Im bitchy, I moan, I groan.....anyway.
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Hugs ALL & WhaSux?
Wish-My sis took the test in Fla & the test-er told them their grades. The lady with her got an 11/28 & he said that was passing! So 19/28 is NOT a bad score...now you probably have yourself believing you can't ace it!!! Sometimes what our own brains do to us SUX!!
I have not had an update from my friend's dh yet. I do want to comment that her care was good, thorough, standard protocol & the ER staff was TOTALLY helpful. They could never be accused of neglect even if she HAD gone home......NOTHING showed on a single test!!!! We need to remember that medicine is more art than science! It is not black & white--which is why we have to stay on it & work WITH the docs & resist the impulses of blame or anger! They do NOT have the answers!! Together we MAY find them.
Here's my view of medicine: it's like a car mechanics. The machine gets hooked up to a computer & out comes the results. IF the results are not on the paper the dx can NOT be made! We all have heard of that miracle mechanic who somehow Divines an outside idea & fixes things no one else could! We are ppl & not cars, but the docs are still mechanics! You have to trust yourself & KNOW your body. Then the only hurdle is not knuckling under to the "God-ness" our culture puts on docs! The reason the doc was PO'd at me was cuz I wouldn't take no for an answer & he didn't have another!!!!! But that same man HEARD me & decided he had to somehow Get us an answer!! In the instance of a wrong call under these circumstances I tend to lean toward the docs unless the ppl involved push & the doc refuses to listen....
So it's all good cuz this is the woman who has been with me from the first. Thru dx & sx & mets dx & scores of tx's! She is my scan viewer (as I can NOT look at them--I feel MUCH better than they look & can't stand to listen to my onc's comments--No pain in this rib?? really? LOL) She "saved me" when my femur broke & I didn't get sx for a day and a half by staying by my bed.When the aides wanted to turn me when I puked she snarled at them, "DON'T TOUCH HER!" & saved me from excruciating pain. I was with her for the birth of her last son (I'm his fairly godmother!) & when I go I want you all to comfort HER!
Hugs & that SUX all! But ain't life grand? QOL rules!!!!!! I'm going back to bed!
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THAT SUCKS, ladies! My biggest IOS is that I've been away from the boards a few days and now there's so much to catch up on I can't keep it straight. I know it makes it look like I don't give a care about what everyone wrote, but that's not the case...I just can't keep more than one thing in my brain at a time. UGH
So, my recent IOS is that my onc thinks the ABRAXANE/AVASTIN has quit working. My tm's are up. I'm not sure I put much stock in those, particularly because my pain has been so much better. The thing is, in the past when I've begun to feel some better physically and allowed myself some optimism, I've had progression. I realize that my rollercoaster ride is going to involve a series of tx before they just don't work anymore but....DAMN! It would be nice to catch a break. I've just figured out how to deal with the SEs of this tx. So, I'm going to try to hold onto the fact that my previous onc led me to believe TMs aren't indicative in my case..........and, even if they are there are lots of other reasons for an upward trend. Damn, I hate having to tell my family bad news.....
(((HUGS)))
Diane0 -
Well, i'm going with dd in a few, wish me luck....
{{{{{{{{{Diane}}}}}}}}}} Just going to believe the TM's aren't correct, or it's a med or something else raising them...Prayers though are with you while you go through the tests and so forth to prove it wrong dear friend. gotta believe.......hang in there...and accept this {{{{{{{{{hug}}}}}}}}} to wrap yourself in, b/c that news SUX big time lady
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Diane,
Count me in for the hugs and prayers too, woman. You have beenn through so much and DO deserve to catch a break--so that's what I;ll pray for, that the TMs are NOT indicative in your case and you have less pain because you have less disease. Sister---pray it, claim it, believe it. Love you.
Wish, don't demand perfection from yourself--be kind. You'll do fine. Hugs to you.
Sue
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Saint you aced that test..... and your bf knows what you did for her.
Im feeling better now. Going grocery shopping, first time out since I got to hospital. Unless you count from the door to the cab.
My hospitals are: Princess Margaret Hospital (Cancer and Palliative Care)
Toronto General - Basically emergency and follow up treatment
Toronto Western - Most surgeries done there rather than other 2 hospitals
and they share services with another hospital because its right next door.
