Bottle o Tamoxifen
Comments
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RACHEL!!!!!!!!!!!!!! You rock!!!!!!!!!!!!!!!!!!!!!
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Morning all,
Terri - from my time here (sounds like a prison sentence) I have read a few ladies posting about dizziness which seems to pass over time, I also had a stiff neck and a bit of nausea - these too passed over a couple of weeks, like Trish mentined - hi Trish.
- Mary - gosh how did you do those dots - nothing happens here when I do it. Perhaps when I submit there will be a page of dot points cos I just clicked the button about 6 times. doh. I have been a PA (pretentious title for secretary) for my whole life and I LOVE order and just can't live with myself when I see that I have done a typa ..whoops typo ..hehehe
- oh oh somethings happening here
Kari - first of all "how embarassing" and then OUCH. I bet you were looking all professional and together for jury duty as well. Poor thing, hope you aren't too sore and sorry this morning/nite or ..aarrhh you know what I mean. Hey, and thanx for "getting" my crate and Chandler. he hehe Also, can I just ask how did you fare on your anniversary - saw you were diagnosed in July last year. Were you OK? Mines coming up in October - had a freak out on my birthday in May - just wondering if I'm going to go nutso ... well more nutso. Saw on another post a lady had a SFBC party - thought that sounded pretty cool..but can I do it and not show up as a SFBC cry baby??!!
Rachel - hope the kids shots went ok and he has settled ok. Horrible to watch isn't it - such a bit needle for such a little arm. As for the repair morons...I don't know but I certainly get great job satisfaction by doing my job well and talking to lots of different people and basically "nicing" everyone - why not - makes you feel good.. we all know there are those who don't, SFBC or not.. guess who have a better life????
Seeing plastic surgeron on Friday about my crazy squeeky implant cos I can't run AGAIN - been a rough week. Also one of my niece's best friends died (he was 15 and was her first kiss) from some stupid school punch up and his funeral is on Saturday - felt out of sorts all week. Sometimes things just don't make sense but you wake up and life's still good...full of repair dude morons but still good.
Have a great day/nite everyone.
big squeeky hugs
Helena
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Mary look at me !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Uh... they didn't fix it. After all that, he replaced a motor and it still doesn't dry. Of course, too late to do anything about it tonight.
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Hey Helena, I will race you... let's see whether you can get your boob fixed before I can have a dryer that works.
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DH - Thinks I have finally flipped !! I'm sitting here chuckling, giggling and finally LOL.
Leggy: You know I think your Mom has a twin and she's my mom!!! When she can remember that I've had BC all she asks is "and did they tell you to lose weight!!!" Called to her today only to discover that she had taken her tonight's tablets and her tomorrows tablets already - when I point this out to her she tries to make out they were packaged wrong (I get them done in single twice daily individual dose packages that have time and date to take them printed on them). Then when I explain to her if they are not there she must have taken them - what else could have happened them - she says she can't concentrate because she has a headache - I told her it was because she was overdosed on her tablets!!. (She has done this before and I did check with the pharmacist and he said that taking a couple of doses together is not lethal although it could make her dizzy or sleepy).
Rachel - So glad to hear your machine was fixed - I so enjoyed your description of the whole event, hehehe.
Wahey, Helen, look at you and your posh posts (even if you are copying Mary!!!).
- I've tried pressing that little icon but I guess I just don't have the magic.
Diane - missed you over on motivation - sorry to hear about your test result but hopefully it will turn out to be nothing. Enjoy your break.
I must go to bed now it's getting late, I'm tired and if I stay up I'll start eating. Come to think of it if I go to bed I can't sleep anyway - LOL - but I must not eat!!!!!
