Im bitchy, I moan, I groan.....anyway.

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Comments

  • sueper13
    sueper13 Member Posts: 360
    edited August 2008

    Thanks, wish, I'm glad she's home at least.  I missed the original post somehow, was it seperate? (I tend to just check my favorite threads, I admit)....what sent her to the hospital?

    Sue 

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    Basically that they didn't know and they stopped the antiviral/antibiotics and she and they felt she'd rest easier while more test are done next week.  I hate that she has to wait so long.  This should be quicker, as we all know, it's the waiting that's the hardest.  Once they find what it is, they can start tx and I'm sure her anxiety level would be lower! I can't imagine what she is going through, not knowing for certain.  Poor girl! I feel so bad...like darn it!  They should move us all closer together!  That support would be better than ANY treatment!  Can you imagine 100 of us, sitting around at Deb's waiting with her! :D

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited August 2008

    OK!  This is the latest post from DebC.  I know she wont mind me pasting it here cause she asked that we keep each other updated on whats going on.

    7 hours ago AlaskaDeb wrote:

    Just have the energy for a quick update. I am home in my own recliner....feels nice!

    We still have no real answer to what is going on. The tests for bacteria and virus have all come back negative. The second test looking for cancer at Mayo clinic found nothing. The chemistry of the spinal fluid says there is a problem, but there is no clear reason for the bad vision problems. Thank God I can still see close up, I just can't be on the computer long or it makes my head hurt worse...

    ANYWAY, my doc has been on the phone with cancer centers in 3 states and he thinks the most likely answer is early mets to the spinal fluid. He said that for some reason the cancer cells sometimes like to cluster around the brain stem and cause a lot of visual problems with not a lot of cancer being present.

    SO, we quit the anti viral and antibiotics since nothing showed on those tests. We ran full CT scans; neck, chest, tummy and pelvis and nothing new showed up. The brain MRI is clear.....so if there is something growing it is still really small and maybe just in a bad place. Since we can't figure out what the heck to treat I asked the doc if I could just come home for the weekend and rest and he agreed. The plan is to have a phone conference with all my doc's on Monday, get me an appointment with a ophthalmologist neurologist in Anchorage, have a PET scan early Wednesday morning, and then maybe squeeze in another spinal tap somewhere in there too. The docs at Mayo said if we got a larger spinal fluid sample they could spin it in a centrifuge and maybe catch enough cells to get a definitive DX.

    So for now it is time for some sleep in my own bed. Please excuse my typos tonight....too tired to correct. You have no idea how much all your prayers and good wishes on all the threads here mean to me. They got me through both nights. I would read a few and then close my eyes and rest.

    More tomorrow

    Love Ya

    Deb C

    Wish:  hahahaha you were one step ahead of me.

    Nicki

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    Sorry I didn't answer this before, sue.  I think what sent her to the doc/hospital was the double vision and headaches, but not sure if that was all.  

    Nikki, tis' okay, I know you are busy! :D

  • MissShapen
    MissShapen Member Posts: 3,963
    edited August 2008

    Yeah.... poor Deb C. All this crap is just so awful. And it's looking like it's probably cancer.... Hopefully, they can nip it in the very tiny bud it appears to be and get the vision probs corrected.

    Nikki, Here's hoping three months of Herceptin works for us and everyone else in our boat, too.

    Soooo, Deboyre... I noticed your rant and feel compelled to comment. :-) Don't get mad at me! I must admit one of my pet peeves is being transfered to a voice mail when I'm prepared to be transfered to a live person. At the company which employs me, we never transfer to voicemail without advance warning... "I'll transfer you to Shirley. If she's not there, you'll get her voicemail and you can leave her a message. Okay?"  If we say, "Oh, Shirley can help you. One moment and I'll transfer you to Shirley." that sets the expectation that Shirley is actually going to answer and is upsetting to the caller.

    My mother is in an Alzheimer's facility and at times I need to speak to the nurse there about her. This is a typical exchange.

    Me: Hello, this is MissShapen, I'm calling about my Mom's UTI and I wonder if there is someone there today I can speak with?

    Receptionist: Sure, I'll transfer you to the nurse's office.

