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Illinois ladies facing bc

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  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009

    Hi all.....it has been quiet here today.  Wendy must be our lots of chatter spark.  Going to miss her.

    Rita....that is good news for you and WendyTY. Wouldn't it be wonderful to go to bed tonight and hear on the news in the morning that a cure had been found.  You gals are good at fund-raising that is for sure.

    Searchlight turned on for Buddy !!!!!!!! 

    Hi to everyone else....I have to go get ready for work tomorrow so have to go.  Running late as usual.  See you in the morning.

    Jackie

  • MAMAQ
    MAMAQ Member Posts: 140
    edited July 2009

    Laura... 4 years, how INCREDIBLE!  I can't wait to be there.

    Rita & WendyTY... Glad it went well.  What a wonderful thing to spend your time doing.

    Christi... How are you feeling?  Hope the fever is gone. 

    Wendy... Have a great trip.

    Well, treatment #3 is tomorrow.  I am in a really bad mood about it.  I get so nervous about the Adriamyacin.  I hate that I feel normal and then have to do it again.  I know that you guys know what I mean. 

    So, if I don't talk to you tomorrow.  Have a great weekend everyone.

    Jo

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited July 2009

    Jo - Hon... I know exactly what you mean! It's awful... but I have to remind you of that rainbow at the end, it really is there... I know it's difficult to think of ANYTHING positive at this point... but please try to! Been there, done that! I know it sucks... but you have to keep the faith girl! We're all cheering you on.

    My 19 year old niece, Nicole just got a tattoo... Here it is:

     

    Regardless of what our religious beliefs are... we have to keep the FAITH, that we will all be able to deal with whatever comes our way....

    Have a great Friday girls... make the best of it... wherever you are in treatment or beyond. Love ya all!

  • AndieLiz
    AndieLiz Member Posts: 1
    edited July 2009
    Thanks to Rita and Wendy for another great evening at BBs night out!  It is great to see more ladies attending.  I will be glad when I am done with chemo and feel a bit more sociableSmile
  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009

    Andi Liz.....All of us here will be glad when you are done with your chemo as well.  It can have some rough patches here and there.  Probably not as bad as a sharp stick in the eye three times a day......but often not too nice.  It is always a relief to feel like you are getting your life back in some sort of predictable and little more consistent fashion.  Rita and Wendy are indeed great gals --- they along with all the gals on this thread have made my life so much easier to live. 

    Jo....it is difficult.....as the chemo is cumulative and takes a little more time each time to "recover".  I'm fairly certain many of us had some real foot dragging  going on at some point.  I sure did....Couple of times I questioned if I "could make myself, this time", but I'd close my eyes and imagine I was with the other girls who had finished, laughing and having a good time.  They were all pulling so hard for me that I couldn't let them down or myself. I had such admiration for them....that I too wanted to be one of them....and then I was....and you will be too.

    Healing hugs to you,

    Jackie

  • MAMAQ
    MAMAQ Member Posts: 140
    edited July 2009

    Jackie... I'm going to try that today.  Visualize the end.  I want to be in that company, so I will buck up and deal with this trying time.

    Thanks.

    Jo

  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009

    When we long for a life with no difficulties, remind us that oaks grow strong in contrary winds, and diamonds are made under pressure. -Peter Marshall

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2009

    Andie!   I'm so glad to see that you posted.  Welcome to the Illinois thread!  Read and post often.  These ladies are awesome and they'll help you along the way, too.  You might not feel sociable right now, but you seemed very sociable to me.  :-)   It was good to see you last night again.  I always enjoy your company and part of your problem right now is the same as Jo's.  You have your next chemo on Monday and it's hard to get hyped about going in and "doing it again," especially after the chemo holiday has appeared for a few days.  The fatigue is wearing, too as you go through the treatments, but keep in mind that it is DOABLE and you are DOING it just fine.  You will be half-way done on Monday and then you'll be on the downhill slide.

