Chemo in Sept 08
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Genia - what about a short break from Tamox? I hear that for some people the SE's aren't as bad when you go back on it. I hate it that you, Jane and Mina have so much pain.
I only have pain when I get hot and that's relatively easy to get around (except for hot hot flashes).Robin - the jugular or your foot??? NO WAY! Fibrin Sheath? I'll have to google that.
Speaking of Jane... Are you ok? Haven't seen you lately.
hugs
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Juli....I've taken a break about a month ago. Didn't do any good.
I'm so upset. It took me all day to do 3 loads of laundry and clean my kitchen. I used to be able to do that in just a few hours....no problem. I carried the clothes hamper up from my basement with a load of towels.....and I was in so much pain by the time I got to the top of the stairs..........I started to cry. My husband gets aggravated with me and says he will do it if I just ask......but ya know what.......I get TIRED of not doing things that need to be done. It's been over a year since I was diagnosed.......and I should be more than ABLE to do these things. How am I ever gonna go back to work if I can't even do my housework??? Just very depressing........sorry........just having a bad evening.
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Genia - Big Hugs to you! Did you feel better when you went off the Tamox?
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Towards the end I did Juli. I think I had a little more energy. The pain.....I really couldn't tell much difference. I got to thinking back.........and this whole pain thing started about a week after I started taking them. I didn't think it was the Tamox, cause I hadn't been taking it long enough really........or so I thought. But I truly believe that's where it's coming from.
I see my Dr. again on Weds......I'll talk to him about trying the AI's. He's willing to do whatever I want......very good about that.
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Hi Girls,
Genia, let us know what your dr says on Wednesday,it would be wonderful if you could switch and then have no pain, you would feel so good and be able to do anything you wanted. Fingers crossed.
Juli you did make me laugh about the truck!
I have just had a little weekend away and it was lovely, nothing to worry about for a few days. My husbands company are reorganising the entire company and everyone has to reapply for their job worldwide, they are cutting all the expat packages which means we may have to leave Singapore anytime from December onwards! Not what I wanted to hear, just as I am really enjoying myself, starting up my business again etc. I will have to leave all my support here, breast cancer foundation, dragonboat team and my wonderful oncol. etc. I am trying not to worry about it and take each day as it comes, big stress is not on my agenda. The thing is the move could be anywhere in the world, USA, France, Holland, UK, who knows. Each one comes with a different set of problems.
I am planning a big halloween party next Saturday and have 62 people coming, that is keeping me busy as I love planning parties.
Take Care everyone.
Singapore Chris x
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My chemobrain is worse. I wonder if it has to do with the 11 hours of anesthesia? And I have another surgery in December. It is really bad some days. sheesh.
Genia, hang in there. You are right, it is not fair! I think you are totally justified in wanting to feel "better" by now...
Chris, leaving Singapore maybe? How long have you been there? Well, let us know what happens....
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Hi Girls,
My chemo brain is not too bad, but occasionally just when I think it has gone, I forget to go somewhere or do something.
Spring we have lived in Singapore twice, this time for 2 years, I had only been here a few months when I found my cancer. We had 5 years in Holland before, which was really hard and is where and why I got cancer. Before that we were here in Singapore for 12 1/2 years. Two of my sons were born here and I as sooooo happy to leave Holland and come back. I also lived in Malaysia as a child for 3 years and really love this part of the world. The most likely job looks live Holland again!!!!!!
I have lost another lb, so that makes 9 so far. The one day at a time is working, and trying to get into my red devil dress for Saturday is also a BIG insentive.
looking forward to hearing what your Dr has to say tomorrow Genia.
Take Care, Singapore Chris x
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I tired to answer my water bottle today...didn't work very well...and the ringing wouldn't stop
Still waiting to feel normal. Not holding out any hope. I had my reclast infusion today...I don't think that's going to make a difference one way or another, but hopefully it willkeep me from breaking a bone every time I fall down.
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Also - On my way into my lymphadema specialist's office the other day, I saw a sign that said, "Early detection = hope" Does that mean I'm hopeless? I hope not. They really should think these signs through.
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Jane - let me know if you get any SE's from Reclast. I am hoping to get that next month.
The last 2 times I tried to take my Carnitor pills, I gagged and they got caught in my throat. They are not coated and the smell of fish is disgusting! I'm telling the doc it's just not gonna happen!
hugs
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Chris....just curious.....what accent do you have? I have you pictured with a British accent for some reason.....but I'm probably way off with that one.......
