Im bitchy, I moan, I groan.....anyway.

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Comments

  • LisaSDCA
    LisaSDCA Member Posts: 178
    edited June 2009

    Kathi - there you are!

    Sorry you spent some time wiped out - but vacation this week sounds fun, rejuvenated already. And a tattoo! Where will you locate it? Will your Board Sister get one too?

    Have a great time!

    Lisa

  • ktym
    ktym Member Posts: 673
    edited June 2009

    Can I chime in with my IOS for the day?  My Mom called to tell me the Urologists office who did my Father's prostate biopsy called to say it was "abnormal"  and then made him an appointment 2 weeks from now to "discuss the results."  Who does that?  What kind of a doctor thinks that it is acceptable treatment to let someone hang in the wind for 2 weeks wondering if they have cancer or not and what treatment recommendations would be.  I tried not to be alarmist and discussed getting second opinions, what it may or not mean etc.  but I was furious for them.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009

    Well that just REALLY sucks Katherine!

  • KAK
    KAK Member Posts: 297
    edited June 2009

    I agree with Barbe.  That's ridiculous, Katherine.

  • lvtwoqlt
    lvtwoqlt Member Posts: 765
    edited June 2009

    Katherine, It is totally unprofessional for that doctor to say the results were 'abnormal' then make your parents wait for 2 weeks to discuss the results.

    Sheila

  • ktym
    ktym Member Posts: 673
    edited June 2009

    OK, so it gets better.  I called and talked to my Mom again today and told her to call the office back and tell them it is unacceptable the doc either needed to get on the phone and tell them the results, or give them an earlier appointment.  Do you know what the person on the phone said?  "No, he refuses to talk to patients on the phone and he has no earlier appointments, besides when you were called to come back in you should have known it was cancer."  Needless to say I spent the next few hours finding them a new doctor.  Feel so bad for my parents.  It was so hard for them watching me go through treatment, and now this.

  • KAK
    KAK Member Posts: 297
    edited June 2009

    Oh.  My.  God.  Katherine, it never ceases to amaze me that people in heathcare can be such @#$%^&*%@ indiots.   I'm so sorry you and your family are going through this.

  • KAK
    KAK Member Posts: 297
    edited June 2009

    Hey, Lisa!  My board sister is not getting a tattoo today.  She did inspire me, though, because she already has a few really pretty ones.  You never know, tho' -- she may change her mind!!  Her husband and son got Celtic knots recently similar to what I drew for myself, so maybe she just do it today!!

  • KAK
    KAK Member Posts: 297
    edited June 2009

    Hey, Lisa!  My board sister is not getting a tattoo today.  She did inspire me, though, because she already has a few really pretty ones.  You never know, tho' -- she may change her mind!!  Her husband and son got Celtic knots recently similar to what I drew for myself, so maybe she just do it today!!

  • saint
    saint Member Posts: 583
    edited June 2009

    WhaSux? TOO MUCH!

    SHERLOC!!!!!!!!!  HUGS! Ditto sherl's post~! Diane--about time Josh was recognized publically! AKA-scary stuff sista! HUGS sessna--dream rocks! no doubt about it! KAK--I was hoping to get rad tats so I could use them as my starting point---not so here--they just keep writing on me with markers everyday. Speaking of that: it has been dh's job to make sure the little plus signs don't wash off. Guess one of the techs changed one a bit cuz the other day he stopped to check them & yelled, 'Oh my God! It's a miracle! There is a cross on you--call the Pope!" LOLOL

    I am working on my next tattoo---this fat old broad is going for a tramp stamp----pyschodelic sun with my posse-dog & cat-one either side!

    I am doing OK with the rads so far, but if they don't stop the steroids I'm gonna go Lizzie Borden on someone! I told rad doc this AM I have halved them twice now; easier to ask forgiveness than permission! 

    EVERYONE mentioned cupcakes...now I'm craving them! Thanx pals! LOL
    HUGS-be well & stay strong

  • KatherineA
    KatherineA Member Posts: 5
    edited June 2009

    Forget the Welbutrin and Effexor. Get Cymbalta. It is a wonder drug. I never though I could feel this good again. I thought my new normal was always going to be just making it through the day. Never running again, never begin able to ride my horse like I use to. Cymbalta changed that. Check out Cymbalta is a live saver posts of this site. Others have had the same results.

