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Im bitchy, I moan, I groan.....anyway.

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  • EWB
    EWB Member Posts: 592
    edited August 2008

    Hi,  Haven't posted here but seems like the right place.  Went to dentist because of a bump on the gum.  He didn't know what it was and sent me to oral surgeon.  He decided to do exploratory to try and figure out what was going on.  After cutting, scrapping, and I don't know what else, he decided the root of the tooth (previously root canaled and capped) was "blown out" all the way....infection etc.  GREAT.  I am on Zometa   He sewed everything up and I go back next week....he is trying to figure out what to do.  Wants to talk with partners, oncologist and the people who are researching this stuff.  Can't not treat it but options are not great.  Probably have to pull the tooth, or cut it to the gum line, hope he can get root out with out cutting the bone. No Chance for replacing the tooth, maybe a bridge sometime down the road.  Possibly leaving the space there. If it was a "normal" person they would just yank the tooth and br done with it.  Took bump for biopsy, just to be safe because of my history.  I hate having to "take my history into account",  I just want to go back before bc.  This seems like the beginning of more complications and issues.    Thinks this was caused by grinding/clenching of teeth (wonder why), at least OS understands the reason why.  ARGH.                  

    Thanks for letting me vent.

  • SherriM
    SherriM Member Posts: 90
    edited August 2008

    Deb C--it all DOES just SUCK!!   The thought of a spinal tap gives me chills, and the thought of spinal tap chemos kind of puts me over the edge....myself, I'd need more than booze and chocolate....I'd be hitting Trish up for some of that Xanax :-)   

    EWB--Welcome!  The dental problem sucks, all that cutting/scraping sounds horrificly painful and must really suck, the unknown sucks, the "history" sucks....vent (or like most of the rest of us, downright bitch) away!

    Sherri 

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    {{DEB}} so sorry you're having a sucky time with so much chemo coming and going! Many {{hugs}}, gentle and well placed sweetie!

    To all who need it, as I've been gone a several days.... A BIG THAT SUCKS to you each!  Hate that any of you are dealing with any bit of this crap happening!

    Rock...I think we need the mailing addy of the person reading in on your post!  How small they must be! :(

    My IOS!  OMG!  Dh's boss cancelled the company's insurance as of July 15!!!!!!!!!!!!!  I've been ill thinking about it and just so disgusted and so ready to pack up my bags and run away, or grab the nearest and dearest shovel and head to the shop, or just quit, that's it ruined my entire outlook!  I hate it all! ;(

  • AnnNYC
    AnnNYC Member Posts: 236
    edited August 2008

    Wish, that sucks horribly!  Did you just find out???  No notice?  Is that even legal???  I would be totally flipping out...

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    Yes, last wed when I went to the pharmacy to pickup dh's meds and my arimidex.  He (the boss) said it's a forms issue he didn't do for an audit, but doesn't matter, as we are without insurance even though we pay out 190/bi-weekly from his check for it, including last fridays!  I'm so afraid they won't have to take me on when they reinstate it, IF they'll even reinstate for the entire company.  I'm just sick about it. 

  • Harley44
    Harley44 Member Posts: 2,126
    edited August 2008

    Wish,

    That SUCKS!!  I can't believe that happened!!  They can't do that!  It has got to be illegal!! 

    ...I'm gonna go get my shovel!  What is the address where I can find this imbecile?!!

    Harley 

  • AnnNYC
    AnnNYC Member Posts: 236
    edited August 2008

    Wish, that IS illegal to deduct employee contributions and fail to pay the insurer.  The hospital where I work got in trouble for doing exactly that -- in New York it was the employer that was in trouble -- employees still had benefits once employer paid up. I don't know about Michigan law and size of employer -- or if Federal laws apply?  That is really evil... is that too strong a word?  It's certainly f***ed up.

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    No, not to strong, not strong enough really! :(

    I have no idea what the law is.  I know that for the last 6 weeks, he's pulled the money out and yet, we are being denied coverage. We aren't covered by cobra, b/c there aren't enough employees.  Really ticked me off when he only gets 34 hours a week home (off) and then gets called in to do a local run on that day too!  He's a solid worker, so they count on him as his others jobs have over the years.  Always the good, responsible, go above the asking and do anything and get screwed, you know?  I hate it! They denied some medical test (like a biopsy) and visits as well as the cost of arimidex and his heart and sugar meds!  Just makes me sick!

