Im bitchy, I moan, I groan.....anyway.
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Harley,
You will do fine tomorrow. I know you will.
I will say a prayer for you tonight.
Sue
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INSURANCE HELP:
http://www.patientadvocate.org/
Please contact them and I know, another round on the phone is no fun, but you have nothing to lose by contacting them. I have referred several to them and they have been able to get things going and approvals when it seemed impossible. GOOD LUCK.
Gentle hugs, Blessings, and a big GRRRRRRRRRRRRRRRRRRRRRR, that SUCKS.
Nancy
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Anybody heard from Harley?
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Nope, was hoping shirley had! Anyone heard from her either?
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Thank you all from the bottom of my heart. Your suggestions and kind words really helped me to calm down.
Here is where we stand:
Dh told me to go ahead and use our debit card for this round and we'd let some bills wait. I hate feeling like we're digging a bigger hole, but at least this way we'll buy some time to let the paperwork be processed for help through Roche or somewhere else if Roche doesn't come through. I called the specialty pharmacy this morning and they have promised to have my pills here by the weekend.
Here's hoping that nobody has any IOS to report today!
(((HUGS)))
Diane0 -
Good to hear in voice, a sense of calm, albeit, nervous one. Glad too, that at least you'll have it while this all gets squared away! Prayer and good thoughts that it gets resolved and soon! {{hugs}}
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COME GET ME OUT!!!!
Yeah, wish my silhouette looked that good!
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UPDATE on Harley/Shirley. I just got off the phone with her. Her sil and mil are over. Her sil brought some crab legs from Maryland!!!!!! And they were eating them!
Anyway, she sounded real good. She said she had some crampiness in recovery. So, she got some more pain stuff for it. They also gave her a script for Vicoden, but she didn't have it filled. I told her to get it filled IN CASE...ya never know when you might need it. LOL No, I'm not a dope head.
She'll be here when she can. I don't blame her for staying away. After all, crab legs!
Shirley/Shirley LOL
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Thanks for the update on Harley, Shirley. Maryland is known for their crabs...In fact, I'm married to one of them!
Also really LOL'd at the jail gif you posted. You're one in a million.
BadBoob67: I'm glad you are getting your medication, but sorry you're being put through this. I hope it gets worked out so you can continue on the Xeloda with no copay!
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Hey, you guys: if you have had hassles with insurance companies and would like to add your experience to my thread in the mets section entitled "INSURANCE COVERAGE DICTATING OUR OPTIONS?", I would appreciate it.
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Sue, and Miss S. - Thanks for the prayers! The surgery went ok, I guess.
This idiot dr. doesn't want to see me for THREE weeks, according to the nurse. I guess it is to go over the results of the pathology report or whatever. The paperwork from releasing me just says :
follow up with your dr. as arranged... WTH?? He never told me WHEN to follow up.
This guy came into the room BEFORE the surgery to see 'if I was ready'. I told him "I guess so, but... I AM NOT going to do this again!" He said " OK... I'll do it right this time!" That wasn't exactly what I meant... I meant that if these things grow back or I start to have problems again, I am not going to keep having these D & C/biopsies or whatever they are called.
Thanks Wish, Shirley, and Patrice for thinking of me. The steamed crabs were really good, there is NOTHING like a MARYLAND crab, that combination of 'brackish water' in the Chesapeake and Salt Water makes the BEST crabs!!
I'm starting to feel crampy again, or something, I just feel this pelvic pain, and I guess I'm sorry I didn't get that Rx filled for the Vicoden, but I took three Ibuprofen, so I hope that helps some. I will probably wake up with HUGE bruises all over my body because Ibuprofen does that to me.
Thanks everyone. I guess I'll go rest in the recliner. Good night!
Hope everyone has few IOS!!
Shirley or Harley or ?0 -
Hope you sleep well tonight dear Harley!