    Jo....Good luck today with your treatment and in the next few days that follow.  We do understand how hard it is to go back to the next one.  I had a strange situation.  They did four of my chemo treatments and then broke for radiation.  I got along fine with radiation and was feeling pretty good at the end of rads.  Then I had to go back for the last two chemos.  I tried plea bargaining and everything else I could to get the onc to tell me that it would be O.K. to skip them.  Needless to say it didn't work that way and I did begrudgingly finish, which I'm very glad of today. 

    Andie, Jo, Buddy, and all you others still in treatment............As I looked around the table of survivors last night I saw 15 lovely ladies of all ages and in all stages of their treatments.  We shared our "war stories" of chemo and rad days and our emotional journeys but we also shared our hopes for the future.  One gal is even hoping for another child.  Others are into benefits to help find the cure.  Hey, Blackjack, some even want to try golf for the first time. Tanya who posts on here is involved with the Festival of Trees here in town and of course our WendyTY still has the Ladies St. Jude fundraiser on Monday to complete before looking for another project.  A couple are looking for jobs like our Juliet did for several months.  They are so alive, vibrant, and getting back into a new life after their journeys.  It won't be long and the treatments will be over.  The fatigue will gradually go away and you'll be doing the same thing.  There is a place for you in life after treatment and the icky feelings will go away.  Hang in there.  Come here and vent when you need an "ear" and know that we do understand and we do care.  Hugs to you gals!

    Jacke, one of the gals did say that a new med has been tested for Triple negs. and it has helped those who did the trial.  It had four letters in its name (perhaps an acronym) and the first was a P but I didn't write it down and of course I now can't remember it.  I will ask her about it again at yoga on Tuesday if none of you can help me out with it and post its name as it might be something to ask your onc about.  So see, there has been lots of progress and hopefully that cure is right around the corner for us!

    Connie, enjoy your weekend up north.  I'm with you.  I don't know what's up with this summer.  There's been way too little of it to please me.

    I'm off and running for the day.  We have a great meat market near us that I have to visit this morning and then I can't miss my Friday afternoon golf game!

    So glad to see you post, Andie.  I'll be in touch!

    Rita

  • zap
    zap Member Posts: 1,850
    edited July 2009

    Godd Morning:

    It is great here.  It sound like your get together was good for everyone , Rita.  Did you organize this group as well?   You are a leader if ever there was one.

    Going over to my best friend who did very well in surgery (thanks everyone) and is now home.

    Sounds like we have a number of women facing chemo today and on the next few days.  Trudge, walk, sleep, through it.  However you can get through it, do it. It is really hard but soon it will be behind you.

    DH and I are painting a convent on Saturday as part of his service project for Marquette Alumni.  I hope my hip cooperatesKiss.  He helped me with my service project for Loyola when we worked on an assembly line to package food at the Depository.  No way out of it...he said I could wash brushes if painting is too much. I would rather paint.

    Hey pet people, I took a trip to PetSmart to get a grooming brush for my cat who has developed these really gross patches of matted fur.  I looked it up on the internet and it says to put olive oil on them and brush it out.  That sounds very messy,  I would like to avoid a trip to the vest (expensive and she goes berserk),  Any ideas,  I know now I should have been brushing her all along. 

    Have lots of fun this weekend.  Wendy, wherever you are, have LOTS of fun!

    Susan

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2009

    Susan, WendyTY and I started the Bloomington group.  Wendy is the main spokesperson for the group.  I'm one of those people who love to help and really get involved in projects but I don't like to run the actual gathering and don't really like to be the chief!  LOL  I'm a darn good worker, though!  :-)

    As for your cat's matted hair, I always cut out part of the matted area before I try brushing it out.  Just don't cut too close to the cat's body as sometimes it's hard to tell where the fur mass ends and the skin begins.  Then I put the oil on it and rub it in real good before brushing.  It gets on your hands but it's not too bad and kitty will finish the cleaning when you're done.  I've usually had to do it a couple of times on each clump before it all goes away as my cat is not very patient and wants to escape the brush before I'm done.  Have fun!  If you discover an easier method, let me know.  I'm always receptive to better ideas.

  • whoopsiedoodles
    whoopsiedoodles Member Posts: 224
    edited July 2009

    YAY!!!!  I would love to get together!!!!!!!!!!!!!!!!! 