    Me: She isn't working today, is she?

    Receptionist: No, but the LPN should be in there.

    Me: Really? [I've never seen her in there, but whatever.] Okay...

    Receptionist: Thanks, please hold.

    *beep* You have reached the voicemail of the nurse who is never here. Please leave a message.

    Grrrr. I'm trying to find out how she is doing right now.... not in four days when I get a call back.

    So anyway, Deboyre. Perhaps if you set the expectation of voicemail ahead of time, you'd cut down on the number of irate call backs. It's all about what people are expecting to happen. Of course you can't go tromping all over a huge building all day trying to hunt people down, that's just ridiculous. SO if you set that expectation and someone asks you to personally go search for that person, just tell them you can't leave the phone. :-)

    Ok.... that was way too long. LOL

    Miss S

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited August 2008

    Hey ya know what else is a big IOS in healthcare?  Standing at a nursing station and totally being ignored.  It happens all the time to me.  They glance up and look but dont acknowledge Im there waiting to speak with someone.

    OK - its off to the garden.

    Nicki

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    I just can't accept that it's cancer and don't even want to entertain that thought unless they find it definitively in her reports.  I might have my head in the sand, but I'd prefer it that way, than taking the low road this early in the dx.  It just makes me ill to hear about the stage IV ladies fighting this fight! I'm going to hang on to that hope it will turn out to be a SE of a treatment or such!  Pray for it too!

  • luannh
    luannh Member Posts: 350
    edited August 2008

    Deb posted in the mets forum she is resting comfortably at HOME!  She is happy about that but they still don't know what is up.  If I read the post right I think it is Mayo that wants a bigger sample of the fluid to run some more thorough tests and she is going to have another PET scan done to see if something was overlooked.  So our little pirate looking friend is home in a recliner with her pirate patch.  We were trying to think of cool stuff for her to put on it for people to read  :)

    Rock, I was watching some old episodes of sex in the city and your situation reminds me of when samatha moved to the meat packing district.  You need to hook a hose up to your sink and have it ready to go as he comes down the street and WHAM soak his butt as he drives by.  Maybe he will get the point  LOL

    Nicki, no problem is too small in light of others.  Any problem or test anyone has is just as important as anothers!  Glad to hear yours came back clear but I have to say you are losing it because I haven't had any recent tests.

  • lemonjake
    lemonjake Member Posts: 342
    edited August 2008

    Nicki -- Being ignored at the nurse's station. I recommend a combo of holding a loud conversation with yourself, "Oh, hello, Nicki. May I help you?   *Why, yes, Nicki, I do believe you can. I am waiting to see a nurse.   That's great, Nicki, I am sure a nurse is looking forward to seeing you, too..."  and if that doesn't work, start undressing.

    The closest I've come to following my own advice was when I was abandoned  in an examining room dressed in a paper towel, or gown, and with NO READING MATERIAL. After going through all the cabinets and playing with the BP cuff and blowing up gloves (do you know with some practice you can blow them up and put them on your head?), I padded out to the waiting room in my paper towel and said, "Don't mind me! I just wanted to grab some magazines and order in dinner!"

    **** LuAnn, I like the way you think.

    AlaskaDeb eye patch suggestion (where do we post our ideas?): 

    "Behind this eyepatch is an alternate universe."

    "My spinal fluid went to Mayo Clinic and all I got was this eyepatch."

  • heymoose
    heymoose Member Posts: 682
    edited August 2008

    Rockthebald, great suggestions for when you are being ingnored.  They made me laugh.

    AlaskaDeb, you are in my thoughts and prayers.

  • [Deleted User]
    [Deleted User] Member Posts: 344
    edited August 2008

    Deb, you are definitely in my thoughts.  I'm still praying for NED!  I'm so glad you at least home resting in your recliner.  Hang in there girl!

    Wish, I had to laugh at your post.  You come up with some brilliant ideas!  LOL  You are our "energy bunny" here on this thread.  You and your water hoses.  Hey, do you yell at kids when they walk on your grass?  When I was a very young girl we had a lady who did that.  I bet just about everyone walking to and from school had one of those.