Glad to hear you are home too and resting! 0 -
no time left to catch the rest of the posts before I have to go to chemo...sorry, works been real busy this past week ya'll...just wanted to say a quick hi to deb c...glad to see you back here Deb, we missed you...
and Diane...I'm soo sorry, I wish I had a wad of bills I could send out to you! Insurance suks and somewhere somethings got to give so we can get the meds we need and the gas to pick them up! sending you a big ((((((((((hug)))))))))) it wont pay the bills but I hope it helps with the frustration...
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Gentle Hugs to all today.
I am off to start Taxol & Herceptin today. A bit scary to hear of the bone aches, and I am allergic to Percodan. Morphine is a nasty drug - it put me into a very aggressive mood and I kicked the nurse and knocked her to the floor. This was after surgery on my wrist when they removed 2 crushed bones, not associated with bc. Maybe I will need to "suck it up" and use it as an excuse not to answer the door and phone.
Last night I had dinner with 6 other cancer friends and aside from good fellowship and talking, the meal was lousy and over priced. The service was slow, the food was luke warm - I had scallops and they were gritty, and the key lime cheesecake came covered with strawberries (like to hide something) and I am allergic to strawberries. They got a bit upset that I asked for a "nekked" piece, but about the time we were ready to leave, they brought me a piece. Then when I asked for a box to take it home, they acted like that was too much. One of the other ladies chose the restaurant and it is supposed to be good. Not a huge IOS, but it still sucks. How I wish we had gone to the crab cake restaurant - I KNOW it is excellent...
So sorry for the bills and worries that each of you have. Enjoy the time with your families and try to keep smiling - it makes them wonder what you are up to. HUGS, Nancy
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Hey to all and a big "that sucks"..................Diane, so glad to hear you and dh have a plan and you will get your meds..hope the help comes through for you soon.
Nancy, It could be worse, you could have chosen the restaurant!!!! Sorry you had a bad and overpriced restaurant meal, I hate it when that happens.
Went to a going away lunch out at work today--it's funny, because they all know it's not time for me to come back to work from this last chemo, if I'm not on the clock it's suddenly okay to hug me.....I am a hugger, so didn't mind, just took me by surprise. My dh left this morning for a four-day trip, I will be here all alone for the first time in months, and I am really looking forward to it! I am starting a new exercise/eating regimen as soon as I am a little better from the chemo--got to get this 25 pounds I gained in chemo off!
Hope everybody has a good evening....
Sue
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Shirley, you are a RIOT....I'm sure you'd look just like that backlit behind bars! LOL...where do you get this stuff?
Diane...I too am glad you have an interim plan but I sure hope the Ins. Co. gets their SH*T together ! It's just crazy to put you through this....
Harley ~ glad you're better and good to hear you enjoyed some crabs! It's the main reason I moved back to Maryland and one reason I don't think I'd ever leave...summer time without Golf or Crabs isn't summer at all!!!
Sue ~ sounds decadant having the house to yourself for a few days...oops, did I say that? Not that I mind my happy houseful of people/pets!
I am so ready to go to bed but if tonight is like the lasts few tx's the steriods will keep me up all night, I'll go back and read what I missed this week then...until then you all have a good night and I hope it's a quiet, calm, no-one gettin on our nerves night .
(sorry, that's as creative as I get with these things...I don't really know how to get them and insert them like Shirley and Nik do..)c-ya
bonnie
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I wonder if Nancy knocked out any of her chemo nurses today.
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Well, I felt ok today til I got home from shopping with my SIL... I'm feeling crampy again, and once I got home after dinner, wouldn't you know it, I'm bleeding again!! GRRRR.... According to my release paperwork, I can be bleeding for 7 days!! WTH? It also says that IF the bleeding becomes heavier, I should call the drs. office... heavier than WHAT?? It was very light before, and it looks heavier now...
I DID find my pain med. from my breast reconstruction, so I may take one of those pills tonight.
Good Night everyone!
Harley0 -
"Heavier than what?" LMAO!!!!!!!!! Harley, you are too funny girl.
