Bottle o Tamoxifen
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June - Now why would I do something like behave? It is more fun to party hearty in your pocket. All I can say is, even though you are officially off Tamox, you better not go away. You can be our designated cheerleader. Besides, I would miss you terriblly. Hugs & Kisses to you.
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June... thats right girlie! you better not go away!!.. we still need and want you with us. love ya!... i tried to behave but you know what happens wheny ou put me in those lil pockets.... cant help myself..hahaha... I am glad your MO did not fight you on it and you have found some relief!!!!1
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Jules have missed seeing you on here.
June glad your MO and you came to a decision about the tamox but you cannot leave us here. You are officially one of the tammi sisters. I have to say I think I am a bit jealous you are no longer taking it.
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Jules-first start with a pap smear and a pelvic exam. Tamoxifen does increase the chances of uterine inflammation which could be an issue if not monitored.
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June, I am about to join you as officially off tammi. I saw my MO yesterday, we discussed all my quality of life issues, and she did not push me to go back on it. She said "if you get recurrence, we have other drugs" but if I don't, then I am not going to have to deal with meds now. So I do have a PET scan in a couple of weeks. May need that xanax (Xanax.... when whiskey just isn't enough!!!)
Also saw my PCP today, and she persuaded me to give one more drug a try for this miserable fatigue. Will let you know how I do on it.
I have also come to know and love all of you, and will continue checking in with you, even if I am not taking the same meds. There is just way too much fun & mischief here to miss out on! I just can't give up the eye candy from Paula and all the other sweet treats here!
Hugs to all.
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Linda ~ maybe we should create a thread of ex tammi sisters......and you are right way too many friends on here that I cannot live without. I am sooooo fatigued, I wonder why? You have gone through so much more than I so I bet yours is more validated than me. I am waiting on bllod work to see if maybe I am anemic as my periods are so much heavier and I just ended and she did say I looked pale yesterday and I am completely wiped out all the time. It sucks.......
As for the eye candy, Paula always hooks us up and we so appreciate her for it.
Sherry, Jo, Linda, Tink, Paula and all you other wonderful ladies......happy Tuesday to ya!
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My doctor finally called and the biopsy results are B9!!! Thank goodness for that. I feel like a weight has been lifted off my shoulders. Thanks for all your good thoughts.
June, I am so glad your doctor didn't try to persuade you to stay on the Tamox. I am so close to just saying the heck with it and stopping the pills. I surely am going to talk to my MO about it and tell him that I don't want to live with having D&C's and/or biopsies every 3 months for the next 2 1/2 years. Maybe I can join your ex tammi sisters thread too!!!
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Deb woohoo on the B9 results.
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Thanks for the advise ladies!!!!!!!!!!!!!
Onc isn't worried, however, if this continues for more than a week it's off to the OBGYN for me for an ultra sound ect. Yep, unterine cancer came up in the conversation. Does this ever end?
June, Sherry and Tink, I've been awful about not logging on to visit all my Tammy girls. This new website and the fact I have the crappiest, slow and oldest computer in the household doesn't help.
Jules
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June, just read further back. You're off of tammy!!!!!!
You better not be going anywhere girlie? How are your joints feeling now you're off it?
Bet you see huge differences?
Hugs sweetie xxxxxx
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Deb - Congrats on the B9 results. Okay! You can breath now. So happy for you.
June & Linda - You can create an exTammi thread if you want to BUT you better not leave us here. We have all grow so close - we wouldn't be able to stand it if you go. Please don't.
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Deb... wahoooo for b9 results. so happy to hear!!!
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All right JUNE...you have joined me in the 'not-on-tammi-anymore-but consider-myself-a-tammi sister anyhow' gal...if I am running arond and don't have much time , THIS is still the thread I check in on...the initial connections we made hmm? Quality of life....I decided last year that QoL took precedence after the tammi caused a bloodclot and the AI caused swelling that made me worry about my heart...I have no idea if it is the best choice...all seems like a crapshoot, as we have all discussed before, but it is what I need to do...so follow your heart June and continue to listen to what your body says...and do what is right for you. We love ya! For those of you who are managing to tolerate tammi...excellent!...extra protection is never a bad thing. love coming your way too!
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Just remember this once a Tammi Sista always a Tami Sista!! Besides that Junie what would I ever do with all those J pillows I have, hee hee!! And don't say I could use them on Jo, I've got a special pillow for her as well.
Deb yahoo!!!!!!!!!! I'm so happy for the B9 results for you. I'm in agreement with you to. The quality of life has to be there. My goodness haven't we gone thru enough to get to a point where living past this is the goal.
I made it back from the sonogram, but won't know anything until Friday, grrrrr. I want to know now. I'm to the point of madness waiting. I know I told myself that its gonna be ok, but sometimes I'm not!! Why did my body have to start turning on me. I was just fine with the way things were until I found out I had BC, now it feels like I'm falling apart!!