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Jane hoping you feel better really soon.....and they figure out what's going on with you.
love you all
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Jane, answering a water bottle, LOL!!!
Chris, I wonder if you have to leave Singapore, where you will go next? Luckily, you will always have a computer connection so we will not lose you!
Juli, HOLD YOUR NOSE and HAWK THAT PILL DOWN!!! LOL, you are cracking me up!!!
I get Zometa infusion on Nov 10, my 2nd. I had no SE's the first time, but then again, I didn't get bone aches from the Neulasta shot, not that I know these are related in any way. Man, though, i did get aches from Taxol. NO SE's from Zometa.
15 minute infusion, so quick and easy, if you've been through chemo. If it was me BEFORE chemo, I'd think the friggin Zometa infusion was like the end of the world. I used to freak out about getting my blood drawn.
HA!!! A lot has changed.... LOL.
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Evening all,
Jane, I fell out of my chair, got up off the floor AND then fell down again LMAO thinking about you and the water bottle phone....love ya.Genia, I hope all goes well for you. I hope the MD really listens to you and helps you if it's the Tamox...and prescribes what's best for you.
Quality of life is a big big issue for me. I had so much less discomfort and fatigue after my AC infusions that I thought it would be like that for a while...more energy and less pain.
Then came Taxol and radiation... NOT! I feel well...you guys know how it goes. Fatigue and increased joint pain lingers but I'm hoping it's not for long.
My rheumy increased my Neurontin/Gabapentin to 300 mgm per day and I'm already hitting those train steps with less pain...fingers crossed I improve. He says I did trigger a FMS flare by doing those 38 days with 5 days off for burns. That makes sense to me. and If that's the case I have recovered from flares before and will again...plus my first rheumy told me my fibromyalgia would flare again but never as much as the first time. Now to figure out how to get to acupuncture.
Chris, I always pictured you with an accent too. It's a Good good thing we have this site and your addy to keep up with you.
Juli. follow Spring's advice....take YOUR MED please! love ya...love the way you describe it...
Spring, I know you feel about treatments, vein sticks and other medical procedures. Before I was dxed with these other pain in the neck diseases I was a pain wimp. Getting an IV in surgery or a blood draw made me turn my head to the wall and grimace before the techs did the draw..
Now, I point out my one good arm vein, wrist and hand veins and I take multiple vein sticks...who knew:lol :lol
love everyone to pieces....
mina
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I think that Chris has one of those delicious British accents...*sighs*
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A sneaky nurse told me my PET scan was C L E A R today when I went in for my Herceptin!!!! She made me promise to act surprised tomorrow when I see my Dr. I told her....MUMS the word.
I'm still having the pain......but I haven't taken the Tamox for two days and it's not nearly as bad as it was. I'm gonna try the Lupron shots and an AI just to see if I have the same bad SE's. If not I'll stay on it....if I do I'll switch back to the Tamoxifen.
Jane....answering the water bottle is ALMOST as good as getting that foobie in sideways that time. But hey.....I got my in sideways once too. Kept looking down and couldn't figure out why my boobs weren't even. I had been all over the place like that until I figured it out........lolol.........oh well!
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Hi Girls,
Yes I do have a british accent, it is pretty pure with no particular north south thing going on, as I have been out of England most of my life. 12 years ago here in Singapore, I did some recordings for a series of childrens phonic books. A company in China wanted to buy the rights to the books, but just stole them instead, but never mind as there are now thousands of little chinese children walking around with my accent!
I have decorated the house for my halloween party and am hoping some people will drop out so I can fit them all in. Will keep you posted.
Have a good day girls. Singapore Chris x
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Genia,
YAY!!! YAY!!! YAY!!! YAY!!! YAY!!! YAY!!! YAY!!! YAY!!! That is great news!!!
Also a good plan to try the Lupron shots and the AI. Who knows, maybe it will be better? You are right, you can always go back.
I noticed once when I skipped Tamoxifen for 2 nights in a row that I slept so much better. Now I moved the TAM to morning. Who knows, I wondered if it would help me sleep better??
Love you girls!!!
Still cracking up about Jane answering the water bottle!!! LOL. (phone keeps ringing, that is the first clue something is not working right! HA!!!!)
