Illinois ladies facing bc
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The happiest people are those who think the most interesting thoughts. Those who decide to use leisure as a means of mental development, who love good music, good books, good pictures, good company, good conversation, are the happiest people in the world. And they are not only happy in themselves, they are the cause of happiness in others.
- William Lyon Phelps,0 -
BUDDY... I HAD A REALLY BAD REACTION TO THE FIRST ONE. CHEST HURT, THEN BACK AND BUTT, THEN HEAD, THEN LIPS SWELLED. THE DR AND NURSE WERE VERY FAST AND AFFECTIVE IN DEALING. HOWEVER, I DID FIND OUT THAT THEY ALMOST SENT ME TO THE HOSPITAL. THEN I TOOK 5 TIMES THE STERIODS, AND STILL HAD THE PAIN IN MY BACK, WHEN THEY TRIED IT AGAIN, THE NEXT DAY. BUT I DO THINK I HAD HEARD THAT IT IS MOST LIKELY TO HAPPEN THE FIRST TIME. I HATED THAT IT HAPPENED, I WANTED TO BE THE PATIENT THAT WAS IN AND OUT AND NEVER CAUSED ANY PROBLEMS, HOPEFULLY THIS FRIDAY I WILL GET TO BE.
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Girls, I just got off the phone with Ginny. Over the weekend she started blacking out. She went to the ER yesterday and was hospitalized. This morning she had an MRI. The doctors are working hard to try to figure out what is going on. Please keep her in your thoughts and prayers. It looks like she is going to be at BroMenn for a couple of days. I'll post more as the information comes in.
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Ah, dang WTY, that's awful. My thoughts and prayers are with Ginny and her family.
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Oh No! Thoughts and prayers are with them. WTY - Thanks for the update. This is so scary... I feel awful she has to fear this way.
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Ginny...hang in there, okay? We are all here, praying for you and sending healing hugs your way. Keep the faith, girlfriend!
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Thank you, WendytY for your message on Ginny.
Ginny, thoughts and prayers centered on you. Be as easy as you can as we all huddle to support you and the family. Susan
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Hugs, prayers and love to Ginny and her family.
Jackie
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JUst home from tx. so bb was 172/96 ouch wbc still 38000 so they sid no nulasta shot tomorrw. this may help with my bone and joint pain. i go back tue for cbc if i have dropped they will give me teh nupegena, it can be given often like 2 or 3 days apart. I am very sad to say my onc never sent my path for the second opinion. when i was there 2 weeks agao he rushed me to call my pcp for teh referral said it was going out the next day. so i did and tehy got it. today i finally said well what were my results. he said it never went out. it was gonna cost me somthing but he wasnt sure how much. why didnt he call and give me teh choice. he blew it off started n teh rads thing and said if you want a second n that i can get it today, i think he dosne t want to know teh results hmself. maybe he is afradi he treated me wrong which would not have been his fault. he ws going by what he was given. he had mentioned once that no matter what it comes back. i am already pretty much done with the chemo andcant change it now. oh well.......
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Ginny, my thoughts and prayers are with you. Sending hugs your way.
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This is just a flybye, as the DH is just geting home, and needs dinner. There is a post on the Moving Beyond Cancer Forum, help make my son smile heading, and we can all help just by clicking on to vote. It would help a sister win a contest for her son, and she thinks that would mean a really big smile on his face! Something that has been missing since his mom has been undergoing tx for bc. Maybe we IL ladies can help her win!
Thanks!
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Update on Ginny.....The MRI results are back. There are no signs of cancer in the soft tissue of the brain. There is some type of lesion on the skull. They are doing a bone scan to rule out anything nasty there and attributing her black-outs this weekend to low sodium levels (at this point). Please continue to keep her in your thoughts and prayers. She's been through so much and has been such a trooper about it all.
Hugs to all of you.
Rita
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WOW~ so many pages I gotta read.. It's been a so long since my last post... I can't even remember when it was.. Almost 2month, I think..
