Anyone starting Chemo in Feb?
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Ah Leah...here is a big hug (((((Leah)))) I had a similar scare 2 years ago, when my mammo showed "something" in the tumor bed...had another biopsy, it was scar tissue...positive thoughts going out to you that yours is scar tissue too. All we can do is continue day by day and hope for the best. But I hear you, the waiting is horrible and doctors sometimes don't seem to understand the oppressive weight of all of this.
Will be waiting the hear how you are doing.
Another big HUG (((((Leah)))))
Love,
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Leah....how are you?? Sending thoughts your way!
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Hello all!
Found out that i have a nice clean breast and that the changes to it are radiation related.
So there!
THANKS FOR ALL THE SUPPORT. You would think we would all be pros at this, but no....!
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Thank heavens! I don't think the fear ever leaves, but what a relief when the waiting is over.
Lots of love, Leah!
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Just an update...had annual mammo today....not good. Then had ultrasound, the radiologist, a wonderful understanding woman....said she is worried about 2 "nodules" that have grown over the course of the last few years. She said if you compare them year to year, not much change, but if you look back over 2 or 3 years, they have grown...ugh. Now I need yet another biopsy to rule out recurrence. She did say it could be scar tissue, but she said they were "worrisome". Hoping to get on the biopsy schedule this week, but I am at their mercy. What a way to start a vacation week.
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Terry,
My heart is in my throat. I know how you feel. If there is anything i can do besides pray, please let me know.
Love.
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Nothing to do...but wait. I thought for sure the rad onc would call me today. I am off work this week, so I waited around the house all day and...no call! ugh, don't they understand that I have a lump in my throat and tears in my eyes? I don't have a good feeling about this after the radiologist at the imaging center talked to me. Maybe she was just preparing me for the worst and hoping for the best, but I can' help it. I can't even do any more research or reading on it...have read it all.
So I guess all we can do is pray. And hope that if it is BC, it is a local recurrence and not mets.
Well...on to another sleepless nite....will update.
Thanks and I love you all...good friends
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Biopsy scheduled for next Friday the 25th...see the rad onc on the 31st. Should have results by then.
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Sweet, sweet Terry, I am just now reading about what you're going through. I am outraged at the casualness of some medical teams. I want to interpret this long waiting time as a sign that they do not look at it as an emergency due to the slow rate of growth over the last 3 years. Still, did they ever take courses in empathy and humanity before being in charge of patients? Obviously not. As an "old timer" of false alarms based on my mammograms (when I still had "mammo" to "gram")--20 years of biopsies that, despite the bad feeling of the "best" Houston specialists, were always negative, it is true that imaging can trigger signals that are not accurate. Use this "vacation" time to rest, boost your immune system (so important), relax (trust your garden to help you here) so whatever you hear, you're ready to fight back. But you need a strong body... For now I send you big tight hugs. Too bad I am not your neighbor: I would have brought you the most beautiful roses from my garden and lovely branches of mock-orange in full bloom with their delightful fragrance. Denver looks literally tropical right now--warm days and nice showers--lush green, and flowers have been spectacular as if everybody turned to biodynamic gardening... must be the heavy snow we had this winter. With this beautiful spring season I hope you can benefit from the balming effect of Nature's display in your yard, and around, to appease your anxiety. I see you on Skype, but I do not know if it's you or one of your children or DH. Please do not hesitate to call even if it shows "away," chances are I'm at the computer or just a few steps away.
I think of everyone out there, just very, very busy with translation work, dogs, a DH who should defend his PhD in Mech. Engineering by mid-July (at age 70!), my beloved piano lessons "for babies" (although I've learned "on the side--thank you U-tube--some darn neat boogie woogie short pieces ;-) ). You are nevertheless in my heart and I am sending my love to all our FCC sisters... come say hi, every once in a while... I'll try to visit more regularly... Love, Catherine
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Dear Terry,
We know it was today. Let us know if there is anything we can do to make the waiting easier...
Love.
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Have been holding your hand Terry. Its times like this I really do wish I was closer.
Love and hugs
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Dear all, hoping for a week with good news for Terry and more strength and comfort for Carynn...
Hugs to all, Catherine
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Thank goodness....it is just scar tissue! I have been on pins and needles! The biopsy was an ordeal though, they had to go in both sides of the breast to access the 2 nodules. Hence, I am entirely black and blue and sore. And he didn't give me enough numbing meds on the one side, but I am very relieved.
We have had several local people who have sufferred relapses years after their initial diagnoses...so you know what I was thinking.
The radiologist said I just may be prone to keloid type scars, even internally.
On a serious note, though, I wonder if I just shouldn't have a mastectomy and reconstruction? I don't know if I can go through all this every year or two. This is the second time in 2 years that I have played this game.
Thank you so much for your thoughts and hugs! You are the only ones who can truly understand.
Catherine...I really don't use Skype. I did use it when Rachel was in Australia, but really don't even look at it anymore.
Alyson...your long distance hand holding means so much. Leah, thank you for thinking of me that day!
Now..let's all try to stay out of biopsy/pathologists' offices!
