Illinois ladies facing bc
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Hello~ it is nice friday~!
I am having a good friday... I got little package form one of my dh's aunt, pink bracelet '4 the fight' to memory of their mother who had bc long time ago and in support me and her sister who is going through the bc.. It just made my day..
Deebbie- nice to meet you~! and tanks for sharing your story.. I want counselor like that, who focuses on cancer patients.. Next time I see my doc. I will ask if they can recommend someone for me.. wonder where she is (counselor)
Tanyar- Hi, there~ I have te on my left and it still sore since I had surgery last october.. also feels numb, tingling and puffy hand.. I am taking Ibuprofen everyday as I need..at least 2tab and sometimes 4tabs.. that helps me and also, shake the arm but gently.. Sometimes if your neck is stiff, your arm gets tension too so, if your neck is stiff, give a little massage to relax your neck.. I hope this helps.. Then, of course, ask your plastic surgeon what you can do..
Buddy1- How are you?? I like your new avata so cute~! Look at that bright blue eyes~! I hope your days are bright like that blue eyes~! and worry free~!~!
Susan- How are you?? Yeah, I definitely need to talk to someone.. I am sure that will help~! My older son is very much into a dinosaur right now.. Everyday he ask us to take him to the zoo so he can see it.. you don't have to be a gambler to go LV as long as you like good food and good shows and shopping, LV is the place to go..
Jacikie, Wendyk13- thanks for understanding and comforting me..
MAMAQ- How's your treatment going? get some rest as much as you can.. I wish you well..
holtbolt- I voted and wish you luck~!
Ginny- get some good rest~! my thoughts and prayers are with you..
Laura- I hear you, sometimes we have to let it out in someways.. I am glad you feel better today and thanks for the link~!
Blackjack and Connie- I am glad you guys had great time in LV.. I used to live there and my in-laws and friends are still there.. I love that place~! It gets really hot during the summer but very low humidity.. I think that makes a lot different..
Rene23- nice to see you again~! I know sometimes hard to catch up with this ladies..^^
Hope4cure- I am glad to hear that your ER visit was ok.. Don't you just hate that when you have unexplained pain?
Bustersmom- Congrats on the new job~!
Rita- I am glad your doc. visit went well today and it is great day for playing golf.. take me~! ^^ I love walking on the field.. why did I stop playing golf.. darn it~!
Have a great weekend everyone~! Talk to you soon~!
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Hi ALL!!!
Been reading all the posts and just have way too much goin on here in NY to catch up and write!! VERY challenging emotionally and physically as my DAD is in the same house we grew up in and refuses to move. Every visit for the last few years entails alot of fixing things and streamlining as we can.HE is active enough, but won;t wear hearin aids and cannot talk with him without the SCREAM tone.. and he has failing eye sight , more details in close up than in driving and not sure how true that is. HE appears to be good overall but my frustrations as is with my DH is the lack of wanting help and the same story every time we are here. Not very easy to just let him live and let it all be as there are many concerns and I just am not healed enough to do much. I had hoped us being home for his BDAY would be nice but not sure if that is even what he wants. He has a 80 year old companion he sees everyday and basically takes care of and shops for etc.. she has a live in AIDE as she has Parkinsons and she is what keeps him goin and that is all he seems to care on. SOOOOO... my head is spinning and trying to simplify some of the household stuff etc here, He does have a cleaning lady but it is too much of a house to do it very well for every two weeks.
Went antiquing and shoppong at a neat town yesterday for a break ..ColdSpring and picked up a great sign for my SERENITY ROOM i made up for my cancer jounrey..The sign says.. LIFE isn't about waiting for the storm to pass.. it;s about learning to dance in the rain!!! Found a great sterling silver/black onyx ring also!!!.MY cousin and i spent some goodquality time together and listens well!!!!!
Feel like i need to cry. the role i am in right now is not uncommon but the lack of feeling undertstood and fighting for it all here when i really need , is good rest.. just frustrated! The only A/C i have to sleep with is in the living room as central air is not possible for these old homes. SO sleeping on the couch~!!!MY DH has a A>C in a bedroom with a single bed...lolol!!! This is kind of funny actually. Least I know I have done all i can as a daughter and it is what it is. Defintiely is taking my mind off of all i went thru in the last few month!!!!
