Im bitchy, I moan, I groan.....anyway.
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AussiSheila -- your poor DD -- could they not cover her up -- especially at that self-conscious age? They should have been comforting her, not leaving her alone. Sometimes you have to wonder about the "caring profession".
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Sheila....how awful for your DD. What is this world coming to. How much effort does it take to pull on a pair of panties, or cover her with a sheet ??
Isabella.
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My dd was like that long before I was dx w/ bc. I have never been one to run to the dr for every ache and pain! Even when the kids would get sick, if there was no fever, I did not take them to the doctor. I am not sure where the fear comes form. If she hears that someone has some disease she is worrying that she will get it.!!!!!!!!!
Sheila, I can not believe that the nurses did not hink to cover your DD, what ashame. Those nurses should be left to flap in the breeze!
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NY is going to tax every beverage that is not diet and now will also be making a bottle deposit on bottled water,,,,not to mention a slew of other new taxes our "appointed" Governor has made.
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I believe it is growth hormones. And what ever chemical is deemed needed at the time. The day after my niece turned 7, in 2008, she started her period. I was shocked. The doctor told us, he sees girls that age all the time starting their period.
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Thanks for the kind words ladies. We are so thrilled that everything is okay with DD. I have several friends in the medical field that are asking around about additional testing. I'm not ready to put this one to bed quite yet but I'm not going to make a big deal about it unless she starts having problems again.
Aussie....did your daughter have an MRI prior to DX? What were her symptoms?
Husband going in for BRCA testing tomorrow. This is really confusing everyone even after I try to explain that I can't be tested and had BC but my husband with no boobs is being tested because his 4 sisters are carriers and our girls are at the age now that they can start mamos due to their high risk factor. Why is that so hard to understand? :-)
Hugs to all.
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Angel - OMG - 7 years old? Another thread has a 10 year old with breast cancer. I don't know what's going on. This is ridiculous!
Jane - tax any beverage that is not diet - what is the point of that? When I drink soda it is diet soda because of my diabetes. Diet soda is nothing but chemicals!
Sheila & Mary - ((((Hugs to your DDs))))
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I think that the tax on soda is supposedly to encourage healthy eating???? The problem is defining the "unhealthy" element. If you tax all soda, you need to tax all sparkling water as well, including spring water that has a naturally occuring carbonation. If you tax only the flavors with sugar or high fructose corn syrup, then you exclude the diet versions.
I don't want my family to drink the diet versions if they don't have to. Like Kathleen said, they are chock full of chemicals, and both allergies and diabetes run in the family. I want to limit their exposure now, so those sugar alternatives are still fully available to them if they do develop diabetes in the future.
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Renee, there was no such thing as MRI's twenty years ago and I think we were lucky to even have CT scans back then. DD started having headaches about nine months before dx and when she was at gymnastics and did flips or anything that had her head down and feet up would result in a headache fairly soon after and then she would start vomiting. I went back to work during this time so I withdrew her from gymnastics due to transport problems (we only had one car) and time factors. I would go to work, an hour later would get call from eldest son that DD was sick, which made me wonder if this was an attention seeking behaviour or maybe she hadn't done her homework and was trying to dodge the punishment at school.
DH was working locally at the time but was away from home 12 - 15 hrs per day. One week he would start at midnight, the next he would start at midday because he had to work with the tides. We sent the kids to the grandparents at a seaside town for the summer holidays (Dec - Jan) and M-i-Law said that every time DD went swimming she would come home with a headache. We also noticed that her head was tilted to the side quite often. I took her to local GP in Sept, and was told the hormonal thing. The kids had been back at school about 3 days, when she went shopping with schoolfriend and her mother and threw up all over the check-out. Hubby was on late shift that week so he took her to another GP, new to the area. He thought she had migraine so sent her for scan. That dx was the beginning of the worst year of my life.
I also made the 'take me, not my child' offer to a higher power. I wonder why I wasn't surprised when I was dxed with BC seven years later.
