Illinois ladies facing bc
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Laughter An interior convulsion, producing a distortion of the features and accompanied by inarticulate noises. It is infectious and, though intermittent, incurable.
Ambrose Bierce
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Hey Girls...Just wanted to update you all with what has been going on. I went to the doctor on Thursday and got admitted to the hospital. I had quite a few clots in my right leg and my blood was way too thin. I shouldn't have had any clots since I am on comudin. So, off to the hospital I went. I had to have Herperan and they gave me 3 bags of frozen plasma. The heraprin was to break up the clots and the plasma was for clotting factors. I got discharged on Sunday. I have to keep my legs up for the most part. I can get up to go to bathroom or to fix something for me to eat. No strenous walking or excerising and no sitting for long periods of time. So, I am at home and can't go to work til next week. I had a bone scan and 2 cat scans. The only thing they found was an enlarged lymph node on my left armpit. "The oncologist says its borderline and nothing to worry about.. He hasn't gotten the tumor marker tests back yet. I might get a pet scan just to be sure. Since the first time I got cancer I had blood clots too. Kinda worried about it.
JulieB..sorry to hear about your husbands bleeding and clots. Hope everything turns out okay with him and you. It always seems to be something...It just never ends.
Everyone else ...take care....
Ginny
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Hi Girls..
Just popping in to say hi and let you know that I have been thinking of you all even if I have not been posting. I have been sick all weekend with high fevers.. now have full blown pneumonia on my left radiation side . It never ends does it. Oh well...life does goes on...and this to shall pass with the help of antibiotics and cough meds. You never know how many new jammies you find in your dresser when you are looking for something dry to wear. lol
Connie..Happy Birthday to you..hope you had a great one and got to eat cake to.
Ginny..Sorry to hear about your clot issue. Glad they were able to find it in time..remember to take it easy. We do need are legs. Good luck on your test results
Wendy..bee stings..now come on..remember to change bulbs in the day light when they are sleeping.
Jackie.. are you getting excited yet about your trip. Please take pics and post them for us. Enjoy yourself and have fun. We only get one life so live it to the fullest...
Laura...have fun on Sat when you all walk. Hopefully it will not be to hot for you. Remember to drink your water and stay hydrated.
Rita..how true is it when you our on a mission for something special to wear you can't find it. This years fall outfits are so so not very classical. Hope you find something in Chicago when you come Sat for the walk.
Jule..Juliechicago..hope you both are feeling better and doing well.
JulieR...happy honeymoon to you.
Off to bed again..just really tired.. take care.
Remember to be healthy..be happy.
Blackjack
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Hi all,
thank you all so much for all the kind wishes and sympathy. Yes- it's definitely a weekend we will remember.
Dave is home as of an hour ago. The bleeding stopped and the urologist made the decision not to go back actually and to see if things will heal on their own. He- Dave- is not too happy about it as he was hoping for answers at this point, We are both under orders not to lift much and to take it easy. Okaay....so the house gets a little grody for a while.... I managed the kids and the house on my own last night/this am. Doing okay. Not much pain except for the stupid drain sites. Just really really need a nap tired. I see the PS tomorrow am and know that one of the drains can be pulled. The other one is going to have to stay in for a bit.
I do have a question---- am expecting the pathology report late today or tomorrow and of course, am getting quite nervous. My situation is a bit atypical in that I had the known tumor removed in May via lumpectomy with a SNB. Clear margins/ SNB was clean. I knew I would be having this second surgery, but wanted time to research my options. What I didn't expect then was that it would be almost 3 months until I could get on this particular PS's schedule. So oncologist wanted me to start chemo before surgery- even though we weren't trying to reduce anything. I completed the chemo (CMF) 4x before the surgery. So the question becomes this.....IF it comes back with some evidence of more cancerous cells--- is the response simpy- great, you made the right choice? OR, will I have to back to have more nodes removed (no way to check sentinel pathway) and is there potentially more chemo in my future? I'm not sure why I didn't have the sense to ask the bs that when I could-- but I was pretty sleepy at times. I'm obviously hoping for the best report (none found...but then you begin to wonder if you did this for nothing....) and am also hoping that the pre-chemo may have taken care of anything that might have been growing.... I need this to be done with. I need to start healing because I'm starting to feel that I'm at my limit and have had about as much as I can take. I'm sure everyone here has felt that at some point...