Oh met a lady today, she lives the other side of my village but I didn't know her. She told me that when her 5th baby was born she notice her breast got very hard but her dr told her it was just cause she was soon after having a baby. She said she had 4 before that and never noticed any change. After many weeks of asking him to refer her she went to a different GP and got a referral for a specialist. She had a lumpectomy - they didn't get good margins - soooo they did a mastectomy, but told her she had clear nodes and then a few weeks later contacted her and told her to come back for an axillary clearance because there was some node involvement. She was 41, had chemo, rads and now it's 4 years later and she is grand!!!! She's on tamox and the only problem she has is over 40lb weight gain!!!! But the important thing to take from this is that even with a delay in being referred & treatment being messed up - it's four years later and she's great, enjoying her 5 kids AND teaching nursery school.!!
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- Oh it
looks
- like
magic!!!
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Rachel - so sorry your dryer is still not working! When I started working the quote was "the customer is always right". What has happened in the past OMG 30 (I can't believe it was that long ago years). I keep saying "when is it my turn to be right?" Your son is soooo cute and I love the yogi and boo boo bear idea. Jellystone at Halloween should be fun! Maybe the peaches have a little burnt flavor to them since you said she left them on the stove. An infant/todder has better taste buds then us more mature folks, from many years of smoking, drinking, burning it on pizza, etc.
Helen and Rachel - I did go on the trip to take my daughter to college. Met her suite mates and roomie and had late lunch with them and 1 friend's parents. The muscle spasms have happened less each day, so I'm feeling much better.
Kari - ouch, we gotta stop klutzing, I felt like an idiot when I fell too. I was picked for a case last year, missed 5 days of work. It was a medical malpractice case.
Helen - Congrats to DD for winning netball. What is netball? I don't remember if you told us.
Mary - What school level do you work with. I love that you are counting down, cause then I don't have to.
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Thank you, thank you everyone who responded ! So sorry for those who had dizziness as well but happy that I don't have a "new" issue I have to look into if you know what I mean!! You know how it is, every little ache now is going to be the Big C! The dizziness isn't so bad today...and I have some nausea. I also snapped at my husband...for no reason
Why did I do that??? He just looked at me and smiled..I HATE when he does that!...lol Rachel - Glad you finally got things under control and working again! Idiot repair man. WOW, what a saga that was!
Terri
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No taker's on Mom yet. Viv your guy's pretty cute, but Rachel's little guy is the cutest!!!!!!!
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Good evening, all--Tired after a very long and challenging day, I have the energy to pass along only one item (and perhaps some of you already have heard about it): moisture wicking pajamas (and sheets, etc) at cooljamaz.com. This is a new resource for me, and I am definitely interested since I am hotter each day....
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Like Rachel doesn't have anything better to do but........is there an app for bc.org for the Iphone? I leave Saturday for 6 days vacation, how am I going to get my bc.org fix? I'm hooked and will miss you all
hugs
Diane
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You guys crack me up. I didn't know the secrete to my missing mojo had something to do with my dryer. I would be happy if my young adult children would clean out the F%#*ing lint trap. It takes 3.5 seconds to do. HOW HARD IS THAT?
We are heading to Idaho to Oregon play Idao. 8 hrs in the car. Ick. Will feel like 3 hrs after the assistance of a sleeping aid.
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Rach - as long as my boob doesn't end up spinning and your dryer doesn't ends up squeeking -- ready set go!!!!
Ainm - glad your friend is doing well 4 years on and with 5 kids ..yikes!!
Pattib - great you made the trip and you are feeling better.
Netball is a girly version of basketball over here in Oz. It is the biggest female sport in the country..huge.Terri - snapping at your husband for no reason .... mmmm ...how long have you been married???? Isn't that smile enough to make you snap again ..LOL
Leggy - big hellos to your mum... I said a big hello to your mum (twice just in case she missed the first one!!)
Brenda - hope you are having a biiiggg rest.
Diane - hope the biopsy isn't too rough and we'll all be here when you get back - it's an addiction baby. Have a great time. Miss you too.
Renee - that's a long trip, pop that pill.
