Bottle o Tamoxifen
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Went to walmart and they do not have glycine. I live in a small town so will have to drive 30 minutes to the next town they have a GNC
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Hi JustmeAlicia
Have oyu tried taking Tamoxifen in the morning? I was having lots of trouble at first with insomnia and depression,... and of course fatigue. Switched to the morning and started taking Vitamin d and have been sleeping heaps better. And yes I agree with whoever said it - Naps are great.
Katyjo
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Hi redninrah
My oncol doctor told me that hairy is because of androgens not oestrogen or tamoxifen - as if we don't have enough stuff to research - haha
Katyjo
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Sherry - Good to know Wal Mart does not carry glycine. Guess I will have to make a trip to the mall. Haven't been there in several years - not since they opened at outlet mall much closer to me.
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jo1995 and sherryc - Some of the other tamox ladies get their glycine on the internet. I think it was through Thorne laboratories.
Toes cramped up at volleyball again tonight. I am going to start and try eating some bananas.
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Sherryc- Sleep solution is the name of the game...lots of good ideas
peg119 - yeah. Benadryl is no for us....he glycine helps but I wake up groggy in the am...but deep asleep so there is that...
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Katyjo - n the spring, just before I was diagnosed and then again in the fall, just before rads, and just after, I went on an adrenal gland support that my DR recommended . SRTS(or STRS??? Those are th e4 letters anyhow)...helped a whole bunch....my energy level went back up...until then, i had felt like someone had stuck a straw in my chest and were sucking my air out!! This really helped.
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I ordered my glycine through the health food store...maybe GNC could order it for you if they don't have it? Save you a trip in?
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Ladies not sure where to turn. Just finished radiation and just started Tamoxifin last week. My oncologist was concerned about my heavy periods at age 54 so wanted me to have an ultasound especially with the risk of uterine cancer w/tamox. So, I have the ultra sound. Doctor is concerned at level of thickening of uterine lining which can be suggestive of cancer. So, today they set me up for a D&C with a camera to take scrappings at targeted areas in the uterus. My oncologist's tech called me to tell me to stop taking the tamox until all of this is known. It feels like dejavu when diagnosed w/breast cancer. I think she should have called so I could ask questions. Since before the ultrasound they said to stay on my tamox, but after the ultrashound they are taking me off. As you can probably see, I am scared - breast cancer seemed fairly easy for me to work through - this I don't feel so good about at all. It feels like they know I have uterine cancer, but aren't going to say anything until the results come back. I know this sounds mixed up...kind of like my brain. I'm scared and so don't want to have to do another journey through cancer again - plus in another month I will not have any health insurance. Anyone experience this scenario?
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Austinnana... I have not experienced this bit I am so sorry you are going through all this. I dont blame you for being scared. Is there anyway you can call you her and ask all the questions you need to, she should be available for you to do that for you. Are you set up to go soon so you dont have to wait too much longer? Try not to panick as they may just want to be very thourogh . My gyn had said at my checkup if anything at all came up and was not quite right she would be very aggressive in getting it checked out for me, so maybe they just want to do that to make sure nothing goes wrong.
Hang in and keep us posted
Hugs!
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AustinNana - So sorry you are having to go through this. It sounds like the MO should have called you instead of a tech. That way you could have asked questions and got some clarification as to what it really going on. My MO would have called me into the office if there were any concerns at all - to do it over the phone.
Hang in there and please keep us posted.
(((HUGS)))
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Thanks to all my sisters here for the very warm welcome. You sure did a lot to alleviate my concerns about tamoxifen. I can tell you from my personal experience that taking Femara had a dramatic impact on my quality of life. It literally made me feel like I was 90 years old in a very short period of time. When I'd go on a holiday from it, all of those symptoms would vanish. I also developed a shoulder (diagnosed as rotator cuff tendinitis) issue while on Femara and the onc took me off because she said it can cause issues exactly like that. The 2-week break didn't solve the tendinitis, but on my 3rd (and probably final) break from Femara now, my shoulder is feeling remarkably better.