    If we have to take drugs they should work well!

  • saint
    saint Member Posts: 583
    edited June 2009

    ...& now a word from our sponsor....?

    Is it me---or is anyone else lost? LOL

    Have an IOS-free day-----be well & stay strong 

  • sherloc
    sherloc Member Posts: 893
    edited June 2009

    Good Morning Saint. Dazed and confused in my normal state of conciousness.

    Sorry for mentioning CUPCAKES!!! Had a bridal shower at my house on Sunday and have about a gazillion of the darn things left over.

    I have an IOS. Background: my house is built on a slope, making my backyard higher than my deck. Have yet to do anything with the yard cause we've concentrated on getting the house fixed first. So, that said, my yard is a barren waste land of dead weeds (thanks to roundup), rocks and dirt. O and lets not forget the gopher holes.

    So my IOS, took the pooch out for her nightly business after her dinner last night. I slipped on the freaking slope coming back down to the deck and scraped up the whole right side of me. Can we say OUCH! Stupid me for going up there with sandals on. Can't even use the excuse that it was dark. 

    Good thing it's raining today, cause I'm having a movie day. Anyone want to join me? I'm serving mimosas and shrimp cocktail.

    A jolly Good Morning to one and all

  • KAK
    KAK Member Posts: 297
    edited June 2009

    Hey, Saint, LOL.  My rad team did the tats and drew little crosses on me!!  'Sup with that, huh??

    Katherine, that's what I've heard about Cymbalta from my nurse buddies.

    Okay, girls, here it is for your inspection:

  • EWB
    EWB Member Posts: 592
    edited June 2009

    Count me in!

    My issue today? The weather, seems everything hurts and aches more with weather changes, temp changes...thats all we're having lately! Already take MSContin 2x day, and have percecet for break thru. Lately it seems I am taking the Percecet more often, so do I talk to onc about different pain management or wait to see if the weather settles in for the summer. Then of course there is the consipation that goes along with it, really not fun. blah

  • EWB
    EWB Member Posts: 592
    edited June 2009

    Kathi- cooool. Looks nice.

  • Sessna1
    Sessna1 Member Posts: 200
    edited June 2009

    Hugs to all.  Bear hugs to saint and dreamwriter.  A cross and they call the Pope?  Who will they call if your tat begins to look like the Virgin Mary or a picture of Jesus' face?  Careful.  Careful... Yeah!  Steroids suck!  Give me half, negotiate - don't fill me with that stuff.  It both decreases and increases swelling.  What would you expect the affect to be?  Aaaaaaargh!

    I am craving Christmas sugar cookies.  You know, the plain kind that can be dressed up with plain icing or glaze?  Oh, I'd stomp on a snail for a sugar cookie right now.

    Health care "professionals!"  Have you ever heard of registry personnel?  I had two discharge me from the hospital (unbeknownst to me at the time), and it was a nightmare.  They were rushed, unprofessional, etc.  I think both nurses and doctors need to undergo some business courtesy, compassion in their studies.  Some nurses just want to push patients around and tell them what to do.  They don't listen, they just glower and look at you like you are not smart.  THOSE kinds of nurses can get you more ill, or worse.  You can feel their aura.  It is that of disdain, contempt, and they have a BAD and mean sense of humor.  Watch for it.  Run from it.   You heard it here.

    Katherine, that SUCKS LIKE BRAND NEW HOOVER® VACUUM.  What a rude way to tell a family about cancer.  How rude!  I wish it was on tape so it could be sent to the news media.  All those advertisements about working in the health care field.  They are dishing out some real losers - undereducated, un-businesslike, uncaring, rude (usually) 20-something college students who didn't do well in high school, either.  Grades aren't everything - there should be a test for character, commitment, and ethics.

    Never heard of an Inverse of Suckiness before (IOS).  I'll have to read previous posts.

    No more needles than necessary.  Not tats, please.  No needles.  Nooooo.

    Cupcake party in honor or sherloc!  Sprinkles, marble cake, pink on pink, and chocolate.  I'll bring the milk, and the lactose intolerant people milk!

    Doctors.  You gotta fight them like the men in your lives, talk, negotiate, dialogue, and don't take silence for an answer.  Who says that aspects of life don't overlap each other?  It wasn't me, sister.  It wasn't me.

    sherloc - No estrogen?  NO estrogen?  Estrogen is my God given right.  I think women should be given a device to make pissing contests fair... That'd teach those prideful standing urinators.