Hugs, Traci
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Hang in there, Harley...
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Ok I have a problem, what is with negative people? They never have anything pleasant to say and everything that comes from them is insults to people. In an interent forum it is extemely unpleasant and difficult to avoid. I really try to avoid people like that in my life but how do you do in this type of environment? I have taken different routes to figure out how to deal with this even killing with kindness and nothing stops the hurtful comments. Come on, you all seem to have lots of good advice, hit me with it (guess I should be careful about what I am asking for), how do you shut out this type of person?
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I guess that depends on what it is that is bothering so much! And please, dear LuAnn, I hope it's nothing I said or did?
I'd feel horrible if I hurt our feelings, or anyone's on here! At home, now that different story, but ....What's wrong dear heart?
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it's nobody here and I don't want to say enough to spark a flame war, thats the last thing I need. I just don't understand some peoples need to go to a support location to intentionally be mean and hurtful. It's troubling and seems to go against the nature of the system. I don't want to be nasty to anyone or think terrible thoughts (my luck it would slam me back tenfold) but it is just extemely irritating!
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Patrice, so, you're married to a Maryland crab. LOLOL
Traci, you're "heavier than what" remark made me think of what my aunt told me she did when she was very young. She was only about 14 and working (and I mean real life working..full time..live in) for these people with a child. The child had a BM and my aunt told the mom. The mom asked whether it was soft or hard. My aunt, being naive, said, I don't know. I didn't feel it. Okay, so I thought it was funny!
Hey Harley! Did you have fun shopping? Did you buy anything? Hope you're feeling much better today..yes it's the 15th. I fell asleep on the couch watching TV and now I'm wide awake.
LuAnn, I know you are way to nice..but...here's some good'uns..LOLOL I'll probably get kicked off the board.
AND THIS WOULD BE MY FAVORITE FOR THE INTERNET.
Ya gotta love Maxine. How could anyone get upset with this old woman. My dh bought me a Maxine calendar.
Sue, so sorry you are going to be so lonesome while dh is gone. HAHAHA Let us know when you start getting healthy by dieting and exercising. Maxine will set you straight!
DebC, hope you're okay.
I can't go back to page 110 so I'm stuck on 111. Besides, I need to get my backside in bed.
Nite all. Or morning? It's 2 AM!!!
Shirley
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Maxine is my Patron Saint.
LuAnn, I don't know if this would work as a response to the chronically negative and hateful on an Internet forum, but in real life, I have been known on occasion to respond to nastiness by smiling very sweetly and saying perkily, "Jesus Loves You. Have a Nice Day!" I admit, it did nearly get me punched out in a post office in Alexandria, Virginia one time but in general, it's proven pretty effective in shutting people down.
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Harley: Sorry your bleeding has picked up. Maybe going out shopping stirred things up. Take it easy today...lie down with your feet up a bit and see if that helps. Are you feeling weak? I can't remember how long my bleeding lasted after my D/C 11 years ago, since chemo wiped my brain clean and then coated it with teflon so nothing sticks.
Shirley: Those are fantastic! And, yes, I'm married to the biggest Maryland crab of them all and most days I'd like to dip him in hot butter.
LuAnn: If it's on-line I usually type out a scathing response to the person who's p*ssed me off and revise and rework it until I have completely humiliated and put them in their place. Then, instead of hitting submit post, I hit cancel. For some reason, that gets it out of my system. After that I avoid the thread for a day or two. I don't understand either why people come to support boards in attack mode. Makes no sense.
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Hi everyone,
Since my sister in law is here til Sunday, I haven't had a chance to catch up with all ya'lls SUCKINESS... so I'll just say a HUGE THAT SUCKS to ALL!!
We are going to just lay on the beach today, so hopefully that won't cause any problems with my bleeding & cramping.Patrice, thanks for the advice... I'll try to rest. The pain meds don't seem to be helping. Every night I am in pain and have some bleeding... This sucks.... I don't know WHY I agreed to this torture treatment from that mad man!