  • AnnNYC
    AnnNYC Member Posts: 236
    edited August 2008

    Wish/Jane, somebody asked a similar question ("my employer deducted health insurance costs from my paycheck but didn't pay premiums") on Wiki Answers, and the answer was: "Seek an attorney."

    I wonder if the Cancer Legal Resource Center might offer some advice? National toll-free number is (866) THE-CLRC, (866) 843-2572.
    Website is: http://www.lls.edu/academics/candp/clrc.html , and you can also email them.

    Even if it is not directly a case of cancer discrimination, you have cancer and you have a legal problem with insurance, so I hope they will be able to help you some.

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    We're hoping they get it straightened around, but thank you so much for that advice.

    My biggest fear, is that IF in fact he cancelled it, then I'm now uninsurable, you know? I told dh we'd have to divorce if I had to have any more treatments. Even to continue with the AI, we couldn't afford the $400 for that a month!  Let alone his meds for diabetes and high bp! :(

    He took out money from dh's check for 3 checks or 6 weeks since he cancelled, if the insurance was correct with the 15th of july being the date of cancellation.  Of course, that means my biopsy july 16 won't get covered either!  I've only received the medicine denial and the one appt denial.  I suppose we'll get more next week in the mail :(

  • otter
    otter Member Posts: 757
    edited August 2008

    Oh, wish, that really sucks!  I think you and Deb probably win this week's award for the suckiest experience.  Hey, y'all, all together now:  That sucks!

    Deb, what do you mean, "hide the chocolate and the booze"?  I'll send you my chocolate and my dh's booze, if it will help.  Heck, I'll go out and buy you some chocolate!  When are you going to get one of those "port" things so they don't have to do spinal taps for your chemo anymore?  That port/access device sounds sucky too, but not nearly as bad as having a spinal tap twice a week.

    EWB, I was sitting here grinding my teeth just as I read your post.  I'll try to stop, now that I know what can happen.  My onco told me last week that I have early osteopenia, and we need to recheck my bone density with another DEXA bone scan in 2 years.  If it's much worse, we'll resume our conversation about bisphosphonates.  I've been wondering what happens if you're on Zometa (or Reclast, etc.) and you have to have serious dental work.  It's not like they can take you off Zometa for a few weeks and have it leave your system!  Let us know what your dentist decides to do.  I see my dentist in a week for a 6-month exam/cleaning, so I'll ask him what he thinks.

    AnnNYC, which kind of calcium chews do you eat?  I was taking Viactiv, and I really liked their caramel ones.  Then I read the label and realized Viactiv is calcium carbonate; and I'm supposed to be taking calcium citrate.  I was told by an endocrinologist that calcium citrate is absorbed more easily and is less likely to contribute to kidney stones.  I also read that proton pump inhibitors (Prilosec, Nexium) interfere with absorption of calcium carbonate, but not calcium citrate.  So, I went back to Citracal tablets.  Then one day I discovered "Citracal Creamy Bites."  They're fairly new.  They are so smooth and creamy that I have to be careful to remember they're medicine and not candy!  So far, I've only tried the "lemon cream" flavor, and they're exquisite!

    Oh, sorry.  That's not sucky.  Talk to y'all later!

    otter 

  • AnnNYC
    AnnNYC Member Posts: 236
    edited August 2008

    I hope they get it straightened out -- maybe the insurance is saying "cancelled" because premium wasn't paid by due date, and they'll reinstate once it is paid?  Hope so.  Your DH's boss did something WAY illegal -- and his employees shouldn't be punished for it. 

    This is the Michigan state division that "investigates complaints alleging non-payment of wages and fringe benefits":

    WAGE & HOUR DIVISION, MICHIGAN DEPARTMENT OF LABOR & ECONOMIC GROWTH, Tel: 517.335.0400

    Okay, I'll stop for now!  This really burns me,

  • AnnNYC
    AnnNYC Member Posts: 236
    edited August 2008
    Otter, buy all the Citracal Creamy Bites you can get your hands on!  Citracal was bought out by some bigger company (Bayer, I think?) and the Creamy Bites were made at one small factory that the big company has cut loose.  There's a shortage of Creamy Bites now, and there may not be anymore!  I got the last two boxes of chocolate off the shelves of the Rite-Aid in my neighborhood (they're good!), and I can't find anymore!  Should have bought the box of Lemon also -- they were gone when I went back!  I ordered some other kind online that I thought were citrate but are in fact calcium carbonate!  Yell
  • PSK07
    PSK07 Member Posts: 91
    edited August 2008

    I thought weekends were supposed to be all happy-clappy w/o problems?  ha.