BUDDY.. GO get them and DO NOT stop until you GET ANSWERS!!!!!!!!!!!!!!!!!! Call a lawyer and tell your DRS that!!!!!!!This is insanity!!!!!
FOR everyone.. all be well and hope to catch up soon. WE will most likely be back in IL late Monday. Hope heat is ok there.. bad storms here at moment!!!
Thanks for listening!!! Have a few hair follicles appearing.. or peach fuzz as Wendy said could still fall out~!!!
Hugs,'
Donna
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Donna- Hang in there. Remember you can't make anyone do anything they don't want to do. You can only control you. So do what you can and let the other stuff go. I know easier said than done. Good luck, I hope it goes better.
Elfsong... Thanks for the advice. I will rest as much as possible.
Everyone else... have a great weekend.
Jo
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zap - glad you are touring my area - Southern Illinois is so different from Rockford! Lots of hills and trees. It is so flat up there. The one down side to it right now is it is very very HOT. But that is the way it is in late June and the whole month of July. There are some great wineries down here - Alto Pass is one that comes to mind. There are some scenic places to see. Garden of the Gods is very pretty especially in the Fall of the year when the trees are turning. If I were you, I would check into getting a cabin on the Ohio River and not in a chain hotel. The river towns are quaint and full of history. One place that comes to mind is the San Damiano Retreat - it is a neat place on the river with cabins overlooking the river. Their number is 618-285-3507. I was just there today. My DD and I went on a "field trip" to Rosiclare to the Florspar Museum which is nearby. The town is famous for the mineral Florspar which was mined there for years. Another place is the Rose Hotel - oldest hotel in the state. You might find it on the web. Hope you have a good time on your trip.
Well, wish me luck on the 30th. It is my next appointment. I will probably be talking to the PS about the date of my next surgery to do the expander to implant swap. In a way I dread it and in a way I want to get it done and out of the way - like yesterday.
I heard today I will still have a job through the month of July while talks continue on the budget. We will see how things go. I really hate to think of all the families out there that will probably experience cuts to what might be their only safety net. My agency directly works with families with children. It is the children that will really be affected by it all and that bothers me.
- Jennifer
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Buddy - I agree with Donna - I would checking into getting a lawyer. It is insanity!!! Ask them the next time to talk to them "What would think if this happened to your mother?" "What course of action would you take?" I think you have been pretty patient with them - they sound so incompetent to me. This is people's lives they are messing with here and that is just not acceptable conduct. Someone is not follow policies and procedures or there wouldn't be such continual screw ups and without appropriate resolution for the screw ups!!
Just my 2 cents again!!!
~ Jennifer
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Was wondering how it was going for you Donna. You are having some trials as you work free of your last tx. You won't truly have your REAL strength back for a bit yet. Just makes those trials a little more nerve-wracking. I'm glad that your Dad seems to ok as yet overall, but often I think our elders sometimes get "stubborn" over things because down deep inside they know their best days are over. When they were still at work and still able to put a roof on the house and all those things that just can't happen now, they felt in charge of their life and everyday affairs. It is hard to realize that your losing ground and knowing that nothing turns back time and sometime soon, if not a little already time has been a bit of an enemy. When you are much younger time usually adds good things to your life most of the time....now you know it is more likely to bring disabilities and ill health or the loss of the ability to stay one's home. Maybe he is the way he is because being difficult helps him prove to himself that he is and can still go on. Just a couple of ideas --- the trials are still there though. Just got to love him anyway -- no matter how hard he sometimes makes it.
Lots of heat today again. Will be cooler this evening though. Sure will be nice when the heat breaks. I think of some of the people who only have a fan and who have to go to relief centers so as not to overheat. They do not have air conditioners like so many of us do nor are they as young. I feel so fortunate that not only do I have air conditioning...I have nice ceiling fans to move it around. Just got to realize how good my life is so much of the time.
Hope you all are staying cool Hi to all.
Hugs, Jackie
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First and foremost... thanks for the encouragement girls... most days I DO NOT WHINE about life's little bombs, but it's great to know that I can "pen" my gripes as needed.
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Rita - GOOD RIDENS - RAD ONC! I kissed mine GOODBYE 3 months after my last RAD.... lol... had no probs... so why not!