    Rock, as usual you make me laugh!  I dare Nicki to do it.  My aunt was so angry one time when she was waiting to see her doc.  She got tired of it, pranced herself with her gown on, knocked on the doc's door (she could hear him talking on the phone), and told him SHE WAS LEAVING!  Well, sir, that doc got off his butt real quick like and took care of my aunt.  I wish she was still here. I so loved her.

    Harley, glad you got your car running again.  If our car "goes out" we won't have one to drive.  We have a Subaru that's been sitting for over a year and won't run, but we're still paying insurance on it.  Dear procrastinator husband says, I'LL FIX IT.  You know, the one who put off finishing my spindles for over a year and put off replacing a little piece of glass he broke to get into the house cuz he lost his keys and I was in San Antonio?...that glass had been out for YEARS!  The car..he says I think it's the thermostat.  Well, darn, buy the cheap part and put it on and see!  I think it's something worse.  And, I'm usually right! But, he's a stupid man.  What can I say.  That's my bitch for the day!

    Oh, and Nicki, thanks for posting about our DebC.

    Sue, again, CONGRATS!  I know you are so happy to be off chemo.  That'll give you a little high ALONG WITH those pain pills!  Shope til you drop while you have the energy!

    Well, I can't go back and read the other pages over again.  I screwed up.  But this time I refuse to post two times and still lose it so I'll have to go back later and catch up with anyone I missed.

    Ya'll be good!

    Shirley

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited August 2008

    Shirley:  Ha you made me laugh!

    doubledogdareyou.gif double dog dare ya image by groovytaterbug

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    No Shirley. Alas I am NOT the woman who keeps a great lawn. The back yard, yes, I have many gardens I tend and keep them okay, but not anywhere near perfect, not by far, more.....lackadaisical....  But I swear, as soon as those guys are done, this becomes an race alley!  There are no curbs, just a drop off anywhere from 1 foot to 8 feet all along the road and that's why it's posted ROAD closed!  Just now, I'm returning from getting kitty food and I've been backing in, so if I have to get out at night or in the rain, I can see where I'm going.  There are NO shoulders on the road, so I have to be careful not to back to far across the road while backing out and at the end of my drive, there are 8 foot deep holes where they stopped worked friday night.  So back in the drive.  So there is a car (not a car that lives on the road, following me through, so I stop in front of the neighbors drive and wave him past me.  He won't go.  I stick my arm way out and wave again. No go...he finally backs into the next guys drive and turns around! What an idiot!  There are a lot of those type on the road.  Last night someone hit one of the orange barrels with the BIG blinking light on top! Threw it into the yard before I even went to bed at midnight.  Drunk drivers comign through from teh casino.  So, I was surprised there were a couple of cars in that ditch of 8' by 20' out front this morning.  Idiots!

  • luannh
    luannh Member Posts: 350
    edited August 2008

    Shirley you joked about being one of those people who yell at kids who walk on your grass.  It must have been about 2 summers ago a man killed a teenager that was on his grass.  The kids were little thugs who would intentionally walk on this mans grass because they knew it irrated this guy.  One day the guy came out with a shotgun and the kid was dead in seconds.  To me that is nuts but nowadays you have to be careful!

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    Oh my!  Yes, I wondered if I'd get a response like that from someone who got their $40,000 SUV all muddy on our street :)  Thank You Lord it rained buckets today, so there are still puddles out there!  Many have come down, and turned around rather than wade through it!  Smart people!

  • drcrisc
    drcrisc Member Posts: 134
    edited August 2008

    Glad to read only about minor suckages today - but suckage is suckage.  I hear you about the "loudness" factor.  We live right off of a major street in our town and people think our street is an extension and drive way too fast, regardless of the "residential" part!  And don't get me started on the motorcyles!  (No offense, Felicia, but you will probably remember your "neighborhood etiquette", as Rock put it.)

    DebC - So glad to hear from you and that you are home!  More {{{{hugs}}}} to you and positive thoughts about NED. 

    Rock - LOL at the dr. office story - too funny and I will have to remember that for sometime. 

    Shirley - I hate it, too, when I miss some posts from the other page, but now if I go back I'll lose this one.  Grrrr. 