    No word on Thursday's BX. I'm telling myself no news is good news. It means, though, that results will come in while I'm at work on Monday. Blech.

    My sister was over to color my hair and she was just full of cheery stuff about Christina Applegate & if we should be tested for BRCA1/2, and whatever. She doesn't know about the BX, and I didn't want to say anything. I could tell, though, that my younger daughter was getting more and more uncomfortable with Sis's talk.  It all sucks and I want it all to go away. I want August to go back to being a sunny, happy month.

    Who asked? I wish I lived closer to a real French bakery, like in France maybe, but I don't. There are a few good places here in the Seattle area that are as close to it as you can get w/o being in France.

    Wish- call your state insurance commissioner.  Their job is to make sure you get the coverage you need.  If the employer isn't self-insuring (sounds like he isn't), then the ins commish should be able to help and can probably tell you who to talk to about the lack of premium payment. they can also guide you through the mess of pre-existing conditions and trying to get insurance coverage.

    Deb C - happy to hear that things are looking better...seriously.  I hate needles with a passion (at least I no longer throw tantrums at the sight of them), and a spinal is something that terrifies me to no end. When I had my girls, I suffered through labor w/o meds - not to be a hero - but because the thought of the epidural made my head spin. You, my dear, are the hero.

    I'm currently on the 50K IU of Vitamin D because my levels are too low. The regular Vit D pills are HUGE...do the citrical things have both calcium and Vit D? I'll be looking for something in a couple of months. 

    Bought ice cream at the farmers' market today and made pizza with fresh mozzerella - that should cover some of the calcium reqs for the day.

    take care & keep the suckiness away.

  • sueper13
    sueper13 Member Posts: 360
    edited August 2008

    Sorry for everyone's suckiness.  Deb--glad the chemo is working, sorry it's so high-maintenance.  I wish there was something I could do to help.  I, too will send you all the chocolate and booze in my house if that will help. (And we have some good stuff!) Wish--So sorry about the insurance woes.  I think I would find an attorney, right away, because if you are facing uninsurability, it's due to your husband's employer's illegal actions....and you shouldn't have to deal with that!  I am so sorry.  This is the first time I have seen you get really upset, you're always so upbeat and energetic.  I will pray that it gets worked out right away.  Pam--at that French bakery, do they have those wonderful not-quite-sweet chocolate eclairs?  I LOVE those.  Hey, maybe that's what Deb needs!!!

    Hope everyone has a great night with no suckiness.

    Love,

    Sue 

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited August 2008

    Peaking in to say hello and a big that sucks to everyone who needs it.  You all have been so talkative.  As I read I sure did some laughing and crying.  Amazing how this thread covers everything!

    I will never understand why someone, be it friends, husbands, family etc - come hear and read our posts.  Its always been a safe haven for me.  Have you ever tried explaining to someone without breast cancer what is going on without getting a total blank look as to what you are talking about? 

    Hoping our dear friend Rock finds her way back here - in a much safer mode.

    I used to know everything that was going on here at bco.  Those were the days when I had lots of computer time.  Now I barely get here at all except on the week-ends and it makes me crazy.  There are 2 places I usually visit.  Here and the Wagon Circle.  And lately - all I have time to do is post a picture here and there.  So in a way, Im glad I didnt see those negative posts some of you are talking about.  It took me along time to learn my elbow from a hot coal!  Now when someone seems to upset me with their words, I just use the ignore button.  It has helped keep me sane.

    Over the last 3 years I have made many friends.  Lost a few - as some moved on, watched others get reoccurances and mets, lost some to this blasted disease too.  So for me putting things into perspective - who has time to deal with nastiness?  The reality is there are many here we have gotten to know and love.  Some are struggling.  And thats really what this is all about.  Helping each other.  I say ignore everything else!

    Sending big hugs to all of you today.  Sure miss talking to ya on a regular basis.

    Nicki - aka chemosabi

  • MissShapen
    MissShapen Member Posts: 3,963
    edited August 2008

    Wish, I am just flabbergasted over what has happened to you and your dh. As others have said, it's definitely illegal to take your money for insurance, let you believe you're covered, and have it discontinued. I just hate that you're having to go through this stress. Hopefully, you'll have it straightened out in short order.

