Bottle o Tamoxifen
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tinkertude: I am much more emotional and cry easily since I started Tamox. I think it is because it messes with our hormones.
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We had to put our 13 yr old kitty down a few months back and I still think of her every day. We went to shelters on the weekends but all I wanted to do was look. No other cat seemed right. After a number of weeks, my boyfriend found a little red tabby kitten he really liked and although he was adorable, I was still hesitant. We ended up taking the kitten home and he has turned out to be a very special little guy. Even though I miss my old kitty, baby Riley brings us lots of joy and I'm glad by boyfriend talked me into him. When he was really little, I felt bad leaving for work in the morning because I didn't want him to have to be alone all day. Now that he's four months old and can care less if I'm here or not, that sounds pretty stupid.
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LINDY... Sounds like a cat!!! lol... they are so independent sorry about your kitty too...
BCINCOLORADO.I think your right I have turned into a big ball of sap!!!
cant tell if that face is crying or having a hot flash!!!0 -
Emotions tend to come out of no where these days. This whole journey has been about emotions.
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WOW this train is moving fast.
CATS ~ don't like them for me ~ but do think they are cool looking. I am a dog lover.
Will have to look into glycine, I imagining it is a natural supplement?
I am also on FBook so anyone wants to connect PM me ~
Hope everyone has a great day, looks like we will actually see some SUNSHINE today although it is cold.......
Alicia
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Jo - glad the milk helped! I mentioned milk to someone on another thread but forgot to say it on this one..Glad you thought of it and tried it!!! coats the tummy! Go organizc if you can,hmm? don't need the extra hormones they pump into cows these days.
Tinkertude- I am actually the opposite....not that I am not emotional...but I am not pmsy emotional, if you know what I mean?...I actually feel more emotinally stable than I have in a year....maybe it is just in comparison to how I felt from June to December when I was smiling and saying "no I am fine...beast case scenario etc." to anyone who asked while being terrified on the inside...canything feels better than that, right? ....I also cried so much during the 3weeks of radiation (man was I emotinally wiped out!) that I may have no tears left for at least a fwe more months...lol
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SANDEE It does make sense. I still have another surgery in the spring so maybe when all is actually "done" it will level out for me too. I am so glad though that you are feeling stronger and emotionally stable now, there is a light at the end of this tunnel then thanks!
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Hooray Jo. This morning I was thinking about you as I was reaching for the Tamox. The gray matter isn't what it use to be but I finally remembered that dairy products coat the stomach and can help with nausea. I don't know if dairy slows the absorption rate or if it just sooths the stomach.
So glad you have found a solution. If you get tired of milk, you might try yogurt.
Hope everyone stays warm and has a great day.
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Exodus - Should have thought about the dairy 4 days ago. Chalk it up to old age. I do like yogurt so that is an option.
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Alicia
Just pm'd you about Facebook. Anyone else on FB, please send me a pm, so we can hook up.
I'm on FB most of these days.... I play Mafia Wars....
Alicia, I'm with you. This train is moving way TOO fast!
Harley
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Wow. Miss a couple days and it's impossible to catch up with you ladies!
I think you found a solution to the nausea, but in case you need something down the road - when I was going through chemo I drank ginger/lemon tea (Celestial Seasons, I think) and it helped. Actually warm water helped too. I eat breakfast and then take my Tamox and I haven't had too much trouble with my stomach. I still have horrible hot flashes, though.
I'm wondering if anyone here has had bladder or UT infections since starting Tamox. I woke up on Tuesday with a horrible infection, for which I had to wait 24 hours to get antibiotics until the culture came back. I'm feeling better, but it's been years since I've had one of these and I'm wondering if it has anything to do with T.
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All the hot flash stories are helpful. When I got the BC dx last year I was 52 and still having regular periods and no hot flashes ever. Then chemo stopped my periods after the second month, so I would say I've had no periods since August or Sept 2010 - I didn't get any hot flashes on chemo. I just started my second month on the Tammy train and now I definitely get warm now and then. It seems like the amount of heat has increased. I was noticing warm waves, but last eve while getting ready for bed I got so hot I had to take my sweater off, I noticed my forhead got moist too! Then last night I woke up at 2 am really really hot! From then on I was doing the covers on and off thing. I usually get up at 5 or 5:30 during weekdays, but I was so exhausted from all of this that I finally fell sort of asleep and got up at 6:30.
