Im bitchy, I moan, I groan.....anyway.
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Hey, Felicia! Waving back... (also sleep-deprived and deadline-beset)
Otter has been on other threads, but Dani's last post was Aug 1 -- she did say she and DH were leaving for 2 weeks at the beach...
Dani, hope you had a great time and are feeling better!
Otter, hope your absence from this thread means no Incidents of Suction ( I believe that is the official scientific terminology, coined by Diane/badboob67)
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Hey all,
I got the results from the CT scan, and the nodules in my lungs are unchanged, which means they are granulomas and nothing to worry about! YEAY!
Thanks so much for all the support and prayers and listening to me when I was making myself crazy with worry.
Harley, hope you're doing better.
Hanna, so glad you are posting regularly again, your posts ALWAYS make me smile.
Hope everybody has a great evening.
Love,
Sue
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Sue,
YAY!! Glad to hear that those thingies in your lung are b-9! way to go!
Hanna
The bleeding seemed to have stopped... but I was weeding out in the garden this afternoon, and now I am having that lower back pain I used to get when I had my period, and it seems that the bleeding is starting again... I hope that I won't have to give birth to a sea pod!! YUCK!
Hope everyone has a wonderful evening, with no IOS!
Harley
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Hey .... I think I started a new thread about my FREAKING INSURANCE but the STUPID laptop FROZE ON ME!!!!!!!!!!!!!!!!!!!!!!!!!!!!
GAWD...............honestly................what next???????
I'll be back......................
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Sorry.....
Tami, Is that a crying angel in your avatar? Either way....it brought my tears to the surface. I am so upset over my insurance crap!!!!!
Diane, I thought that was a cow in your avatar!!! You gotta love UPS guys....
Cheryl, I feel your pain on the expanders.....hugs......
Felicia, your "just kiddin'" made me laugh.
Sue, WOO HOO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Everybody else, ((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))))))) I'm having a serious hotflash and have to clean the kitchen.
Like my original post...............EVERYTHING SUCKS right now!!!!!!!!!!!! I saw Christina Applegate on the news tonite and she said "I was pissed off!" Amen sister!!!!!!!!!!!!!!!!
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Hi, this is otter. I'm still here. I haven't posted lately, 'cause until yesterday I haven't had much suckiness (or is it "suckage"?) to report.
First, though: there is way too much suckiness going on here!
Sue, I'm glad to hear your lung stuff is just granola after all. (Thanks to Rock for coming up with such wonderful names to replace those boring pathological terms.) Harley, if you are weeding the garden, it won't be a "sea pod"--it will be a "seed pod". Anybody remember Invasion of the Body Snatchers?
Felicia, you and I are both going to go through Olympics withdrawal after next weekend. Here's the "official" schedule: http://results.beijing2008.cn/WRM/ENG/Schedule/index.shtml
Diane, I am thinking the dog biscuits might not have been the gift you thought they were. That's an old but effective trick--carrying dog biscuits to use as treats when you're walking through a neighborhood with potentially aggressive dogs. I used to live in a subdivision where a neighbor had a nasty-acting dog. It was mostly bluff, but it was effective. I would walk for exercise in the evening, and "Lucky" would roar out toward me, barking ferociously. I did some experiments and learned that if I flipped him half a dog biscuit, he would quit barking and just watch me. After a week or so of that, he started looking forward to my evening walks. He would trot to the edge of his yard and "woof" a couple of times, then smile at me with those doggy lips and wag his tail, waiting for his biscuit. We became great friends. He still tried to attack everybody else.
MissS, I am so sorry about your dog. They are such good friends, but their lives are way too short.
As for my suckiness... As some of you know, I had my first post-dx mammogram (6 months post-mast/SNB) yesterday, along with recheck appts. with my onco surgeon and med onco. It was a good news/bad news day (but not TOO bad).
The good news: 1) the mammo folks didn't even think about doing a mammo on my flat side, so nobody had to bail me out of jail for assaulting the tech; 2) the radiologist said there wasn't any evidence of tumors, or changes from the mammo I had in January.