2 bouquets and 2 fruit baskets have arrived since I've been typing. What great friends we are blessed with. But honestly--- if I keep eating everything that has arrived here, I will gain back the 20 lbs I just lost. Get these pistachios away from meeee.....
Again- thank you to everyone for all your concern and kind wishes......
-julieb
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Hi all,
thank you all so much for all the kind wishes and sympathy. Yes- it's definitely a weekend we will remember.
Dave is home as of an hour ago. The bleeding stopped and the urologist made the decision not to go back actually and to see if things will heal on their own. He- Dave- is not too happy about it as he was hoping for answers at this point, We are both under orders not to lift much and to take it easy. Okaay....so the house gets a little grody for a while.... I managed the kids and the house on my own last night/this am. Doing okay. Not much pain except for the stupid drain sites. Just really really need a nap tired. I see the PS tomorrow am and know that one of the drains can be pulled. The other one is going to have to stay in for a bit.
I do have a question---- am expecting the pathology report late today or tomorrow and of course, am getting quite nervous. My situation is a bit atypical in that I had the known tumor removed in May via lumpectomy with a SNB. Clear margins/ SNB was clean. I knew I would be having this second surgery, but wanted time to research my options. What I didn't expect then was that it would be almost 3 months until I could get on this particular PS's schedule. So oncologist wanted me to start chemo before surgery- even though we weren't trying to reduce anything. I completed the chemo (CMF) 4x before the surgery. So the question becomes this.....IF it comes back with some evidence of more cancerous cells--- is the response simpy- great, you made the right choice? OR, will I have to back to have more nodes removed (no way to check sentinel pathway) and is there potentially more chemo in my future? I'm not sure why I didn't have the sense to ask the bs that when I could-- but I was pretty sleepy at times. I'm obviously hoping for the best report (none found...but then you begin to wonder if you did this for nothing....) and am also hoping that the pre-chemo may have taken care of anything that might have been growing.... I need this to be done with. I need to start healing because I'm starting to feel that I'm at my limit and have had about as much as I can take. I'm sure everyone here has felt that at some point...
2 bouquets and 2 fruit baskets have arrived since I've been typing. What great friends we are blessed with. But honestly--- if I keep eating everything that has arrived here, I will gain back the 20 lbs I just lost. Get these pistachios away from meeee.....
Again- thank you to everyone for all your concern and kind wishes......
-julieb
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Morning! Hope everyone is well...
Julieb....I really don't know what the heck they would do in your case. Did you get your path yet? I would ASSUME since your SNB was clean you would not have any more nodes tested...but then I am ASSUMING that. You seem to be doing really well and I am so happy for that. DH's story however.....well, I hope this last episode was indeed his last episode. And don't you dare send those pistachios to my house! And yes...we have all reached our limit. Until of course something else happens and then we find a new limit. We women are tough.
Bllackjack....Pneumonia???? OK...that's enough for you. You are done. You are going to get well and stay that way. I assume you are still going to Vegas? You have all those new cute clothes...be a shame to waste them! As for the bee stings....I got hammered at 2:30 pm! But then I disturbed their little hidey-hole in the light.
Ginny....what the heck????? Another husband/wife duo down for the count! Hopefully this was just what it was, and not anything more sinister. You listen to the docs and stay low for a bit....
Rita...I hear you about shopping. I can go to TJ Maxx or Marshalls 10x in a row and nothing. Then just stop in cuz I need ONE thing...and walk out with a few hundred $$$ of stuff! Of course...that is true of Kohls and Jewel too!
My leg from the stings is just achy now but the itching is driving me nuts! Still warm to the touch but not really swollen anymore. I did google it and I am progressing normally so I guess I will just do the ole' wait-n-see. DH brought home the Sex/City DVD which came out yesterday so I think I will just sit home this am and scratch-n-watch. OH...any NCIS fans??? Was your sound for the first 20 minutres TOTALLY screwed up? We could hear the music/sound effects but it was like none of the actors had mikes. I know Ch. 2 here went HD on Monday and ever since the sound has been hit or miss.