My main concerns were that my onc had first suggested Femara (the AIs) and said if that "didn't work out" we could always go to tamoxifen. I thought of it as being inferior as a result, but never got into a lengthy discussion with the onc because I didn't anticipate such quality of life problems with Femara.
I did go back on the Femara for just 2 days over the weekend and by the second day it brought me back down again .... arthritic-type pains all over, nausea, fatigue, and most importantly for me, severe depression with spontaneous crying. My husband even knew without my telling him because of the instant crying. I'll first have to see if I metabolize tamoxifen, and I also hope it doesn't worsen my long history of depression that had previously been controlled before hormonal treatment.
Thank you all !!! (( HUGS ))
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Miss TW.
Yes, I have. My oncologist told me to stop taking the tammy last week, due to having to have an MRI biopsy sometime at the end of February - first of March (having to wait longer to have it done because of radiation given to me) anyway, yes he took me off it until after the biopsy and results are back
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Dawnsm - I also had a bad experience with both Arimidex and Femara. They were awful. I have been on Tammy for a little over a month now and find it much better than the AIs. The only SE I am experiencing is toe joint pain which is doeable with Aleve.
Hope you get a smooth ride on the train.
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Morning Gals... Dawnsm, hey, jo1955 is so right.... And I have heard this from a lot of women who have been advised to take either Femara or Arimidex, and MOST of them cannot go through with it. My Oncologist also gave me the 3 month supply of Femara to try....but I wouldn't, after reading all the threads on this forum about those Al's and listening to the gals already trying to take them....
She even told me to take extra Glucosamine, while on Femara, because of bone loss....I thought WTH??? So I wimped out, & just told her I wanted Tamoxifen. I finally got on one of the Femara threads, & asked anyone taking it if they would like 3 more months, so I sent them on.
Evidently some women can take them with very little problems....but I didn't want to try.
AustinNana....I'm so sorry about your new worries! And it's easy for me to say "don't worry" but I can't....it's just natural....And when will you know anything for sure? Just make them get back to you! It seems once you get a plan in place, you won't be so afraid....Just make sure you write down all your questions & take them with you, or ask them over the phone.... We'll be here to support you, no matter what...and do you have others around you to talk it over with?
Or sometimes the ones closest to you are the hardest to talk to...for a hundred different reasons. Just stay in touch with your "team" & let us know how you are!
How's it going TINK! Hope everything is settling down, and much better...
Take good care gals.....xooxox
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AustinNana - So sorry you are going through this. You would think the health care professionals would realize how much stress they add to our lives by not being upfront with us and giving us results ASAP.
My gyn did an ultrasound to get a "baseline" of the thickness of my uterus and discovered that I already have a thickening. She said she wasn't too concerned because it was uniformed all the way around. She is attempting to clear this up with meds.
Each one of us have different experiences and our bodies respond in their own unique ways. We are here to support you. When are you suppose to get the results? Keep us posted. You are strong, you can face whatever challenges life throws at you.
Here's to quick and good results.
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Dawnsm & Chevy - yes Tamox is much easier on the body and has been around 25-30 years. I took one Femara and felt like someone shot me in both knees. Then I tried Arimidex and had immediate heart palpitations & pain. My onc sort of dismissed that as maybe an underlying heart issue, so I went to cardiologist and had completely clear echo, stress test etc - that there was nothing wrong with my heart that would have caused the pain. Later in Dec, SanAntonio came out with study results that 26% experience heart-related SEs from AIs - that's a higher percentage than my risk of cancer recurring! And we all know, more women die from heart issues than breast cancer (6 times as many!). And more recent study about hip fractures after AIs. So, I'm hanging on to my seat on the Tamox train.
Austinnana - lot of docs take you off tamox before any surgery (as well as other drugs like aspirin). So I don't think that's a red flag - just general procedure. Just before menopause I had REALLY heavy periods too - I had read at the time that it happens frequently. So hopefully you will have NO worries!
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Sherryc - how was your sleep last night. Hope you slept well and are rested.
Jo - How are you feeling this morning?
Tink and Chevyboy - good morning. You two ladies are so supportive and make sure everyone feels welcomed. Thank you for your compassion.