I'm not really complaining, just describing my experience. I have to say it's totally bearable and I'm glad to have this pill to help protect my breast cells from estrogen.
I love all the kitty stories too. I miss my old cat so much - I could get another cat, but I want THAT cat. I guess I haven't ever gotten over him. He was an orange tabby I got from a shelter. The shelter had about 500 cats needing homes and so I went there and spent a long time playing with so many cats. When I was standing by this sofa that was covered with sleeping cats I suddenly felt this tap-tap-tap on my back. When I turned around it was this orange tabby tapping me with a big smile on his face. I picked him up and he was one of those that actually hugs you back - he would snuggle and purr so loud. So it was love at first sight and I just loved him so much. Now it makes me cry again thinking of him.
My cat looked a lot like this pic I found:
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Beanius,
So sorry about your kitty... it's so sad when we lose a fur baby!!Love the pic!!
Harley0 -
Sandeeonherown ~ pGW! hahahaha, that is perfect!0
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I just got caught up - geesh, gone only two days and I'm three pages behind! Great things happened on the train while I was gone - Jo found relief with milk, Smile-on joined us, and a discussion about FB began. I'm friends with Harley on FB - as usual, you are inspirational AND a hoot!
About hot flashes and night sweats... I have to say, my issue is with night sweats. There is one week out of the month that is unbearable, and i take Temazepam (sleeping pill) to help me through the night. During this awful week I usually am soaked head to toe through my jammies. I wake up freezing, and I often have these electrical "zings" that zip through my spine - it hurts. It is not unusual to have THREE jammie changes in one night. The sheets are soaked too - so I have to switch sides of the bed (my doggie doesn't mind), or put another sheet on. All in the middle of the night. Yes, I am highly dehydrated in the morning. The other days of the month I'm usually just a one jammie change. I didn't know my ankles could sweat so much, and it is really gross to wake up with wet hair from sweat. BUT, I did find one thing that helped. While it doesn't STOP the night sweats, it does eliminate the wet sheets. I bought fleece sheets. I know this sounds counter productive, but the fleece wicks away the wetness on the sheets. My jammies still soak through - but now I don't have to find a dry space on the bed or change my sheets in the middle of the night. I wonder if I could find fleece jammies and wear them inside out. ;-)
Hope this tip helps someone. Even if you don't have night sweats, the sheets are super comfy!
Barbie
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Another book to share that my surgeon recommended:"Anti cancer, A New way of Life", by David Servan-Schreiber, MD, PhD. He is a brain cancer survivor and he gets it. He explains how cancer grows, how our body can fight it and how we can help our bodies fight it. I cannot put it down.0
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thanks Sunshine, will have to look for that one..
Beans, so sorry about your kitty too, i know what you mean... beautiful cat in pic!!!
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I second that book. I have also read it. Very good and important information. Janet mentioned that (I think it was Janet
) that she bought a copy for members of her family for Christmas...I ended up doing the same.0 -
phxsunshine....can you tell me again how much glycine you take? I just got some in (Now Foods brand, Glycine powder. It says 1/4 tsp is 1000mg)
I had been doing the gelatin but I tell ya, it's been harder and harder to get down. Ick. Smells like wet dog....and tastes just as bad....gag. I tried mixing it with orange juice but still...ew. LOL Think I will just go by the recipe on the box and make it into jello and just make a "healthy" jello with fresh fruit juice and agave or stevia. Maybe I can get it down that way and at least have it a few days a week. I think it has some added benefits over the glycine.
thanks
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Just wanted to let folks know my TMJ flare seems to have tapered off after a few consistent days of wearing my biteplate. Something to consider for those of you having trouble with it!