How are you ladies??? I was thinking about you ladies everyday~! I hope everyones doing well.. Welcome to the new ladies~!
In case you are wondering, I am still in IL and not moving to NM.. That interview my dh suppose to have, didn't happen.. They didn't even give him a chance.. Then they sent him a email (on memorial day) and said, thanks but no thanks.. What the h*** My dh was upset and so did his boss.. Then later he found out NM division is not so great for work.. Oh, well, somewhat good for us..
My rad was done on middle of may and I was very glad it was over.. It was very painful and sore to the end and it still sore.. And nobody told me back of my shoulder will get dark and peeled same as the front.. I got dark patch on my left back..
Does anyone ever been to the counselor, during the treatment?? Lately, I realized that I am in too much stress and I can't get it off from my chest.. too much mood swings and I don't feel like myself anymore.. wonder it will make me feel better..
My thoughts and prayers are with you all~!
Sweet dreams everyone~!
EJ
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Hi EJ,
I started going to a counselor after I was finishhed with my treatments. She focuses on women with or had breast cancer. I was so afraid of reccurence I needed help. She really helped me because she knew so many facts. After some time I felt better and better. I am now 4 years out and don't worry and stress out as I did. I would suggest asking your doctors if they can give you any info. about counselors who focus on cancer and its effects.
I hope this helps.
Deebbie
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The news is good for Ginny. Will hold her and her family close in thoughts and prayers.
She has been on my mind all night.
I am having difficulty this week with my te's. The left one doesn't feel right and my arm feels numb again. Any suggestions, girls?
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eLF SONG WE HAVE MISSED YOU. SO SORRY ABOUT WHAT YOU AND YOUR DH HAVE HAD TO GO THROUGH. YES IT IS GOOD TO TALK TO SOMEONE SOMETIMES. WHY NOT??
TANYAR COULD YOU HAVE ANY ARM SWELLING LIKE LYMPHADEMA MINE GETS HEAVY AND KINDA NUMB SOMETIMES. I WISH YOU WELL
MY WBC WAD 38000 SO THYE ARE SKIPPING MY NULASTA THIS WEEK. I HAVE READ THE HIGHER THE WBC THE MORE JOINT PAIN WITH TAXTERE. HAVE YOU HEARD THIS. ALSO I HEARD HIGH WBC CAN BE BAD ONE WAY PERMANENT HEART DAMAGE ANY HEARD OF ANY OTHER?
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Waiting to hear good news about Ginny.
ElfSong, I am so glad you popped in. Now, keep popping in. I would say that you most definitely should try talking to someone. There is a tendency to put people on medication instead of talking/listening and I am not sure that is the answer. I think you need to find someone like Deebie saw. You need someone who understands just how frustrating and scary this journey is. Maybe your doctor could suggest someone. Maybe Deebie's person would know someone near you. Good luck!
Susan
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Buddy....I have not heard of any of those things you have mentioned about high wbs counts, but I am concerned that you seem to have a most DEFINITE stall on your second opinion and I don't think that is ok at all. There seems to be somewhat of a cavalier attitude going on ABOUT YOUR health. Your Oncologist seems to have had some strange change of heart which I don't understand and I would think since you have an incomplete path report -- why would he not be interested in second opinion findings-------regardless. Is he concerned that he will be held accountable for something.......I hope I am not asking too many questions or causing more un-rest ----- but this is not what I expected and I don't think you did either. Surely there is some way to get to the bottom of this. Not wanting to remind you....but it seems from day 1 everything you have done has been a struggle and now this is not going right. I hope there is an answer for this.......I think I'd be parking my derriere in the Oncologists' office until that paper/request went out.