Had to pick up oldest DD from school today as she is sick and I had to leave work early - perfect way to round out the week I think. Vomiting and diarrhea (sp?) - looks like the PS appointment might be cancelled. Sigh. The worst thing though is that I saw some typos in my last post.... sigh.
big hugs
Helena
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Just cos I can ... and just cos I'm the only one here ... here is a photo of my DD's netball team. She is the one in the cap.
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Helena, great picture....too cute. I will check out you tube to see if there are any videos of netball! Looks like fun though and great exercise.
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Survived the biopsy....i am not going to worry about it. My pap was negative and gyno claims that 99% of the time this is nothing to worry about. yeah, heard that before but I am over it for now and am preparing for my vacation with the fam.
hugs
Diane
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Hey- I can't use ANY of the font features here. Maybe because I am on a Mac? So all I can do is type...
YAY Patti, I am glad you got to go on the trip with your daughter to school and no harm done
Yeah, its amazing how much better my fingers get each day, I hope your back heals big time fast!Ain- I feel like a right whiner complaining about my dryer, so if it amused you then that makes me feel better! During this whole thing I have been measuring if my BC changes my feelings about these "normal" life problems. There IS a little joy in having normal life stuff, even the bad. I always measured my upset with the "thank goodness it isn't my health" and now its more like "well at least it's not BC, and I still have my health". When I compare my dryer to Helena's squeaky boob, I know full well I'd prefer the dryer to be broken.
Leggy doll, did you try Craigslist? My son wants your number (he's a big flirt)
Brenda- THANK YOu for the coolijamaz site! That's got to be better than sleeping on chamois!
Uh... guys... the dryer DOESN'T work. After all that, he did the wrong repair. I told them from the start what to do and they didn't do it. And I don't recall how I got the "executive" servicer number, but between that and complaining about these bad repair people they found another repair service that has good reviews online and last night I called- even though it was after 630pm, I got someone at the 800 number for the MFR, (first agent was an ahole, so I called back and got a better agent) and she not only was able to reach the new repair people, those repair people called me at like 930pm last night to organize the repair for Saturday. (It was like talking to Divya, for anyone who watched Royal Pains). I still say, it's like the whole BC thing. Just have to stick with it, keep interviewing docs, deal with the treatments (in my case, hanging up a load of wet laundry to dry in my bathroom) and the side effects to get through to the other side. Second opinions, replacing parts, the whole thing.
Diane- was thinking about you, biopsy go OK? (Ah I read second post now, very cool, I agree completely). ... On the iPhone thing... I wish I could help. I have really, really, really bad luck with all my phones, and my itunes account was hacked this year, I was on the tv news with others who had been hacked (during RADS), Apple wont do anything to help us so I haven't downloaded an app since because it all goes through iTunes. But... usually the web sites have some automatic thingie when you use small devices for access. I think its like putting "mobile" in front of the web site name... I did find this site http://www.w3.org/Mobile/ Try using your iPhone to access the site before you go, see what happens? But if you can't access BC.org, maybe even better! Get away! Leave all this crap behind and just enjoy yourself, take pics. We'll be here when you get back
Renee- what's Idao? The lottery?
Helena I got to sit down and figure out how many DDs you got, one's sick, one's having tonsils out, one's winning netball, so... 3? OMG that pic is so cute and your DD is SO ADORABLE!!!!!
OK kid is up... gotta cut post short!!!!
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Study from the Army of Women...
Too much stress and not enough sleep are two things that many women know all too well. But, could they be linked to breast cancer? That is what a group of researchers at Stanford University want to find out. They are studying the effect that stress and sleep-related hormones may have on the immune system and cancer progression.
If you are a woman in Northern California who has been diagnosed with metastatic or recurrent breast cancer and you might be interested in participating in a sleep study…please read on.
Even if this study isn’t right for you, please pass it on!
What’s the study about?
The purpose of this study is to learn about the relationships between psychological factors such as stress, quality of sleep, hormones, immunity, and cancer progression. This study will enroll 125 women.
What’s involved?
