of one, but it always stops before blossoming. Hopefully the doctors can figure out what you are dealing with shortly, that must have been pretty scary for you. Hope everyone enjoyed their "springtime" weekend, it was wonderful to see and feel the sunshine for a while.
Peaceful and painfree days ahead to all!
Mimi
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The ability to live fully in the moment--in the time and place we are right now--is one of the greatest secrets I know of living joyfully. Because once you grasp it, freedom is very close. You stop worrying about the past and stressing out about the future. Enjoying life--not agonizing about what happened yesterday or what might happen tomorrow--becomes your priority. Your days become a gift, not a grind.
Patti LaBelle
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Jackie , always and forever such beautiful and inspirational appropriate quotes
Nice to see them again.....Thanks to Rita, jackie and Lauren for *getting it* I appreciate knowing there is always support back here at home. A couple more days and I should have at least some information and some type of plan.....til then, Happy Monday !
jan
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