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Hi all...I haven't chimed in lately but I check in with you daily. Hard to believe we all started out here a little over a year ago. Sometimes it seems like a lifetime ago. Juli, I had my first Reclast infusion yesterday. I felt fine yesterday but today I ache...not enough to keep me home... and have the chills on and off. Seems to respond well to motrin so I think it is just my osteoclasts and osteoblasts working overtime to build my bone density back up. Thanks to chemo my bone density decreased by 15% this past year. Again, the gift that keeps on giving!
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Well I'm off the Tamoxifen wagon.....
Went to the Dr. today and he took me off of it. He's putting me on Lupron shots and Aromasin. He said if there wasn't any difference I could go back on the Tamoxifen. I hope and PRAY it's better, cause this is torment!!! My body doesn't like it and it is revolting bigtime!
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I rescheduled my mast for 11/23 - the other secretary in my office is literally watching her husband die and is out until he does. I figured that since it's Thanksgiving week, even if she isn't back by then, it'll be a quiet week.
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Hi Girls,
Genia, I must have posted at the same time as you as I didn't see your earlier post. Great news that your PET is clear and that you are off tamox, I am sure you will also lose weight. I feel great on aromasin, so far so good.
Lili nice to hear from you, glad you are alright, despite the chills, hopefully they will be gone soon. Good to hear you are checking in most days, please jump in anytime, it's always good to know how you are.
Jane, sounds like your office is a pretty sad place at the moment. Are you feeling any better?
Good luck everyone, take care Singapore Chris x
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Nice to hear from you Lili!
Genia, I wonder will you have a break between stopping Tamox and starting the AI? Sometimes they want to give the Lupron time to work ...
Hang in there Janie....
Chris, I forgot you switched from Tamoxifen to an AI -- what was it for you?
I lately have been having this foggy patch in front of one eye, and I wonder if its the Tamox. Cataracts is a known SE. ugh. Going to mention it at my appt on 11/10....
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I'm off on a cruise to Cabo San Lucas! I'll be back on Monday.
Love y'all!
hugs
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GO JULI!!! Enjoy!!!
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Juli- I hope you have a great time on your cruise!
Jane- thanks for the giggle- we have all had those kind of moments!
Lili- good to hear from you. Hope you are doing well.
Spring- I don't know about the anesthesia- It can do so much to you.
The cough is getting better but still hanging on- have had an allergy to something i am taking but still haven't quite figured out what it is that is causing the itching....
Kiddies have been high on sugar this week with parties at pre-k and babysitters...oh boy!!With the colder weather i have been making coffee at night and Khara has a FIT when I won't give her any can YOU imagine a two yr old on caffeine at night...especially her she's the one we call the bumble bee on steriods.......
Have a great weekend.
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I am seeing the eye doctor tomorrow about this cloudiness in one eye, that could be from Tamoxifen. Will report back.
ugh.
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Jane, that's when I had my mast last year! I highly recommend it as you can sit on the couch and catch all the Christmas movies while you recover. Funny, I have the fondest memories of that time.
Genia, so glad to hear about your PET resutls - woo hoo!
Mina, so good to see you on Farmville!
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http://www.poynter.org/column.asp?id=2&aid=172583
I lost my post again. I wanted to attach the above crazy fun article to my post but lost it on FireFox which has no cut/paste app???. I'll have to fix that problem later when I have time and energy. Anyway, I didn't know the entire world was playing Farmville. The person who sets his alarm to 0100 to wake up and harvest crops is a hoot. I hope you like the article
Genia, once again YEAH! SO glad you are free from Tamoxifen.
{{{{{{{{Jane}}}}}}}
Juli have a great time
Spring, I hope all will work out with your eye...be back soon to see how it goes.
Bettsygirl, How about caffeine at night for any of us. arrgh My son is off it for nearly 2 weeks and says he feels like a new person..less antsy, less everything. He is happy about the changes...so far.
Lilli, Hi, I hope you feel better soon.
I caught Dr OZ earlier this week and he was hard at work on a woman who drinks 1500 mgm of caffeine with sugar and cream everyday. There is 35 mgm in a can of Pepsi ONE, my favorite caffeinated soda. I hope she can break her addiction soon but I fear it's going to be hard. Dr OZ says he's ready to help her 24/7...her health is in danger from many problems i.e., high blood pressure etc.
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My co-worker's husband is off all meds...he's only getting morphine and is in a "coma." It's only a matter of time now. I honestly want to die alone. I do not want my family huddled around me waiting for my last breath.
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