Im bitchy, I moan, I groan.....anyway.
Comments
-
Princessofpower ~ All of this is a learning process. I would have done the same thing with going to the hospital b/c apparently you are a lot like me....you always put yourself last. I have never put myself first but it's b/c I would rather do for the ones that I love than do for myself. Not everyone is the same though. For the most part people will put others first but not to the extreme that you or I would. Are you struggling with trying to let go of the "power struggle" too. Saying you can do it all? I am wonder woman....that is the way I am. Thought I could just do it all no matter what. Wasn't going to let anyone or anything slow me down. Are you like that too?0
-
WhaSux?
My IOS---pain is getting worse---see rads doc tomorrow. I still don't think it's bone mets, but either way it sux cuz if I'm right I'll leave in pain/still no answers. If I'm wrong this kind tx is not working & I'll have to switch AND have rads....kinda a no-win situation, huh? I'm OK with it cuz I have been walking this road since Holy Thursday & I'm ready for a changge.......I'll be back to let you all know.
SOI---- HS had auditions for next year's Fall play (which may be taken to a festival in scotland!) DD got the lead!!!!!!! HOLY SMOKES! I have said I can't die til I see her in the lead.........means I have til Fall......LOLOLOL
HUGS all--I'll come back when I can actually participate----be well & stay strong
0 -
Darnit Saint. I'm sorry about this pain. Praying for a resolution.
Gentle hugs.
0 -
{{{{{{{{{{{{{{ Saint }}}}}}}}}}}}}}} Come on, it's been long enough. They have to give you some relief!
0 -
Saint- a big THAT SUCKS. sorry to hear it's getting worse.
As far as your DD, woooohooo. Is it for the fringe festival???
A big That sucks to all that need it.
0 -
Saint. Prayers for some relief!
My IOS??? when the bs told me my nodes were 19/26 for cancer....i looked att he path report and it says 26/26 are postitve. GRRRRRRRRRRRRRRRRRRRRR
SOI is that all the kids are really having fun playing softball and baseball.
0 -
Just a fly by to let you all know Dream is in the hospital. She is ok--I just talked to her & she sounds GREAT, but she had a spell of confusion & wobbliness so her dh took her in. They have changed her pain meds & are keeping her to be sure she is regulated & until they figure out why she had that problem.
If you would like to call & cheer our girl, she is at Princess Margaret Hospital in Toronto:
Her number is 416 946 4501 Extension 2441#
Not sure when she will be home, but I will post when I hear.
BE WELL & stay strong
0 -
Saint - Me too - prayers for pain relief for you. It is a big IOS - I know when I am in pain I can't even think straight. I think I would stage a sit-in at the doctor's office until they gave you something for pain that actually works. It is so frustrating and this has been going on too long.
Congratulations to your daughter -yeah!
0 -
Thanx all--they DID give me percoset & it HAS been working! I just don't like living on that 4 hour cycle of 3 decent & 1 painful......."take the pill take the pil" kinda thing! (today it hasn't been working so well so I have taken one every TWO hours instead of one or 2 every 4 hours)
BTW-the reason I stopped back was to let you all know-dream does not have puter access at this point.........
HUGS-be well & stay strong
0 -
Dream.......gentle hugs.
Thanks Saint for passing the message on.
0 -
Thanks Saint, I'll call her tomorrow. It's been REALLY hot here, I wonder if she's not handling the heat well. Wondered why I hadn't heard from her.
0 -
Another drive by....so much to catch up on.
((((hugs)))) to anyone inflicted with suckiness.
I've been MIA, too much going on at home and at work. #1 daughter is in the final weeks of high school with all the associated angst and busy-ness. Work, kids, sisters, mom, home, dogs, you name it.
Saw the onc for my 6 month check up. All ok. Have to schedule the mammogram now. For some reason the breast center hasn't been bugging me. This appointment was really giving me fits. Seeing the internist every year is one thing. Visiting the oncologist is something else again.
take care all....0 -
Pathology results from the stereo biopsy are B 9........ Wooo Hoooooo. I asked for and got the full report, but surgeon says don't go looking up all the words or I will go nuts. Repeat bi lat mammogram in 6 months and the area biopsied WILL feel hard and lumpy for at least 3 months. And there will be tingling and even some pain, but that is normal for the healing process.
Great news PSK. That Sucks as needed and HUGS all around.
0 -
NANCY !
YAAAY! yippeee! Outstanding news!
Pam - I'm so glad you made it through the onc. check-up! No fun whatsoever. As far as angst, I think high-school seniors of the female persuasion almost thrive on it! Their moms OTOH...
Pat a Pug, it usually works.
Lisa
0 -
Oh, Nancy! That's super news!!
Susan
0 -
Susan - I went to a retreat in Schroon Lake last weekend - right up by you!
I small IOS - I scheduled all of the tests my PCP wanted for one day - so on June 6th, I will have a dexa, echocardiogram, pulmonary function test and thyroid ultrasound. Sounds like a fun day, doesn't it?
0 -
Jane--my parents grew up in that neck of the woods!!!!!!!!
I ALWAYS schedule everything on the same day--figure why mess up more than one if you can put it all in one day! Not like spreading it out would make any of them less stressful on their own!
HUGS
0 -
Sorry--thought I posted earlier, but it's not here! duh
WhaSux----celebrating with all the SOI's ===Please God--let them multiply===& throwing stones at the beast for all the IOS's!