    We come in on the 26th, so that might be a good day to meet for lunch, and Greg and Daniel can roam the city for a bit and have some fun.  Does that work for you guys? 

    Otherwise, if you don't mind my kid joining us, any of those nights for dinner would work, or, if we don't mind watching the clock (and I know how get-togethers with our sisters can be......we never stop talking!!!!), we can do lunch. 

    Yep, I'm thinking the 26th would be great.  I'd just have to be done early enough for Greg to drive back home. 

    What do you guys think?  I'm so excited about this that my hands are shaking as I type!!!!  Finally, I can meet the Illinois ladies!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009

    Question:  What is one of the best while being one of the worst gifts you can give yourself and others?????  Well, we pretty much to a person all know it's doing our chemo.  I was just thinking about Jo....almost wishing I could do one of her chemo sessions for her.  I do not wish to in any way minimize what any of us have done.  For some it was not too bad....for others there was a nightmare aspect to it ---- but I do have a deep admiration for all of you. 

    The life force ( more technical term - elan' ) is so strong that most of us would never consider not doing it ----  you may think at times that living is awfully difficult and it would be so peaceful if you could just quit the struggle, but there is a part of you inside that knows that it is not time so the life force/elan' stays too strong.  Still, faced with so many of these stressful issues ( and what is one of the causes of cancer but stress ) and un-certainties, and the amt. of energy it takes to just get up and go have your txs.......I want you to know just how marvelous you each are.  You went out....every time it was time to help kill the monster.  No matter how upset you were, or how reluctant, you just got yourself together and did it. 

    Jo and others....you will look back after your txs and be proud that you made it through just as we all were and part of that will be just because you moved every obstacle out of your way.  You will have used strength you may not have known you had, and you will have been able to show others who may be apprehensive that this can be done.  You will have had a hand in saving a life ( which always makes you feel good ) and it will have been your life.  You will have made those who love you proud and happy.  You will be a champion. 

    Hello to everyone else and hope you are all ok.....Carol, Karin, Jennifer, Donna, Allison, Laura, Bj, Connie, Pat, Susan.....each and every one.

    Jackie

  • elf_song
    elf_song Member Posts: 148
    edited July 2009

    Jackie- Thanks for the song.. Every time I read your post, it is heart warming and comfort, you make me see the things around me in different way and keep me in positive and stronger too, Thank you so much~

    Donna- thanks for the compliment..  and congrats on 16th anniversary..  I am heading to 7th..  still long way to go..^^

    BJ- yes, I need a rest too..   having two little ones in such close age is not easy to handle, not all the time but sometimes..  my dh is still sick with the bronchitis and he took antibiotic, doing breathing treatment everyday, using 4different kinds of inhalers...  holly cow~    our older son had fever 101.2 last night and gave him a luke warm bath with the motrin and fever went down... Than it starts all over again this morning..  he had another high fever 100.2..  gave him another motrin and Tylenol to reduced his fever and he feels better now..

    Wendy- I do have a eye glasses but I don't like to ware them..  I ware contact without them I won't be able to see anything.. my I sight is really bad..  my parents are keep telling me to ware eye glasses instead of contact because it's better for the eyes..   going on a vacation??  sounds like fun~!~!  hope you have a fantabulous time~!  (can I squeeze in your suite case? haha~)

    Jo- you are so right, when you feel good it's time to do it again..  I hope your treatment went well today..  I had bad reaction with Adriamyain.. that red drug... I hated it..  I got rashes and bumps all over my upper body so they gave me few dose of benadryl every time..  my chemo nurse told me I am the first person who had reaction to it..   oh, well, it's all over now and I do not miss that...  I am sure you will too...   hang in there..

    Laura- I really want to go be on JanC's get together.. my dh is still on vacation so there is chance I can make it~!  just gotta find the way to get there..  I will ask my dh if he can watch the kids on that day..   Horay~~ for your 4years cancer free~!~!~!   I can't wait to be there..

    Hope4cure- sorry to hear  bout your ps..  my thoughts and prayers are with you.. wonder if you can change your ps now..  find someone else?  my ps has good reputations and his good listener too.. 