Elfsong....good to see you back and glad you get to stay in Ilinois. I did not know that you could get effects on the back side of your shoulder from radiation. Hopefully you have good lotion to put on it. I think anything which is so highly emotional for people and cancer along with the resulting months of treatment and all the un-certanties certainly falls under that heading could benefit from some counseling. I think I read somewhere that you can get PTSD ( lots of returning soldiers have this ) from dealing with a cancer diagnosis and the aftermath. You definitely feel burdened as yet and I would not hesitate to do whatever indicates to you to help heal and repair yourself so you can freely move forward with life.
Tanya...hopefully a couple more people along with Buddy will give you some things to mull over. I did not have te's so I know nothing about that. I was fortunate....to only need lumpectomy.
A couple of chores to do today. Will check back later.
Jackie
p.s. glad that they are taking good care of Ginny. More hugs and prayers for you.
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illinoislady you re so very wise. that is what i am thinking thathe thinks he will be responsible for somthing.
its a scorcher out there. since my feling good days are numbered i am taking my dd and friend to wilmington stripmines to go swimming fr an hour or 2. i am staying in teh shade. hope the diahrea holds off. one of teh fun parts of that chemo drug. stay cool and out of the sun girls love you all. missing you donna hope all is well
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Buddy... If you think the doc is hiding something. I would maybe consider finding (I know easier said than done) another doctor and having him send the slides out for the second opinion. I know that this would be a pain seeing you are in the middle of tx. But I think you need to trust your doc. I'm new to all this but that is my opinion. If you don't want to change drs. than I definately would nicely push back with this dr. He works for you.
OMO,
Jo
When is your next treatment?
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Morning! Whew.....another hot one but I am so not complaining. I would much rather have this than ice and snow. Got DH up and out before 6:30am to walk...I didn't feel like the gym. OMG....talk about whining at first! He didn't mind the time at all...it was my pace! He is a slow stroller....I am a fairly fast walker. We did an hour tho...and actually would have kept going but yours truly was up at 5, drinking coffee and then a huge bottle of water on the walk...you know where I needed to go...literally!
Buddy....hmmm...something just does not sound right here. What exactly is their problem? And why didn't those slides get out by now? I would now be very concerned. It may all amount to nothing but still.....
Elfsong.....HI there! We've missed you! Sure...why not talk to someone? You had bc, you have 2 small kids, DH wasn't sure what was up at work and you were considering moving halfway across the country! Of course you were stressed! But...that being said...I think what you are going thru is a process and everything will be OK at the other end. Just have to get there and if talking this all out will help. go for it!
Ginny.....thinking about you every day! Hang in there, honey!
Rita/WendyTY...thanks for the updates and Ginny. Will you please tell her for all of us that we miss her? And if you get to see her....big hugs from all of us!
Tanyar....sorry the te's are a bit "off". I only had a lumpectomy so I can't help here....but I am sure someone will be along soon. Sounds like it's all just part of the expanding process...but then, what do I know??????
Get to be with my grandniece all day tomorrow so I am hoping we don't have storms all day. She doesn't know it but I am taking her for some "girly shopping" at Justice and then we will meet up with DH for lunch on the Fox River and then a stop at Oberweiss for ice cream....and then who knows! Hey girls...you guys probably already know this but I had never been to Culver's until yesterday. I had seen an ad for them, for their lemon ice and it looked really good. And boy oh boy was it ever! Yum. DH and I just got the one scoop. We were actually giggling as we got to the bottom of the dish.. Tart, icy cold, light - and only 140 cal for 7oz! This next part is a secret...we were up at one about 45 minutes from home and when we got to the other one right in our town....well....we got another single scoop! I also think that you girls on chemo...this lemony icy stuff would be great for your tummies!
OK....dryer buzzing....have a great day everyone!
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Calling all breast cancer sisters in the midwest and beyond... can you do me a favor? I know this is off the topic and I hope it's okay to post this but...I am trying to win a contest for my son (to meet his idol - Joe Perry, Aerosmith)... all you have to do is click on this link and click on the thumbs up icon to vote for our entry (legit site, legit contest, MOST deserving young man!)... can you please help me? Just trying to bring a little joy into my son's life after all this depressing /chemo stuff... voting is only June 23-26... please vote? It'll only take a second... help me bring joy to this boy!
