Im bitchy, I moan, I groan.....anyway.
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Now I'm gonna have to catch up...I didn't read this page but scrolling up I saw something about clear scans and sex?? Can't wait to hear about it...
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Just so no one worries too much, Dream did say she thought she be in for a "number" of days. Maybe even a week. She has no access to the internet there (yet)....
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Really great news...Mom's biopsy from lg polyp found during colonoscopy came back B9! She will still have to have it removed but its not cancerous. Great way to start the holiday weekend.
Prayers and hugs to all in need.
Elaine
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Elaine, I will give you a BIG HUG on this thread! What a way to start the long weekend! I am so happy for you both!
{{{{{{{{{{{{{ Elaine & Mom }}}}}}}}}}}}}}}}}
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Home
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HEY!!!!!!!!!!!!!!
That is great! I hope you are resting well, I had just warned everyone you might be through the weekend.
You sounded very strong on the phone, they must have balanced your meds well. How are you feeling now? Did you get a good rest, or did the phone keep ringing? You done good!
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Yep. Glad ter be home. Got the feet up on the couch so ter speak. Petten Coonies piggies. Arent thay cute?
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By the way, it would be a change to arrive at the hospital knowing who I am, let alone which hospital. They transfered me while I was altered. Kept shaking their heads cuz I didnt know where I was. Finally Guessed right.
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{{{{{{{{{{{{{{ hugs }}}}}}}}}}}}}}} That was a tough week for you! So glad you're back with us.
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Dream!!!!!! welcome home and welcome here- so glad you are back and feeling better
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DREAM!!!! Welcome home. Gentle hugs.
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Elaine, sorry, I missed your post...........(no brain cells and very distracted). I'm really glad to hear your Mom's b9 results. Happy holiday weekend to you guys south of us.
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Elaine - great news.
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WhaSux?
Very Little right now--YEAH for us! Happy to see SOI's in abundance (at least an absence of IOS's)
Traci!!! Clear scans & sex on the same nite! You can sure teach us all how to celebrate!!!! No fear & NO GUILT!!!! NEVER EVER! Your clear scans give everyone encouragement-----that's your responsibility & you have to keep it up girl. Dr. Saint Rx: more sex..........
Dream---I thought you were confused again----Petten Coonies? It took me 3 reads to figure that one out............LOL
My good news bears bad behind it. I am in NO pain! Rads doc put me on steroids to test my dx. He said if they work--which they are--I will need rads!!!! Add insult to injury I'm not sleeping. But pain-free wakefulness is preferable to the alternative, so I'll take it! Here is an example of getting this in little bites---if anyone had told my even 2 weeks ago that I'd need rads I would have kicked & screamed & dragged my heels before I thumped them roundly 'bout the head! As it is now I told the rads doc, "I'm all yours!" He said it was the best offer he got this week & I feel sorry for the sweet man if that is true!!! LOL
HUGS all & happy holiday weekend! Be well & stay strong!
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Great to see you Dream!!!
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Okay, Saint, then you can explain Dream's "pettin coonies" to me! Does she have a racoon?
Great news that you're responding to the steroids (decadron?), I'm glad you're getting some pain relief. Fabulous attitude on the rads, too! I hope I have your courage and humour when/if I reach those decisions....and I bet the doc was flattered at your proposal
don't kid yourself! 0 -
Coonie is a chatter. She has 2 pigs. I was petting THEM. Yeeeeeeeshhhhh
Well Saint had to work at it but she did GET it.
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Thank you LovingMomma
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Elaine,
Glad to hear that your Mom's biopsy was B9!
Traci,Great to hear about your CLEAR SCANS and ... the sex, too! At least SOMEONE's getting some!!
Saint,
So sorry you gotta get rads!!
DREAM!!!
YAY!! Glad that you are HOME, and glad to see you posting here!! Oh, and nice that you are pettin' coonies... (did you say he is a pig?) oink!Hugs
Harley
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saint and barbe1958 and others who have input and or experience please...
You both mentioned steroids. I have been adverse to taking ANY steroids because I have glaucoma, and steroids increase the pressure in my eyes.
That said.
I was in the hospital, emergency admittance, for six (6) days with pneumonia.
My onco wants me to take steroids. I do not want to take steroids.
It is my understanding of the following:
- 1. Dr. X wants sessna1 to take steroids because they assist in decreasing swelling, and there is swelling in sessna1's lungs.
- 2. Dr. X and sessna1 want sessna1 to be healed of the pneumonia as soon as possible.
- 3. Dr. X knows that steroids improve the reduction in swelling/inflammation. He wants the antibiotics to be administered in conjunction with steroids for the greatest effect of the antibiotics.
- 4. Dr. X believes the pneumonia is part of breast cancer metabolism.
- 5. Sessna1 thinks that the pneumonia had six (6) weeks to develop, and is severe because it had six (6) weeks to develop. Sessna1 hopes it has been caused by her lowered infection resistance given chemotherapy treatments: Cycles 2 and 3.
- 6. No one from Dr. X's team has ever asked sessna1 or listened to her assessment of her condition, i.e., marked improvement every day since given antibiotics and oxygen in the hospital.
- 7. If sessna1 improves at the end of ten (10) pills of antibiotics given to her when discharged from the hospital on 05/19/2009, i.e., by 05/29/2009, it lends credence that the pneumonia is more chemotherapy effect than metastasis effect of breast cancer.