Have a great day everyone! Weather still nice and warm, but stay away from those bees!
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Posted: 23 Sep 2008 11:37 AM PDT
- "Take your hands off the car, and I'll make your birth certificate a worthless document."
- "If you run, you'll only go to jail tired."
- "Can you run faster than 1,200 feet per second? In case you didn't know, that is the average speed of a 9 mm bullet fired from my gun."
- "So you don't know how fast you were going. I guess that means I can write anything I want on the ticket, huh?"
- "Warning! You want a warning? O.K., I'm warning you not to do that again or I'll give you another ticket."
- "The answer to this last question will determine whether you are drunk or not. Was Mickey Mouse a cat or a dog?"
- "Fair? You want me to be fair? Listen, fair is a place where you go to ride on rides, eat cotton candy, and step in monkey poop."
- "Yeah, we have a quota. Two more tickets and my wife gets a toaster oven."
- "No sir, we don't have quotas anymore. We used to have quotas, but now we're allowed to write as many tickets as we want."
- "I'm glad to hear the Chief of Police is a good personal friend of yours. At least you know someone who can post your bail."
- "In God we trust, all others are suspects."
This is for all of you with the HOT cars, but as you do you probably have seen these more than once.
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Dreams come true. Without that possibility, nature would not incite us to have them. John Updike
Good morning everyone.
It's going to be sunny and nice and warm. I'm going to try and make up for all I did not get done yesterday. Went and got a girl-friend, temporarily carless and we ran around all afternoon. Fun to play hooky from my work here. Can't let that happen too often though.
Hope you are all doing well---or will shortly be well, from operations, pneumonia, bee stings...whatever. Bee Well.
Jackie
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JulieChicago I sure hope that your hubby is doing better today. You two have had more than enough already! For you, your medical onc is the one to talk to about chemo. Because chemo addresses distant micro cells, and surgery and/or rads addresses the local, you are probably fine. We all know that feeling of waiting for the path report, and all our fingers and toes are crossed for you right now.
Wendy I love NCIS, don't know why, and I'm glad to know it wasn't just my vcr causing the audio problem. Yeah, I know I'm a dinosaur still using vcr.
Blackjack Feel better soon! I know what you mean by something dry to wear. Been there.
Everyone....Feel well, and enjoy the day. Check back later, after I shop for a wedding gift.
smerf
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Hi
Path report came late yesterday-- and it's all clear. Such mixed feelings..... Good, yes- but then you think- well, did I just do this for nothing.....
Also saw my PS this am and as I expected from my first look....there is more work in my future. The implant is hanging far too much to my side- looking and feeling like it's in my armpit. It will need to be adjusted in the future- but can't be done until everything is healed. I'm told my skin is very thin (post radiation 8 years ago-- in "very good" condition considering rads, but thinner/less elastic than it would be otherwise.) Am to stay on antibiotics and he wants to see me every 3-4 days. So far, skin holding up, but this is a critical week. Am also told things will look better once swelling goes down and fat under skin kind of readjusts and smooths out- right now it's lumpy and it looks like an alien on my chest. So....will do as I'm instructed and try to keep freak out/cryfest at bay. I knew full well the challenges ahead, but am guilty of hoping to avoid them.
At least one of the drains came out. Reduction side doing fine.
Dave came home yesterday and we are walking around like a couple of old people....
And he needs the computer now, so have to go
Blackjack-- so sorry about the pneumonia!!
And everyone-- thank you again for all your kindness(es)
-julieb
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Hi To ALL!! Have a few minutes to spare & thought I'd check in!
OMG Ginny, you are on blood thinners and got blood clots!!! How did that happen?? What made them check you for the clots? Are they painful? Hope not, For me being off my feet is not that fun. I have to move around!
Julie B YEA B9 path is a good thing!! Never try to second guess yourself. It's always better to be on the safe side! I've often thought that IF I would have pushed the onc into chemo the first time around maybe I wouldn't have had a second time.....but then. Hope your DH is doing better.