    Oh well.  If I missed anyone - THAT SUCKS!  My IOS is post-chemo stuff - tired, headachy and did anyone have total body ache?  Not bone pain, but my jaw aches and the only way to describe it is, my skin hurts.  Especially from my shoulders all the way up into my head.  Ow. 

  • GramE
    GramE Member Posts: 2,234
    edited August 2008

    HI All:

    Thanks for some early morning laughs and so sorry for all the IOS you are having.   My confuzzled brain cant remember everything to respond to, but the Dr office story is hilarious.  I need to remember to have conversations with myself OR with my invisible friend  when I am being ignored.  

    Today's IOS is very sore and cracked corners of my mouth - nothing new, but I have tried vasoline, chap stick, vitamin E, Carmex and zinc oxide.   Dang it anyway.  My onco says be grateful that is about the only se you have -- ok, but it hurts...   Go to sleep with gobs of gunk on the corners of my mouth, wake up, yawn and big ouchies.   My lips are satin soft and not cracked, but not the corners.   then there is no one to kiss with these satiny soft lips either...

    My body aches, but at age 62, that is also nothing new.  I crack and creak going up or down stairs and feel like the crooked old woman in that nursery rhyme, or was it an old man?   

    Oh, I must not forget my sore toes.  The little toes on both of my feet feel like an elephant stepped on them.  I am almost ready to chop them off.   Barefoot is ok in the apartment, but outdoors it is sandals but they still hurt.   

    And last night at bingo, one of the callers comes up to me, sits down and says what is wrong with you?  I thought we were friends.   I only know him as Jason, one of the bingo callers  - a very large young man, who gave me his business card long ago because he sells cars and said he would give me good deal if I needed one (which I do not).  ok, this is a long drawn out story:   His eyes are really huge and he looks like he is gonna hit me or something.    I back away a bit and he says you did not tell me you have cancer.  I say I do not go around broadcasting it.  But YES, I am doing chemo, and I am bald and I am doing good.   He gets a big smile on his face and say, ok, I am glad and gets up and walks away.   

    Thanks for letting me vent a bit.  HUGS to everyone, and God Bless.  Nancy 

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    Hm....{{nancy}} sorry about the SE's, they sound painful.  With the lips.  I've heard NOT to use petroleum in or on and mucous membrane as it destroys, so stop the vaseline.  The ONLY thing I've found that worked, is a chapstick with aloe and lanoline in it.  I put it on every night even now, b/c I sleep with the A/C with all these hot flashes now and so I get even more dried out!

    That man sounds like he's not playing with a full deck for goodness sakes.  I'm surprised he didn't want to hear the details! What a nerd!  OMGosh! I can't imagine being accosted at Bingo from someone I know from just being a caller!  Too strange! Life is soooooo strange when you are doing the cancer walk.

  • sueper13
    sueper13 Member Posts: 360
    edited August 2008

    Nancy,

    I feel for you on the lips, sister.  Mine are dry as well.  I buy this organic lip balm by EO, it's the only kind I have found that doesnt make my lips peel off and get worse.  My skin is sensitive to everything so I have to be really careful, but I agree with wish--stop the vaseline!! Are you sleeping with cool air directly blowing on you? Is it also possible you are sleeping with your mouth open?  Dry mouth se's suck, that is for sure.  I jsut try to keep everything as clean and hydrated as possible, can't stand the taste of the biotene or oasis rinses for dry mouth.  I just brush my teeth a lot and drink a lot of water.  BTW, sorry there's no one to kiss with those satiny-soft lips, that sucks!!!

    I have only minor suckage today--neulasta/taxotere bone pain in my sacrum and legs--down to my knees. I did walk this morning, about 20 feet further than I did yesterday.  I think I am down to just over a mile in my walk, from three in the beginning of chemo. I am just doing what I can, but I think I can add 20 feet or so a day until I get back up where I was.  It just affects my mood so positively.  I have to set my clock and get up and out early because it is in the 100s here during the day...but that little walk makes my whole day better. So I'll be hibernating in the recliner with pain meds again today.  

    Hope everyone's IOS are small and manageable--Cris-hope you feel better.

    Anyone I missed, catch you next time, promise.