    Blood clot.  That just sounds wrong.  No one should have to have a blood clot, Diane.  You discovered your own blood clot.  Whoaaaa.

    I'm gonna go read the Watson thread.  See? I'm only er... I don't know how behind.  I claim pneumonia brain as my reason.  I rest a lot.  Sometimes I just lie down and hours go by.  My lungs are pretty bad, said Dr. Pulmonologist.  He said the fuzzy part is in the bottom of my lungs, which doesn't bode cancer, but they can't tell what the top of my lungs are doing without a CT scan without pneumonia in it.  I have to get well.  Right now, my auto-oxygen intake is 84 when moving around.  Not good enough.  My new "twin" is an oxygen tank.  "Say ‘ello to my leetle friend..."  hisssssssssssssssssss.

    sessna1

  • EWB
    EWB Member Posts: 592
    edited June 2009

    ummm hi Sessna, don't think I can keep up tonight. Sweet dream!!!

  • Jane_M
    Jane_M Member Posts: 932
    edited June 2009

    Kathi - your tat matches your shoes!  Cute!

    Ok, girls.  I don't want to play this game anymore.  I'm tired of looking like a freak.  I'm tired of walking around Wal-Mart looking at all of the cute things I should be able to wear, but can't.  I'm tired of trying to figure out what I can wear that will still make me appear female and cover me at the same time.  I'm tired of everyone telling me how "cute" my short "haircut" is.  I'm tired of telling everybody that it's not a hairstyle choice.  Why can't I just shut my mouth and say, "Thank you?" Why do I feel the need to correct everyone and tell them it's growing out - not a purposeful hairstyle?  I'm tired of everyone thinking that just because active treatment is over, all of a sudden I'm "all better."  I still feel like sh*t.  I'm exhausted.  My arm and underarm is still numb and probably always will be.  I take a pill every day that make my feet feel like they are on fire and make my legs feel like they weigh 50 lbs a piece and I will take this pill every day for the next 5 years.  And you know what?  The cancer will still probably come back. (I'm not being pessimistic, just basing it on my onc's predictions.)  I'll never be "all better."  My life will never be the same.  I'm tired of always being the positive one.  I'm tired of people telling me how proud they are of me and how good I've handled everything. How do they know how I've handled everything.  They only saw the outside.  They only saw what I let them see.  No one, other than the women on these boards, knows how I felt.  I'm tired of people I care about feeling crappy.  I'm tired of people dying from cancer - any cancer.  One of my bffs is burying her father today after he died Monday morning from pancreatic cancer.  I'm tired of getting those text messages at 4 in the morning saying, "My dad just died." I'm tired of feeling like I'm begging for a lost cause when I ask people to support my efforts in the Relay for the Cure.  It hurts me just to walk, let alone walk a track for a cause.  The least my family and friends can do is throw 10 bucks my way.  My husband, who is a 3X cancer survivor himself (2 melanomas and 1 kidney cancer), doesn't understand why I would walk if it hurts?  Why I would be willing to spend the night in a tent for a cause? Because I hate this poopy disease!  I hate what it does to people!  I hate what it has done to me!  Even if ACS can't find a cure, it can look.  And the ACS also helps people who have this disease - they've done things to help us.  If a cancer survivor can't offer to support others, who's going to do it?  

    So, in a nutshell .... I'm bitchy, I moan, I groan....anyway.

  • Sessna1
    Sessna1 Member Posts: 200
    edited June 2009

    EWB, we don't contest here.  We are women, ladies, girls, and people.

    We need our rest, peace of mind, and comraderie, okay?

    KAK, you look like Dorothy Gale all grown up, you go on to the Emerald City, girlfriend!

    sessna1

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009
    Kathi, that's not really your tatto!! Why isn't the area red? If it IS the real thing, you done good! Laughing
  • KAK
    KAK Member Posts: 297
    edited June 2009

    Oh, Jane, we hear you, sister.  (((((((((((Jane))))))))))))  I hate people expecting me or any of us to be Pollyanna.  I am not Pollyanna, nor do I ever aspire to be her.  I just went to a funeral service yesterday for the mom of some dear old friends in Boston who died of pancreatic cancer.  There are so many times when I feel like you all are the only folks I know who truly "get it."