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CHEVYBOY..THANKS!!!! FIL homr from hospital so that is good news. I was beyond tired yesterday I did that wonderful NAP thing lol!!! Thanks for checking in on me
hugs!EXODUS.Good morning to you too
.Thank you, We are here for eachother and I also find so much support and compassion on this board its unbeliavable... JO..How are you feeling today???
Going tomorrow ladies to a new primary doc. Met with her last week and she said my vit D levels should of been checked after the 12 week course of 50,000 iu, so she said she is staring from scratch with me and doing a physical and fasting blood work vit D level for sure etc... so glad I switched primamry docs..
Off to exercise..
have a great day
Hugs to all!!!!
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Exodus and Sandee I took an ambien cr and sleep for 5 hours. That was much better than the two nights before. I feel better but not back to normal. My body likes 8-9 hours of sleep, of course I do not always get that during the week. I am going to look online for the glycine. I followed my Dr's order and did not take the Tamoxifen last night and took it this morning. Will do that for a couple of days and see what happens.
Austinnanna will be praying for B9 results
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Good morning ladies.....hope everyone is sleeping better and the toe cramps subside......
Jo and Tink thinking about you 2 ladies and hope each one of you is doing better....
Sherryc how did the morning pill work for you today? Any SE?
AustinNana thinking of you and praying everything turns out alright for you today.....keep us ladies posted!
Welcome Dawnsm, you are going to love these ladies!!!
My body is changing so much I think it must be pre-menopausal as my periods seem to be effecting me so much more than they ever did......I am 45 and they are now so unpredictable and I will spot very lightly and then NOTHING!!!!! I am feeling horrible today and my head aches and I feel nauseous as I feel today has to be the day. A few months back I got a migraine and I never get those either.....Is this what I have to look forward to every month as I age????? NOT loving it....especially since I have plans with another couple for dinner tonight.
Well I am going to try and make it through today without being too tired and crabby!!!!
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JUne I took it two hours ago and so far nothing. I guess tonight for sleep will be the big questions but I am not risking it and taking another ambien cr
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Exodus & Tinker - Thanks so much for asking. I am feel really good this morning. Stomach has finally settled down. Guess Effexor and I won't get along. Already threw the bottle in the bonfire. Good riddance to bad rubbish!0
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Jo glad your feeling better now just getting that lung thing under control
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Sherry - Fortunately, I have been so busy lately. Once the stomach cooperated, I pulled myself up and got moving. Have missed two days of work and have lots to catch up on. Haven't even thought about going to the lung specialist on Tues. Just happened to be checking my calendar and saw it on there. NO worries from me. Don't want to. I will go and just see what happens.
Have A Great Day!
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Good morning ladies! It is so hard to know what are normal side effects of aging.. and what is tamox related isn't it?
Sherry ~ I'm a total 8~9 hours of sleep girl too! I've been going to bed at 8:30 most nights! (I have to get up at 5:00 for work) Doesn't give me much time in the evenings to get much done.. especially if I try to fit exercise in. So my house is a mess! ..but my health is my priority right now.
Tinkertude ~ I'm glad you like your new doc! We see them so often, that it really helps to have ones you feel comfortable with and like!
June ~ sorry you are feeling so crummy today ~ hope things get better for your dinner tonight!
Hope everyone has a great day!
~ Susan
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I haven't started taking Tamoxifin yet.but like some of these other ladies I am nervous about it because I have a 6 cm fibroid and I heard Tamox can make them grow. Does anyone have any feed back on this? I would greatly appreciate it.
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Jo ~ sorry the Effexor didn't work for you. I take 75mg in the morning with the Tamoxifen with no food. I must have an iron stomach! Yikes! Though I didn't have any bad SE's with Percocet either and I hear a lot of people have probs with that. Shoot... I would make a good drug addict!
I hope you get caught up at work easily and don't have too much stress!
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Susan I know what you mean about the house being a mess. With all the Dr appts then rads, working full time etc, my house has been neglected. Think I may have to break down and hire a housekeeper.
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