There was nothing that could be done to change the outcome of my sucky sucky mentally incapacitated state. I just needed hydration and antibiotics. But for me that is not easy.
thats life.... and since I am more alert now... the quality has improved
and thanks Saint - Im owing you several times over,.....
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Dream, glad you are doing better and the getting out, even for groceries has to feel good
Sue thanks. I did improve to a 24, so that's as good as it gets. They tell you your score, but not what you missed, so it's hard to know where you screwed up
Dd then pulled off a 26 which of course, ground my arse! j/k.... But it felt a little better improving at least..Hope everyones' staying warm tonight...it's actually warmed today and is now a balmy 19` Whoohooo~
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Dropping by to say hello to everyone. And shouting out a big that sux to those who need to hear it.
I want you all to know how much I miss you, I read your posts everyday and wish I had a way to send some comfort your way. Sending the biggest hug I can muster up to each and everyone of you.
Love ya all
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Chemosabi2,
Just seeing you post - made me smile.
Gentle hugs,
Trish
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I hate this heartless disease. That's all I can think of today. A friend from my chemo group has been dx'd with mets today. Crap.
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CHEMOSABI...Welcome home friend...
Fumi ~ I hate this heartless disease too. I'm sorry about your friend. (((((Fumi's friend)))))
My IOS sux...my dog is sick and we fear her cancer has come back...my first born, smart as a human (smarter actually), snuggly, stinky winky. I have to go to vet today to see what's going on and I'm a wreck just thinking about it.
I hate cancer PERIOD!!!!!!!!!!!!!!
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Cancer sucks!
Sorry about your friend Fumi and your dog Fly.
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Hugs Fumi and Bonnie. I hate that we all became members of this club, against our wishes. Try to put a smile on today and we can do this together. Blessings, Nancy
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Hey there chemosabi2! welcome and missed you
Always love to see you show 
{{Fumi}} so sorry about your friends mets dx. Yes,, Cancer SUX!
{{Fly}} dang it all anyway. can't even leave our beloved, and loyal pets alone, d@mned cancer!
So sorry and praying it's NOT! it's all the worse, b/c we can know they know we love them, but I think our loyalty back to them speaks volumns in their little hearts. Let us know how it goes...0 -
chemosabi, wonderful to see you!!!!
Fumi, so sorry about your friend. You are right, this disease is heartlless.
Bonnie, praying your dog gets a clean bill of health
Love,
Sue
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I am much improved physically, still over-sleeping.
Next week I get my port and resign as a human pin cushion.
Everyone SMILE
Its all good, unless its bad.
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Woo Hoo (((dream))). THAT SUCKS for any IOS happening today. I got a letter saying my financial manager for my IRA account is retiring. It was addressed to Mr. & Mrs., and my hub has been dead for almost 6 years. Also, IRA is only allowed by law to be in ONE name. Phone call and all sorts of apologies, but I wonder if this is the place to leave my hard earned monies.
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Timtam Big hugs to pass on to your chemo friend. What was her stage?
Our office manager was just Dx with this beast.
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What SUX?
PM'ing someone thoughts about someone else and sending it to the "someone else" instead!!!!!!! Oiy. Vey. I'll probably get suspended for that one.
Thanks for the prayers ladies...I'll be leaving in about an hour so I hope to have news today...
big THAT SUX to all...
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Oh Fly (Bonnie?) I sent an email one time to someone about someone else and I ended up sending it to the person I was talking about. Thank the powers to be it was complimentary. It could easily been the opposite. I just about had a fit.
Ya, and good luck with your vet visit. Hopefully your fears won't be realized.
Hugs.
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Yeah, the funniest part is they think I did it in a pm and I wouldn't have said it face to face...I would have said it face to face...but the virtual b**ch slap might have been reality...I love hypocrites who cry foul when they are being foul.
Thanks Sharon...leaving now, 7 minutes early but I've been watching the clock since I got in wanting to leave. I'll check back later...
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Bonnie, I think if you really wanted to bitch slap the survivor in person, you would have sent the PM to her intentionally. At least she is honest in her dealings with people. If she doesn't like you, she'll tell you on the board. But I gotta give you credit for having the balls to act like you're the maligned one. I guess you love yourself a lot.