If you join the Stress and Breast Cancer study, you will be asked to answer questions about your medical history and health-related behaviors. You will also participate in a 2-week at-home sleep data collection, which includes keeping a sleep log, wearing a watch-like device that will assess your activity and sleep, and two nights of more detailed sleep recording. Finally, you will be asked to stay at Stanford Hospital for 28 hours where your sleep will be assessed, and you will be asked to provide blood samples through an IV, saliva samples, and complete a psychological assessment including interviews and questionnaires.
Who is conducting the study?
David Spiegel, M.D., Professor and Associate Chair of Psychiatry & Behavioral Sciences at Stanford University School of Medicine
Where?
Stanford University, Stanford, CA
Who can participate?
You can join the Stress and Breast Cancer study if you match ALL of these MAIN categories:
•You are a woman between 45 and 75
•You have been diagnosed with metastatic or recurrent breast cancer at somepoint during your life
•You live in Northern California (or are willing to travel to Stanford University and live no more than a one-hour time zone away from California)
•You are able to travel to Stanford University and stay overnight in the hospital
•You have not had another cancer in the past 10 years other than breast cancer, skin cancer, or in situ cancer of the cervix
The research staff will ask you additional questions to be sure that this study is the right fit for you. They will also provide you with a detailed description of any and all study procedures.
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Diane, forget about breast cancer while on vacation! I wish I could find a way to get unaddicted to these boards. I'm really trying to go lightly.
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HELENA!!!!!!!!!!!!!! aka Squeaky Boob!! Your DD is such a cutie!!!!!!!!! Takes after her gorgeous mom!! I wish I could see her play netball! Sooooo sorry about your niece's friend, such a tragedy...15...OMG! And wishing your older DD a speedy recovery, sounds like she has what your younger DD had, just took its time making its ugly way to older DD. Hugs~ I was a bit depressed around my cancerversary in July. Took me back to that weird place...talked about it, cried about it...my DH wanted to throw me a SFBC party after my clinical trial was over last month, but I opted out...I didn't want to jinx anything!! He understood. Then I got weirded out last week remembering my first chemo last year and DH started crying and said "don't ever scare me like that again please"...how sweet, I said I'd do my best to never get SFBC AGAIN!!!!!!!!!!!!
Diane, when I was in Maui and had no internet access, I felt so odd not being able to check in here! It truly is a f***ing addiction!! heehee Have fun girl!!
Rachel, good luck with the dryer saga...takes our minds off SFBC! hmmmm that sleep study at Stanford, may have to check that out.
Ok, now I can't remember what everyone else said on the previous page...shoot. Shout outs to all!
Spring is in one long ass surgery today! Wishing her well!!
Hugs ladies and lots and lots of smiles!!
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Rachel...Oops. Idaho......Dh said, once we arrived, "You the pimp, I-d-ho." (bad Pacific North West joke. It's a good thing he didn't call me the ho or I would have to injure him with my menopausal, hot flashing, night sweating foot. GO DUCKS!!
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Rachel - Arrrgh... dryer still not working! At least your fingers are working now. Yeah, you're right - I'll take the sessions with the shrink and really vent.
Helena - At least your results weren't positive. I'd definitely treat the "inconclusive" as a negative.
Mary - Where'd you get the tatoo? What is it?
Diane - Have a fantastic vacation and try not to think about anything remotely cancer related!
Had a great night's sleep last night - finally! And guess what... I still feel tired today. Must be the heat. (whine, whine, whine)
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Helena and Rachel, Mom said she didn't think I was very funny, but said to say HELLO! Rachel the guy selling his parents was funny, and at least he was offered a flat screen TV....I could use one of those.
Today at work, I met a women who has had BC and mets to the other breast, over the last 12 yrs. She was their with her husband, who lost his first wife to cancer, and they met four months after his first wife passed away, and have been married 6 yrs. Two and half years, ago she had her second BC. She looked great, and she showed me her hair, and I showed her mine. Can't wait for my hair to get to looking normal again. They have a large property, and will be making it into a retreat, for women with BC. When, we talked I couldn't help it, but tears kept rolling down my face, they were just so nice and happy together. She answered a lot of questions and we compared stories, but most important was that she was doing great and got through it.
