Bottle o Tamoxifen
Comments
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Renee, we say the same thing here about Idaho!! Have fun and good luck!! GO DUCKS!
Munchy, glad you had a good night's sleep but still tired????? shoot
Laurie, sorry to hear the hotflashes are causing the other problems as well. I always wonder why some get them more intense at night. I get them, but not too bad and not too often, luckily. Ask your onc about that, mine explained about getting hot then cold...its about the blood vessels expanding so quickly and then when the flash passes, they constrict quickly...maybe that's causting your heart to race? hmmm
Hey, popping, squeaky Helena!!!!!!!!!!!! Have fun with DD and her netball game!!!!!
Leggy, love the stories about your MOM!! and your story about the couple, awwwwwwwwwww. so tender and can certainly understand the tears my friend. Where in CA do you live??
Mary, what an important job, and I bet very rewarding! Enjoy your 4 days off!!
Rachel, love your posts! and highline park looks really cool! Would love to get to NYC someday, DH has been there once, and its on our list. I've never seen those feeder thingies, really intriguing. I always think of Sex and the City when you post...heehee...but yours would be Kid and the City!!
Back to work...
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kari- THANK YOU for the update about Spring/Beverly. What was the surgery itself? Well in any case, wonderful that it went well.
What's the motivation thread about? I thought it was motivating us to work out and stuff?
Kid and the City- that's brilliant
Mary- when we get closer to you, maybe you and your kids can help us learn ASL
You multitalented woman!!!Helena- OK, 2 DDs, I will get this sorted once I find a brain cell that isn't too pooped to pop. I hope you get to PS Friday and beat me in the race. I also owe you reply to email... many hugs.
Aw jeez, me and housekeeper just got house clean, and I was going to sneak in a nap, but guess who's up?
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Rachel,
Spring's surgery was 11 hours but it was really more like 22 hours as 2 docs are working side by side doing microsurgery to connect all the new tissue (from butt and tummy) to the new foob area. My girlfriend is 6 weeks out of the same surgery (Johns Hopkins). She had the SGAP (all tissue came from her butt). The new foobs didn't bother my friend it was the butt and just being under anesthesia for 11 hours that was tough. She is so happy with her results. I have seen them and they do look marvy. With radiation, the TRAM's and GAPS are usually the only option for reconstruction.
Diane
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Diane, thank you, that's what I thought it was about. Many thanks and many good wishes for Spring. Another question too... so the surgery is tough, how about the recuperation? I am guessing with surgery on boobs and derriere and maybe other places, it's hard to get comfy for a while. Or do they have drugs strong enough to not notice? Where is comfortable to sleep?
I asked my BS before he did the lump and RADs if I'd have a problem if I needed more surgery. He said it'd be more difficult but not a problem. I said oh? More difficult for YOU or more difficult for ME. He said more difficult for him. I am still pretty po'ed about that. Its more difficult for the patient, and like Munchy said, can make arms weaker. For Munchy, a rock climber, for my friend who is a surgeon, this is a big deal. For me, I dunno. My arms pretty weak to start with, but when I need to lift my kid and stuff, I make it happen.
Many thanks and more love for Spring!
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better living through chemistry.....it is a hard recovery the first 2 weeks or so. My friend left the hospital after a 4 night stay with 6 drains. She had her last drain removed at the 6 week mark. UGH. That was a pain for her. Luckily no major complications either. It is a scary surgery in my opinion.....she is doing great now and like I said, the new foobs look and feel great.
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and a perky butt and flat tummy too, right? I hope so, she earned it!
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LOL perfect butt....they didn't take any fat from her stomach...she was bummed. no pun intended
I need to get off the computer and PACK for my trip!
hugs
Diane
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Thanks for the GREAT explanation Diane, you explained better than I would have. You have the up close and personal experience with your friend. How scary to be under anesthesia that long. My DH wants me to get recons...I'm really scared
But other women do it and always sound pleased with the results. Heard the same song and dance...very very difficult for me now.The Motivation thread is to motivate each other to do some sort of exercise...but more importantly, to "move" in general and to tell our stories, same as this thread!! A few of us on this thread pop over (thanks Helena [pop over]) to that one and lurk or post...I DO SEE YOU THAT LURK! hahaha I just love the women on both threads. I always post some lame quote...errr I mean some really motivating quote or something to get us thinking in the morning....that kind of thing. Come on over sometime!