Donna - Wow... you are dealing with ALOT! OMG! I often wonder what I will do when my Mom gets to this point. And to have it happening long distance... yikes! It's so tough. And you've been through so much. But... I was so happy to read that you spent some time on little ol' YOU! Good girl that's the spirit of an Illinois Girl... hang in there.
Jo - Hang in there... be patient and be tough... but also remember... as others have advised...you have to rest! How about a good book! I know... it's tough.
elfsong - Thanks! Good to "hear" from you! If you are ever able to meet us... please wear your bracelet... I would love to see it!
Jackie - Hey girl... I know it's summer and stoves are not used much... but you never posted about your new stove. Do you love it? Hate it? lol
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jackie, Laura, Jo...Thanks!!!I Should not vent my frustrations here as we have more impt matters to vent like those goin thru tests and treatments.. Sometimes you just need to get it out even if it is not related to BC and do not want to take advantage of this wonderful thread.So thanks.Had a good talk with DAD last night and he realized alot which was a great turn around and a chance to let him know what are concerns are.
We should be leaving tomm for IL and get home late . We had rain and storms here last night and now it is cooler. We will be cellebrating DAD;s bday with some good desserts today. My fave!!!!He will love his Lemon Meringue pie. I was goin to make a fresh strawberry shortcake as that is such a great summer cake?!
ALL have a good weekend.. one full of good things and restful moments.
Will be in touch as i get back to my IL routine!!Who is doin laundry this week?? HUH???
Hugs,
Donna
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ILOVE YOU GALS. I DONT KNOW WHAT I WOULD DO WITHOUT YOUR SUPPORT AND ADVICE. I WILL LEAVE IT AT THAT JUST SO YOU KNOW HOW MUCH THIS ALL MEANS TO ME, AND YOU PUT UP WITH MY REPEATED RAMBELING
DONNA THANK YOU FOR CHECKING IN. I HAVE BEEN SO WORRIED ABOUT YOU BEING SO FAR FROM HOME. I MISS YOU . AND I AM SORRY YOU HAVE SO MUCH ON YOUR PLATE RIGHT NOW.
BIG QUESTION TODAY. IS IT OK TO SWIM IN POOLS WITH CHLORINE OF COURSE WHILE GETTING CHEMO AND WITH A PORT. I ASSUME THE PORT IS FINE BECAUSE IT GETS WET IN TEH SHOWER. I THOUGHT IT WOULD BE EXERCISE FOR MY JOINTS.
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Good morning everyone. Will be another hottie here today but a cool down of sorts will begin after so I think I can tolerate it. Anxious for more normal temps though.
Donna, it doesn't matter what you vent for here. It's all stress and you had no one there to "listen" while you tried to work out of some of it. Much of the time the only help we can offer is a willing ear and an open heart. So....don't apologize.
See you all later.
Hugs, Jackie
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A good laugh is sunshine in the house.
- William Makepeace Thackeray0 -
Dear all:
We are touring Southern Illinois later. I am now home.
Elfsong, what a great post! Thanks!
Donna, good to hear from you. I think I heard your dad's message with "he is in the same house we grew up in." As I age, and after dealing with my mother's many moves, I just understand that concept of home. Home is just pure comfort even though it no longer works. Plus the man is caring for a woman who needs him. Being needed and having a home is all that most of us want. I do understand your position and it is a hard one. I hope "driving" isn't a part of the equation. That was the hardest for me as my father became a terrible driver. It wasn't funny as I worried he would kill himself, or worse yet, someone else. Yep, I can almost hear my two wonderful daughters having the sit-down talk with me to give up the house. It will be hard on them as I won't make it easy. Happily, it is long off (I hope).
Buddy, I lost track of things. I mentioned your situation to my dh and he does not do this sort of work, yet he is a lawyer. He appeared baffled as everyone concerned knows that you have a right to your path reports. He suggested that you insist on speaking to your doctor about a most important issue regarding the status of your path report. Then telldoctor that you want a copy, that you are well aware that it is your right and that you want to work with him/her to clear the whole unfortunatre matter up. If you encounter resistance, then suggets that you will be consulting with an attorney who will be in touch. His thought is that you just want to get what is yours. "The lawyer" ticket will put them on immediate defense (but maybe they belong there). He said that you should place a deadline on receiving the path report and that you will personally pick it up at 10:00 am Tuesday morning (or whatever date you decide on. Try to stay calm and businesslike. Then again, maybe I have lost the whole gist of what is happening. I did carry my own cancer tissue from the dermatologist's office to the breast cancer surgeon. Of course I peaked! IT looked all very benign to me (pinkish) but we all know it was not. Carrying that petri dish may seem weird, but it wasn't and it gave me some assurance I would get the ball rolling faster. I wish you well. Susan
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Hi All,
It's good to read about everyone. I don't post often but do read daily what everyone has to say. It's great to 'hear' that others have concerns and issue too.