Oh...and I almost forgot to tell you all....I am going to be a Grandma in January. My son, Matt and his wife, Sue just announced the news! Now, I AM excited about that!
Love you all
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GREAT NEWS ALL AROUND!!!
Thanks Terry... Have a great summer!
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Its the best news. Have fun now Terry. Being a grandma is just wonderful, much more fun the parenthood.
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Hi, guys!
Hope you are all having a great summer (winter to Alyson).
New picture I like that I thought I would share of... ME!
Much love.
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Leah! You look so good! Thanks for sharing!
How is everyone? Hope your summers are going well (and winter too!)
My little future grandbaby is a boy, we found out...we are sooo looking forward to this, and I have bought a glider rocker
It has been hot and muggy and my garden producing. I put up 46 jars of dill pickles! And have been eating lots of garden salad. Last night we had our first zucchini. It seems to be late this year.
Catherine... your state has been in the news lately...wildfires, shootings...hopefully you are in a safe place and doing well. Are you still tranlating?
Off to work I go....again...Leah you really do look like you are feeling good and doing well....:)
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A special day is being celebrated today... Our dear Catherine has turned the big 60!
Happy birthday, and many, many more.
We love you!
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Just sent her a message. She is a sneaky thing. Thanks for the info Leah.
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A very happy belated birthday to you, Catherine! So sorry I missed it...somehow I got logged out and didn't see an update to our thread!
Hope everyone has a wonderful holiday season.
We are still awaiting our Grandson...due Jan 4th, but signs are pointing to an earlier arrival! So excited.
Hugs to all
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Well, finally my big announcement....
Jake Michael Albright arrived safe and sound on Saturday 12/22/12, weighing in at 6 lbs, 1oz. and 18 inches long. He is a tiny little peanut. We are in love and over the moon. What a wonderful Christmas gift from our son, Matt and his wife, Susan!
Merry Christmas to all of my friends here!
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2013 is here, hope its a good one! - well for me it New Year!!
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Since I am hear, thought I would leave a post. All is well here. Time marches on. I am still working 3 days a week, but hoping to retire in September.
I see posts on Facebook from Caryn and Terry.
Catherine, miss you. Hope your are doing well. I didn't quite understand what your comment about your
husband defending his Phd. meant. Hope all is well there. I am now 73.
Love and hugs to all. Sammie KB
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Hi all...haven't been here recently, I use Facebook...been playing Words with Friends with Alyson.
We have been busy with Family. Our dear little grandson Jake, was diagnosed with Cystic Fibrosis on his newborn screening. My son and his wife are both carriers. Any baby they have has a 25% chance of inheriting a defective gene from both parents and having the disease. jake sadly won that lottery. No one in our family had any idea that any of us are carriers...nor in Susan''s family. Apparently either my hubby or I is also a carrier along with one of Sue's parents. We haven't all been tested yet, although our other 3 kids will need to be before any of them have kids.
Jake is doing okay. He has had a rough time gaining weight, although his meds seem to be adjusted right now and he is up to 10 1/2 pounds. We do chest therapy 4 times a day along with a nebulizer to help him loosen the mucous in his lungs.
I took 2 weeks off for vacation and went to take care of him when Sue went back to work. It is so hard for them, they live a little over an hour away from any family. The daycare is not so hot, and is a big adjustment now. They are not as diligent about germs and meds etc as we are.
I am so proud though, of my son and daughter=in=law. They want to raise him as normally as possible and let him do all the normal little boy things...playing ball and hockey etc.
The good news is that there is a new drug which is a targeted agent to a specific gene defect (there are over 1800 different defects that cause CF). Jake does have that particular defect. The drug is currently only approved for kids over 6, so our goal is to keep his lungs healthy til he is 6 and he will have the new drug. It is working wonders and takes most symptoms away.
Please keep Jake and his Mommy & Daddy in your prayers, if you are a praying person!
We are going with the flow.....
On another note, I am LOVING being a grandma. That 2 weeks was the best vacation I have ever had.
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Dear Terry,
Sometimes the sorrow just doesn't stop. But what a lucky grandkid to have such a great grandmother!
You are both blessed.
It sounds as if Jake has excellent care, and the path forward is known. That is a good thing.
Other than prayers, if there is anything I can do, please let me know.
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Ah, Leah, thank you so much for your love!
I would gladly go thru chemo again, if I could take this away from Jake. I took care of him this weekend as his mommy & daddy were both sick. (of course I got it too,when I got home). His lungs are sounding better now, as he has done a couple different antibiotics. The last one was zithromax...pretty strong for a baby, if you ask me.
He goes to the specialist today for a checkup! Will keep you posted.
Love,
Terry
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hi Feb 07 Chemo Cruise just to say that I am visiting Leah. Terry heading to PA on Wednesday so will be in touch. Seeing Primel on the 24th. Mel, wishing I could see you too and Commando and Sammie
Big big hugs
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Sammy Kay's family posted on Facebook that she has had a brain bleed and having surgery. I know some of you may not be on Facebook. Thought you might keep her in your thoughts and prayers.0