Rachel, I think you should write a book "Kid and the City"...you are more talented than you probably even realize!
Have fun Diane!!
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Kari, I can understand your apprehension on recon....I really wanted my good breast removed and no recon but that wouldn't fly with my man....well it would but I don't want to do that to him now. He is awesome and now that I have seen 4 sets live (3 implants and my friends) I feel a little better about the whole thing.
Will you miss you all but will tune in next week to catch up!
HUGS
Diane
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Hey Girls,
Helena, your DD is adorable, and so is the whole team, cute cute cute...
Kari, I live in Calistoga, and love it here. Thanks for letting us know about Spring.
Laurie, I have more hot flashes at night, as well. At least, I have fans and air conditioning when I'm home. I work outside, and yesterday was brutal at !01 degrees it wasn't fun. My face was beet red, all day.
Have a nice Labor Day everyone, (not to exclude you, Helena)!!!!
Leggy
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Laurie - I usually don't have any hot flashes during the day, mine seem to start early evening on through the night. I don't feel anything but the wave of heat, don't sweat or turn red just fill up with heat.
Have a great weekend all - I'm heading to the beach tomorrow!
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Rachel, I only know enough sins to teach autistic special needs children to request wants and needs. However w/ a deaf girl in our class this year, we will probably learn more from the hearing specialist and the speech therapist. It is a fun job, however there are days I wonder why???? Thursday one of our new students was throwing chairs. Due to privacy issues I can not post pictures, but I would love to. Even the ones with a temper are adorable.
I am not going anywhere on Sat either. TRAFFIC will be miserable here in the Poconos!!!!!!!!!!!!
I ran all my errands today and even bought a bottle of rum, yes I plan to drink tonight!!!! In fact I am on my second rum and coke now!!!! I have to go buy some folic acid!LOL!!
HAVE A HAPPY AND SAFE LABOR DAY WEEKEND!!!!!!!!!!!!!!!!!!!!!!!!!!!
OOPS!!!! I am not teaching the kids how to sin. I meant to say I only know enough signs. Well at least we can get a good laugh out of it.
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oh yeah, folic acid and gambling in the poconos...
well, I got my day back in hand and that felt great. now the kid is clean and happy, the house is clean, I finally got clean and got on the trainer, and I forgot to mention, yesterday I fell down while wearing my son on my back... kari, see, you got company. it was kari, right?
I was about to cross the street to climb the stairs to the high line, tripped off the curb and went down like a sack of water balloons. Was really scared for a moment there, with the kid on my back and all. But didn't even break the skin on my hands or knees. Seemed weird that no one seemed to notice me sprawled out on the street.
I forgot about it until I was on the trainer and holding 5 lb weights, usually I bring them over my head to stretch out the underarm flab, but it wasn't going there. I guess that's from the fall because I can't think of anything else I did to that arm.
So Mary... you want to learn some more sins?
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I think the rum and coke will help with the sins ...
Rachel ... boy what a time. My 1st dd was a great sleeper but geesh what a fussy eater. Loved apples one day so made up a whole batch and the next day tongue pushing it out. It really drove me to sins. No pressure on the emails - just as long as ya still love me.
Well dd lost her netball final - 8 to 5. The girls weren't too bummed but they are really upset they won't see each other at training and on Saturdays - they all come from about 4 different schools so they won't get together again till next season. I thought that was gorgeous. Must say I am going to miss the mums as well (from our team anyway).