    Sue 

  • AnnNYC
    AnnNYC Member Posts: 236
    edited August 2008

    Nancy, sorry about your mouth sores -- I wouldn't use Carmex either.  It has a petrolatum (vaseline) base, plus camphor, menthol and salicylic acid -- all of which are kind of harsh (it was invented to dry up cold sores).

  • lemonjake
    lemonjake Member Posts: 342
    edited August 2008

    I had an IOS until I read Sue's "temperatures in the 100s" remark and then it vanished into thin air.

  • SherriM
    SherriM Member Posts: 90
    edited August 2008

    Yesterday was the pits, spent most of the day in tears, firmly entrenched on the pity-pot.  What set it off was a trip to Walmart....three times I ran into people from church who didn't recognize me.  When I wrote about going to the guild meeting the other day and how so many people didn't seem to recognize me, would look at me and turn away with no hint of recognition, I kind of laughed it off.  But yesteday it just put me over the edge...WTF?  Have I suddendly become a non-person?  I just wanted to shout at them, wait a minute, don't turn away--YOU KNOW ME!!!  Cancer seems to have rendered me invisible and I no longer exist.  And they say "it's only hair"!  HA!  If it's only hair, why can't you see me now that it's gone?  Did you never once before look into my eyes and see me there?  At my smile and see me there?  How is it I can make eye contact with you, smile and speak to you as one who knows you, and you turn away as if some strange stranger has made contact...

    As you can see, I've not moved far off the pity-pot..... 

     Rock--do you think Identity Crisis is another stage of chemo?

    DebC--I'm so glad you're home...keeping a candle lit for NED! 

    Nancy--I know this sounds wierd, but I use Bag Balm for all lip problems--the stuff is awesome.  It's thick, gooey, and doesn''t taste real great, but works wonders.  I slather some on at bedtime, and by morning things are usually much improved, if not completely resolved.  Don't know what's in it, but it works so well,  don't really want to, if you now what I mean. 

    It's a gorgeous day out, so I think I'll get dh's crowbar and try to pry myself off the pity pot and venture out to the garden........... 

    Blessings to all,

    Sherri 

  • magsandmattsmom
    magsandmattsmom Member Posts: 43
    edited August 2008

    Sherri big ((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))) girl.  That completely stinks and I'm soooooo sorry you were left feeling that way!

  • lemonjake
    lemonjake Member Posts: 342
    edited August 2008

    Sherri, Sometimes I have been known to clutch the pity pot very tightly, supergluing myself to it, if necessary, until I have no choice but to move on.  In fact, I often move off the pity pot just so I can hop on the Crazy Angry Train.

    EDITED to put this back in which I removed earlier. (Thank you, Traci. I was embarrased to admit I did this. Oddly, your response helped A LOT.):

    Today I yelled at a half dozen, 20-something European tourists. I will spare you the details (tho I was justified, trust me, I was justified). I stopped, stuck my hands up next to my face, semi-pointing, semi-throwing down a gang hand sign and got about 2 inches from this woman's face and shouted: "It's called BALD, people. It's called CANCER for crissake. STOP STARING."

    I don't think it made a bit of difference. I think it only confirmed their opinion that I am not fully a human being. It really hurt my feelings. Especially since I had even tried the ol' "smile at them and maybe they will stop staring and smile back" strategy. I just felt like a stupid, smiling freak. So I yelled at them because I'd rather feel angry than hurt.

    Speaking of which: Where are the bald-headed, eyebrow-less, steroid-faced women dealing with chemo and its aftermath in ads or crowd scenes? There are probably at least as many of us, I suspect, as there are kids in wheelchairs but while the latter show up every now and then in an ad, we don't, do we?

  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 567
    edited August 2008

    Hey everybody,

    Miss S "you have reached the VM of the nurse that is never here" CRACKED ME UP!

    Rock, LOL!! Edited to add: the LOL was for your previous post. You and I were posting at the same time obviously. This post of your sucks. Some people suck. Those are the ones that just can't relate. It's so easy to see who has seen cancer up close and who hasn't.

