Im bitchy, I moan, I groan.....anyway.
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Cleomoon, you gave me stress incontinence thru cracking out laughing....now I have to go sort myself out !!!!
Isabella.
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I agree with dream on the clothes.
I also hate doctors, tests, test results and medical terminology run-around.
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Saint, I miss you on this thread popping in to say "What Sucks?" What sucks is you going through so much pain & fatigue.
Love all you ladies. Hate this freaking disease & the "scorched-earth" approach to its treatment.
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Drive by....looks like I have my fair share of catching up to do. I'm working out every day now trying to get the weight off so I don't end up with a lot of computer time in the end. My apologies ot all the new names/faces I see - a big THAT SUX to you and WELCOME.
Saint....oh darlin' - I cried for you when I saw you couldn't attend the son's graduation...I know how much that meant to you and it's just horrible that you did not recover enough in time to be able to go. I'm so, so, sorry. Of course you are in my prayers - along with everyone else I am sure...sending you big cyber hugs and kisses.
Nancy-so looking forward to this weekend - I will call you tonight on my way home from the gym...about 6pm ish
Shout out to Lisa and Traci ans wish who I don't remember seeing in a while? Or, maybe it's just me
Hugs and a that Sux to everyone...gotta get to work!
Love ya'll as Traci would say
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Just a quick hello!
I'm driving to LA, rented an automatic for my boot. Going to start pre-ops appointments and visits, MRIs etc. I'd like to say I'll be in touch, but it'll be spotty.
((((SAINT)))) - hope you come around with your smiles, after your experience w/CRUSHING FATIGUE.
love you guyz
Lisa
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Navy, last I heard, gsg said wish was working full time and was on Facebook furiously playing Mafia Wars!!! LOL!
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Do people think that when we get cancer our mirrors break or we go blind?
"You look so good," doesn't mean a lot when I am bald, pale and have no lashes or brows. And now, do you really think I don't know my hair is coming in with more gray than it left with? I mean, really.....
And, I called my PCP yesterday to go over my test results. She didn't call back, so I called again today and the receptionist told me they didn't have the results yet. Well....I have the results. I got them from the hospital yesterday. I always ask for copies of all my test results. How is it I have them and they don't? I can be dangerous when armed with reports, medical terminology and the web.
And to top it all off, BCO shuffled all my favorites and I can't find my updates.
Sheesh!
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Jane! What were your results! I NEVER want to be on your bad side....you used to land planes!
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What sux????
What sux for me is that I have a hormonal, bulling, moody 14 yo dd. She is driving me crazy right now!!!!
I miss you Saint, Lisa I hope that your appts all great and your surgery is great!!!
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What sux for me is pretty wierd and I can almost guarantee almost nobody else has been through but it sux alright. It's the things they don't tell you about before you get cosmetic surgery. I had a brow lift and they put two *huge* plastic hooks at each temple under my skin and the idea is that break up into little pieces and dissolve. Kool. The right one is doing what it's supposed to do but the left one is sticking out like a sore thumb and it just gets puffier and itchier and more and more annoying. All I know is that I have a foreign body inside my body, and I don't like anything strange at all in my body.I keep having fantasies about getting out my husbands Swiss Army knife......!!!!????Or maybe somebody with some really sharp teeth could bite my head?!!!! Where's that forum on brow lift recovery?!@!Miz0
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P.S. This is all really related to BC because the wrinkles came from chemo.
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Sissy, what does your doc say? That sounds like a pain in the....well.....face!
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Mizsissy - I love your avatar. It reminds me of Little House on the Prairie.
Barbe - I'm a secretary for the State of New York and a bookkeeper for an "American Bistro" in CT. I wouldn't be very good at landing planes. I know who you're talking about, though. She just retired. But, I can't remember her name.
My echocardiogram shows: "Color flow and Doppler across the aortic valve demonstrates 1+ aortic insufficiency....Estimated ejection fraction of 76% was noted...Color flow Doppler across the mitral valve demonstrates a central jet of 1+ to 2+ mitral regurgitation...Color flow and Doppler across the tricuspid valve demonstrates 1+ tricusipd regurgitation...CONCLUSION: Mild aortic insufficiency. Mild mitral regurgitation. Mild tricuspid regurgitation and top-normal pulmonary artery pressures. Hyperdynamic LV."
To be continued...not enough room in one post.