Have a great labor day everyone - we have Father's Day tomorrow so no rest for me
big hugs
Helena
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Here is the story the local news did on the players joining me on the track at the Relay for Life. The guy on the right is Legarrette Blount. He's the guy that punched the Idaho player last night. I know he screwed up but I feel so bad for him.
http://www.kval.com/sports/local/56743892.html?video=YHI&t=a
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OMG Renee - that made me cry - how beautiful, how wonderful, what a lovely thing to do and what fantastic support. You looked amazing - and nice to see you "in person". Thank you for sharing it with us.
big hugs
Helena
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Renee, you are fantastic! So well spoken, and beautiful! Wish I had your hair, mine came back S&P yuck. Relay for Life, is here in my town, next week, and I have been putting off my decision to attend, until now. Thanks for sharing!
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This thread is hard to keep up with. Everyone's life is so, so busy . . . me I go to work, walk at lunch, go to gym after work, then home, take tamoxifen, finally fall asleep after tossing and turning. Wake up about 5 hours per week and repeat. No drama, just routine
Leggy, my dh and I lived in Napa when we were first married. He worked in St, Helena at the time. I loved to go to the mud baths in Calistoga. We are thinking of holding my fil's 90th birthday bash there.
Kari, above you said your husband wants you to have reconstruction. Make sure what ever decision you make is for yourself, not anyone else.0 -
Mary, I bet your job can be challenging and rewarding. It takes someone very special to do what you do. So you want to learn more sins huh? heehee 'sins' vs 'signs'...that typo got you into a lot of trouble last night with the run and cokes! LOL
Leggy, Calistoga is so beautiful!! and that heat was unbearable, itw as 104-106 here, but this morning its freezing out (to me its cold 57 deg) only heating up to 85 here today.
Rachel, has the repair person got there yet?? Glad you are ok after that spill you took. How SCARY with the kid on your back. OMG!!!!!!!!!!!! First your hand getting smashed....now your whole body. geez...I'm still bruised up and scabs are everywhere.
Lisa-e, Grew up going to Santa Cruz all the time. Just lived over the hill in Sunnyvale and then San Jose. My younger DD now goes there all the time as she lives in Campbell. And you're so right, have to do what's right for me. My older DD said about 5 minutes after my last clinical study treatment 'so when can you see about reconstruction?'...I was thinking ' maybe never, who knows....' I don't know if they truly get it, it is a scary thing...and I'm not a huge fan of surgery. Had both my DDs via C-Sections and then my mx. Yuk
Renee, LOVED that video and so very nice to meet you in person! DH watched it with me and said that was very cool. We went to our local Relay in May and both cried like babies. Its so moving.
Helena, sorry the girls lost the netball final. Now they won't see each other for awhile, bummer. Enjoy your Father's Day weekend. Are you planning anything special or just 'hanging out'?
We were going to head to the mountains today...but now are changing our minds, the weather won't be as hot as we'd like. So we'll see...
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Ok... Ive been on tamoxefin since July 10th... hot flashes are moderate to sever.. but I have another issue which I dont know is related or not.. I am breaking out like I did in hight school.! not the white heads or black heards, the deep raised red ones.. Why?.. it is just by chance?.. I am post menopause.. any suggestions... or ideas?...
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Kari, and Lisa you both in lovely area's as well! Kari I quess the fire near Auburn was far enough away not to effect you, but scary with all the fires around CA. My brother lives near Placerville, and has a beautiful place with 6 ac., lucky boy, but he usually visits us, for a short visit. He doesn't much like Mom, telling him he's getting fat!!!! Well who does. He's afraid I'll leave her at his house, if we visit him...
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Well, I did not get to "sin" lastnight. I had only 2 rum and cokes and then I was running to the bathroom. I went to bed early. Feel better today. As for the typos, I could never type, sober or not!!!!! Also just got new glasses and the bifocal is in a slightly different place, so hard to get use to. BTW, I have had bad eyes my entire life and started wearing bifocals in high school, so I can not blame tamox for my bad eyes.
