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I WANT MY MOJO BACK!

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Comments

  • Firni
    Firni Member Posts: 521
    edited June 2009

    Hi Barbe.  Thanks for the warning. I've done so much reading the past couple of days that I know the estriol poses the same risks as any other estrogen product.  I would rather a doc. order estrogen level and 2:16 ratio tests and Rx an estrogen vaginal cream to resolve this issue.  And then retest in a couple of months.  I just don't think my docs are going to help me.  I am so ready to start a more penetrating relationship with my DH again. And, well, he's never not been ready.  I just don't see any other way except a little local estrogen for a while.  Even tho I don't want to, if I have to do it myself I will.  At the same time, I don't want to take any unnecessary risks if the stuff doesn't even work.

  • Texas357
    Texas357 Member Posts: 332
    edited June 2009

    I won't do it without the blood tests either Firni. But the more I read, the safer it sounds.

  • Firni
    Firni Member Posts: 521
    edited June 2009

    Ok Ladies, here's what I found out at my PCP appt. today.  He of course didn't want to do any estrogen products without checking with onc.  I told him onc would say no according to his PA.  So PCP calls him on the spot and had quite a lengthy discussion about quality of life, treating the whole patient, etc.  So, Onc said yes IF I try a silicone lubricant called Pink first.  He said I could find in any any sex store.  Not.  I went on line and the cheapest place I found it (in various size containers) was at cheaplubes.com.  Onc said it has to be the silicone based and not the water based.  Pink comes in both. He said a patient told him about it and it worked really well for her.  I ordered and it should be here for the weekend.  I'll let you all know how it works as far as atrophy and tearing is concerned.  

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009
    Kind of sad you have to go to a "adult toy" store for something so basic! Hope you have a good weekend Wink
  • Firni
    Firni Member Posts: 521
    edited June 2009

    Barbe, you know what's worse?  My onc knew right where one is located.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009
    HAHAHAHHAHAHAHAHA (I'm sorry, I'm not laughing AT you, I'm laughing WITH you! Aren't I? Surprised
  • Firni
    Firni Member Posts: 521
    edited June 2009

    Yes you are!

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009
    Phew! I pi$$ off a lot of people who don't understand my sense of humour! Undecided
  • Firni
    Firni Member Posts: 521
    edited June 2009

    Not to worry Barbe.  I've seen your posts and I know how you roll.  I love a scathing wit.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009

    Kiss

    Innocent

    Multiple personality disorder....sigh.

  • ktym
    ktym Member Posts: 673
    edited June 2009

    I'm still laughing that there is a site called cheap lubes.  Wonder how many people come across it looking to get their car worked on.  Barbe you know I love your sense of humor. 

    Firni, happy your PCP went to bat for quality of life for you.  

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009

    I know I will be thinking of Firni all this weekend! Jealous, envious...sigh.

    kmmd, thanks for liking my sense of humour! Not everyone does and I get myself into trouble all over the boards....sigh.

    Lots of sighs today....sigh.

  • Makratz
    Makratz Member Posts: 1,605
    edited June 2009

    Barb, I LOVE your sense of humor and look forward to it everyday!!  Why all the sighs today?  You OK??

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009
    Just kidney pain....sigh. Cry
  • Makratz
    Makratz Member Posts: 1,605
    edited June 2009

    Mick is still bothering you!  I wish you could blast him away!  Hope you feel better.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009

    Kiss

    They can't blast him, as he is too big and might rip apart my urethra!

  • Makratz
    Makratz Member Posts: 1,605
    edited June 2009

    I know, I just WISH they could so yo would feel better!

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009

    Ah, some mindless sex would help me forget....sigh.

    (Yikes! Another sigh!)

  • Makratz
    Makratz Member Posts: 1,605
    edited June 2009

    I hope you find some!

  • hrf
    hrf Member Posts: 706
    edited June 2009

    Barbe1958  I am so sorry that you are suffering with this kidkney stone. Isn't there some way they can break it up so that it can pass? It's unfair for you to have to go through this.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009

    (I waited 3 months to see a specialist, then they bumped it another month. I finally saw him and he wanted a second ultrasound (2 months later!) then followup. If I was a man, I bet he would have had it out by now. I am on 24/7 pain meds! He did say he would have had me in surgery based on my first ultrasound except my CT scan didn't think it was that big! So take it out anyway! I liken it to looking at a can of Coke. If you look from above, it looks smaller than if you look at it from the side.)

    I still think an afternoon of gently rolling around in the sheets with my DH and a lot of petting going on would be a wonderful therapy! Unfortunately, my DH just "isn't that into me" anymore...sigh. (brain tumors) So I take my physical contact when and where I can. I have him put lotion on my scars and have him rub my back and feet. At least I get some human touch! Cry

  • hrf
    hrf Member Posts: 706
    edited June 2009

    Way to go Barbe1958. You are a strong lady. But if you have to push that doc then do it. No one seems to do anything for us unless we ask and ask and ask.

  • Firni
    Firni Member Posts: 521
    edited June 2009

    Barbe, it sounds like you need to scream, yell, pi$$, moan, complain and cry to get anything done with this stone.  Don't they think it would have been easier to treat 6 months ago?  Damn doctors. No one should have to wait 3 months to see a specialist.  It's insane that you have deal with this neglect on top of everything else.   Maybe you can talk DH into a nice front and back body rub.

  • Mizsissy2
    Mizsissy2 Member Posts: 28
    edited June 2009

    Well gals, thought you might like to know that Mena, the author of this thread, may be leaving the hospital soon.  She has been very sick for the past two weeks with a blood infection, breathing problems, heart issues, but she is putting up a terrific fight.  She will be going home with oxygen and in-home care and she is desperately hoping to be well enough this summer to take a trip to the Bahamas.  She is so proud of you all for keeping this going; she thinks of this thread as her legacy.
  • hrf
    hrf Member Posts: 706
    edited June 2009

    When she is ready, I hope we will see Mena back. In the meantime, she should be proud of her legacy.

  • Firni
    Firni Member Posts: 521
    edited June 2009

    Mena should be proud.  Where else could we go?  I know many people have found solutions here to problems we probably wouldn't even discuss with our best friends.  I'm glad she's going home and my prayers that she gets to take her trip this summer!

  • LynnVA
    LynnVA Member Posts: 44
    edited June 2009

    I will never get any work done today.  I'm loving this thread and mesmerized by Mena and her love of life.  I'm going to have to read the whole thread, this is great!  Sending some love her way......

    Lisa

  • Mizsissy2
    Mizsissy2 Member Posts: 28
    edited June 2009

    Lynn, I did just that a little over two years ago, I started around ten at night and finished at 2 am...I just read Mena's posts and I laughed and I cried, and then I PM'd her...she was on line!!!  So we talked back & forth for a while and that's how I met her.
  • LynnVA
    LynnVA Member Posts: 44
    edited June 2009

    Mizsissy,

    I have a feeling you are very lucky to call her your friend.  I cant wait to read them all! I dont know how I missed this thread since joining this board. My heart aches and smiles for you both!

    Lisa

  • iodine
    iodine Member Posts: 869
    edited June 2009

    Yea!  Mena. Legacy is perfect and one most vital to all.  even we who don't get to have other than single sex. 

    Please let her know we all wish her well SOON.

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