Bottle o Tamoxifen
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lizzy I have had to take a break from tammi a couple of times and i have never experienced dizziness. Hope someone can chime in and help out here.
Good news on my effixor. My body has finally adjusted. Just after 2 months of being on it. Of course it helped the hot flashes that tammi caused right away, but I was having trouble sleeping, constipation and neusea with it. All have finally subsided. I am only taking it 4 days a week though with my MO's blessing. I think that is why I am finally better. 7 days a week was just too much for my body to handle.
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resting- I have been taking B vitamins for energy. I am also taking an extra b-12 shot as well for energy. I do take the pill in AM and so far have not been tired. I hope you find a way to get your energy back or at least some of it.
sherryc-glad efflexor is finally working for you
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heartandsoul, paula, linda ....I will be in Qatar for a year's contract..end of august to end of July...looking forward o a change...usually I go on short stints but ayear is long for me so it will be an experience for sure. We shall see .and I promise to keep posted on facebook sinc eI can never get pics on this site despite the advice given. hugs
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Sandee - Sounds like a wonderful new experience. You will have to keep us posted on how it is over there. Best of luck to you.
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Hi everyone.... I am so scared right now. I had an abnormal mammogram the other day (I was too scared to talk about it even) and tomorrow I'll be having a stereotactic biopsy. It was my first time going 1 year between mammos and boom, there it is. Microcalcifications in a starburst pattern, BIRADS 4b. I had the mammogram, 2 shots on each breast, then she came back and said he wanted a closer look at my right breast (my bad boob). So they did THREE of those cone or spot magnified shots - one of them she didn't get the whole spot in. So 5 squeezes on my lumpectomy breast, 3 super squeezes. That was nightmarish enough, but ends up they called my breast surgeon to see if he could see me this week before they even told me about it. So the technician came in and said the doctor thinks you need a biopsy and we've already called your surgeon and he can see you Thursday. Would you like to use that phone right there and make an appointment? So, like a zombie I did. I've been alternating between calm and bursting into tears. They won't get the pathology results back until the middle of next week - why can they do some things while you're under anesthesia right there on the table and this will take 4 business days? Anyway, time again for the Xanax...
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heartnsoul- Damn it all! I hate this disease. So very sorry you are having to deal with this again. BIRADS4b - no wonder you are a zombie right now. If I could, I would go with you to the biopsy and hold your hand. Please let us know how it goes.
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Geez, I hate to add more negative stuff here. Too many of us waiting for tests & results.
My PET had 2 suspicious lesions, one in the axilla (I thought my BS got all those nodes!!!) and one in the spine. So my MO ordered an MRI, which could have been done this Monday, but I put it off for another week. I just need a few days at home to rest and adjust to this news. I fully expected a clean PET with advice to get back to work. Now I am planning on taking the fall semester off, have started calls with HR and my boss. I just cannot do the work with the distraction of more testing right at the beginning of the semester again, just like last year and the year before that. Both fall semesters were extremely stressful (and I know that is a risk factor for mets!).
I have also been having lots of headaches, especially when I wake up. I have been attributing them to stress and/or new meds, but with PET scan results, am getting more paranoid. I can't really go there right now - too much unknown and I can't live in fear of the unknown.
MO has been gently preparing me for progression, I think. She has been talking about Faslodex in the last 2 visits, tells me she has lots of ladies on it that have good QOL, but it is a deep intramuscular injection, and I don't have much muscle anywhere right now. I asked her about reduced dose of tamoxifen: she said 10, 20, and 40 mg have been studies, with 20 mg giving the best risk reduction. But she hinted that she would be happy if I at least tried the low dose. I am tired of SEs. I am tired of meds. I am tired of tests tests tests. I am tired of BC. But I have a few things I want to do in this life still yet.... I am so confused. So tired. My old bottle of tamoxifen is sitting here.
OK, enough pity party. Today I am going to clean my bathroom. A sparkling tub, toilet, sink, floor, & counters make me happy!!!! Then I am going to watch comedies the rest of the day (Big Bang, Monty Python, etc.).
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Heartnsoul: I'm so sorry you are dealing with this! I'm in your pocket today with prayers for a good biopsy. Hugs!
Linda, hugs for you too! I pray your MRI is encouraging! This beast is cruel....but don't let it steal your joy in living!......cleaning toilets? I think I prefer Yoga lol.......but I'm going to clean my bathroom today while praying for you and Heartnsoul!0 -
Chachamom, I think yoga would be good, too. I have kind of fallen off the wagon on that one - so you are kind of like my conscience on that - thanks!