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OK - DEXA - "...Bone mineral density of the lumbar spine from L1-L4 measured 1.028 gm/cm2 with an abnormal T-score of -1.3. This is consistent with osteopenia. There has been a 7.3% decrease compared to the patient's prior examination dated 8/17/2005...Bone mineral density of the left femoral neck measured 0.896 gm/cm2 with a normal T-score of -0.7. Bone mineral density of the right femoral neck measured 0.852 gm/cm2 with an abnormal T-score of -1.1. This is consistent with osteopenia."
This is one of those good news/bad news things. It's bad to have osteopenia when you're 44, but it does make me a candidate for Zometa.
Thyroid Ulstrasound: There is symmetric mild thyromegaly with the right lobe measuring 5.1 x1.8 x 1.5 cm. and the left lobe measuring 4.1 x 1.4 x 1.3 cm. The thyroid is diffusely heterogeneous with no discrete solid nodule or cyst detected. The isthmus measures 3 mm. Impression: Heterogeneous, symmetric thyromegaly without a discrete lesion.
I'm still waiting for the results of the Pulmonary Function test.
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Huh, I should have noticed from where you live Jane. Glad you knew who I meant though...wasn't her name Jane too and where has she been?
Good test results though. You done good!
Nice to get on Zometa as well.... 0 -
I'm a little worried about the thyromegaly and all my regurgitation, elevated ejection fraction and insufficiency in the echo. They're new.
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When I went in for my first surgery in November, the nurse told me my last echo had shown tricuspid regurgitation and my cardiologist hadn't even bothered to mention it to me, so I thought it wasn't too bad. I've had mitral valve prolapse for 30 years.
I've also had a HUGE tumour removed from my thyroid and I live to tell! But you're right, nothing new on a test should be overlooked.
I thought it didn't look too bad over-all, but now you have me worried! Please keep us posted on what your PCP tells you. Here in Canada we don't automatically get test results and have to rely on how much our docs tell us.
{{{{{{{{{{{{ Jane }}}}}}}}}}}}
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Sueper13 - (Sue) is the retired air traffic controller. She hasn't posted in a while, but I think she was planning on doing some traveling.
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I also hate that now that active tx is done, people think I'm supposed to be all full of energy and feel great. Uh, no....I'm going to have pain, fatigue, hot flashes, etc. for the next 5 years ala Femara thank you.
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((((((((((Jane)))))))))))) Make sure you take care of that osteopenia. Actually tamoxifen helps divert estrogen from your breast tissue to your bones to reduce cancer recurrence and osteopenia. I'm on it now because of osteopenia. My doc and I wanted to keep me away from aromatase inhibitors because they worsen osteopenia. Not sure what to think about the mitral valve/ejection fraction stuff except that it probably only amounts to a murmur, something that may improve when you're body recovers more from chemo. There are a lot of cardiac anomalies that are considered to be "within normal limits" for most folks. I have a left bundle branch block, which did not dissuade a surgeon from fixing a herniated disk in my back 5 years ago. See what your PCP says.
Not even having had to go through chemo, the surgery plus rads plus abject terror have been enough to keep me feeling tired, too, Jane. I don't think any of my docs did an adequate job of warning me about what a long-term effect this all has on us & how long it takes to get back to normal.
My official IOS for the day, tho', is that when I brought my new car into the body shop to get the front bumper repaired from someone plowing into it 6 weeks ago, I happened to notice that someone else evidently banged into it last night or this morning in a parking lot & put a crack in my rear bumper. So now I have two auto collision claims going on my 6-month old car at the same time!! Ten years I had my old car & had only one ding in the passenger door. I have this car for 6 months & two people have hit it already!! Either my luck is worse or everyone's driving is worse. Or maybe both. SOI was that after all that, I got to go out to lunch with one girlfriend and went out to dinner with another. So I managed to redeem the day somewhat!!
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I haven't stopped here in a really long time. Let's see if I remember how it goes: "My fuse is short--I'm bitchy, I moan, I groan..."...
...but, first, of course, a hearty "THAT SUX!" for (almost) everything on the pages and pages I've had to read in order to catch up. Especially for Saint, whose situation tops all suckiness. (Do we still award an honor for the "suckiest situation of the week"? I say Saint wins the honor.)