Blackjack, pneumonia??!! What's up with that?!?
Wendy, yup you and Laura are just to sweet to be around bees! Maybe we should plant garlic near the property line, think that would help w/ r neighbors?
Jackie, a day off... What a wonderful idea! I think we ALL should set aside 1 day a month as "ME" day! Housework ect will still be there when we get around to it! ( on second thought 1 day a WEEK sounds better LOL)
Rita are you going to start bowling soon? Leagues here start end of this month. Would join but to much going on.
I better get back to work
will check in later
Stay healthy be happy!
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Julie.....I'm jumping for joy at your good path report! That's the news we all love. And, by the way, I am old, but I can still jump. So you and hubby will too,and very soon. Take care of each other, and keep us posted when you can.
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Smerf you are NOT old!!! We are just experienced!! LOL
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Thought I'd share this with youu:
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This October, instead of picking up lids, go online or pick up a pen, and ask the company to do the right thing for women's lives: tell Yoplait to put a lid on rBGH.
Take action at thinkbeforeyoupink.org
Sincerely,
Barbara A. Brenner
Executive Director
P.S. Please use the "Send to Friend" link at the top of this message, and pass this email on. Every voice matters.0 -
Yeah - great news on the path report Julie!!
Sorry to hear about your clots Ginny. You are in my thoughts with all your tests coming up.
Blackjack - I remember last time when we were both going to Vegas you were sick. I hope you feel well enough to go! I can't imagine being in those smoky casinos would help.
Laura - I got my shirts for the walk, but Kelly has not gotten hers yet. Hopefully, tomorrow.
Have a good night everyone!
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Hi,
I was wondering if anyone here has gone thru radiation where part of their lung had received radiation. If so have you had any problems yet?
Also if anyone would share their view if they were faced with this, what do you think you would do?
I was told that a part of my left lung about 8% would get radiation because they couldn't avoid it given the area of the whole breast they were going to radiate. I have done 2 treatments, yesterday and today but I am still not comfortable about this and wonder if it is worth taking the chance or not because of long term effects I can have. I was concerned about doing radiation before I even learned about part of my lung being involved.
Just looking for your own views/opinions, not an answer as to what to do. Even though I started treatments still confused and worried. Thanks
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Good Evening Ladies...are we all trying to stay dry with all this rain. What I lighting show we are having here. It does look pretty. Well I am 2 days away from leaving..but now it all hings on my xray and if I am clearing up or not. Md is concerned about fluid in the lung so now on more meds..I told him if I have no fever then I am going. I can lay by the pool with my cabana boy and drink ice tea. The weather is hot hot hot and it will be good for me. So the count down begins...
Becky.. I sent you a pm
Juliechicago...how are you feeling. I hope all is well with your dh. You have truly had your share of issues and I do see a rainbow on the horizon for you. Sending you a great big hug for good reports.
Karin..how are you doing..glad to see you posting.
Smerf..how was your Ohio trip..did all go well and is your ds all settled in. I hope you are not getting any more water in that backyard with this rain.
Connie..glad you found your waverunner..so sad that boating is almost over with..until next year.
Laura and Wendy..remember to play one game for me and have a cosmo too !!
To everyone else I hope all is well..take care and have I great evening.
Time for jammies and bedtime.
Remember be healthy..be healthy
Blackjack
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Becky-In the middle of my radiation, my rad. onc got my insurance to approve IRT - which was suppose to be more direct and spare my lung and heart. The IRT treatments were longer though. I really can't remember much more than this (chemo brain), but maybe ask about that, or try searching IRT on another thread.
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JulieChicago - so glad to hear that your path report was clear!! Such wonderful news. That is so great. I am also glad to hear that your husband is doing so well and that at least one of the drains is out.
BlackJack - I hope you are feeling better. Is the pneumonia a reult of the radiation?
Surgery is tomorrow. I have to be there at 8 a.m. but the actual surgery is not until 12:30. I have the SNB on the right lymph nodes (because I loved it so much on the left!), and then the bilateral mas with lymph node removal on the left side. I am very nervous....I am glad when it will be done. I have planned to take 2 days off of work.