The bad news: The radiologist also said my remaining breast is so dense that "you could drive a Mack truck through there and nobody would see it." She told me I'll have to rely on diligent self-exams and report any new lumps, so they can do ultrasound to check 'em out. She was very sympathetic, but I left there awfully worried. My onco surgeon confirmed that I am only going to be monitored with annual mammograms and clinical exams (and my own self-exams). She says there is not enough evidence to justify using MRI for screening, even on dense tissue like mine. Keep in mind that my original BC, a 1.8 cm IDC, was never seen on any of the mammos I had.
Good news countering the bad news: My surgeon said the Arimidex I'm taking should cause my breast density to decrease. And, my onco is pleased with how well I'm tolerating the Arimidex, which I've been taking for 2 months.
OOPS--more bad news: My onco said the DEXA bone density scan I had last month indicated I've got osteopenia (already). She's not worried about it--it's very early; so she wants to repeat the DEXA in 2 years and not put me on a bisphosphonate yet. I'm supposed to keep up with Citracal and Vit D and get more weight-bearing exercise, which helps with strength and balance as much as anything else.
Sort of mixed news: Y'all have heard ad nauseum about the cording I developed in my left armpit and arm soon after my last dose of Taxotere & Cytoxan. That was 2 months ago, and it isn't a bit better. My surgeon agreed it was cording, agreed that I had some fibrous adhesions in my arm along the cord, and wrote me a referral for PT/LE therapy. I'm waiting to hear when I can start. My surgeon also said she didn't think the late-onset cording was indicative of a recurrence of my BC in my armpit (my 3 sentinel nodes were negative); so she didn't think it was necessary to do any scans ... yet. The bad news is, I hadn't even considered the possibility that the new cording might be due to mets. Sh*t.
So, good news/bad news. But that's fairly typical of this BC experience.
Hugs to everybody, and sorry this is so long...
otter
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Hey, Otter, are there any digital imaging centers in your neck of the woods? The last (last one necessary, that is) mammo I had was done digitally on my very dense breasts and I saw it next to the film mammo taken a year before. It was like night and day. And dang if there weren't calcifications that turned out to be the big C...
Just a thought...
Sue, good news about your scans! Granola is a good thing ...
Sorry about your insurance, computer and football woes, Traci. It all sucks for sure...
Hanna, your bleeding issues sound like the perfect excuse to me to stop weeding and doing housework. It still sucks, but I'm just sayin'...
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Hi All,
Hey Felicia - Nice to see you here, LOL! Hummm I'm bitchy,I moan and I groan thread is great to get all out and laugh at the same time. I hope you are well.
I had the same experience as you with the digital mammo, the very first time I had one digital, it came up with - yup, we need to see you again for more films and yes it turned out to be the big C, That started my journey.
Otter, please ask for your next mammo to be done digitally, they can zero in on any spot.
Sue, so happy for you that all is clear on your scans.
A great big hug to all !
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Hey Otter, nice to hear from you girl! That's the ONLY good thing about having a bi-mast...you don't have to put up with the sh*t you are going through. Sorry girl.
You are right Des....venting here not only gave the unsuspecting potential recipiant of a phone call from me when I got that letter a break, listening to you guys, calmed me down.
Felicia....your pretty funny. I bet you loved it when my Boys lost! Have you seen hard knocks? What a bunch of crap. Every, single time they put them in front of a camera they lose. How many times is it going to take for them to learn???? I hope the same doesn't happen to Brett.
Hugs everybody, my nerves were shot, I took a pill and I'm gonna go pass out. I'll worry 'bout my crap tomorrow.
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Hey, thanks to everybody who has suggested that I try to get a digital mammogram. That's what sucks.
The mammo I got yesterday on my remaining breast ("so dense you could drive a Mack truck through it and not see it") was a digital mammo. So was the one I got in January, that did not show any evidence of my 1.8 cm IDC. These were done at a very sophisticated breast clinic at a major university hospital/NCI cancer center, where they have dedicated radiologists doing nothing but reading breast images. They have my old, film mammos to compare to the new, digital images; but apparently everything looks like haze. Even photoshop can't fix 'em.