Yesterday and this am is our Relay for LIfe. I have walked in memory and honor of my dear friend who lost her bc battle June 19, 2007. It's always hard for me to think about her FIGHT. Last night was the first time I could attend the luminaria ceremony. As my dh and I walked by her lights they began to play Allan Jackson's Cissy's Song. I cried all the way around the track and even now the tear glisten on my cheeks. I miss her more than words can express. Telling her dh & dd about my bc was harder than telling my own family. I think I have been chosen to fight this disease so I can help someone else in their fight.
OK...today we head to So. IL to celebrate my parents 45th anniversary tomorrow with a BIG cookout at their home. Its a second marriage for both of them. It's beens so long I can't remember them not being married
I have been cooking, gathering and getting ready all week. I think that's the reason for my discomfort with the TE's. I saw my Ps on Thursday he says nothing is wrong. Its part of the healing and the foobs look fine. I think he should wear TE's for a few months! I am planning my second stage the first week of October,,,not soon enough.Susan, SO IL has some wonderful places and wineries. The trip is called the Shawnee Trail. We love to stay at a B & B in Anna-Jonesboro called Hidden Lake. Garden of the Gods is beautiful.
Buddy, PLEASE get answers. You need peace as you fight the battle for you life. If you can fight BC you can fight the docs!! Its just sad that you have to battle for your own peace of mind.
Donna, I understand your Dad issues. We have faced many with my in-laws. My dh is lucky to have sibilings when decisions had to be made. My parents are in their mid-seventies fortunately are healthy for their age but I try to keep tabs on dr.s appts etc. Sometimes I think they get taken advantage of by mds.
Jackie, how is your SIL? We haven't heard about her in a while. Keep those quotes coming.
I thank each one of you for helping me daily by making me a part (virtually) of you life and fights.
Blessings to each of you,
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ZAP I DONT EVEN KNOW WHAT TO SAY EXCEPT 1000 MILLION THANK YOU'S
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Back again....and a little off topic. I think ( could it have only been yesterday ) when I got on here....all the posts are hanging at the right of the page with a lot of space to the left were the posters name stays along with a picture/avatar. Is everyone having this or just me....and if just me...what in the world did I do. I really don't like it like this but if there has been a change will have to live with it.
SIL is still in the hospital in St. Louis. Had the by-pass on the 16th. which was successful and will likely come home in the next few days. Some rest and then a return....back to Barnes where they will put by-passes in the occluded leg and foot. I presume they will open/stent the other one but no one has said.
No matter what they are in for a long haul.....lots of dietary changes along with regular consistent exercise. I hope they are up to the challenge --- SIL can be stubborn and as Dh said : you can lead a horse to water, but it's up to them to drink. So true. We hope for the best.....but as the **cute** quote says....Hope for the best, Expect the worst, Life is a Play and we're un-rehearsed. Not anything up to us....so we keep doing our thing knowing input from us is not appreciated, but also hoping that if you reach a point of having to get your good advice from some of the top cardio-vascular people that you will heed this advice. HONEST I'd never say I told you so because that is not how I operate. I just would like to see good health return....that is all that is important.
Laura: Have to admit in this heat I am not cooking much, but what I have done is delightful. Anything brand new just seems to work better. Also ( I did not know this before ) the older, but not too much older stove with the electronic ignitions will after long use actually have a duller less intense flame ( probably not explaining this right ) as I guess some of the little openings around the burner don't send as much flame out anymore. So if anyone has the electronic igniter system on your stove, try to get past the clicking asap. This is what wears so much --- and yes, I always knew that but I guess I always thought.......if it wears too much it breaks and quits....did not think it keeps going but at a large reduction in capacity. All to say that even water seemed to boil faster and it does. Like the oven and it is easy to set the convection part of the oven as it is automatic. Means that it converts the temperature and time change when I set it and I don't have to do that. If Dh had not sold these.....I'm not sure I would have picked up on the difference and might have opted ( less money ) for the next model down.....which would have meant the stove would not have done the calculations for me....and I am no math wizard for sure.