    Deb, I am not surprised at all that you're sick of the chemo and spinal taps! Sheesh! I'm just glad it's working and you're improving. Just try to hang tough.... you have lots of people praying for you and you are certainly well loved here.

    Hopefully Rock will sign up with a new name. I liked Racita, but we've kinda given that one away. I'm looking for a new girl who is full of wit and well spoken. :-)

    Now for my suckiness. I finished chemo last summer and I am getting progressively worse with joint pain. My doctor just ignores me and I know he thinks I ignore him! My fluids are restricted because I am in heart failure from Adria/Herceptin, so I keep a bladder infection.

    The good part is I'm alive and able to work. However, we had an offsite fun day on Friday and I cried all the way home. Sound like fun? LOL First of all, I can't take the heat and I wear a lymphedema sleeve which makes me even hotter. Secondly, it's very hard to stand on my feet and trying to walk around an unlevel yard all day left me barely able to move.

    We tossed eggs and water balloons, performed in groups pretending to be rock bands, and played various other games that required standing most of the day. Everyone was laughing and having a good ole time (and I was too, much of the time). I ended up leaving early, my face was beet red from being overheated. I had to get a ride to the bottom of the hill because with my messed up knee I can't walk down hills. I about had a heart attack walking up the hill when I arrived because of my heart.

    I want to dance around and run and play. Instead I have to carefully guard each step I take, because one misstep will leave me on the ground. I have to sit like an old lady and watch things happen instead of being part of the fun.

    Most of the time it's okay, but sometimes I think about it and have myself a little pity party. Cancer has not robbed my spirit, but it sure has disabled my body. I'm trying to get better, but seem to keep going in the other direction.

    Okay, whining over. It sounds pathetic even to me. LOL

    Hope everyone has a wonderful day.

    Miss S

  • tami48
    tami48 Member Posts: 270
    edited August 2008

    Wish - this doesn't sound legal by no means!  I hope things get straightened out soon!

    This totally sucks!!! 

  • [Deleted User]
    [Deleted User] Member Posts: 2,728
    edited August 2008
    stinks.gif picture by chemosabi1
  • [Deleted User]
    [Deleted User] Member Posts: 183
    edited August 2008

    Miss S, sounds like you had a day from hell. This disease is so brutal, leaving so much crap in its path. Sucks!

    Wish, too sucky about the insurance mess! I once found out about my son's insurance cancellation (my ex lost his job and forgot to mention it - a$$hole!) when I went to pick up a perscription. I remember the panic (he has asthma) and shock. Feeling your pain!

    Deb, I've got lots of chocolate and booze (well, a little less than than I had yesterday) and will gladly FedEx it to you - just say the word...

    Rock, we miss you! Hope you can come back soon...

    Sue, great news about your scans! "All clear!" is what we like to hear around here... 

    And a hearty "that sucks!" to all who need it. Now no more IOS, ladies...

  • Kymberlyn
    Kymberlyn Member Posts: 7
    edited August 2008

    I'm back again and EVERYTHING STILL SUCKS!

    Okay, there were some good days.  In comparison the mastectomy and the chemo were good days but everything else sucks!

    My hair, nearly down to my waist, started falling out last Friday.  By Monday I had to have it cut very short because it was falling all over everything and even in my eyes while I was driving.  This morning I woke up and could feel skin on the back of my head. 

    I completely missed the deadline on renewing my domain name and now my site is gone and all the sites I was working on are gone... weeks of work are gone, FOREVER.  (My fault because I should have just kept them on the hard drive instead of on the net where the clients could view/critique them.)

    I raise exotic livestock.  Without thinking I started a huge bunches of eggs.  They all hatched this week and I haven't build any new cages or the new coops/runs.  I'm a month behind in that work so I have tubs of smelly birds and heat lamps all over the house.  The noise is just dandy.

    Ask me what the dear hubby is doing?  Napping!  He worked hard all week and shopped all weekend.

    Ask me what my lazy son is doing?  Camping!  He worked 20 hours this week and needed to get away with his friends because there is only 4 weeks left until he leaves for college.

    What have they done for the last month of weekends?  They both went down to a campsite that we have.  Why?  Because I'm a bitch when I'm sick.

    Has anyone offered to cook me a can of soup or change a load of laundry?  Nope!  But they sure are complaining about not having clean socks.  LOL  Guess what?  They won't have socks until December when I feel like washing socks again.  Hahaha.