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Paula....you are not falling apart my lovely...really you aren't...our bodies seem to rebel all at once hmm...I tell myself it is my body saying ' oh well...let's get this over with so we can enjoy ourselves fully in a few months..might as well feel like crap all at once'...just the body doesn't speak to the heart and mind hmm? You may not feel ok but you are strong...strong strong! You WILL get through this...you will.
ARGH indeed...sounds like you need follow the '24 hour rule' until Friday. What can you do in the next 24 hours to distract yourself? any little project that needs doing? Any street you have not explored in your town...recipe you would like to make just to see if you can do it? Find a little success each day between now and Friday and distract yourself if you can...you CAN make it to Friday...you can.
Huge hugs and a pillow tossed in for good measure. WHACK!
sandee
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Lol Sandeeeee thanks for the WWWWWWWWWWWhack!!! I needed that! The next few days are ging to be jammed packed with my moms surgery so that will take my mind to focus on her, thank goodness I have that distraction for sure! I do need to put the 24 hr rule in place for sure. Thanks for the reminder Sandee. Oh and just in case I missed, heres for good measure, WWWWhack!!!!!
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Sandee - So very well said.
Paula - Will keep my fingers crossed for B9 results.
After having to go through yet a second D&C this year - both incidents Tammy induced - I have been giving it al lot of thought and go off Tammi myself. I know I can't do this for the next 4 summers. I will finish Tammi in Jan 2016 but also know that by the time I have my next pap there sure as shit will be something else going on down there. I have the path report from last year and this one and plan on talking to my MO when I see him in Dec. Something has to give here. Yes, I do have the option of a hysterectomy but that would just be another surgery I have to face. Enough is enough. Done rambling - hope this makes sense.
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Deb, so glad to hear B9!!!
Paula, I will be thinking of you and hoping for B9 for you as well, and hoping all goes well with your mom's surgery. I am not good at getting eye candy for you, am sure you can find the best, but will find a special pillow just for you!!
Sandee and June, yes, we could start an ex-tammi thread, but I sure would miss all the ladies here, so am inclined to adhere to Paula's "once a tammi sista, always a tammi sista!", especially as it looks like there may be others joining us in ditching the drug. For those who can tolerate it, it is a good anti-BC drug for many many many women, and I will be here to listen to and support all who are on it.
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B-9!!!!! I will have it removed when it gets scheduled
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Debbie, great news! Thanks for the update!
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Debbie - WooHoo - B9 - Now that's what I'm talking about. Doing the happy dance with you.
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I'll be thinking of you Paula!!!! I got ALOT of cleaning done trying to distract myself.
We could have a "Pillow Fight"!!!!! WWWWWHHHHHAAAACCCCCKKKKK
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Yahoo Debbie!!!!!
WWWWWWWWWWWhack back to you!!!!!!!!!!!!!
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A pillow fight without me - Not happening. WHACKKKKKKKKKKKKK!!!
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Deb & Debbie - Congrats on the B9 results.
June & Lynda - Please don't leave us.
Tink - That storm sure was something. Luckily we didn't lose power or have any damage but due to field I work in, it made life a bit crazy... Really felt for the people who were out for so long in that awful heat. Where are you going for vacation?
Sandee - Will say an extra prayer for your mom tonight. Hang in there... ((hugs))
Happy Wednesday ladies!
Happy We
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Oh and by the way, WHACK!!!!!!
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yep////we were tammis and are tammis in our hearts...we would take it if we were able to tolerate it so...lets stay and support those whose bodies are letting them get through it:) I'd miss them all too much:)
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Debbie, so glad to hear about the B9 results! Two Debbie's getting good results in one day...that is a good thing!!!!!!
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Sandee - That is great - you are going to stick around. I would miss you.
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OK, I m sticking around, too! You can't get rid of me easily!
I think my PCP found a miracle drug for me!!! She put me on the lowest dose of Ritalin (yes!) yesterday. I was terrified to take it, given my difficulties with most meds recently. Got brave and took it about noon, felt 90% better by 2, actually had enough energy to tackle AND FINISH a project (cleaning out my bathroom drawers, organizing meds, tossing out papers (what the heck were THOSE doing there???). It wore off in the evening, I took my morning dose about 7 this am, and this is the first time in MONTHS that I have been able to get out of bed and tackle daily chores before 10 am!!!! I HAVE SOME ENERGY!!! OMG, what a difference, even gives me a little better perspective on life.
AND I HAVE ENOUGH ENERGY FOR A PILLOW FIGHT!!!
So, lots of whhhaaacccckkkkks to Jo, Sandee, Jules, Deb, Debbie, Odie, Paula, Sheila, Sherry, June, vacationbound, and anyone else who might be trying to hide! I am looking for you!
And lots of love, too.
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