Shirley,I bought some shorts, but I really NEED more long pants... only they aren't on sale yet. SIL told me to buy more capris and shorts, so I did. These were supposed to be WORK clothes.... I don't think I would feel right wearing shorts, even dressy ones, to work.
I love Maxine, too!! She is too funny!
Oh, and everyone who mentioned before about the medical people who always make you take a pregnancy test before surgery... AS SOON as I walked in the room, the nurse asked me "Is there ANY way that you could be pregnant?" I said "didn't you read ANY of the information in my file/paperwork that I filled out when I REGISTERED??" ... "MENOPAUSE!" Also, I saw the dx info. for this surgery... it said MENO METORRAGHIA... doesn't this mean bleeding after menopause?? I'll have to look it up...
On the way to the beach, I have to stop by work, to check my hours for next week... I don't want to work til this bleeding & cramping stop, but the dr. said on the paperwork that I could go back to work on 8/16!!
Hope everyone has a non sucky day.
Harley
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gsg--That is tooooooo funny.."chemo wiped my brain clean and then coated it with teflon so nothing sticks"....how true, how true! I'll have to write myself a note so I can remember to tell my dh...let's see....where did I leave that notepad?......there it is.....now..... what was I going to write?
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HI Everyone:
There are so many different threads here that you might check out the humor ones for a laugh or smile. Maxine has some priceless comments and I only wish there were some tshirts available. I apologize if any on my posting were downers or offensive. But having a sounding board to vent and rant and rave with those who know and understand is helpful for me.
After my husband died 5 years ago, I found a grief discussion board and it also had up and down postings. In a way, it helped see that some of my issues were worse and some were not as bad as others. One might call it a reality check and no offense meant. And on that board there were some postings that made fun of death and grief and the administrators eventually deleted them, but as in person, there are jerks, idiots, and a**holes out there who delight in upsetting others and love the attention they get by causing the upsets -- and I remember that there is a special place in Hell for them.
GAG: I am not on morphine, so no kicking.. lol.
LuAnn: a gentle hug and a smile for you today. There is no way to avoid the negative people or comments. They "happen". Maybe we need to write a book: "comments to those with cancer - FOR DUMMIES" One lady I know invited me to join her for dinner a few weeks ago (not a good friend, more an acquaintance) and she went on and on about her husband, son, finances and hardly let me get a word in edgewise. Obviously she needed a sounding board and most of my comments were " so sorry to hear it" or " wow, you sure have a lot to deal with". Well....... I have caller id and avoided answering when she phoned. Ran into her recently and said I am dealing with a lot of "issues" myself and busy trying to get my life in order. I will phone you when I have more time.
You are the one who can choose some things to change, eliminate or avoid. And there are other things that cannot be changed or avoided. I could be called selfish, or self centered, but I choose to be good TO and FOR myself. Of course, along the way there are things that do upset or bother me, but I try not to dwell on them and music is one way I can escape. My ipod is recharged each night when I go to sleep.
I am sooo sorry to hear of your "issues" and "sorry" is not the best word: IT SUCKS... I took my can cover with Cancer Sucks on it to chemo yesterday and everyone loved it. 2 words that says it all..
Speaking of chemo: I had MEGA hot flashes with the taxol - my first tx with it - even my toe nails were sweating. Got a shot of steroid which then make the "nether region" burn like on fire - which is what is supposed to do... WTF - sweat, burn... holy cow... Did not get the name of it, but I told nurse - NO MORE of that shit... and they were backed up big time.. started tx at 11:30, ended at 7:30 due to stop taxol, give steroid, wait and all vitals were good, then slow drip of taxol to avoid more s/e. BTW: by the way, I am 62 and thought hot flashes were a thing of the past.
Will close with Good news: tumor is down 50% and if this keeps up, I will have lump instead of mast once chemo is done in october. Hugs and blessings, Nancy
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Awesome news, Nancy!!
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