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I know Tamoxifen can cause cataracts so maybe glaucoma too. My gyn onc told me that a 15cm cyst on my ovary was caused by tamoxifen - so I had to have a total hysterectomy. I quit taking it in Oct. I thought that it was causing all kinds of problems but they haven't really gone away since I quit so I think after my next appt with my onc I may go back on. I hate it but I would hate a recurrence - and Arimidex Femara were horrible - they made tamoxifen seem like candy -
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Yes East Coast - amazon.com should have given me a discount with all the copies I bought! I highly recommend it to everyone. Anything that can improve odds of no recurrence in addition to conventional medicine is a good idea IMO. The biggest take away from the book is exercise & changing your diet with more fruits/veggies -- and specific ones like cabbage, brussel sprouts, blueberries, etc. that have anti-cancer properties. I'm not overweight but trying to get to 24 BMI (instead of 25). That measurement is more important than just your weight. You can google BMI and see what weight ou should be according to your height to get to 25 or 24. And 1/2 hour of sustained exercise a day is all you need - it doesn't have to involve a gym or intense cardio workouts (altho that's all good too) - but it has to be sustained 1/2 hour at a time. Just get one of those step boxes and do 'steps" over & over while you watch a 1/2 hour TV show. If you get out of breath, lay down & do leg lifts or whatever. Or take a half hour uninterrupted walk. I have to FORCE myself to do this - but I feel so much better, sleep better, etc. and my endurance has definitely improved. He gives a lot more detail in the book, but you want the blood circulating at a pretty good pace which makes it harder for cancer cells to take hold (my layman's description). My onc, by the way, said the same thing about exercise. He even wrote it down on the first visit - I'll try to find the paper, but it was signigicant - exercise can decrease recurrence rates by something like half (also because it reduces fat which contains estrogen). So that improves the benefits from hormonal therapies.
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MHP70 - So sorry to hear of TMJ flare ups. I wanted to share that I had some kind of jaw/neck problems probably 25 years or so ago (God I'm getting old!). Anyway, I had been to a number of dentists who all had these horrible ideas for treating me, including breaking my jaw and re-setting, braces, etc. Out of desperation I finally went to a chiropractor - and at that time I was a 100% believer in traditional western medicine, and trained as a scientist - someone I trusted recommended a certain chiropractor. The chiropractor did an alternative therapy called CranioSacral work, that is gentle and not invasive at all. He also showed me how to massage inside my mouth under my tongue and at the back of my jaw with my finger and some other really helpful things that were empowering to me being able to manage my own problem. I ended up being able to manage it with what he taught me. I don't know if this would be appropriate for anyone else, just thought I'd mention it. Also you have to find someone who knows this procedure - it sure helped me. This experience was a revolution for me and I came to understand how beneficial alternative treatments can be for some problems.
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phxsunshine - thanks for the book recommendation...looks like a must read! Janet and EastCoast - thanks also for the details!!
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JanetinVirginia,
You are SO righrt! I DO feel SO much better, when I exercise regularly.
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Barbie,
Hey, there!! So good to see you!! Things are moving so fast on this thread... heck, it feels like my FACEBOOK page!! LOL
Yes, I am BACK on the Tamoxi-train. I took Femara for one year, and now I have had "significant bone loss" since starting it last year, so I AM BAAAACK!!
Harley
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Barbie7-apparently there are also pjs out there that 'wick' so the moisture stays away from your body...Trail Shop or Mountain Equipment Coop or some hiking shop would likely have them.
Tinkertude- yep...there is light at the end of this emotional rollercoaster! not feeling as beaten down..hadn't even realized I had been until I met my friend's mother-in-law fo rthe second time...she met me in the summer pre-surgery. All she could say today was how great my skin looked, how I had lost weight and looked so much 'clearer' and healthy....guess it was weighing me down, hmmm?
East coast girl- I bought the glycine powder last week and gel caps...filled the caps and I have been taking 4 at bedtime...shared some with a friend who has been having troule sleeping and she took it two nights and noticed a huge difference so...try 4.
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sandeonherown and East Coast girl - re the glycine, I remember reading she took 3x500mg each nite before bed, I think they were capsules. So 1500 mg. of the powder I would think would do the trick. I am still looking for it, capsules or powder, but too cold to venture out right now.
Good luck with it
dsgirl
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Harley, I will visit your avon store soon. I'm so excited for you!
Sandeeonherown, I will google the pjs you speak of - and if they work, I'm buying as many pair as I can!
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Keep us posted Barbie! I have been told they work....certainly sox made of the same thing work!
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