Illinois ladies facing bc
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Jan,
Glad you liked the quote -- I get many in the mail and even before I read any blog entry I've usually put it in. Always a special blessing for me when it turns out to be something that speaks to someone and eases a burden of some kind. I notice it also sort of matches your signature line.
Strength, patience, and a marvelous attitude -- may we all have as much as we can use and a little extra to share.
Jackie
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Thanks Mimi---I am going to look into that. I have been busy this a.m. Called the insurance since we are supposed to "preauthorize" hospital admissions. Nicest guy at BCBS said, we will treat this as outpatient since you were just there 24 hours. No worries.
Called Dr. Migas office--he is out for the week, but Katie took everything down and said for me to call her after I see the Nuero PA Thursday to update her. Said Dr. Migas could look at the stuff from OSF, but not from Dr. Li's office.
Called Dr. Li's office--they couldn't get me in any sooner, but said they would let the PA know about the stuff at OSF.....
Still have a headache. Still having to force myself to hydrate. I just never feel thirsty. And I don't drink the right stuff when I am....
Yes sunshine is beautiful and I can see the earth and as a gardener, that is always joyful......
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“You are never more essentially, more deeply,
yourself than when you are still.”Eckhart Tolle
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Life is a riddle. We cannot expect to understand life's twists and turns as they occur each day, and we greatly frustrate ourselves in the futile attempt. Be content to appreciate that there is an overarching purpose, though that purpose be known only to God, and to history. Choose service. Choose joy. Accept the unknowing.
Jonathan Lockwook Huie0 -
That's a pretty hard challenge you posted, JackieStill fighting the headache---did get some good sleep after midnight. I got my migraine medication and found out that it isn't compounded at all---so you can bet I amgoing back to my local RX and raise some hell about them telling me it was off the market.... but I took two and then a couple hours later I took another one and thought that might put me to sleep, but it didn't so at midnight I took my regular nighttime meds, and I woke up with just a little headache, but the longer I was up, the worse it got....
So tomorrow I see the PA in the neurologists office at 8:30, then take my dad to a lab appointment at 2:45.and shopping at Sam's club when we are done......what a treat....
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Redheaded1, I'm worried about you! Hope your neuro PA can give you some relief!
As for me, I am 16 days out from BMX...finally have all my drains removed but still have my staples. I'm supposed to be wearing tight bandages but I can hardly stand it--I have a latex sensitivity and today my body is fighting the bandages. I'm sitting in my chair, bandage free, and it feels.so.good!
Today was my first day out all by myself. I have a coworker who is leaving before I get back to work so I needed to give her my congrats and best wishes. I had a hard time getting out of there because everybody wanted to talk. Next I did some window-shopping at the mall and got a couple of errands done.
It was such a good feeling to finally get out a little bit!
Laura
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Vanmama, congrats on getting the drains out, you must feel so much better. Take it easy and don't overdue it, your body still has a lot of healing to do.
Redheaded1-good luck today with the neuro-hopefully they have some answers for you-keep us posted.
Wishing everyone peaceful, painfree days!
Mimi
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anyone here from elgin ,il area ?
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hey DSW Im in Algonquin
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where did you recieve treatment at . I have been going to Central Dupage Hospital but want another opinion .
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Positive thinking is not the destination; it is the journey. An optimistic person will be constantly challenged – by external circumstances as well as inner fears and doubts. Always remember that these tests are like a ladder you must climb. As you move past each rung, your optimism strengthens and your confidence begins to flex newly found muscle that you might never have developed otherwise.
Montague Ewards0 -
Sorry I'm running so late with the quote -- it's been a roller-coaster since Tues. Went to work and found that one of my employers had to be admitted to the hospital for a speeding heartbeat. Just by chance the other half was at the hospital for a board meeting. So I was called and ended up staying at their home for the next 25 hours. Then came home, slept from 9 p.m. till 6 a.m. and back there today for 9 more hours as there were tests and other things to be done.
Finally back home here and able to catch up to computer things.
Redheaded , I so feel for you. I've only had a couple of migraines and they were just excruciating. I just can't imagine going for so long and not being able to be rid of them. I so hope that you find a 'good' solution quick. .