Now I'm beginning to wonder why my breast tissue is still so dense, 5 years after I went into menopause. Arimidex might help, but is there some other source of estrogen in there that's causing trouble? Maybe I should try to get my onco to run an estradiol level (is that it?) next time...
otter
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Hello Otter,
Glad to hear from you again. Sorry for the good news/bad news routine, but I am also starting to get used to hearing that kind of news.
Thanks, Hanna!
I am starting to think that now that the pathology was benign, I'll NEVER get any gyn to take these old useless parts out!! However, I am still glad that the report was b-9!
Thanks for the lengthy description of your birthing your sea flower! I just had some terrible cramps, but it was nothing that a good b.m. didn't resolve. Maybe this was my 'sea flower', mixed in with all the rest of that crap...Enough details... I know, T.M.I.!!
Thanks again!! I am hoping that things will settle down again soon.
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Hanna,
Forgive me, but when I read your post about the size of your fibroids being described in terms of fruit all I could think of was the "uterus cozy" photo that DebC posted a while back---wearing a Carmen Miranda hat! BWAHAHAHAHAHA....Yes, I am twisted and am tormented by such strange thoughts regularly...
No IOS today big enough to gripe about (woohoo!)
((((HUGS)))) and "THAT SUCKS!" to all.
Diane
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OMG, I don't know what's funnier--Rock, explaining how pigs oink, or Hanna, practicing oinking to see if Rock's method works. I've been laughing so hard at Hanna's description of the Oinking 101 class that my ribs hurt.
Thanks, everybody. Once again, despite all the stories of sadness and sea flowers and insurance woes, etc., I can log off feeling like this day has been OK.... especially after the fantastic high-bar routine I just saw Jonathon Horton do.
otter
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You guys are cracking me up!
Miss S
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Hanna,
You are a great writer. I, too was laughing out loud at your description of Oinking 101. My husband gave me that "what are you laughing at and will you share?" look, so I let him read ONLY your post--and once he got into it enough to see what it was about, he started oinking. And let me tell you, he is a talented oinker from way back. So he oinked all the way through reading your post, and I was laughing so hard my stomach hurts!!
Laughing is very, very good.
Love,
Sue
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Sorry for all the suckiness that's still out there but congrats to Sue!!!!! And you guys are too funny tonight! "Oinking 101?!" Too much, Hanna!!
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When Christina Applegate oinks on network television or talks about her seaflowers THEN I will believe we are making real progress in the "fight against breast cancer."
I've got a D&C on my horizon (w/ a biopsy to rule out cervical cancer), something my onco ovarian guy let slip today. Thanks for telling me, man. A friend suggested that my surgeon's plans for my womanly parts resemble those boardwalk games where you lower a metal bucket and try to retrieve prizes. Harley, I realize this ain't much of a referral, but I'm pretty sure that if you have enough quarters, I know some docs who'll take out just about anything!
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Traci - I'm not sure what my avatar is; I just liked the colors in the wings. My daughter says its a fairy sitting in water. Maybe I should find a new one----I never really noticed before, but it does look kinda sad! But, just so you know, I'm not sad-----just tired!!!
I love reading this thread! Ya'll are great!
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Tami
I thought it was a butterfly... Now I want to know what it is!!
Good Morning, hope everyone has few IOS today!Harley
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hey everyone, just wanted to drop a note and say "SORRY for all the IOS's" ~ been so dog ass tired from my treatments I haven't been keeping up and I'm at lunch and can't post individual hugs and Kudos for the funnies so I'll give a big group hug and a group knee slap for the stories...you guys are the best...I hope everyone has a great week...today is my best day and tomorrow I go back this sh*t suks! 9 more to go.....
Nancy, how the heck are you making out with these rounds? You sound like you have so much energy and I feel like I fell off a cliff!!