    Christi and Buddy- I wish you well

    Rita- like Susan said, you are a leader..   wow~~  I admire you for doing the fund raiser and made this room for us to join~!

    AndieLiz- Nice to meet you~  hang in there~  we will be here whenever you need us..

    Susan- painting??  just be extra careful when you do the painting..  don't work too hard, don't over do it...   I hope your hip will cooperates..

    I did my muga scan yesterday and will see my onc. doc on monday to see the result and getting another herceptin...   Then we are going on vacation~!   My dh and kids are big fan of Trains..  So, we are taking a road trip to Owosso, MI for the Train Festival 2009~!~!    We get to ride my dh's favorite train and a lot more..  This is first time for us to going on a road trip and we are exciting~!  I am sure we will have lots of pictures to show when we come back..

    Have a good evening everybody~!

    love, EJ

  • Christi73
    Christi73 Member Posts: 15
    edited July 2009

    Hi All,

    Wow, this has been an experience this week. Finally my fever is down. Gave me a shot of Neulasta because the 2 leukine shots didn't help. I hope when I go back tues my counts are back up. I had such incredible bone pain last night I was in tears. The nurse said yeah that happens some times after Neulasta but it should only last 2-3 days and I should take more pain meds.  If I didn't have you all for support I would never go back. Jackie- thanks for your comment about tx and the strength to get through it. I sent my DH to visit his buddies in the UP and my sis is coming up from Indy for the weekend. We are going to watch old movies and giggle alot. Hope everyone has a great weekend. Christi

  • zap
    zap Member Posts: 1,850
    edited July 2009

    Dear all:

     I read some of these posts and I marvel at the courage of so many.  Christi, that is so good of you to send DH for some R and R with his buddies!  I had that pain you spoke of and it scared me so much.  I thought my bones were going to pop through my skin.  If the onc warned me, I do not remember.  I clearly will never forget how afraid I was of that pain. Frankly, I do not remember it with each shot.

     Thanks, Rita, about the cat fur.  It is really yucky and I may have to bring her to the vet as I am afraid I will hurt her trying to cut this stuff out.  I will wait until Monday. I did put on the olive oil.  I was afraid it would get on the furniture, but you called it!  She started licking it off right away. She is all black and looks likes she has dred locks, but I know they must be hurting her.

    I should reread my posts as I  sound like a martyr.  I am not painting a convent. I am painting one room in a convent and I am doing that one with DH. 

    Wendy, for my Northwestern writing class I had to write a personal memoir which I did about my BC and I included a reference to the fort.  I always loved that fort story. I fictionalized my piece a bit by including it as part of my BC journey.  Wow, what a wonderful thing to do for a kid....provide a fort and even better to climb into it with a child. Thanks for sharing that story.

    ElfSong, just about every part of your post is all good ( I am sorry your DH and your child) is sick.  The road trip to see trains sounds fabulous!  I would love to do that  one day and will look into it as  my DH and I love road trips and I personally am fascinated by trains.

    Laura, I cannot visit with Whoopsie on that July 26 (Sunday).  Can you do lunch on the 27th or the 28th?  I am not sure if anyone else can, but if so, can we meet where it would work for Whoopsie?  I guess some of you know her.  Laura, if you can do lunch on the 26th, then go ahead and make plans and don't worry about me.  Summer is just such a busy time. Whoopsie, you sound like a delightful and strong woman!  I wish your son well as he does his rehab.

    Susan

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited July 2009

    Susan and Whoopsie - The 27th works for me - Whoopsie does it work for you? AND Susan - do you want to go downtown together? I could go to your house since you're East of me.

  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009

    Hang in there Christi.....a quote I have put in here at least once says.....

    "I didn't say it would be easy...I said it would be worth it". 

    It really is worth it too......but the hill does get steep.  I had the bone pains really bad once.....I sat in my recliner and tried very hard not to move.  Just trying to stay still and not FEEL so much wore me out enough to sleep when night came and it was such a relief. 

    I had Nuepogen shots that I gave to myself.  They are older than the Nuelasta which is only one injection.  I think I had to give myself the shots for a week, starting the day after chemo.  Also I had to take the syringes out of the fridge about 1/2 hour before the shot and take a fast acting Tylenol gel cap about 20 minutes before the shot.  Save myself from bone pain and a nasty headache.