Thank you so much! P.S. It says you can only vote once, but if you have more than one computer I think you can vote twice.. lol We are only in second place by about 30 votes and voting ends Friday!!!http://www.aeroforceone.com/index.cfm/pk/view/cd/NAA/cdid/1177058/pid/1175576
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For those interested in scarves: I found this website andthey look kinda cute.
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Hi all,
I'm just popping in myself to say hello! Have been crazy busy, ridiculously busy- work, kids, camps, birthdays-- becoming a crazy woman. Um- crazier.
Wish I could have joined everyone at Maggianos. Know I can't make the gathering at Jan-Clare's either. Rats.
Wendy- will have to try the lemon ice-- we have a Culvers close to us- and I've never been there either!
back to work with me--- think of you all often,
julie b
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And this is the other Julie popping in to say hi as well!!!
Sending good vibes out to Ginny - glad to hear the MRI was neg. Hope she is feeling better!
It's extra toasty outside, isn't it ? Whooooweeee.
Had a job interview today, hoping for good news (this other one just isn't right for me!)
I won't know if I can make Jan Clare's yet - not until I know who I'm working for, lol
I am sure hoping to make it & see you all!!!Best wishes to everyone in tx, and hugs to EVERYONE!!! Juliet
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Hi Girls,
There is a post just a few above this one from a sister who needs our help to win a contest for her son. If you can click on the site and vote I think she would be very grateful. She has posted her message on many threads in hopes of the most number of people viewing and responding. Look above for holtbolt.
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holtbolt - No problem! I did it.
BUDDER - OMG - I would be very concerned...I agree w/Wendrew....what is his problem! I would have no patience with him. This latest escapade would make me more motivated than ever.
HI GIRLS - Just checking in... summer is finally here! woo-hoo Hope you're all doing okay.
Ginny - Hope you're doing better. Glad the scan back normal.
JulieB - I was wondering where you've been!
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holtbolt...I voted, too. I hope he wins! :-)
Yes, summer has arrived and I love it! It was hot on the golf course but that's so much better than all the rain and of course the weather we tolerated this last winter.
I think Ginny is home. I talked to her this afternoon and she was waiting for them to release her. They didn't do the bone scan. The onc said that they knew it was in the bone so there was no need for that scan. She can tell you more when she pops on.
Hi to both Julies! Julie Chicago, I've been keeping up with your kids and you on facebook. I love the things that they say. You need to be writing down all these cute things they say so you can share them with them in the years to come.
Juliet....Sorry the new job isn't for you. Maybe it's just a stepping stone to something better.
Hugs Buddy! Wow! I'd be concerned, too. This does not ring true at all. Be pro-active! It's your health and your body!
Well, I'm settling in to the air conditioning now and it feels pretty good.
Tanya, I sent you a PM.
Rita
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I'm back home..Got home around 3pm and slept til 8:15. Glad to be out of the hospital. My blackouts were due to low sodium and then my blood pressure being low. I am on blood pressure meds to lower my blood pressure and with some people on chemo, the chemo lowers the blood pressure. So, the chemo has been lowering my BP and along with the meds it really lowered it.
So, that is what happened. I havn't had any blackouts since and never hope to have them again. I don't have to do any meds for my BP(one less med to worry about). As far as something on the skull, the dr says that is expected as it is in other parts of my bones. I will be seeing a radiologist about some shot of radiation in the bones that is supposed to help with the bone cancer but also affects the bone marrow. Will be finding out about that next week. I am just relieved that this all it was.
Gonna go rest....Thanks for all the thoughts and prayers. I feel they truley helped.
Ginny
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Ginny- Thinking about you. My prayers and good wishes go out to you too!
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