What will be....will be.
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Morning!
JulieChicago....YAY!!!!!!! Good news!!!!!! Big weight off your shoulders, isn't it? You are doing so well with everything and I am so happy for your DH as well.
Jule....we will be there in spirit with you! Post when you can....we are always anxious to see how our buddies do....and you certainly are one of our special buddies! Hugs!
Blackjack.....have fingers, toes and eyes crossed for good lungs today!
Becky....I was fortunate that I was, like Mich101, to get IMRT (IRT?) as Delnor Hosp. had just gotten the new $2 million machine 2 months prior to my starting rads. It is much more precise and altho it can still hit a piece of lung/heart depending on where the cancer was...it is so much less. My rad onc thinks he was able to avoid most of these issues but because my tumor was on the L maybe not all the heart. I'm sure Blackjack's PM to you was VERY interesting!
Laura....I read your posts last night and I threw out my yoplait. I'm really not TOO worried but what the heck! If I want to live dangerously, I'll drink!!!!! Hope you had fun last night!
Ginny....how are you?
Karin....garlic????? Hmmmmm........
Just something I would share with you....my thigh with the 5 stings was looking very angry by yesterday afternoon and I decided that I needed a 2nd set of eyes (I was a bit concerned re: developing a cellulitis) so I drove over to CVS (4 mintures away) and went to the Minute Clinic and saw the PA/RN - in and out in 15 minutes! It was great! $59. and they take insurance! All I had to pay was my $10. co-pay! She said I did not have a cellulitis - yet - but I may have been heading that way. So she sent an electronic rx for antibiotic across the street to Walgreens and I was done! Just a thought for you guys - you know, if you have an earache, sore throat, that sort of thing. They are open in my CVS from 8am-8pm, 7 days a week. Also....not connected to CVS so they will send your rx anywhere. I would still have been sitting at home, waiting for the nurse to call me back from the doctor's office and here I was, sitting in my living room less than an hour later, having taken my pills!
Everyone...have a great day and stay away from the bees/wasps - they are angry this fall!
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Good morningi everyone! Wasn't yesterday a lovely day? I spent part of it on the golf course and then actually worked on questions during the afernoon. I'm afraid we don't have too many of these lovely days remaining.
Thinking of you today Jule as you head for surgery and hoping that all goes well. Hugs! We need a report ASAP so we know how you did!
Karin...Dave and I are bowling on a Sunday night mixed league. It started three weeks ago and we are having fun. We couldn't find another couple who wanted to commit to the "every week" bowling schedule so we just showed up at the bowling meeting and found a couple there who needed somebody. We really like them and this is something that Dave and I can do together. I'm also going to bowl with the ladies on Tuesday and Wednesday mornings. The Tuesday crew always goes for lunch afterwards so it makes a nice day. The Wednesday group is a more serious group of bowlers. I filled in at the end of last year and they recruited me for this year. Both of these little leagues begin this next week, so I am trading Wednesday golf for Wednesday bowling! LOL
Wendy the Younger was on the golf course yesterday. It was so good to see her out on the course, as she has been struggling with the weekly taxol. I got to rub her fuzzy head! Her hair is just starting to grow back in.
Becky, I certainly understand your concern. Part of my lungs were radiated, too and I have had no side effects yet. I did, however, get radiation damage in the remaining breast tissue near my scar area that scared me. The tissue became hard (and still is). Strangely enough, my allergies have improved since chemo and radiation. I have been told that this is quite common.
I'm looking forward to seeing the walking group on Saturday morning! We're driving up to Joliet tomorrow night and staying at the Empress hotel so we don't have so far to drive in the morning. I'm bringing hugs for all of you!
Wendy, I don't think our CVS provides that service. I'll have to check into that! That would be a real convenience for the "little annoying things" that hit us!
Well, I need to get busy as I have errands to run this afternoon.
Everyone have a good day!
Rita
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Good day,
With all this discussion on lungs being radiated, I have to say that my lung was probably radiated. How could it not be? Could it have been protected some how? I know that when I was interviewed for the Lance Armstrong group, I was told that I had a higher incidence of getting lung cancer as I was a smoker years ago and I did receive radiation.