    Went with a gal friend to the Lions picnic/carnival in Central City tonight.  What fun.....played 5 card poker --  I won on the first hand -- 6 pk. of Budweiser.  Next hand my girl friend won - Bud Light....so we stopped playing....seemed like a set-up.  We went over to the cake walk to try our hand....see if we could win a chocolate cake to go with the beer.  Apparently our luck had run out by then...but it was a lot of fun.  See you all in the morning.

    Jackie

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited July 2009

    elfsong - Good luck with your test on Monday! Have fun on your road trip! If you are able to attend JanC' get together... maybe you can drive to one of the girls houses and then ride with her?

    christi - HANG IN THERE... gawd... I know how tough it is... have fun with your sis!  

     Where's blackjack... Is she lost at sea or is she back in Vegas! lol bj - check in girl! ; )  

    ------------------------------------

    Girls... wish me luck... on Monday... my cousin Dawn is driving in from Michigan with her three little ones... Brandon (11), Blake (7) and Lauren (4)... they will be staying with me and dh for 3 nights. OMG - I am looking forward to it, but I realize that I must keep us all busy the whole time! lol We will have lots of time to go to the beach here and a museum, etc. Whoa... I just hope I can keep up with them. lol lol lol 

  • whoopsiedoodles
    whoopsiedoodles Member Posts: 224
    edited July 2009

    The 27th would be just fine (as long as time works out, and Daniel doesn't make you guys crazy!).  He has therapy camp from 9-12, then he has a study he is taking part in from 1-2.  If you guys are up to it, that would be a PERFECT time to go to Navy Pier.  What time works for everybody?  If morning is best, I need to meet you guys somewhere by the hotel (I can't even think of what it's called....Affinia?).  If you guys want to meet for an early dinner, Daniel and I can take the shuttle-bus to the Pier. 

    I am so EXCITED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  Spread the word if you can, okay?  I am getting totally hyper about this.  I've gotten to meet with some of the Indiana women, and I can't wait to meet more sisters. 

  • donnadio
    donnadio Member Posts: 674
    edited July 2009

    Jo and christi...Jackie..certainly summed it all up (as she does so well), and just recently being over with chemo, the feeling of it all and looking back and listening where you are at in the treamtents. i still very raw and hard yet to know that it all was what it was. The courage and strength is something of a gift as we cannot beleive we have such qualities when faced with such a monster of a disease. BUT.. we are bigger than all of that and we are all proving this by pushing forward, even when we do not want to. The day to day jounrey was actually the hardest for me, for you just never know how you were goin to feel and what se would emerge. This will be over and in the aftermath you will see what a courageous warrior you were and the gratefulness of it all will resinate in spite of all the fears and bad moments..

    Christi..The neulasta shot is known for the bone pain.. i did get some but more of the fever and complete ickiness. Everyone is different.SO sorry you have to feel such bone pain. Today hopefully will be a better day.

    Goin out for the day, freinds and a picnic..great day for one.. brrrrrr!

    Be well and have a great weekend ladies!!!

    Donna

  • donnadio
    donnadio Member Posts: 674
    edited July 2009

    Jo and christi...Jackie..certainly summed it all up (as she does so well), and just recently being over with chemo, the feeling of it all and looking back and listening where you are at in the treamtents. i still very raw and hard yet to know that it all was what it was. The courage and strength is something of a gift as we cannot beleive we have such qualities when faced with such a monster of a disease. BUT.. we are bigger than all of that and we are all proving this by pushing forward, even when we do not want to. The day to day jounrey was actually the hardest for me, for you just never know how you were goin to feel and what se would emerge. This will be over and in the aftermath you will see what a courageous warrior you were and the gratefulness of it all will resinate in spite of all the fears and bad moments..

    Christi..The neulasta shot is known for the bone pain.. i did get some but more of the fever and complete ickiness. Everyone is different.SO sorry you have to feel such bone pain. Today hopefully will be a better day.

    Goin out for the day, freinds and a picnic..great day for one.. brrrrrr!

    Be well and have a great weekend ladies!!!