- 8. If sessna1 improves with 10 pills of antibiotics (see 6. above) and ingestion of steroids, there is no way of knowing which medication had more of an effect on her body.
9. Dr. X's team and sessna1 have never resolved sessna1's aversion to taking steroids
- 10. The development of sessna1's pneumonia has escalated the case in 9. (above) back to the point that has never been resolved: Dr. X's team wants sessna1 to take steroids versus sessna1 does not want to take any steroids at all.
- 11. Maybe, if dealt with previously, sessna1 would have been willing to take half the dose of steroids prescribed during chemotherapy or Dr. X and sessna1 could have agreed upon a steroid substitute in her treatment. Sessna1 stands solidly by her points made above.
Questions, Comments, Observations, please - ladies?
I know, start a new post... okay, here I go. I'll do that, too.
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Why am I so flipping tired! It's been 4 months since the end of chemo and 6 weeks since the end of radiation, but for the past week I have been EXHAUSTED. Almost as bad, if not worse, than when I was going through chemo. What's up with that?
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Jane, I've noticed the same thing. Sleeping more and tired well before bed. I just figured it was my body's way of healing itself and making up for the months of sleepless nights during the chemo phase
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I am so sorry to you ladies are still so tired. From what I hear it can take up to 2 yrs before you feel really good again. Please be good to yourselves, be gentle and caring, give yourselves a break. Remember that you and your body have been thru a lot!
Sending gentle, healing hugs your way.
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I heard or read somewhere that for each hour a person is under anesthesia, it takes at least a month for the body to recover. Let alone the healing process from the surgery. Chemo is busy killing cancer cells, so the body has to rebuild "good" cells to make up for it. And the body and mind heal when one is sleeping. We won't add the worry and stress of every day life: making appointments, groceries, laundry, work, kids, house cleaning, and meal preparation.
I cannot imagine back in the pioneer days when one had to plant and tend the crops and animals. Making one's own clothes, chopping firewood, fending off wild animals, etc. No running water either. Not that with all of our technology and modern conveniences it is easy.
I hate when someone uses the expression: What won't kill you makes you stronger.
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I should be up to platinum strength then..... not the best but up there.
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Saint ~ you're out of pain at last!!! I know you don't look forward to rads, but - ah, the relief it can bring! I think your MD will be conservative in his course of therapy since you were so against in the past.
Dream ~ Welcome home! Don't you love waking up in your own little bed?
JaneM ~ I don't think you can have expectations of your body too much when it has just gone through months of chemotherapy and another assault by rads. Day after day! Don't demand of yourself what you used to do - be patient!
Nancy ~ I have this tasteless answer to the annoying "what doesn't kill you makes you stronger". I just say "Ive got Stage 4 cancer and a couple of brain tumors. I've gotten strong enough, thank you." I've just had to say it one time to this pompous woman at church. She was speechless. Her husband gave me a surreptitious 'thumbs up' though.
Lisa
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Gentle HUGS go out for everyone. Welcome back Dream. Lisa, I am so sorry you are at Stage 4, but I LOVE your response and I would not call it tasteless.
Just last night someone who has NO idea about cancer asked "how are you feeling". My answer: I do not have enough time to go into details, but "been better, been worse" and I walked away...
Sunday is declared the day of rest. Let's have rest and relief from: pain, sadness, anxieties, worries, and noises that disturb sleep and relaxation. In other words, NO SUCKINESS allowed.
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Boy, I go away for a week and you guys write six pages.....guess I'll just have to say a big THAT SUX to all who need it, and move on...dream, glad you're home and okay..Nancy, glad you got B9 results...Traci, glad you had clean scans and , um, sex.
Just sitting around doing nothing, and boy, does it feel great..
Love,
Sue
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oh the catch up was certaintly worth the wait! Let's see how good my brain is today!
Dream - a hearty welcome back to you! I'm so glad to see you...
Traci ~ you are one of the sweetest souls I know...please, no guilt! I'm so glad you and the OAOA had your time, you have clean scans...and things are looking up!
Jane ~ it's just the way it is...do what you can do, rest when you need to rest. It's all just part of the journey is what I'm guessing. I've just now, 6 1/2 months after ending chemo, started to bounce back.
Saint ~ I'm glad to hear the pain has subsided...being awake when you should be asleep sux for sure but like you said...better than the alternative.
all the other ladies...I hope I'm not forgetting anything important...I know elaine, barbe and nancy were there but I don't remember specifics...also, someone was looking for info or opinions on steroids -I'm sorry I can't chip in. All I know about the steroids is, they made me fat and I had a very short temper on them! I wouldn't do them again just because of what they did to my system.
Hugs to everyone, I missed you guys and I'm happy to drop in and have so much good news for a change!
I have no IOS or SOI...just taking it one day at a time and trying to get my life back. The imaging tests I had for the lump were inconclusive and my onc seems to think we are ok leaving it be for now so, I'm choosing to think it's benign and working on getting my energy level back up so I can enjoy my summer. Lord knows it will be a better one now that I'm off the Herceptin!!
Love to all..
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Great news (((bonnie))). Guess I won't see you at GUH for a while. HUGS for everyone.
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