    Sue, I can totally relate to your Tax pain. No now cuz I'm done but, when I was doing Tax I had severe leg and back pain. It was by far, the worst of my chemo. (((((hugs)))))

    Sherri, sorry that no one recognized you. When I read that I thought.... I didn't recognize myself when I was bald. I can remember looking in the mirror every morning thinking 'who is that'? It sucked.

    I just got off the phone w/ my 'lil sis. She sent me pics of her bruises. OMG. That poor girl. She looks like she was beat with 10 baseball bats. It just makes me cry from my core that I am not there for her. It sucks that I can't afford to just hop on a plane. SUCKS. For those of you that don't know....she had BC 10 years ago. After mine, and after testing + for BRCA 1, she had a proph mast of her 'good' breast with tram flap reconstruction. Well, that dr messed her up bad. It was horrific. That's the only word to describe the results. She finally was able to see another PS and just had corrective surgery. While her shape looks a gazillion times better, she just had the surgery last Monday and is bruised like crazy.

    She emailed me a pic. If anyone wants to feel better, PM me and I'll email it to you. I was gonna post it on here but after thinking about it, thought I would either and/or scare the hell out of a newby or get kicked off the board.

    My IOS (besides seeing my 'lil sis all beat up) is that I have to compile more paperwork for my bankruptcy. GAWD will this ever end? It used to be that you could just sign on the dotted line and boom: your done. Not now, even with my cancer, being defrauded by a mortgage broker that put me out of business and all the other sh*t...the BK courts and an investor in my business, just do not want to let me off the hook. It sucks.

    Gotta go....I'm gonna check out some other threads and see how everybody is doing.

    Traci

    oh yea, PS, who is from the Dallas area? Does it EVER FREAKING RAIN HERE????????????? Gawd...give us a break already. Rain, please.

    Oh and.....the Cowboys stunk up the place last nite. I know, it's pre-season but, it still sucked. They need to stop trying to be "stars" and try to be football players.

    Hugs everybody.

  • otter
    otter Member Posts: 757
    edited August 2008

    Traci, watch the Olympics instead.  It's lots more fun than NFL football.

    Sue, I hear ya on the Taxotere/Neulasta pain.  Since that was my main chemo regimen (Taxotere & Cytoxan, followed by Neulasta), I had a hard time distinguishing between the Taxotere pain and the Neulasta pain.  Didn't really matter which was which, of course.  When it hurts, it hurts.  Am I the only person here who was surprised by how much pain you get from chemo? 

    Sherri, that is so sad...  I would want to walk up to those people, and either 1) punch 'em in the nose, or 2) introduce myself:  "Hi, I'm otter.  Remember me???"

    Time out:  it's kind of weird to be watching all these "VISA" commercials during the Olympics and hearing Morgan Freeman's voice.  Wasn't he in a really bad car accident?

    OK, I'm back.  Sherri, what are you wearing on your head when you are going around town incognito?  I just wear a scarf or a ball cap and hoop earrings, and I grin a lot, even if I don't always feel like it.  I figure the weird look (or the weird grin) will earn me a double-take, and so far, it's worked--only one person has failed to recognize me.  I met that person in the hallway of the building where I used to work.  He looked at me, looked down, and walked right past me.  I've known him well for 25+ years, so the whole thing was sort of funny.  It wouldn't be nearly so funny if it happened more often, though.

    The hair may not be "everything", but it's a huge component of our identity.  For me, though, the loss of eyebrows and eyelashes has changed my appearance way more than I expected.

    Why did I expect otherwise?  Actually, until I started hanging out on the BCO boards, I never knew I might lose my eyebrows and eyelashes at all, much less completely--and not until 6 weeks after my last chemo tx.  My onco warned me, "You'll lose all your hair on Taxotere & Cytoxan," but I never imagined she meant that hair!

    otter 

  • drcrisc
    drcrisc Member Posts: 134
    edited August 2008

    Traci - That so sucks about your lil sis and...filing for bankruptcy!  Could you have more on your plate, girl?  Sheesh...Don't know about the rain, though - we don't get any here in the summer, either. 