    Donna

  • zap
    zap Member Posts: 1,850
    edited July 2009

    Laura. the Museum of Science and Industry has the Harry Potter thing.  Kohls Museum (Glenview) is great for the younger two and the  11 year old could tolerate it.  Great America has something for everyone (expensive, though). 

    The 27th  is okay but for me it would need to be lunch. for me.  WE can drive together.

  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009

    It's what each of us sows, and how, that gives to us character and prestige. Seeds of kindness, goodwill, and human understanding, planted in fertile soil, spring up into deathless friendships, big deeds of worth, and a memory that will not soon fade. . . .
    George Matthew Adams

  • blackjack
    blackjack Member Posts: 771
    edited July 2009

    Morning Girls,

    I have been sooo busy this week.. I have been in school this past week 12 hr days. My butt is so tired of sitting and listening to lectures all day. This is not how I wanted to spend my summer but it was mandatory for my job. You know I rather be on the lake. Yesterday I was in Iowa moving my dh out of one apt into another, cleaning, packing ect. Drove home late last night. Doing it all in one day it soo tiring. But it is done for now. Today is a chill day for me. Going up north as my ds the chef is debuting his new menu at the club. We are doing a tasting for him. So far he has had great reviews from it. I can't wait for the holidays as we are planning a big holiday party and he is doing the cooking for me. yeah!!

    Rita...I am liking my golf lessons..not good at it but trying. Practice, practice, practice they tell me. But I do love my cute golf outfits. lol We also had a golf rally for the cure outing up north. It was empowering to see so many ladies and men out for a good cause. Maybe when I am good enought I will play 9 holes with you.

    Wendty...you should be so proud for all you do. I see event planner in your future..maybe a reservation girl down by you. lol Great job.!!

    Zap..how are you. Looks like your friend is doing better and healing. Sending her a healing hug. Friends are precious so we need to keep them close to our hearts. You are a great friend to her and she is very luck to have you there to help her. Are you going up north soon with the family?

    Jackie..how are you doing. glad to see that you got some down time to yourself and with the remote too. Hope your weather has not been to bad for you. Noticed lots of rain your way. 

    Wendy..hope you are having fun in Florida. How is my beach chair and are there any cute cabana boys. lol Missing you. email me and I will post for you.

    Jo and Chritie..hope you are feeling better post txs. There is a light at the end of txs and you will start to feel better soon. Hugs to you.

    Donna..how are you feeling and are you getting rads soon.

    Whoopsie..glad to see that you are coming to Chicago. Lunch would be good for me. Let me know..car pooling would be good too.

    Laura...cute tattoo Nicki got. I hope you have fun with your cousin and her kids. Paulie will have fun playing with all of them.

    Connie...boating today. Maybe the weather will get better for us. We need to think sun and warm weather..this is not good for us boaters. Hope you have a fun weekend.

    Smerf...how is the packing up going. need a lunch date soon.

    Well I am off to the gym now. Need to run off the fat butt I got this week sitting in class. lol

     Have a great weekend everyone. remember to be healthy...be happy.

    BJ

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2009

    Hey Christi,

    Wendy emailed me from Florida because she can't post from there and she wanted me to tell you to take Claritin the day of your neulasta shot and for 2 to 3 days after the shot to counteract the bone pain!  She also send me a gorgeous ocean picture which made me so happy for her and so extremely jealous!   LOL

    Gotta run..........be back later.

    Rita

  • donnadio
    donnadio Member Posts: 674
    edited July 2009

    Blackjack.. NO NO  oh dear gawd NO....  I am not having radiation... DONE ..  AM DONE! ALL done!!!!! Hope your class ends soon and you can get on the water soon!!

    We are goin back to Michigan next week .. two spots acutally, depending on this crazy weather as to when we leave!!!!

    Rita..Wendy sure sounds like she is in a great place!!!!Christi.. you have ALL the right advice and support and hope it all helps you. IT helped me!!!!! Rita.. did you not start this wonderful place?!!!!

    Have a good evening !!!