Hope for all of us,
Leggy
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I've been on Tamox for 3 months and I've noticed that my flashes get more intense at night. Does anyone else have that too? And sometimes when I flash I get so rundown. My heart races and it feels like all my strength just drains out of me. Or maybe I'm just going bonkers...lol.
Laurie0 -
Rose - it seems the more I try to fight it the more I post!! What the ..
Rachel - you don't need all the bells and whistles .. just the photos, links, bear suits, cut kid, jokes, love and support. 2 DDs and think you might win the repair race
Kari - mmm may have to really think long and hard about the SFBC party - want it to be joyful not depressing. Been lurking on your motivation thread and saw Spring had 11 hours of surgery ... wowsa. Sending her happy and healing vibes. hugs. Hope you aren't too sore still.
Renee - nice to hear DH's saying the right thing ...love your sense of humour...
Munchy - yeah my Onc and I tend to agree with you. Glad to hear you slept well - maybe your body went into a little bit of shock!!
Oh Leggy you make me laugh, even if your mum doesn't agree LOL. I would love to have her come and stay but being so far away she would have to break the visitors 3 day fish rule (after 3 days they start to go off). Plus I'm a constant "does my bum look big in this" asker. Not a good idea around your mum I'm assuming. And you are just a big old softie - beautiful to hear about that couple - what a lovely thing to do.
Hi Laurie - if you are going bonkers you will be in good company here. .. I am one of the lucky few who don't get hot flashes from tamoxifen (yet!!) but a lot of the gorgeous women here know exactly what you are talking about. I think they are all asleep though, it is usually just me tapping away here at this time. Sorry that the flashes are so bad. (((hugs)))
Well, time to choof off, have some dinner, pop the tam and pop into bed. Big night of popping.
big hugs
Helena
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Lets see you ladies posted alot. I missed 2 days and tried to catch up on the posts.
- First I am an asociate teacher(means a I have a 4 yr degree, but not in education) I work with autistic children. Many are non verbal, so we teach them sign language, for basic wants and needs. If they do not have the mototr skills for signing we use pec cards, which are pictures of want they want.
- Rachal I hope by today, Friday that your machine is fixed.
- It was funny I take the 1st and 2nd graders to music class and the music teacher is the one w/ BC and we both had a hotflash at the same time, but we decided that her class room was just hot. LOL!!!!!!!!!
- Rachel on top where you add the links and put the picutres in the is a place for the bullet points. I actually discovered it by accident.
- Helena what a cute picture.
- Have a great day. We have a 4 day weekend. Going to MIL ofr Sunday BBQ!!!!! I have to make deviled eggs. DH works all w/e so I can clean house and relax. The first few weeks of a new school year are tiring!
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grumble grumble grouse grouse bitch bitch
i aint been posting much because my gripes are all small normal crap
here I will try the point thingies, but nothing else on those font thingies works for me
so...the new dryer repairperson is scheduled to come between 11am-5pm saturday. Maybe they will contact me that morning to narrow down the time frame. Maybe I can call them to narrow down the time frame, but mostly their phone is busy. Doesn't matter, I'm staying in saturday. Gets too crazy around here on Saturdays, especially when the weather is nice. No nanny on Saturday, so maybe me and the kid will go out in the morning, then hang around for the repairperson all day.
- I went to all that trouble schlepping the kid to the pediatrician on Weds because the repairman was coming that day, and I wanted to have Thursday all to ourselves to enjoy the weather plus some great food I was cooking up.
So yesterday (Thursday) me and the kid took a hike of about 3 miles, adding 5 flights of stairs up and 5 flights of stairs down
walking highline park end to end and my 18 month old son had a great time running around and climbing. Here's more about highline park.