I got up at 5:30 am, then went back to bed until the munchkins got up. Fixed breakfast and then went back to bed until noon. Made lunch, then decided I had better get around. Now instead of folding laundry I am on line. Dinner will be london broil on the grill baked potatoes and some veggie.
Have a great day!!!!
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They completely screwed me on the dryer again. I waited all day, they called at 2pm and said they'd be here in an hour, at 3pm they said they were nearby, by 330pm they are still finding their way. New scam: he tries to get me to sign a receipt before he does any work. I don't sign. Then he pushes two buttons and says its the same thing I said from the first day, the vent needs to be cleaned out. Then he says its "maintenance" and not covered under warranty- unless LG gives them special dispensation to do the work. He wouldn't say how much it would cost but he wouldn't let me call LG either and he left. Later their dispatcher when I called says it's $200 to clean out the vent. LG doesn't have a supervisor on duty and the guy on the phone backs up the repair people, he says its a maintenance issue. I said what if he replaced the vent, as I asked from the beginning, LG rep says if the repair person doesn't think its needed, then that's that.
I am screwed.
I will call on Tuesday (Monday being a holiday) and see if a supervisor at LG will give a papal decree that they will replace the vent or clean it out and if they don't I will fix it myself. That is, after paying ridiculous sums of money for extended warranties on my new washer dryer. And having no dryer for a month.
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Rachel--Do you sometimes just shake your head in disbelief and wonder about the absurdity in the world? Geez, I can't believe that you have had to wait this long and still have not encountered a competent person who can just get the job done. And to think that Monday is Labor Day?
I find that sometimes I take extra delight in overcoming a situation like yours--generally speaking when I finally achieve the outcome I know is the right outcome--because I get so tired of dealing with so many things that feel out of my control! Yeah, I realize that I can eat right (I do), exercise (I do), rest when I need it (I do most of the time), play (when I have the energy), and do all those other wonderful things that will help me to stay as well as possible and reduce my risk for yet another cancer experience; however, I also know that I can do all good things and still get cancer again. The desire for control can be just a sneaky little bugger to me, and I have to practice over and over how to let go of that desire in order to have more peace in my life--and to use my energy for those things over which I do have control.
Anyway, I hope your time of delight over finally getting your dryer fixed will come your way soon!
And to all the others on this thread, I am keeping you in my thoughts and checking in to see how you all are doing as well. All I want to say about Tamox today is that my internal thermostat is always high now and I will increase my dose from 10mg to 20mg tomorrow!
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I have lots of company. I had read up on this machine, and here's a couple reviewers who had exactly my experience.
the mistake I made is that some reviewers were able to get service under warranty, so I thought if my warranty was OK I'd be OK. I am just livid. But I am back to what someone already suggested, I will get the service manual and figure out how to do the maintenance myself.
This is still just like breast cancer. We have to find our own solutions.
I am just livid. Of course it has to be on Labor Day weekend so I can't do anything until Tuesday. And even though this is NOT my health, I am having a hard time dealing with this.
Hello, Xanax?
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I have to apologize for that last post- even though you'd all let me get away with it. Having a broken dryer is NOTHING like having breast cancer. Although I didn't say that exactly, I got too close to saying that.
The staff who should be helping us with breast cancer may treat us as badly as if it was a dryer repair, and what I learned about dealing with repair assholes certainly helps me deal with medical assholes, but still, it's a dryer.
My excuse is that I was cooped up waiting for this repair asshole all day, and he was like 7 ft tall, he spoke with an Urdu accent, he was clearly setting me up from the beginning, and the people on the phone were just as bad, and my kid was in the next room having woken from a nap and hungry with a full diaper, and this guy wouldn't even let me speak. But I changed and fed my kid, and I was grateful to be able to do that. I am grateful to have this wonderful healthy boy, I am grateful for my health, and I am grateful for this gorgeous day. I took him to the community terrace, and at first I was put off because there were these little private parties everywhere, and people smoking, and seemed like there wasn't any room for me and the little kid.