    Donna

  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009
    Oh the comfort, the inexpressible comfort, of the feeling safe with a person, having neither to weigh thoughts nor measure words, but pouring them all right out, just as they are, chaff and grain together; certain that a faithful hand will take and sift them, keep what is worth keeping, and with the breath of kindness blow the rest away.- Rex Cole
  • Tanyar
    Tanyar Member Posts: 22
    edited July 2009

    Hi All,

    It's good to hear that our sisters are forging ahead even when they are weary of tx's. 

    At our Bosom Buddies dinner Thursday evening one sister mentioned a new option for us triple negative gals.  Here is a link from this website addressing PARP....http://www.breastcancer.org/treatment/targeted_therapies/new_research/20090624.jsp

    While it sounds promising, it also sounds like there is a ways to go before we will be using it.

    My family enjoyed our vacation in MI.  We took day trips with the grandgirls and spend some time on beaches.  Two highlights were the Airzoo in Kalamazoo and Fair Oaks Dairy in IN on the way home. 

    I had a busy week catching up on garden chores.  The laundry fairy was also on vacation so had to wait to catch up.  I met with the genetic counselor this week.  We have submitted my blood to Myriad Lab in Utah.  They will contact my insurance carriet BCBSIL to see if they will pay for the testing.  Having only one daughter and two granddaughters with no other history of bc in my very small family it is doubtful they will pay for the testing.  $3200 seems a small price to pay to know if I am a BRCA 1 or BRCA2 carrier.  They can't see my history.  I lost my biological Mother at 37 due to an undetected heart condition.  I am an only child for my biological parents with one half brother.  My daughter is very comfortable if we dont' have the testing done. 

    I seem to be very tired today so am going to take a rest before DH comes home from golfing. I helped with a garage cleaning for our Festival of Trees on Friday.  We have 5 garages that hold many of the items we need to turn a 75000 sq ft conference center into a winter wonderland in mid-November.

    Buddy, Jo, Christi and the rest take good care of yourself, be kind and remember how strong you are to get this far.  Treatment will end and the light will shine.

  • illinoislady
    illinoislady Member Posts: 40,950
    edited July 2009

    Good morning everyone --- hasn't it been quiet w/o Wendy.  Hope you have all been doing stimulating and fun things.  It has been so cool here lately ( I'm not really minding ) that I'm feeling a bit more energized.  Now I just have to figure out how to make the best use of it.  Well, if all else fails....I can always do my car.  The recent rains left a little mud on the bottom door panels ( no mud flaps )  so that always looms.  I also have work here in my computer room.  I cleaned out some drawers from a small amt. of furniture I am going to send to auction and I have to find a place for all that.....before summer ends....today would be a splendid day for that.  Tired of the piles on my desk. 

    Tanya....we were posting at the same time.  So good to hear from you.  I am glad you put that link in for the TN's.  Someone I know was just asking me about that yesterday.  Now I will be able to share something with her.  She is Tn and her doctor told her that she had ten years.  She said it is not a question of if she will have the cancer back ( I'm a little sorry her Dr. said that ) but when.  I tend to believe sometimes things happen to us because someone says they will and our mind does nor distinguish....just accepts.  If you have read any Deepak Chopra.....he pretty much says that.  Have a nice restful Sunday.

    Hope you are all enjoying the wonderful week-end.....and Wendy TY.....hope you are looking forward to some rest.  Hi to all of you.....

  • zap
    zap Member Posts: 1,850
    edited July 2009

    Hi all:

    I am glad that doctor is not my doctor.  How can she know what meds will be out there to treat triple negative  five years from now, let alone ten. Tanya, I am the master at procrastination and I still need to do that gene testing.  THANKS FOR BRINGING THAT UP.

    Yesterday we did our service project in Humboldt Park at a mission.  I just forgot how impoverished people can be.  The neighborhood scared me. Once working with such wonderful people, I was totally comfortable and we painted four rooms and had a wonderful time. 

    Hope all are well.  Today is my grandbaby's second birthday and we are going to her party.  I just adore this kid. 

    Wendy, this is hard (one way chatting).  I hope you are having fun.  Good week to go as it is very overcast here.

    WendytY....yahoo on the fundraising.  That should be your career!  You are amazing.

    Have fun!

    Susan