Bathroom clean & sparkling!!!
Feeling lots better.Heartsnsoul, I think I posted one of my favorite cartoons a while back, and I can't find it now, but it is a lovely woman with child cradled in her arms, with caption "Xanax, when whiskey just won't do...". I cracked up, then had thoughts that maybe the two together would be better than either alone in some of these situations!
Am in your pocket today.0 -
heartnsoul I will be praying for B9 on the biopsy. I had the same scare last year so I know what your nerves are doing to do. I never really got angry with my cancer but I got angry with the scar. Thankfully mine was benign I hope yours is too.
Linda-gee I think you need a break girlfriend. I will be praying for you. Funny my bathroom needs cleaning this weekend as well and I'd rather be doing yoga.
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Heartnsoul and Linda I hate this damn cancer!!!!! Keeping both you gals in my prayers!! Why can't we just get a break from all the frama that comes along with this junk!!!!!!!!
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Thank you wonderful ladies for your support! I knew I could tell you and you would understand why I burst into tears for nothing and other times I'm a zombie -lol. It was the most awful test I've had on that breast - the lumpectomy was a piece of cake compared to this. I had to lay on a table with my breast poking through a hole. Then she did the mammogram thing again only said it would be even tighter than the 3 spot xrays I had on Tuesday. I screamed when she quickly clamped them together. She said, "I'm sorry, does that hurt?" haha, I didn't know whether to laugh or cry then she said a little tighter, at which point I did start crying. I had to hold that position for about 40 minutes. The little machine that sucked the tissue samples out was about as wide as a straw - I saw 10 or 15 samples sitting on the counter. Then because it wouldn't stop bleeding she said I'm going to have to leave these clamped together on your breast for about 10 or 15 minutes to put pressure on it to stop the bleeding. My breast literally feels like it's been run over by a truck. How can that be good for any breast, especially one with suspicious cells? On the one hand they say yes, cancer can travel through your lymph nodes or bloodstream and then on the other hand they say compressing your breast while we make it bleed profusely won't cause it to get in your bloodstream. Huh?
And it started bleeding a little bit again after she let me out of those clamps and I sat up. I have to keep ice on it for 24 hours, wear a bra all weekend and avoid lifting anything with my right arm.
I MAY know the results by Tuesday and I'll let you girls know. Thank you for the prayers. I have been praying and praying - just when I thought I was getting back to normal..
Linda - I LOL'd at that joke about Xanax. It actually crossed my mind the other night to check and see if I could mix the two. But the Xanax put me to sleep before I could deliberate about that much longer. I'm glad you waited on the MRI until you felt ready to deal with it. They just rushed me through this like a bullet which blew my mind. You're always thinking, what do they know that I don't? Which is a lot, of course. And they don't tell you but a fraction of it anyway.
Well, I'm going to go lay down for a while. I guess I'll put some frozen peas on my breast until they thaw and then I'll just have to do without ice until I get up again. I can't wait until my son gets back home - he's my little, well my big, helper.
A hole as big as a straw? Yuck! and Ouch! I'm sure some of y'all have had this procedure from hell done before - I think I'm just traumatized and emotional right now.
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heartnsoul - WTH? The torture we are put through. Gentle hugs. Praying for B9 results.
Linda - Glad you were able to wait to have the MRI until you were ready. So many times we are rushed into doing procedures and tests before we have time to think about it. Keeping you in my prayers.
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OMG girl!! That sounds aweful. I think just for sh*ts and giggles all women who go into the field of doing mammos, biopsies, and such should have to go thru a dry run on their own breats just so they know how it feels. Well this sure does sound like a night for tons of shots for you hns!! Hugs girl!!! Have you in my prayers for B9!!!
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Just a little something something to get the weekend kicked of with a OMG!!
Oh and Jill if this dude is your son, hook a girl up, lol!
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Paula - OMG is right! What a way to go girlfriend.
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heartnsoul - I had that kind of test when I was first diagnosed. Definitely not a piece of cake. Very uncomfortable. Hope all is B9
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Woke up from my nap to see some of the Opening Ceremony for the Olympics - I love watching the Olympics. Well, they said to take it easy this weekend, so I guess I know what I'll be doing
After the first squeeze where I screamed and the 2nd one when I started sobbing, my doctor (who had 2 med student interns there) said, "Well, I'm definitely not into torture. You can stop this anytime if you want." So funny, it did feel like a torture chamber - the chamber of horrors! But I said, no I can take it. And the reason is, the description I read about it the night before (which freaked me out and I popped another Xanax) said "after a while your breast won't hurt". No, it won't because it's basically numbed by a lack of circulation. Peg, they should give patients an option of general anesthesia for this BS. They have me covered in about 4 layers of bandages, probably so I can't see the bruises!