Update on Dream--I talked to her tonite & she sounded good. She's waiting for her doc to release her-no idea yet when it will be.
My rad doc visit has not given me any answers yet, but tons of possibilities-none of them easy or "good" I will let you know more when I know more.
The thing non-metsters need to understand is that this is not usually handed to us "all of a piece" We get it in tiny bits; a bite at a time. SO don't get too cranked on my behalf. I guess I'm pretty much ready for whatever is gonna happen!
HUGS---be well & stay strong
0 -
Saint, thanks for posting Dream's number. I called her this morning and we had a good chat. She does seem to be in a good head-space and seemed kind of relieved to me...
We just want you to feel better sooner rather than later!
0 -
Hi Ladies,
I've just spent an hour reading all the posts. I'm so sorry for everybody going through so much shit. And, I heard that our dear Sue has passed away. So sad. I was going through the active threads to see what I missed and saw a PM. I just hate reading that. I wonder if she got all of our cards. I'm just so sad about that. IT'S JUST NOT FAIR!!!!
For example; why was it me who got the news that my scan was clear? I couldn't believe it when he said it. I honestly couldn't believe it. I still don't believe it. Is it possible that I could be one of the lucky ones? At least, for awhile longer? I asked him about the pain (& lump) in my shoulder. He called the radioligist (sp?) and asked her to look closer; he hung up and said "You're getting older. Exercise more. Your scan is clear." I still can't believe it.
He wants me back in six months for blood work, and in a year for another scan.
I looked at my OAOA, who was with me for the results, and it was when he smiled at me, that I began to cry like baby. I couldn't believe it. You guys will be happy to know; we had sex that night. First time in over a year and a half. I kept my shirt on; I was scared; he lasted all of 5 minutes, but much to my surprise, it was nice being intimate again.
I feel guilty telling y'all that my scan was clear. F*d up what this disease does to you isn't it? I know y'all will be happy for me though.
I'm so sorry for everybody that didn't get the same results. So sorry. Boy, being a member of this board is so bitter-sweet. A rollercoaster of emotions.
I still can't believe it.
Love, Traci
0 -
Traci! I know how you feel, I felt guilty my scan was clear too! We just can't be like that. It invalidates our will to live!
On a sadder note, Waterlily is in trouble. It's her liver. There is a thread going....
0 -
Ah, Traci. We have to celebrate the good along with the not-so-good. Bittersweet is a good way to describe it.
Saint, I love your words. I don't know nothing about metsters except what I read here. The tiny bits of info...not all of one piece. I hope and I pray for you all. And that the tiny bits have some good in them.
The best part, no matter how we're struggling (or not), we're still alive. Moving along in our own ways. We don't know our time on this earth...cancer is only one part of it. My dad died (way too) young, and it put a different spin on life for me.
Yay you! good scans AND sex. Woo HOO!
Moms of teen girls. I am one and I salute all who have gone before me. Last night was the tale of one of the group going to prom. The girls did a whole big thing for asking (formally) the guys to the prom. It was a done deal. So yesterday, one of the boys told a girl that well, he was going to go with AB, because, well, he liked her too much to say no. Uh, the fact that you'd already said yes to someone else didn't come into it? My husband and I couldn't believe that a) his parents know and b) they would allow him to get away with something like this. #1 daughter says everyone will be giving him the stink eye for the remainder of the year. She's the counselor of the group, so we hear it all, good and bad. Sucks to be 18.
I took off work early, got home, started to read and fell asleep for two hours. The best two hours evah! Husband made dinner (steak, baked potato, and a glass of rose). I am feeling no pain.
Dream - hope thing go well. Get out of hospital and home. Everyone else- take care.
0 -
Traci,
All I will say is - amen and 'bout time that you enjoyed yourself. Not just the sex but being intimate with someone. I still leave my shirt on sometimes and dh doesn't care. Just being with someone who is there for you is fantastic.
For the everyone else, that sux as needed and gentle hugs for all!
Trish
0 -
Nancy
YAY!! So happy that you got B 9 results!!!
0 -
Saint..... can I give you tiny bits of great big hugs in little bitty bites? You're a doll.0
-
Traci (and you,too barbe) - enough of that "CLEAR SCAN" guilt. As someone who officially got a couple of 'bad' scans, I totally REJOICE at your results. I celebrate with you your continuing good health! I exult in your defeating of this curse (esp. as a BRCA-1 girl)! I revel in your relief that no ifs, ands, or buts - it was CLEAR!
Got it?!? Good.
YAY you for the sex, btw. I've said it before - I kinda like this OAOA boy. He seems to have a great deal of love and respect for you.
Lisa
0 -
Tracy......You go girl, on both counts. Guilt is such a wet blanket some times. I'm so happy for you.
0 -
Saint.......you are sweet.
Gentle hugs.
Edit to add I'm glad to hear that Dream is doing ok. Gentle hugs to Dream and to all.
0 -
Gentle HUGS for all. NO IOS all weekend is my wish and prayer.
0 -
drive by....
(((Hugs))) dream...I hope you are home and feeling better...
life is busy...I'm pretty tired lately...and just chilling out...
I hope everyone has a good weekend! Hopefully I'll have the energy and the gumption to catch up...
0