    Sessna, EWB, thanks!!  

  • KAK
    KAK Member Posts: 297
    edited June 2009

    Barbe, I'm a fast healer by and large!  (Except for the adhesions in my breast after surgery!!)  That really is the tattoo!  It's going to peel in the next few days, which is normal, so I wanted to take a fast photo of between the time when the redness went away & the peeling started!!  LOL

  • pk0199
    pk0199 Member Posts: 49
    edited June 2009

    Looks good Kathi!

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited June 2009

    It's beautiful Kathi! They did a great job.

  • EWB
    EWB Member Posts: 592
    edited June 2009

    Sessna- not sure what I did or said and not sure what the comment is about or for but I apologize if I offended anyone; certainly never my intention.

  • ktym
    ktym Member Posts: 673
    edited June 2009

    Couple of very good rants above here.  Prideful, standing, urinators, have to remember that one.

    Thanks for the support, I found my Dad the best new doctor.  Complete opposite of the other  you know what.  Called him before he even came in for an appointment to reassure him and answer any burning questions he had.  There are good ones out there.   

  • LisaSDCA
    LisaSDCA Member Posts: 178
    edited June 2009

    ((((JaneM))))

    We do understand. And it does suck. A righteous rant if I ever heard one!

    Lisa

  • KAK
    KAK Member Posts: 297
    edited June 2009

    kmmd, that's great about the new doc.  I often tell my own patients that they really need to think of a doc like they might think of a plumber or an electrician.  They're supposed to be working for YOU and if you don't like one, you can always hire another.

    Barbe, if I haven't said it here, I'll say it again regarding the tattoo artist:  he was a sweet guy, and it turned out his sister had had breast cancer and, I'm sorry to say, died of it 5 years ago.  Honestly, you never know when you're going to run into yet another person whose life has been touched by cancer or by breast cancer in particular.  I hate that it's so prevalent, but I treasure all those special empathic bonds I end up forming with people I've just met because of it.

    I went to the opening reception last night for the juried photo show that accepted my work.  The show included some very beautiful work -- we have the luxury of a very talented artistic community here in little Rhode Island, so we have a great pool of work to draw from for every juried show.  So, it's always quite an honor to be selected for one of these.  I do have an Issue of Suckage, though, which was that a number of the artist colleagues that I've known & shared shows with for a few years now that were therelast night, didn't even bother to say hello or ask how I'm doing, even though they know why I haven't been around for several months.  It's not like I wanted to talk about breast cancer all night, but the few who did come over, give me a hug, tell me I looked great & asked how I was doing were much appreciated. 

    You don't like to feel disappointed in people.  And I suppose if I could manage to be truly Zen about it all, then I would just tackle my expections back to neutral so I would not be disappointed.  But the thing is, if the shoe were on the other foot, I'd be going to them to give them a hug and a greeting.  So, poop on them!  I don't know who originally said "prideful, standing urinators" but that phrase does unfortunately apply to a lot of male photographers!!

    BTW, the tradition here is that IOS stands for Issues Of Suckage and that SOI stands for Suckage Otherwise Inverted.  IOS could also stand for Inverse of Suckage, but if it is used that way, you'll have to specify whether you mean a good IOS or a bad IOS or we'll all get totally confused, instead of just partially confused like I am most of the time!!!  LOL.

    Gentle hugs to Sessna, Saint, Lefty, kmmd, and any and everyone who needs one.

  • GramE
    GramE Member Posts: 2,234
    edited June 2009

    Hugs back to ya, Kathi.   I agree that a simple greeting and leve out the "how are you" would be proper from people you know.   Nice to see you, glad you could make it tonight, etc.   That is a non invasive, neutral greeting, right?   What I do, especially those like in the chemo waiting room with bald heads and sallow complexions.  They don't look like their "normal" selves, and they do not want to be there, but I can say HI and not have to discuss side effects or medical issues.   Another way is " I love the color or your blouse/sweater" or (in YOUR case)  " I love your shoes"...!!!!!   

    Mini IOS for me - I am sick of cooking for one  person.  I troll the grocery store trying to find packages for just one person, end up with way too much food, then get tired of eating it 3 days in a row.  And, no, there are no neighbors I would be willing to invite in to join me.   And if I go out somewhere, the pitiful looks sitting at a table for one.  know what I mean?    This too will pass.

    Hugs for all,   Nancy