I'm thinking of all of you and wishing you well. Hang in there Ginny.
Jackie
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Donna - Please - don't ever feel as though personal situations are taboo here! We are here to help each other. Some probs or accomplishments are not related to bc and some are. But the BIG picture is: we have been dx'd w/bc... we will have questions/concerns... we will deal with every day life issues. It all goes hand in hand. We are here to help each other - regardless of whether it's medical or whatever! And btw... I TOO AM NOT DOING LAUNDRY THIS WEEK! lol I am hanging out at my friend's pool - she just happens to live across the road from me! ; ) Hope your trip home is a safe one!
budder - You're at a point with your treatment when you TRULY need support... we are here for you 24/7... so many girls were here for me 4 years ago when I was dx'd... I wept... knowing that I had girls here at bco to lean on. And... I was lucky... my dh was awesome. His Mom died from bc... my dx was very hard on him... Hang in there budder! Oh and... GET ANSWERS! lol
Susan - I am soooooooooooooooo envious. You and your dh really do GET AROUND! Your spirit, energy and enthusiasm always enlightens me. Thank you for that.
Jackie - It's great that your SIL is doing well. But she needs to be LESS stubborn! I have dealt with stubborn relatives, siblings, moms, etc! Hang in there and keep us posted. I know this isn't the season to be using the oven, but I am glad you like it! btw... I read that you might be able to get cash back for replacing your existing windows - with high energy windows. E-mail me... you could get some cash back!
Tanya - OM - your post...I felt your loss. I am so sorry about your friend. But in a way... that ceremony may help you find comfort in the days, weeks, years ahead. And that "cry" that you had will help as well. I too am dealing with one of my bc sisters who was recently dx'd with mets...lungs and bones. I feel your pain. You are strong... you went on to celebrate an anniversary! You are one tough Illinois girl! lol
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Oh cripe...time flies! My bath is ready... dh and I did our usual weekend fun stuff... FOREST WORK! I burned all the trimmings from our bushes... it took me 8 hours - utilizing a 55 gallon drum container, MAN was it hot! Gawd... that sucked! lol but hey... it's all about nurturing the things we love. Have a great night girls... sweet dreams... oh NO... Paulie is licking my ankles... HELP ME! lol
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Morning all....wow! Skipped one day and boy do you guys chat!
Laura....glad the pain is easing a bit. How is the neighbor's pool? Baby raccoons sound so cute!
Donna....I agree with Laura. It doesn't matter WHAT is bothering you...come here and tell Momma all! We have answers for pretty much everything....and if we don't have an answer, we listen and then go elsewhere to see if we can get you an answer.
Budders.....keep us updated on what is going on. Don;t worry....we will keep kicking your butt until you have the answers you need. I am still saying...this whole thing just sounds a bit "fishy" to me. But I could be wrong....
Tanyar....I am sorry about your friend. Loss is hard, no matter what. Hugs to you...
Blackjack....how is the water this weekend? It is beautiful out this am but the deck is covered with water from all the rain last night. If I were you...I would probably be out on the water right now....very empty, very quiet, very beautiful. (I need a boat...or a friend with a boat...hint-hint to you and Connie!)
Connie....I assume you as well are enjoying your weekend! Are you still off most Fridays? Do you get to sneak away for long weekends?
Jackie....yep...I'm not turning on the oven these days either. It's one of 4 things....cold dinner, out for dinner, bring home dinner or somethng from the microwave. My stove is 5 years old and the fllame is still pretty good. Why would the electronic ignition screw up the flame??? It's just sparking to light the gas.....oh well, another thing that I don't know about. Did I ever tell you about my SIL in Fl...when the hurricanes came thru and they lost power for almost 2 weeks? She was soooo tired of cooking everything on grill and having no stove top and Ikinew she had gas. I had to remind her that all she had to do was turn the burner on and light it with a match! And....her husband has 2 degrees in engineering! We still laugh about that one!
Elfsong....I didn't know you had relatives in LV! I'm glad you are looking into talking to someone. It can't hurt....and will probably give you new ways to look at and deal with everything in your life.