Blessings
Jackie
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Thanks to Jackie , Rita and Lago for hangin with me for the last few days......I spent over half an hour talking with my Onc/surgeon yesterday and I am pretty much at peace now with waiting as recommended. I have it in writing and in pictures , huge probability is scar tissue in the surgical sight or radiation damage or showing up now cause of my huge weight loss, regardless of what it is , no way does it appear to be cancer cells and no way do they expect it to change but the proper thing to do is watch it for awhile to be certain....as she said let her worry and watch and if I need to worry she will make sure Im the first to know. Onward I go but wanted you to know how much I appreciate that you can always go home......
jan
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An optimist is the human personification of spring. ~ Susan J. Bissonette
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I go to Good Shepard in Barrington. My primary care doc is here in Algonquin, Im in and HMO, and my group is Advocate Good Shep. So my surgeons and onco are out of that group/ area. Ive been very pleased with all of them. I see Sobel for oncology, his office in Crystal Lake, had Barry Rosen as general surgeon and see Steve Madry plastic surgeon. Very happy with them, especially the 2 surgeons. Highly recommend. A few others have gone to Madry at least also.
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Jan they will continue to watch you even closer than before. Any internal "zit" will get them to require a follow up. You would rather they be over cautious than not. Had they payed attention with my little scare 4 years prior to being diagnosed I bet they could have caught it before it became invasive and grown to 6.5cm!
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Hi DSW, I am in Bartlett. After lots of searching, I did my initial treatment/surgery at Northwestern Memorial. I just felt it was the right fit for me as it was a more coordinated effort. For chemo, I needed to do that locally, so I see Dr Randy Rich in Arlington Heights - nice guy and very easy going. That said, I have been thinking recently about getting a second opinion about my ongoing treatment and have had recommendations from m OBGYM (who has BC) for Dr Steven Lefevre in Arlington Heights and I'm also going to ask my RO (Dr Ruffer at Good Shepherd and my favorite of all my doctors) for his opinion. I would really like to work with someone who focuses mainly on breast cancer.
Redhead, sorry to hear about your scare. I have had a mystery vertigo issue for the past 5 years, with so many tests turning up nothing concrete. My neurologist concluded that he thinks it's the migraine spectrum but the only odd thing is that I only get it at night when I am asleep…I'm working with a naturopath right now to see if there are any natural approaches that will get to the bottom of this, and if not, I will finally go to see Dr Hain at NWM - he's the dizzy doctor and one of the best out there. Good luck to you - dizzy and nausea is the worst! the only thing that really helps me is Dramamine.
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Nuero update--- PA decided to fetch the Nuero to see me after she had done all her reviews (YES!) My Nuero looked at the scans, and she made them dig out my file and then she noticed that when I had an MRI in Sept with contrast, it showed a small capillary cluster on my brain stem---its unusual, there is absolutely nothing they can do about it, but be aware that I have it. I asked her if it should be cause for alarm, and she said not unless it bleeds. (The Ent PA who ordered the scan acted like it was nothing) She didn't think that the C-spine vertebrae were moderate bulges, only slight, and saw no need for a neurosurgeon consult. She does want to see me in 2 months herself, but she thinks it might be migraine related. She also said the spinal tap the on call nuero suggested was for her NOT a concern about breast cancer mets, but that there were other types of things in spinal fluid that was sometimes useful to see. I think she is probably going to want to do another MRI with contrast, and BCBS is going to explode on that one....She didn't elaborate on spinal tap cause she knows I ain't doing it....She trained at Mayo and also John Hopkins, and I just think she is the GOLD STANDARD for doctors....
Went to my exercise class, and started feeling dizzy again a little. Talked to instructor, showed her the sheet they gave me about Orthostatic Hypotension and she told me to keep my head up and not bend my neck on some of the moves we do and to not use weights, just my own body until things settle down. And if the class does 10 and i do 5, thats fine.... We dod a lot of position changing...The funny thing is , I never had any issues w blood pressure drops when I changed positions until this dizzy spell that landed me in hospital.