- The plan was to come home pooped, have lunch, both nap, then have this great dinner I made from Wednesday, give him a bath and wash all his laundry so that on Friday, today, when the nanny came in and the housekeeper came in, I could take the wet laundry to the communal laundry room to dry, and I could go for nice long walk myself.
to eating them cut in little tiny slices, using his teeth. But now he wasn't eating them, shoving the bowl away. Nothing I could do to make him eat the apple, which he needs to eat because he needs to poop. He had already refused peaches the day before, and I was becoming increasingly worried that he now wont eat fruits without sugar, as well as cereal. The nannies have been mixing in prune paste with his cereal and giving him bananas for fruit, even though I told them not to add sugar in any way to his food. So I made all the stupid mistakes I swore I would never do, even trying to force him to eat the apples
. Stupid stupid move on my part. It was a disaster. Well, by our standards. My kid is the easiest in the world, we never have this kind of trouble and now I was in it big time. I was so frustrated I ended up putting him in bed with no dinner, and no bath, which was supposed to be the really nice end to his day, and give me the laundry to wash for today going to the dryer at the communal laundry.- Plus I was totally upset. I acted out in all the ways I did pre-BC, not being able to sleep, eating to make myself feel sleepy, just being completely out of sorts. At 345am I finally went to bed, determined to dump this on the nanny in the morning, because I believe she's the one who sabotaged my son's perfect eating habits.
Surprise, this morning the nanny didn't come in. She's sick, she did the right thing. So now I have all the kid's clothes and bedding wet from the washer, and I can't take it to the communal laundry because I can't leave the kid alone in the house, and i am too tired from 4 hours of sleep to put him on my back to take him to the laundry. But the 4 hours of sleep did do some good, and I came up with a new plan.
- I asked the housekeeper (she only does bedding laundry, sheets and towels) to take the clean wet laundry with her to the dryer, she was nice enough to take it. I took a fallback position on the food, since he still will eat the apples in the feeder, I gave him a whole apple with in the feeder. For cereal, I made the one he likes best, (buckwheat) and added butter, and put the prune paste in the center, so there's cereal with sweet and there's cereal without sweet. Then I poked holes in the cereal and put his milk in there. He gobbled up everything Then I gave him a nice bath, put the last of his clothes and the bath towels in the washer that still works.
The xanax I ended up taking last night didn't do poop. I am beat like an old rug today, but at least the kid is in a good place, and we'll have clean laundry. I know I am also stressing because I start Tamox soon, as my forever-period is ending. My idea is to take the Tamox on an "up" day after my period, but now I am so twisted I don't know an up day from any other.
- But I can testify to having just about every symptom (SE) except hot flashes and joint pain and dizziness that I would have on Tamoxifen already! (in fairly mild form)
Sorry such a boring weird post, but that's what I have been up to.0 -
Oh and someone please fill me in on Springtime's surgery? I am not on the Motivation thread, and she wasn't in the mood to talk about it here, so I don't know why she was 11 hours in surgery and i sure hope she's doing great now!
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Rachel, this was posted by Deanna and its from a friend of Spring's (Beverly):
"Hi everyone -- Beverly's computer crashed last night and Richard asked me to pass on this information about Beverly. She is finally out of surgery and the surgeons said it went perfectly! They started at 8am today and finished around 7pm central, so 11 hours of surgery! WOW! She will be in the hospital at least 3 more days. At this point, Richard still hasn't seen her tonight-- but he said the agony of waiting is now over and he feels relief! They should be wheeling her into her room where Richard is waiting in an hour or so -- and they'll be checking on her every 15 minutes or so throughout the night. Richard says he expects to get a good nights sleep tonight, now that it's all over. He will be staying in the room with her -- he said the nurses will probably say -- 'Can you believe this guy sleeping through all this?!' Sounds just like Richard, huh?!
So, all the good thoughts and prayers have worked once again! So thankful she did so well!"0