Konakat, Isabella & Mary, my daughter was kicking and thrashing around after the op, something to do with the brain damage/swelling she had suffered. Although, I do agree that they could have put some panties on her at that time. One of the ICU nurses was about six months pregnant and when I walked into the unit later that day, unbeknownst to this nurse, I saw DD's leg kick out and catch this woman in the stomach.
What really shocked me though, was the nurse raised her hand to slap our DD. By this time I had come into her peripheral vision and she, guiltily, dropped her hand before stalking out with a look on her face as if I had bred a feral animal. I tried hard to be at the hospital as much as I could for the following five weeks that DD was in there.
I must say here that she was the only one I had any issues with, because all the other nurses treated DD as if she was their own child. Most patients only spend a few days at most in hospital these days so if they have one that stays longer, she becomes part of the staff's 'family,'
Sheila.
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OMG Sheila!!!! Did you report that nurse? Or did you throttle her? Or both? I can understand being upset about the kick but it was not your daughter's fault!!!! Thank goodness that the rest of the nurses were loving. That must have been such a difficult time for you.
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Oh, god, Sheila. Hugs to you and your DD. That is just awful. Renee, hugs to you and your DD also.
Hi to you all. The fatigue is still bugging me, but I'm on vacation from work, so I don't have to do anything anyway! Yay!
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Sheila - some, hopefully just a few, people in the medical community choose that profession because they are sadistic - either that nurse was sadistic, had displaced anger or figured those like your daughter (out of it) would never be believed. Next time report it to the nursing supervisor or hospital administrator and inform them you do not want that nurse EVER taking care of your daughter. Hugs to you and your precious daughter. Bad treatment of helpless ones set my blood boiling. Like most bullies,those kind of people are really cowards.
Hugs to you and your precious daughter.
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I can't even believe we would sit still while they taxed soda - if the logic is it's to encourage people to eat healthy. OBVIOUSLY if that method worked we'd have no more smokers! They tax them to death but we still buy them...
I second the hugs...it's so hard to see young ones going through this. I'm glad things are looking up.
Kathi - are you taking arimidex? I'm curious because of your fatigue comment. I've been having a hard time with it myself the past month or so...and I'm only 3 months into my prescription. I also have a very bizarre rash developing...small patches under my boobs and outer area of my arm pits. It's not bothersome but the number of spots has increased from two when I first noticed it, to more than 20.
I hope everyone is well...I have a book to finish before I return them to the library, so I have to run...
Be well!
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My bitch (unbelievable, I know)....
the beautiful curls I got during treatment are going. Hair reverting to straight. :^(
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Crap 33....that kinda thing always pisses me off.....:-) You're cracking me up.
Aussie....forgive me, I have a hard time keeping track of everyones time lines. Thanks for the info and for rehashing DD's DX. 20 years for you and I'm sure it feels like yesterday. i tried to look back at some of your old posts but they don't let you see past 20. I'm assuming she still lives with you.
Ashley has been getting some headaches lately but Tylenol seems to be helping. We met with the Geneticist today (for DH's BRCA testing) and she doubted that it was a cancer related issue and suggested going to a Neurologist.
I'm starting to slide into the "Land of Denial " where everything is going to be okay if I just shut it all out, clean the kitchen and can some salsa. I love La La Land.
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Yes Renee, she still lives with us, due to the disabilities she suffered from the brain surgery and then the rads to the brain for six weeks. She was left handed and suffered a stroke type of damage to her brain which affected her LHS. She also lost some mental faculties as well and is stuck somewhere between 10 - 14 yrs of age. So she will be with us for the rest of our lives.
Thanks ladies for your kind thoughts for her,
Sheila.
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Oh, Sheila, lordy, lordy. I will keep you and your DD in my thoughts. I'm a physiotherapist so I'm also going to send some good rehab vibes, even though this is not all a new occurrence.