Susan...wow...you guys do get around! That's what DH and I need to do more of....get in the car and see what is out there, not just 10 miles away! Places I would like to go are those little harbor towns in Michigan, Port Washington, Green Bay, the Dells....to mention a few.
Everyone else....hope you are doing well. Jennifer...no more headaches I hope. The day looks to be a beautiful one so get out there and enjoy. I hear stirring from upstairs so I am going to run up there and maybe suggest we get in the car and GO!
Strange neighbor story....they planted a tomato plant. Now...that I know is not strange, but in the MIDDLE of the front yard????? Why not put it in the vegetable section in your backyard????? Where you planted a TREE?????? I give up....
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" There is no way around it. You absolutely must have fun. Without fun, there is no enthusiasm. Without enthusiasm, there is no energy. Without energy, there are only shades of gray."
Doug Hall
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Did I hear someone say give up......well, about the neighbors Wendy, it can't happen too soon. Being a little different is always good.....that way we stay interesting. Living almost totally out of context ------ huge case of taking a good thing to it's outermost extreme.
Much cooler today they say....the humi8dity will behave and it was good news to my ears. I don't think I'll do much outside....too many things started in here but great to know that when I get a free spot I'll be able to finish my siding.
Went to another Quarter Auction last night. They are so much fun. I got a Miele handbag there. They have vendors ( they have usually donated a lot of the auction items ) that set up and you have time to go around and check them out. The purses are really neat. The bag itself comes in only two colors....black or brown. But they have numerous "skins" coverings which you can purchase and very easily you can peel one skin off and attach another one and you have a "new" purse now and did not have to remove a thing. The whole process only takes seconds. I am quite taken with the whole thing.
It is nice to get around and see some of the "local" or nearly "local" sights. Most people are going to other states but there is so much in Illinois. I think most of the bigger bookstores would probably have a book detailing northern or southern Illinois etc. The B. Dalton book store here has several that detail the southern Ill. area.
Loved the picture Wendy......can't you just imagine yourself on that big sail-boat. You can almost smell the water/morning mist.
Hope you all have a fantastic day....and a cooler one. Enjoy !!
Hugs, Jackie
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Hey everyone....you must all have been out enjoying the beautiful day. Heat wave broke sometime during the night.
Ah.....and double Ah.
Jackie
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Morning ALL.. BACK!!Home last night and was a good trip and driivng came just under 13 hours. To all these posts, goodness. i need a week to recall it!Just a great big thanks, as truly this place is a place to vent, just don't want to take it for granted!! You all are so wonderful.
Budder....You have alot to do this week and getting those results. Susan's info is pricelss and right on!!!! Wondering if i can help in goin in oerson with you this week as maybe two heads are better than one and I tend to take names and get all looking as if i am a lawyer.. lolo. Let me know where you are at on this.
Laura..Do hope your sterum pain is improving.. that sounds very annoying and frustrating at the same time. Thinking of you.Glad you are enjoying the pool. We came home to such a messy pool , grass long and all the work that goes with it.. take me away again!!! Your attitude with doin the laundry is concerning to me however! I would do it for you.
Jackie,Wendy,Tanya.. Again,thanks for all the words and advice and validating comments, as I am looking at my DAD changing, not driving safe enough and we love him. We did have a good talk with him.The kicker is,he lives in Westchester NY.. most expensive county in the country for taxes, utilitities and everything!!! What he pays for gas and electric a week, would make your head spin. Plus the house is brick so there is no insulation to keep the house warm enough in thge winter..He is happy, content and lives for taking care of his 80 year old companion and that is that. ALL we do, is go there and make it all work for him and make it a good environment for him. I know change and big change will occur in a matter of time, I feel it. Aging is tough. We have a cake being delivered to his Senior lunch today celebrting his 90th today!!!!!He will be shocked and cannot get mad at us, cause we are gone!!!
This weather this AM is gorgous!!!! HAVE much to catch up on here.. obviously I have to do my own laundry this week!!...OH Little Hair follicles coming and head is getting itchy. doin the Hair gowing Dance?!!!!!
Be back soon and Healthy thoughts to all goin thru tests,treatments..etc!!!!