Well, I've just got to be confident that it's benign. From trying to interpret all the mumbo-jumbo I've read about this, there is maybe a 30% chance it's benign, so I'm holding onto that and praying for it. Thank you so much for all the prayers, my sweet Tammi sisters. My friends and family were empathetic about the pain today, but have no grasp on the REAL agony of waiting for results.
Paula - NICE! And distracting, haha. Wouldn't it be funny if we printed these pictures off and we're just kind of flipping through them while the doctor is talking to us? "What are you looking at?" "Nothing, just my notes." hahaha, one of these days...
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heartnsoul - It will be B9 - positive thoughts! Please let us know as soon as you get the results.
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I agree with Jo!! Positive thoughts going out for B9 results!
Well all I'm happy to report that I've been pain free for days now and it feels great!!! I'm so happy that nasty SE has calmed down. As much as I hate the HF I'll take those over the pain anyday. I still have some minor pings, but not like I used to have. I didn't think this would every come, but it has!! Now I just hope that I haven't rocked the boat by saying this.
Have a fun filled day my sistas! Love and light to you all!
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Linda my gosh girlfriend you have had your share and more......praying and thinking of you and sending you the biggest hug friend!
Heartnsoul I had the same biopsy done when I was diagnosed and let me tell you I cried too. Holy shit the whole lying on the table with your breast hanging out to have them tug and pull and poke and prod all while trying to be upbeat and positive.......my heart aches for you and know we are all with you.....love ya sista!
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Paula - Happy dance time! So glad you are feeling better. It's about time sister. Have a great weekend. XOXOXOXO
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Saw a woman at church this morning who also has BC. She was diagnosed almost a year after I was. She was on tamoxifen, switched to aromisin because of SEs. I know there are a few out there who can tolerate 5 years of this, but from the studies I have seen, it is a fairly low number. Of course, now my friend has the SEs from aromisin and is on holiday from that to try to resolve some of the issues. We keep hearing "there are lots of options" but I sure am not seeing any that are any more "do-able" than any others.... they all seem like slow torture.
Just wanted to let you all know that I AM A GREAT COOK!!!! I have been cooking this afternoon for the upcoming week, using lots of fresh veggies & produce, and my kitchen smells awesome! Wish I had a few more to share the meals with - we get really tired of the same thing a week at a time when these recipes promise "4 servings" that turn out to be 8-10!
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Heartandsoul,
I too had that type of biopsy on the right when intially diagnosed. Thought it has to be some form of medieval torture if you ask me. However, my biopsy was benign. Too bad the ultrasound guided one on the left wasn't!
Jo, glad to see your surgery went well. Now you can look forward to your cruise. Sure hope Tink is having a good time.
I am back from a week at the beach which was so restorative. Amazing how toes in the sand time changes ones perspective.
Sending prayers to all awaiting test results or undergoing active treatment.
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Heartnsoul! OMG! I truly pray your results on Tuesday will be B9.....what torture you've been through!.......it made me grateful that I had a mastectomy!!!
Paula....no resembence of my son this time so I can "yum yum" in peace lol!!!
Hope everyone's tests go well and you all had a nice weekend!
Hugs to all! ....very gentle hugs for you Heartnsoul!0 -
Linda I am on my fourth year of Tamox and doing OK.My med onc said he would switch me after the five year mark.I am more nervous about switching but that is a year away yet.
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heartnsoul I am praying for B9 for you girl. I had the same biopsy 15 years ago. I was out eating a late lunch with DH aftwards when mine started bleeding. I thought the ice was melting and rolling down my stomach. When to the bathroom and like to have had a heart attach. Had to go back, had a bad hematoma and they squeezed and squeezed trying to get all the blood out and then put pressure on it to stop. Gee I was sore after that.
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Good luck heartnsoul on Tuesday
Thanks Paula for all of the eye candy!
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B9 is the word of the week!!!!!!
Lezza13 your so welcome! I have a good time hunting for them, hee hee. One day I'm gonna get busted. I almost always wait until my hubby goes to bed before I start the hunt. I don't need for him to hassle me. I may just snap and that wouldn't be a good thing. He just doesn't get it he's a dude! Cancer took my breasts, not my eyes, lol!
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Paula, just two comments for your DH if he "busts you". You are just the female Hugh Heffner of BCO and just because we all enjoy looking at a beautiful mountain dosen't mean we want to climb it!
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