    My family, those who should be helping me, SUCK.  They are useless.

    But, at least I don't have to cook dinner for them and I get to look forward to chemo next Wednesday.  At least the nurses listen to me talk and they will bring me fresh fruit and a drink.  Those people are nice to me.

    EVERYTHING ELSE SUCKS!

    (Thanks for this thread.  I hate having to be cheery all the time and getting this off my chest makes me feel better.)

  • AnnNYC
    AnnNYC Member Posts: 236
    edited August 2008

    Oh Kymberlyn, life really sucks when chemo and surgery are the GOOD days!!!!!!!!!

    (That's like my stupid job where I never get to take vacation -- so it took MAJOR SURGERY to get a break...)

    Miss S, that really sucks -- it's not really whining at all (but I just hope that the fact you called it whining shows that it was helpful to come here and vent!)

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    {{{Kimberlyn}}} I'm so sorry your family is sucky!  They sure do fit that bill this month. I hope it's temporary, and having to forego socks once the cooler season hits, they'll come to their senses and start helping. Of course, by then in my house, the socks would so stinky (I tried this once), that I'd rather have boughten news ones then trying to sort the old!  UGH!  Hate old stinky socks!  I remember one time dd (step) returned from her mothes where she spent 1/2 summers.  Mind you it was only 6 weeks, but her shoes had never been washed and she had them in a backpack all the way from N.C.  She left them in the playroom (daycare) over the first weekend, and the next monday I went to open up the room and get things set up for the week.  Opened this bag I didn't recognized, only to be blown over by the smell!  OMG!  I threw the entire bag in the garage trash. Shoes, socks and what ever was in it!  HAte that smell of stinky shoes/feet! :(

    Ladies, thanks for the advice on the insurance, I appreciate the shoulders to lean on.  Dh was supposed to get an update about this mess, but of course, hasn't gotten one yet, even though he's talked the boss every day b/c dh is working every day this weekend again! I guess monday, I'll be making the calls necessary to push the buttons and she what happens.  I hope my intrusion doesn't get him fired, but you know what?  It's that or the big D, so either way, I lose I suppose :(

  • AlaskaDeb
    AlaskaDeb Member Posts: 1,159
    edited August 2008

    I big that sucks to everyone in need! 

    Kimberlyn....They SUCKI!  Hope they get a clue.  What kind of birds?  I have chickens that I love....they are so sweet.  Mom and dad also have turkeys and phesents and ducks

    Thanks for all the offers of emergency fed-x packages of booze and chocolate.  I hit the chocolate and coffee hard and feel much better today.  I will save the booze for another day.

    Got to get ready for church

    Hugs

    Deb C

  • wishiwere
    wishiwere Member Posts: 934
    edited August 2008

    Yes, Deb, the sins of chocolate and caffeine are much easier to hide in church than that of booze! Smart thinking! :D  Glad to hear you back in the jokes dear friend!  You sound SO much better this week!  Makes ones heart joyous!

    Miss, S! That sucks.  I hope you are recouping today and taking it easy!  Darn joints!  They seem to grab all this poison and put to good use, let's home the cells where we needed it to go took that and more! 

  • MsKarin
    MsKarin Member Posts: 105
    edited August 2008

    Promised a special someone that I would keep her alive in her absence.

    Look up in the sky, its a bird, its a plane no its OINK

    We're with ya Oink

    Enjoy the day, Karin

  • luannh
    luannh Member Posts: 350
    edited August 2008

    Is she from Cincinnati?

  • [Deleted User]
    [Deleted User] Member Posts: 1
    edited August 2008
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  • evilelf
    evilelf Member Posts: 274
    edited August 2008

    Hi ladies, sounds like I've missed quite a bit with my working vacation with the military...

    So many has changed their names,,, I've got a lot of catching up to do... 

    Deb C, I found a cap similiar to yours but it's red and purple feathers..

  • Harley44
    Harley44 Member Posts: 2,126
    edited August 2008

    Miss S.

    You are NOT whining!  It SUCKS that you are in so much pain, and it is painful to go to your company outing, which is supposed to be FUN!  That is SO NOT FAIR!!  Painful joints SUCK!

    Wish... I weeded my garden the other day, and I thought of you.  Can you please come and finish?  I had to go back to work, after my surgery, and didn't get a chance to finish it.

    evil,

    Good to see you again! 

    Everone else --- hope you have no IOS's tomorrow!

    Harley