My fuse is short, and I am feeling bitchy, but not for any particular reason. Oh, there's the 99 degree high temp we hit today, with the same scheduled for each of the next 3 or 4 days. And, there's the toe I broke yesterday (did you know they don't really treat a broken toe???), which will make hiking while on our vacation next month nearly impossible. My PCP felt sorry for me, so he sent me to an orthopedic supplier to see if there was a toe splint or brace or something that would make hiking more tolerable. The ortho supply guy sold me a huge, velcro-banded black shoe that is waaaay too big for my foot and feels terrible, but, hey, it must be good because it cost ONE HUNDRED SEVENTY-FIVE DOLLARS, only a small fraction of which will (might) be covered by my insurance. The most expensive pair of shoes I've ever owned cost me around $75, and for that I got two of 'em.
But, that's about it for IOS's on my list. I never made a Bucket List because I don't like working toward goals that are supposed to be fun, and I hate deep disappointments.
Yep. That's it. Hugs to each and everyone....
BTW: Sue (sueper13) is working hard at being retired. She had recon a few weeks ago and is still recovering. When she does drop in, it's often at the May 2008 chemo thread.
otter
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I am sucking a pickled lemon. I am bummed out.
I had pneumonia last month, went into the ER, was in the hospital for six days. Onco wants to put me on steroids. He thinks the pneumonia is cancer advancing. I want him to prove it before he gives me any steroids.
I think the pneumonia had six weeks to get bad and that's why it got so bad. I was having shortness of breath during my second and third cycles of chemo (six weeks), and I would get winded just going from one room in the house, through one, to another. I thought that was pretty bad - and it just got worse and worse. I was about to tell him that I will not make cycle 6 because I won't be able to breathe by then when I got the pneumonia.
He won't budge. I won't budge. My fingers are almost on the phone to schedule an appt. with a new onco. He is very, very good in his field. I, on the other hand, have had to stand my ground before when someone said to back off. With steroids, my glaucoma could worsen and land me into eye surgery.
I live in CA, and have an appointment with The City of Hope for a second opinion. It's been 60 days since my last chemo treatment (almost), and my caring (really) onco called me today to ask what I have decided to do. I DID tell him about our steroid impasse, and he said nothing. It's something to have one brick wall go up against another - but it doesn't mean my brick wall crumbles.
Thank you for your input.
sessna1
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What SUX? Everything SUX
Does that cover it?What doesn't suk? Losing weight! Feeling Human! Being able to do things again! OMG it's been so long since I felt this good...lovin' - I can totally relate. That sounds like me since the ovaries came out! Hence the daily workouts...so far, they seem to be helping - I feel much less tense and hyped up. Please Jesus, let it continue!
Lisa - boot? vas is das? I didn't know you had a boot so clearly I missed something! Been there, feel your pain. I hope the next week or so goes as smoothly as it can for you!
Kathi - Mafia Wars Rules! If only it was really that easy to make money and own guns
She's probably attacked me already!Saint...I pray you are doing better. We miss you of course, but more important I can't stand you being so down and out. ((((HUGS))))
Miz...all I can say is ewwww! I think I'd be looking for the swiss army knife too. Reminds me of the time I had to dig a metal spacer out of my gums with a pair of plyers at 1am...not pretty.
Nancy- sorry I was late calling ....maybe we can catch up tonight...
Off to work...be well and stay strong ladies
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Otter, sorry to hear that. Was it the balance issue from the taxotere? They may not doing anything but put you in a boot, but those broken bones hurt bad
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Otter, I thought Sue's exchange was months ago! The last I talked to her I asked if she had gone back to her job to show the old guys the new girls. I hope she's having a blast traveling. I can't think of a higher stress job than she had and she certainly deserves some fun!
Sessna, not the steroids AGAIN! Wasn't it mentioned on the thread before though that someone was given steriods because of glaucoma? I feel for your angst, it's kind of a damned-if-you-do, damned-if-you-don't position!
Navy, way to go on the weight loss! But, I've always wondered, will you gain it all back when you stop working out?
or does your body keep it off with diet?0 -
Jane, thank you for the compliment on my avatar...now Little House on the Prairie is one thing I hadn't thought of. Hope you those scans don't take you too much to heart!!! I have been told it is very hard to interpret a Muga scan, for example, athletes get lower scores than non-athletes.Thanx for the kind thoughts ladies. I made a resolution last night to call the doctor this AM 'cause the damn thing is so darned itchy and irritable, but over night I developed some sort of sinus/throat infection on the left side of my head and the whole thing feels connected. And it's pouring out. I shore don't feel like a 3 hour trip down to the doctor's but I probably should force myself.Despite the title and theme of this thread, this is one positive, energetic fun-loving group of women!!! Wish you had been around when I was dx'd...!!!Miz0
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OMG, Barbe1958, you are so right! Sue's recon was two months ago--in mid-April, not long after she retired. It's mid-June already. Where has the time gone??? Her sig line says she had a bilat DIEP flap.