But the people were REALLY nice. Young attractive people from all nationalities, they were just gaga over my kid, letting him go everywhere in their parties, playing with him giving him watermelon and he was stealing their beers (in sealed cans). I am so lucky to be alive, so lucky to have this kid, people are actually really quite wonderful.
I'll download the service manual or order it, I'll try to get LG to pay for a maintenance call, but meantime I will figure out how to do it myself, and again, I am grateful that my treatments for breast cancer have left me strong enough to move the damn thing if I have to, and I have full use of my arms and muscles.
It's not at all like breast cancer.
And no, I didn't take the Xanax.
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Brenda, you are correct. When I do fix this thing, and I will, I will really feel great, powerful, in control and all that good stuff.
kari, I was worried like Lisa-e that you might be feeling pressure to have the surgery. I remember reading about youro dh, and what a great guy he is and what a great relationship you have. I was thinking maybe he and DD just wanted you to have the surgery for your own good feelings, that they wanted to be supportive of you so you wouldn't be afraid, if you really wanted the surgery but were just overwhelmed by all the surgeries and recuperation and stuff. It would be a really tough situation if they wanted you to have a surgery- any kind of surgery- that you didn't want. Its easy for me to say well, only do it if YOU want to do it, and yes, that is what I want to say. Not having the surgery and having pressure to have it sucks, but having the surgery if you don't want it for yourself sucks more, and not just for you, for them too. I am just hoping that it's something other than those two alternatives. Did you see breastfree.org? I am reading a lot about women who are plenty happy without boobs, and I am totally with you in not liking surgery at all!
Leggy and Lisa and all the SoCal folks- I am so worried about you and the fires and the air quality and oh boy, oh boy wow. The news here says the fires are EVERYWHERE.
Mary- did you get the runs from drinking??? Yeah, i actually see best with bi-focal contacts. I hope Tamox wont make my eyes any drier, they are already really dry.
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Rachel, you brought tears to my eyes...not about the dryer but about what you said about DH and DD and you are exactly right!! They are so supportive of whatever I do....and they don't want me to be frightened, they think that the recon will make me feel like my old self...you know....OK DH has some sexy jazz/blues song on and he's dancing saying 'get off the computer soon baby'....haha ! I'm one lucky girl. And Rachel, you are one lucky girl to have that beautiful boy and a beautiful heart and community terrace to enjoy and embrace it all and FU#K the dryer! Whatever baby!!!!!!!!!!!!!!!!!!!
Leggy, we just got home from Placerville, DH's sister and her DH have a 10 ac spread that's absolutely beautiful in the rolling hills with a view to die for and 5 acres of grapes, they've been making wine for years 'Mais Fica' vineyard...portugese means More For Me!! Funny about your mom, she can come hang out with me! I love moms!!! I have 2 spare rooms we can just throw her in one. HA ha, you know i'm just kidding with ya. Yeah those fires SUCK! poor people who have lost their homes. Auburn is about 20 miles from us.
Ok, gotta go dance with DH!!!
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Hi all,
One of my co-workers, Amanda, is a volunteer fireman and the daughter of a friend and former co-worker. She got the call to go to LA fires, but she was too scared, THANK GOD! She's just 21yrs. old, and I love her like she's my daughter. She also had the excuse, of work and no one to cover for her, but we were all relieved. You know I just got a hinky feeling, and so did she. You gotta follow your instincts.
Leggy
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Well ladies, I did the repair myself. I shut off the breakers, unplugged it, moved the machine, opened it up, removed screws, fished around for the clog, yanked it out, took pictures and notes the whole time, and i just put a load of laundry in there. It takes four hours with this kind of machine (condenser dryer) so I'll know then. I'll post the pics for the write up soon, in case anyone wants to see, and for myself and any other users in the same spot. Yes it is empowering. I am strong enough to do this. Not so easy when it was in my period.
My RAD ONCs better beware, I could do their job better than they do also.
And I did it while serving my baby breakfast and leaving the poor kid to entertain himself.
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