Hair Hair Hair - Another question
Comments
-
Oh yes we will! Will you be taking Tamoxifen? I will for sure.
0 -
Yep tamoxifen for 5 and some other hormone treatment for five more on top of that... Can't remember what the mo called the second one at the moment...
0 -
Yup, me too, I think it's Ameridex, once they are sure your post menopausal.
0 -
JP, sorry to hear your news, fingers crossed that rads will take care of that! Your hair looks great, can't wait till i have that much coverage!
0 -
Sissid: I got the Armidex (generic) on Friday. Havent' started it yet. 8/1 is my target date. I'm being a little chicken about it.
0 -
Kjiliberty, I know what you mean.....I'm going to stare at my bottle of Tamoxifen for a while to get the courage up to take it!
0 -
Sissydi and kjiberty, I am in the same place as you. Will start Tamoxifen in the beginning of August, but have not read anything about it or side-effects etc. I think I am not going to, and will just take it as it comes. Head-in-the-sand ostrich politics, I guess!
JoanQuilts, it is weird, but the moment I realized that my hair was growing, I lost my self consciousness, and stopped being embarrassed about my baldness. Maybe the fact that I am 58 also has something to do with it. It is so hot here that I can't stand anything on my head. I wear the wig only when I go to functions, and I take it off as soon as I can. Liberating indeed!
0 -
Liefie---I'm on u'r side don't read anythin until u want to it might work well with u. My cousin didn't have any trouble with it so see it can be good.
Sometimes head in the sand works--so just see.
0 -
JP, I was hoping for a complete response too and didn't get it either. The tumor did almost disappear, and it was a honking huge one, but the nodes were still positive. Freaked me too at the time. But I am still here, walking and talking and everything. As long as that remains the case, I can't really complain.
0 -
Momine- how was the pain level when you had the ovaries out? I am going to have mine out when I do the TE exchange. Also is there a blood test that will tell exactly what our estrogen level is after having them out? Have you had any side effects from the Femara?
0 -
I started Arimidex 5/1/12 and worked myself up into a panic. So far I've experienced warm flashes that are pretty bearable and have had two hot flashes, which really took me by surprise how hot I felt. I had some jaw pain but am not sure whether or not it's related to the Arimidex. All in all I thought it would have been way worse by now. We'll see, I guess. One lady here said it best: I'd take the side effects of Tamoxifan/Arimidex over the pain of mets any day.
0 -
Momine,
Sorry to hear you didn't get a complete response either. It's scary. You have the right attitude about it though, I am trying to be mo like you but it's hard at this point. You give me strength.0 -
Jp mom: sorry about the nodes, a shock to get over! Your hair looks quite thick and long
Since lumpectomy was not an option for me, I had surgery first, an awful lot of positive nodes, freaks me out and hoping the rads gets whatever nodes are left.
Starting arimidex probably next month and metformin also, the first dose of AC chemo gave me some major hot flashes! Had to change my pajamas 4 times a night some nights.
Just had taxol #9 and the hair that started to grow after #2 is still falling out, all those hard earned 1/2" little white hairs. Nails a bit sore too and eye brows seems suspended in growth at about 1/2 their usual length and too blond to see without a pencil.0 -
JP, we can buck each other up
.
Dianarose, I had an ooph and a partial hyster. It was done with the robot. I had 4 tiny laparoscopic incisions. I did have some pain the first week, but it was from my intestines being all confused and not working right. A week later I was walking 3 miles a day. Like all surgery it makes you tired, but the pain was minimal.
With the femara I do have some SEs, but so far nothing too horrible. Exercise works wonders on the joint pain, so I try to keep moving as much as I can.0 -
Dianarose u know the scale level between 1-10 for pain--wellwhat u asked was (for me) between 1 and 2 maybe 2 it was nothing really. So don't worry about that. U know I never asked about my nodes all he said was I had 38 out and 9 were good and I never asked another question I was happy 9 were ood so I really didn't know what he meant but I just didn't want to. So my mind is goofy I know but it works for me.
0 -
camillegal- 38 is a lot of nodes to be taken out. I thought the survival rate was the same even if they didn't take so many nodes if you are going to have to do chemo and rads so why are they still taking so many out?
Momine- At what point did you start the hormonals? Did you wait until you were done with rads?
0 -
Diana all my dr. said were 9 were good, I think he meant others were with cancer or comprimised that was 2 sides too. He did tell my dgtr it was all over the place--well not those words but that's what I heard --I did chemo for over 2 yrs and 31 rads and herceptin in between and it was every week and I don't even know how many kinds I had but I know I had differwnt kinds every so often cuz they would tell me they were changing--I just remember the red devil cuz I peed red LOL So they didn't continue to take them out he took them all out at one time and that was that. Was that so unusual really? Cuz i never asked.
0 -
Diana, I had to wait for the ooph to start the femara, since I was pre-menopause.
0 -
I'm just seeing your post, as I'm starting a/c 8/15, and I went to order my wig today. I see that you are from Boston. What hospital are you having your treatments at? I'm at MGH and love my team, but just curious if anyone else has been with them.
0 -
How is the Tamaxofen working for you? I'll be starting that sometime in between chemo & radiation.
0 -
Summer - I'm from Boston area too. I had the MGH team over at Newton Wellesley Hospital - They were pretty good. Who's your surgeon?0
-
10 months PFC
6 months PFC
Hang in there ladies - it grows pretty fast! And I guess I've got quite the tan...lol!
0 -
Lovrving u look beautiful. See ladies there's proof.
0 -
Verrrry nice LuvRVing...you sure do have a nice tan as well....back to looking "normal" for you. A friend told me it takes a full year for your hair to be back to where it was before BC hit! Mine is not nearly as thick as it used to be and perhaps because I am not colouring it, there is no body. I will just wait it out!!!!
0 -
Thanks, ladies. This is a totally "normal" look for me as I'm way too "mature" to be wearing shoulder-length hair
I will say that I still have the most amazing chemo-curls and today was the best "good hair day" I've had thanks to my very big round brush! I don't think I'm going to lose the curl as I had quite a bit before chemo. It's Ok because sometimes wash 'n wear hair is quite handy!0 -
I'm officially depressed again. I finished ACT at the end of February. Hair on head, eyebrows and eyelashes all seemed to come in at once around the end of April. I think I am losing my eyebrows and/or eyelashes again so I would be on par for the every 3 month stat I've heard. Anyone have this happen a 2nd or 3rd time and NOT lose them all? I was totally bald first go around, lost everything. I can't imagine going through this multiple times. I can handle the hair on my head, for some reason eyebrows and eyelashes just bum me out.
0 -
Megs - I noticed some occasional thinning of eyebrows and eyelashes in the last few months, but they never got to the point where they were all gone, unlike the first time. They all seem to be pretty normal now. It may not happen so try not to worry too much.
0 -
Mine were never completely gone.just very thin. I didn't pay much attention cause I wear glasses...all the eyelashes and nose hair were gone tho'.
0 -
Luv- I love the color! Your brows look wonderful also. I hope to use my round brush someday also. Hope not too big of a learning curve on that.
0 -
Luv
You look amazing and yes, nice tan! I can't wait to use a round brush again LOL! Heck I'd be happy to have something to spike SIGH! I know I'm just being impatient. Only 3.5 months PFC here.
0