Bonnie, I hope you get that rash looked at asap. That doesn't sound good at all. I was on tamoxifen, not AI's. I would not/could not take AI's because I am already osteopenic and my mother died of osteoporosis, and so the last thing I needed was something that causes bone loss. I say I "was" on tamoxifen, because I stopped taking it last week. And I stopped taking the Effexor this past weekend. And guess what? I feel better. And guess what else? I'm not going to take anything else for now. I might consider Evista for my bones, but not now. I am sick to death of these docs who are so blinkered by their inaccurate focus on percentages and statistics that they miss one of the basic ironies of breast cancer treatment. Which is that, of all the things that are NOT well understood about how to prevent bc recurrence, one of the things that IS understood is that women who feel well and are able to keep fit are more likely to keep bc at bay and NOT have a recurrence. And that means not being hamstrung by side effects and fatigue and joint pains and depression and being kept in line by fear that is often based on guesswork about one's recurrence risk anyway. I'm done.
I'm done with my med onc and I'm done with my rad onc. Both of them were basically treating me for the possibility of future cancer. They were treating my recurrence risk. They were not treating me, the woman I am now, living today, and feeling like crap, and not being able to get my life back. They've both been working on a statistical possibility. Neither of them have tried to help me get well. So, they can both go straight to perdition.
I know that the way I will keep the Stalker at bay is to get my life, my health, my energy, my fitness, my emotional well-being, and my happiness back. So, that's what I'm doing. That's my project for Breast Cancer Awareness Month.
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so there take that you rotters. You go girl..take back your life! 0
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Diagnosis SUCKED! Chemo SUCKED! Surgery SUCKED! Radiation is gonna SUCK! but reclaiming my life after it's all over............hopefully will be priceless.
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Way to go Sunris!!!!!0
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I feel sorrowful, fearful & heart broken . Today, we have lost another sister. And another will follow, shortly. Damn this disease. I wish I could stand on top of the world, and shout this, at the top of my lungs.
It doesn't matter if you are Stage 0 or Stage IV. We can't determine, who will be next. I share my thoughts and feelings only with you, my sisters. Only you can comprehend, what is in my soul. Thank you
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I know -- with each sister that dies it feels like another piece of my heart is ripped out. It is so painful, then numbing. I hate it. But BC.org gives me so much joy too -- and big guffaw laughs. And good information. A place to vent. Where I can whine. Be accepted. Bounce off ideas. Get encouragement. I wouldn't be able to cope without you all.
Elizabeth
xoxoxoxoxoxoxoxxxoooo
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Darn it all to hell. I hate this stinking disease.
Rock on Sunris!
Hugs to you all.
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Kathi - that was a righteous rant.
And I know you've made the right decision for you. I've known you've been suffering these last months, and it was time you made the difficult decision to take your life back into your own hands. AMEN, sistah!
Lisa
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Thanks Kathi ~ I will keep your rant in mind over the next few months while I watch what happens...if my fatigue does not improve and if this rash does not go away - I may have to tell them to kiss off as well. As you say..they are not treating me as I am, but how they see my future and we all know no one knows what that will bring! I am not pleased this rash is creeping down my arms because now it's visible to others where as before at least no one could see it and stare.
Sorry for all the suckiness...I'm almost afraid to see who has passed because I have a suspicion already - and that would be too sad. There are too many wonderful and inspiring souls on this board - losing one is losing one too many.
I'm off to Va Beach for a long 4 day weekend...I'll check in when I return...(((HUGS))))
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Happy relaxing, Bonnie - enjoy. HUGS for all.
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((((((Bonnie)))))) It's not itching, Bon? Hmmmm......
Thanks for the validation, ladies. I continue to feel better. And guess what else? You know how I felt like the Provigil wasn't working anymore? Well, now that I'm off the tamoxifen and the Effexor, it's working again. Interesting, huh? Some strange interaction stuff going on there, methinks...
Happy Boob Month, by the way. I have made a tad bit of serious art (and a lot of not at all serious art!!) these past months, and one of the pieces I'm most pleased with was accepted into another juried art show. I found out yesterday, on the first day of October, which is very appropriate, especially when you see it.
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Beautiful KAK. And congratulations!!
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That is way too cool Kathi!
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totally awesome, KAK!!!!!
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