I guess I am at the point that I accept that I cannot control all things. It makes me wonder, however, with cases of pneumonia and bronchitis being reported on this thread. Knock on wood, I have not had either. I got my flu shot. Maybe that will be good for something!
Julie going into surgery. I am totally thinking about you. I am also excited for the ladies who will be walking on Saturday.
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Hi Girlz - I have been a busy bee (oooohhh I hate that three letter word) I hosted Bunco last night (lots of fun), and had my training classes as well this week. I am getting closer to being sworn in...quite nervous. Tonight we did MAJOR role playing with our managers and we had to do it in front of the whole class. I had an anxiety attack...I hate being in the spotlight...it was really an uncomfortable role for me. I am such a chicken shi*...but each class really takes me one step further towards being a confident advocate. In the next couple of weeks I will be assigned to an actual case. YIKES, CRIPE, ETC.
Becky - I am fairly certain my lung was radiated...have not had any problems so far.
Jule - My thoughts are with you...hang in there girl...we're all cheering you on!
JulieB - I hope you're feeling better and better each day.
JuliaA - You're in newlywed land...enjoy!
Rita - I am so glad you were on the golf course and give WendyTY a big hug from me. And rub her head for me too! lol Can't wait to see you Saturday!
-----------------------------
Well, I am exhausted...I can't address all of you...lights out for me!
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Morning all!
Just a quick note....DH in hospital with A. Fib. troubles so I will be busy for a bit.
Jule.....hope you are doing well today, waking up to know that the surgery is behind you!
JulieB....hope both you and your husband are doing much better.
Rita...rub WTY's head for me too! My husband did this every single night!
Blackjack...hope you are not reading this cuz you are on your way to Vegas!
Everybody else....hope you are doing well and enjoying life. It's too short, ya know!
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Thoughts are with you Wendy. I sure hope DH is better soon!
Such a great week weather-wise, huh? I sooo wish this would last.
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Wendy...good vibes coming your way for hubby (and of course for you, too).
I'm looking forward to the walk tomorrow. Laura, please refresh my memory...I know we're meeting at the Survivor's Tent......What time again? Naturally I didn't write it down when you told us the first time and I've been searching back through the posts and still haven't found it.
We're leaving around 6:00 this evening and we'll see you walking gals and your supporters tomorrow. It looks like the weather is going to be wonderful! Connie..I second your wish for a continuation of this type of weather! I hate what unfortunately follows! Guess we'd better enjoy each of these great Fall days!
I have errands to run and am going to try to get in a round of golf this afternoon before we take off! Gotta run...........hugs to all of you!
Rita
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Wendy, You and Dh are on my mind. I hope he is released soon. "Released"....what a terrible word. Anyway, good luck.
Susan
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Wendy,
Just saw your message, and I'm thinking of you and Tom. Hope you get him back home soon!
Hugs, Pat
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Wendy - Hope your dh is okay! I'm sorry he AND you have to deal with this. Healing/positive thoughts are sent your way. Keep us posted if you can.
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I am - once again - a busy bee...I'm making team NO SURRENDER signs for all the children on our team to carry. I had color copies made at our local Kinkos and the guy there gave me a huge discount...once he realized I needed the copies for our breast cancer walk signs...how sweet! I gave him a big, crazy, sexy hug! lol
I had my "every 4 month" Onc visit today...for some reason I was really nervous. By the time I got there, I was perspiring and shaking. The nurse took my blood pressure...WHICH IS ALWAYS PERFECT...it was 130 over 90...she was quite concerned about the 90 part of it. My Onc came in...he is such a doll/sweetie...we talked and I calmed down a bit. But it's weird...I don't know why I was so nervous...I hope it's not a premanition...usually I am quite relaxed. He didn't say that he wanted me to have blood work...and I didn't ask why. But now I'm a little concerned that I DIDN'T have blood work...or should I be okay with that...
Have a great evening...love ya all!
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Wendy-Hoping your DH is okay. Will keep him (and you) in my prayers.
To all the ladies participating in the walk-thank you and hugs to everyone.
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