Oh, well...ain't no point in crying cuz I ain't got no tissues! (philly grammar)
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at a glance Tym's avatar looks like a Gremlin, remember those cute little furry creatures. Just don't feed them after midnight!
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Bonnie: I am doing amazingly good. How are you doing? I have taxol and herceptin # 2 tomorrow (Thurs) 9:30 am - when is your next one? Now that I know who you are, I look for you. I was looking for you on the NOVA thread.
Someone suggested the s/e I had with the nether region be described as the Johnny Cash song: Burning Ring of Fire -- perfect !!! Here's to a s/e effect free, pain free, and restful sleep day/night for each of you.
HUGS, Nancy
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Sorry 'bout my nervous breakdown yesterday.
Hannah, your funny!!!!!!!! I can't find Rock's Oink post.....................
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Traci, Rock's "oink" post is on Page 114 of this thread, at Aug 17, 2008 05:28 pm.
The weird thing is, it doesn't show up in a search! Some kind of bug to report to the mods???? Can it possibly be the ONLY post that eludes the search function?
(Oh well, as I said in the "are you an optimist?" thread -- I'm not an optimist or a pessimist, but kind of an engineer obsessed with whether and how things work... Don't mind me!)
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OK....only read the last page. My vision is still too screwed up to be on the computer for long. I huge THAT SUCKS for all the crap that is rolling around and a big thanks for all the laughs....you ladies always make me smile even when things SUCK!
Let's see, I have listed out all my suckage on other threads. even I am tired of listening to my shit! I do have to say that I am SOOOOO sick of not being able to SEE! The double vision is getting a tiny bit better, but I am still not functioning. My sister took me to the grocery store (the thought of driving myself is too laughable....do I aim between the two cars I see or what?) I ran into 2 people with my cart in the store, caused a major avalanche of potatoes and couldn't tell I was trying to scan my ATM card instead of my visa! I think I will wrap my ass in bubblewrap and stay home......nope, can't do that....I have another spinal tap chemo in the morning......grrrrrr
Cancer sucks!
Deb C
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What a riot you all are...been working a lot so sat down tonight to catch up, and there was just too much to comment on it all. To all those keeping us in stitches...what a hoot!
But also, there's a big "that sucks" to all with IOS.
Sue--Hiphiphooray for granola lungs!!!
Otter--I'm sure you've posted it somewhere, but if they didn't see you're tumor on mammo, how did they find it? Mine didn't show up on mammo either (combination of dense breasts and tumor extremely close to chest wall) mine was found on MRI. Both surgeons, my real one and the one I fired, both said I would be followed on MRI the rest of my life, which is why they agreed to do a lumpectomy. Even though they didn't find yours on MRI, you'd think a good enough case could be made to your insurance company, seeing how you have dense breast tissue and a hx of tumor not seen on mammo!! I wonder if that could be appealed?
I only have one IOS--tx 3 of TC is tomorrow, and if it wasn't for living in steroid lala land today I'd be in a mad panic. Bright side--after tomorrow, only one more!!
Blessings to all and an IOS-free evening!
Sherri
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It's been awhile, but I had to come back to this thread....It all sucks. All of it. My problems are small, but they are there. just got back from 11 days camping (in a trailer, with AC and an espresso machine ). Lovely up til the rain started. Drenching rain. Anyway, before I left, I had my annual & the doc ordered an MRI (alternating these with mammos for 3 years). 24 hours later, there was a call from the radiologist that the little something that showed up on good boob last year was still there & making noise, so they want a biopsy. Which is tomorrow morning. TG I had this time off to rest & relax. I know it's probably nothing - it was biopsied last year & was B9, but it doesn't make it easier. Hoping for quick pathology reports.
Oooh, and next Wednesday I get my first colonoscopy! Fun times!
Can insurance really say no to a test that could find cancer...when you've already had cancer? I know, I know. Stupid insurance companies. So short sighted.
To all - it sucks. I wish Deb could see but one car (although your story of the trip to the grocery store made me laugh out loud), and Otter could get a bit of peace of mind from a MRI.
take care everyone...
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