Donna
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HOORAY!!! DONNA'S HOME..... We missed you. I am glad you are home safe and sound, How did the dogs do? You are incredible. I feel so lucky to have made such great friendships as I have made here. I think some people may go there entire lives and never get to experience what we are. Lots of Love Lisa0
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Welcome home Donna - and yes oh yes.....itchy hair and scalp and that means you are getting your hair back. It will seem like forever -- just like anything you are forced to wait for with all the resulting anticipation. But oh how you can rejoice on your first bad hair day. Good milestones are coming and it's wonderful. Also, you can quit planning around your chemo schedule which is also a very delightful sign of progress.
Lisa.....I believe you are quite right --- we would never miss what we haven't had, but each person coming here gets and gives many blessings. Many reasons for this and hard to pick just one --- major life-altering disease process, only place where people willingly poison themselves under Dr.'s guidance, only place where it's common to be bald for a period of time. Just as it's easier to seek guidance and comfort from people traveling the same path on the journey so is it sweeter when we are able to rejoice about something. ( Your hair is coming --- Yay Donna ). I'm sure as well we all HOPE with all our HEARTS that this is a ONCE IN A LIFETIME experience for each and everyone of us. None of us will ever be the same and I feel being here and being able to share my life is helping make a better me. It's the one place I can be totally me w/o reproach.
Hope you all have a beauty of a day.
Hugs, Jackie
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John O'Donohue:
One of the most beautiful gifts in the world is the gift of encouragement. When someone encourages you, that person helps you over a threshold you might otherwise never have crossed on your own.
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Donna... Loosing my hair more and more everyday. Though can't bring myself to shave it. I'll do the hair dance, that some of mine comes your way. We can switch.
Jo
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Morning girls....I hope everyone had a wonderful weekend. What great weather we had..hot and sunny. My kind of weather !!!. Boating was great..a little choppy..but choppy is ok. These are the lazy days of summer and the 4th of July is almost here. Pretty soon it will back to school..oh no...so we need to enjoy these wonderful sunny days. The Lunch Bunch is meeting July 9th at 6pm so ck your emails for details. Hope you can join us. I know some of you are having a rough time with txs, so I would like to share with you something that I read and I found to be so true.
W-Whatever you believe creates your reality. Believe that life is a positive experience and it will be.
A-Attitude is the magic word. Your greatest asset is your attitude. Be positive regardless.
T-Together everyone achieves more. There are no more limits to what we can accomplish together. I am more than I am but less than we are.
E-Enthusiasm is the wellspring of life.
I found this to be very uplifting as we all handle our diagnoses and txs. Together we can over come anything with all the caring and support we receive here. The saying goes Illinois ladies are tough!!!! So hang in there....hugs to all
I hope everyone will have a wonderful day...go out and enjoy the sunshine. It is a tops down fist up day!!!!!
Remember to be healthy...be happy and have fun!!!!!
BJ
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Jackie...I love your quote today !!!!! Encouragement is truly a gift of one's self.
Thank you
BJ
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OMG YOU GUYS!! MAX WON! MAX WON!! AHHHHHHHH!
He gets to MEET Stephen Tyler and Joe Perry!!! I can't contain myself.. I am so happy at this moment.... you have no idea...!!!! I think we won by like 3 votes at 5p!! So, Each and Every vote was so important in this thing.... THANK YOU THANK YOU THANK YOU.. for everyone who voted and a special thank you for anyone who forwarded this on to their friends and family... OMG!!! Ahhhhh...!!!!!
How do I tell him??? He's downstairs right now...clueless!!! Ahhh!!!!
I know this is a small victory in the scheme of things.. but you have NO idea what it meant to me to be able to do this for Max.... You guys are the absolute BEST!!! Thank you so much!!! I can't wait for Wednesday!!!!!!
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HIP HIP HOORAH FOR MAX! It feels good to have so many winners in one little cyberspace!
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JO....OK.. but know what you are goin thru!!!! Hair and the loss is just such a process to surrender to and we cannot do it wholeheartedly..who can!!!!
Jackie....Can i put cream on my head.??? Wonder if that would help in itching.
BlackJack...Welcome back!!!!!Did ya win big...lol.
Budders.. How right you are!!!!This is all such a gift and blessing.. just to think just tryin to find a place to come to when we were first diagnosed!!! This is not a mistake how we are all here together!!!!
My new avatar is with my current wig.This is when I was back EAST at a really nice outdoor cafe with my cousin.
Be well all and hope the weather behaves!@!
Donna
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