    Nancy - I agree with Sherri, that Bag Balm is great (and does not taste so good) but it also has a (partial) "petrolatum" (and lanolin) base.  It was originally used in Vermont for dairy cows.  The directions say (and I kid you not!):  "After each milking, apply thoroughly and allow coating to remain on surface."  We have it because my little dd would get terrible diaper rashes and the pediatrician described it as "axle grease".  If you can stand the taste, it just might work. 

    Sherri - Everyone needs a turn on the pity-pot.  We wouldn't be human without it.  We see you and send you {{{hugs}}}.

    Rock - No IOS is too small for comment...even in the face of 100 degree weather!  Post it, my friend!

    So can I just say I feel very supported again in my anxiety about the upcoming Taxotere and that my reaction to said comments earlier this week was not an over-reaction?!  "Piece of cake", my ass!  (Oh my, that sounds interesting...hmmmm).

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    A BIG THAT SUCKS to all your IOS's!  Ladies, my hope is a pass from this suckage for a long time after it's over!  You shouldn't have all this going while going through and /or recovering from this danged beast tx!  Keeping you ALL in good thoughts for a better day tomorrow!

  • lemonjake
    lemonjake Member Posts: 342
    edited August 2008

    Traci --

    Bankruptcy? Sucks.

    Paperwork? Sucks.

    Being defrauded? Sucks.

    Cancer? Sucks.

    Udderly SMOOth cream with UREA? It does not suck. It is slowing the "squamation" (or whatever that's called) of my feet. 

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited August 2008

    ... The story that LuAnn told about the teenager getting shot for walking on that guys grass was pretty incredible.  Amazing how anger can take over a person thinking clearly.

    ... Just going through road construction myself I sure understand where you are coming from Wish and it sure sucks.  People totatlly ignore the road closed local traffic only signs.  Imagine that they did this when school was in session and that was the main crossing for the children.  Wonder if those in charge of it put any thought to it.  Anyways - a bug that sucks for you, it seemed like it took forever to get done.

    ... Vasoline can also get into your lungs believe it or not.  So best to stay away from it like others mentioned.  Stay hydrated.  Drinks lots of water.  I also found sugar free popsicles worked great.

    ... A big that sucks to you Sue as I consider it a double whammy to be having bone pain from neulasta and taxotere!  Only thing good about it, is that you wont have to go through this part again!!  Still dancing for you finishing your treatment.

    ... More taxotere!  Cristine I thought taxotere was hard but for different reasons than the A/C.  I never got any nausea with it.  I would get bone pain on the 2nd to 3rd post chemo day.  Once I got the routine down, I would start taking pain medication before the bone pain came.  It helped but still thought it was hard and if anyone called it a piece of cake I would probably have choked them.

    ... Im still sitting here laughing pretty hard with Rocks talking to yourself routine when being ignored.  That was funny and I may try it.  Hope you felt better after getting it all out.  I lost it once in an Office Max.  It was pretty intense.

    ... I definitely remember getting yelled at when I was a kid for walking on someones grass.  Shirley you made me take a trip down memory land and I could picture that crabby old lady standing on her porch with her arms crossed when we were walking to school.  I even think she had a mole on her chin with hair growing out of it.

    ...I do believe Nancy you might have the biggest suckage for the day.  The guy with the bulging eyes sounded scary and insane!

    ... Hair!  Give me a head with hair.  Long beautiful hair!  Sherri my hair has always been a big part of my identify and was probably one of the hardest things for me with regards to treatment.  A bug that sucks for people ignoring you!

    ...Oh Traci you made me laugh talking about the Dallas Cowboys!  Although Im hopeful they will do well this year.  This whole bankruptsy thing sucks.  I came close a couple of times myself and figure I will probably be in debt for the rest of my life.  Its ashame - they dont make it easier for people who have had to deal with major health issues like Breast Cancer.  Hugs for your sister and you.

    ... My biggest surprise with chemo was the serious bone pain I got from Neulasta.  I almost through something at the television when I would see their commercials "Im ready for my chemo."  Gawd it made me crazy.  So Otter I too was surprised about the bone pain, from taxotere also.

    The week-end is almost over - hope you have a great evening.  And a big that sucks to everyone that needs it.

     weekend-over1.jpg picture by chemosabi1

       

    know your past - look into your present conditions. If you want to know your future - look into your present actions.