Anyway, I think she's packing and getting ready (some day) to move nearer to where I live (YAY!).
Sessna, what a mess. Any other time, we would be urging you to "get a 2nd opinion." That's so easy for someone else to say, isn't it? I agree, though--someone does need to figure out what's going on in your lungs before anyone starts you on megasteroids. Just IMHO.
kmmd, no, it wasn't balance problems that caused me to break my toe. It was something much simpler: a combo of stupidity and clumsiness. I was walking barefoot on a wooden dock that had some wet spots grown up in algae. One foot slipped on a wet/algae-covered spot, and I caught my weight (gracefully, actually) with my other foot. Unfortunately, I had already lifted that foot to take my next step, so my weight ended up planted on the tips of those hyperextended toes ... and one of them broke.
No big deal, really. In the grand scheme of pain and suffering that we know as cancer treatment, my broken toe didn't even register. The only thing it's doing is complicating our vacation plans. Well, complicating my vacation plans. It won't change dh's plans unless it means I can't operate a clutch to run the shuttle to pick him up after he floats down the trout streams...
I do wish I had dealt with this broken toe myself and skipped going to the doctor (and especially skipped the ortho supply place). My PCP assured me I was already doing everything he would have recommend doing for it. He and I work well together.
Miz: positive, energetic, and fun-loving? Which thread have you been reading???
otter
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Here is my complaint for today. It might not be much compared to what others are going through but it is a royal PIA!!!
I have been on the phone and internet all morning trying to sort out my medical spending card charges and tracking down my husband's prescriptions the doctor faxed in on Monday. It is frustrating. I used the medical spending card a total of 4 times in April and May to pay for the therapy on my hand that started swelling (LE) all at Quest 4 Life rehab services. The administrators denied the first charge and last charge but approved the two charges in the middle. I unfortunately have missplaced three of the receipts that I need to 'PROVE' that I used the card on allowed services. I called to find out why they would deny and approve charges from the same place within 3 weeks and the reason I got from customer service - once I finally got through - was that the approved charges were an even $100 but the other two charges were for an odd amount (162 and 38). My first visit charge was 162 for the consultation and testing, the other charges were just amounts to get me up to my $400 deductible when the insurance would start paying 80%. I got through to the therapy office and they are going to fax me the receipts so I can send them on to the medical spending card to verify the charges. If I don't verify the charges by July 1, my card use will be frozen until I can verify the charges or repay the $200 which I don't have. and I have almost $1300 available to use until December.
As far as my husband's prescriptions. He was running out of his meds and we had to get a new prescription. The doctor's office has saturday hours and we went by Saturday morning to see the doctor and get the script, the (new) receptionst told us that Saturday's were for urgent care only and wouldn't let us see the doctor so we had to leave the renewal form for them to fill out. (We have had appointments on Saturday before for him since he is only home on Saturdays. That is why we changed to that doctor's office 2 yrs ago) I wrote the medical spending card number on the form and checked for overnight delivery. The doctor's office didn't call to say they had faxed in the script but I checked online at the mail order pharmacy to see if they had the order in house, which it was but it didn't say the type of delivery (standard or overnight). I had to call the pharmacy to find out how it is scheduled to be shipped and they did confirm that it is overnight.
Each call took about 30 minutes for a simple question. What ever happened to customer service?
Sheila
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Otter: still sounds painful
lvtwoqlt: all my sympathy, we're spending unbelievable amounts of time on the phone. Sometimes the billing office can't even explain the bills to us
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Barbe...LOL. Yes, I am sure I will gain it all back if I stop working out...which is why I have no intention of stopping. I might not have to go as much or be as strict as with my diet once I am where I need to be - but I don't have the body chemistry anymore where I can eat what I want and not work out. That went out the window when I got into my 30's!
Otter? Eeeks. Sorry to read about the toe...but it's good to see you here!
Sheila - I hear you! I have gone back and forth between a cc company and equifax about an error on my report fo the past month. FINALLY today, I think (THINK) I finally got someone to get to the bottom of it and fix it. We'll see. I have the angry letter just waiting in case they don't!
kmmd - good to see you...I thought someone was missing when I was browsing
How are you?IOS for the day was reading that JerseyMaria passed away...she used to be on here quite often and I miss her posts. It was just heartbreaking to read she was gone...
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