Still have a mild headache that goes away with meds. I am flushing myself with water and trying to eat more whole, natural foods. Stress is a factor, I do believe....
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Jan, I hope you're feeling better now about waiting and watching! I'm betting on the scar tissue or rad damage! :-)
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Sometimes you need to take time for you -- the glorious inside of you.
Rest is not idleness, and to lie sometimes on the grass
on a summer day listening to the murmur of water, or watching
the clouds float across the sky, is hardly a waste of time.
John LubbockThings like this can bring alive the most wonderful thoughts, and deep feelings that are inside and don't always come to the surface easily. The above things so often help you and you barely have to try -- just close your eyes and let you come out, gradually and gracefully. Maybe a lot of surprises about you too. Brings wonderful peace and contentment with it. Good restorative.
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"Don't let life discourage you; everyone who got where he is had to begin where he was."
Richard L. Evans0 -
Gray and drizzly and sounds like we could be having a few days of it. Arrrrrg. Not ever to my liking. I need sun to bloom in and -- but wait, a friend on another thread is sending me a sunshine light so I'll be ok.
That said, wow have we had a lot of 'dark' days this winter. I can recall never much having to worry about "weather" moods and it seems like it has been there most of this season. Well, whatever mountain -- there is a way to climb it or go around it.
Hope you all have a good Sunday.
Blessings
Jackie
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Yes it is gray and drizzly here too Jackie----saying maybe some snow tonight.....but mostly north of where I am.... It is almost 10 and I am sipping a smoothy and Esmerelda is begging for a cat treat. She knows they are on the computer desk.........0 -
Hi everyone - it has been a while since I stopped in. Hope everyone is doing well.
DSW - I also had the "dream team" of Barry Rosen (breast surgeon) & Stephen Madry (plastic surgeon) out of Good Shepherd in Barrington. I would definitely recommend them!
Let's hope we see some sun this week!
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Self respect cannot be hunted. It cannot be purchased. It is never for sale. It cannot be fabricated out of public relations. It comes to us when we are alone, in quiet moments, in quiet places, when we suddenly realize that, knowing the good, we have done it; knowing the beautiful, we have served it; knowing the truth, we have spoken it.
Whitney Griswold
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Hi, all! Just looked out the window and it's snowing. It looks so pretty, but glad I'm not out in it!
Feeling down today--last night when I took off all my compression bandages, I discovered I've developed a seroma. Cracked me up when I poked it and watched it slosh like a waterbed! I called the surgeon's office and, of course, they want to see me tomorrow to see if it needs aspirated and told me there's a chance the staples won't come out on Thursday after all.
I had a BMX on 1/5. This is really the first issue I've had and I've been enjoying finally being able to get out a bit. I guess maybe I overdid it???
When my DH was home a bit ago, I asked him if he'd spilled something around the fridge because it seemed damp. We opened the (bottom) freezer and there's a layer of ice on the bottom. We don't have water hooked up to it so it's not the ice maker or anything. So tonight when he gets home, he will have to empty it out and see what's going on. I can't really help. So frustrating!
I know that in the scheme of things, none of this is serious. I should be thanking my lucky stars that my path report was encouraging but I sit here and think of all I could be doing instead of just sitting in my chair!
Laura
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Laura these are just life things. Granted they can be annoying but it is nice to be here to experience them.
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I am a new member of this group and I live in the Northern Chicago suburbs. I would also be interested in doctor recommendations and referrals. So far, I have only met with a surgeon briefly. My treatment will probably mostly take place at Glenbrook Hospital.
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Hi Trvler. I live in the city and was treated in the city. But if you are just looking for a 2nd opinion for surgery, chemo (if you need it) or radiation I can recommend my team at Rush.
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Laura---I don't think you overdid anything. If a seroma is going to form, it forms....I applaud you for being up and out and positive about it all. I was out today and when I left my dad's, the sidewalk and driveway were very slick, and I had to defrost and run the wipers a long time before I could leave.....too lazy to get the scraper out and hurry things along. Hopefully, it will stop before I go bowling at 6pm. I hate to think of scraping when I'm done tonight.....
Ritajean, is it still warm and balmy in Florida/???
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