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Good evening to all.
I haven't posted in a while, but today I just had to say: I am sick and tied of having cancer. I hate these damn expanders and I will be glad when they are out of my body. One itches, but I can't feel when I scratch it. One is almost on my shoulder and one is square. I need to look for a job since I am going to be terminated for being off longer than the 90 days for fmla. I feel like shit and now I have to be concerned about insurance in the middle o reconstruction.
If I hadn't been sick I would have told this job to go fly lonf ago, but now I am up against the wall. thankfully, the ps has been paid in full and the exchange is out patient surgery.
Isn't life just wonderful.
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Pinky - hugs girl, and a big that sux to you!
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Well all of my aches are backing down and like a seven year old, I have a big carpet burn scab on my left knee. We got my dates rearranged and I get my port one day earlier but it will be the twilight gas.
I have been a Girl Guide Leader since my youngest started Brownies and the eldest was a Guide. I know that in the US you call yourselves Girl Scouts. The point is that both nations sing the Friendship song....
Make new friends, and keep the old
One is silver and the other gold
A circle is round and has no end
That's how long I want to be your friend.
I had a very traumatic childhood and came out of it strong and ready to face challenges. Which I got aplenty with the 30 girls each year.... but we had fun and learned so much, and all because we knew the value of respect, respect yourself, respect for others. We have to remember those early lessons. And when someone leaves, we lose a piece of ourselves. And that is simply not fair.
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I'm going to preface this by saying that I am high on pre-chemo 'roids and may just have a little repressed anger that has bubbled to the surface:
LAPHOENIX,
What, precisely, is the intention of your post here? Honestly....the behavior is reminiscent of an eighth grade mean girl. If your intention was to come here and "bitch" ABOUT the situation, then be our guest. I somehow get the feeling that there has been a misunderstanding about the purpose of this thread........."BITCH" as it is used here is a VERB. It would appear that some people might have understood it to be a noun.
delete that, community!
PFFFFFFFFFFFFFFFFFFFFTTTTTTTTTT Seriously....I have much bigger and important shit to worry about
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BTW, our dear FELICIA has decided to leave the boards because of all this "community" reporting nonsense and the horrible attitudes of some. That's a damn, crying shame. We're ALL angry..........can't we all be angry AT CANCER???????????????? Like it or not, we're in this together, girls.
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I stay away from the threads that don't have to do with breast cancer, or dealing with the aftermath of breast cancer. It makes me sad when the ugly stuff that happens on some other threads creeps into this one. This is pretty much the only thread I read here anymore, precisely because of the "no personal attacks allowed" rule. I'm hoping we can get back to the business of complaining about the crap in our real lives, and soon...
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badboob67, I used the word "bitch slap" because that was the word Bonnie used to describe what she wanted to do another survivor on this board (she used a couple of **, but that was the exact term she used--I just decided not to sugar-coat it). I thought it was an outrageous post, and it was deleted. If my protest makes me a "mean girl" I'll happily take that insult. I'll delete my post.
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protests on these boards accomplish little unless directed at the moderators. Please, do feel free to come here and BITCH about the crappy things in your life...that's why we're here. We are NOT here to attack each other or drag crap from other threads over here.I know I enjoy this thread because we do not, as a rule, snipe and bitch AT one another and I'd like to keep it that way.
So, MY IOS today is that I am being a bitch rather than just bitching. :P
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One of the nice things about this thread is that you can say what is bothering you or celebrate something one of us has achieved. There may not be a campfire and all of us cant be friends cause there are rules and logistic charts somewhere. But we can pretend to have hot chocolate with marshmallows and S'mores. If you cant hang loose with the ladies here, Where can you???? I need to let out the scariness of not having memories for fri and sat due to - yes a UTI. And I had male nurses, oooooh la la with Australian accents and the nicest, kindest nurses, I have ever been blessed to meet. And just cause I used blessed doesnt mean Im giving ground on the Church thing. I know that if I hurt, am confused, whatever, there are people here for me. And I used the PM system to reach out and say I need a phone call. And that call did come.
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