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  • fairy49
    fairy49 Member Posts: 536
    edited December 2009

    Merilee!!!! YAY!!!!!! I am crying right now, have thought of nothing much else the past few days, hoping and praying that the results would be favorable.  So very happy for you!!

    L

    ox

  • lucy88
    lucy88 Member Posts: 100
    edited December 2009

    Merilee....Smiles from all of us!

  • Nan
    Nan Member Posts: 49
    edited December 2009

    Dear deni63,

    When I edited my post about Tamoxifen, it posted all in bold type. I tried to remove the bold...but alas...it will not allow me. I forgot that with OncologyStat, you have to sign up to view the articles. Sorry! That other article from the NY Times was one that I posted on the TNBC site. IMHO...Tomoxifen is scary to say the least.

  • fairy49
    fairy49 Member Posts: 536
    edited December 2009

    I decided to make my friends their Christmas gifts, it took me a while to make, but I made everyone organic body scrub, its awesome and smells yummy!! I packaged them and had labels made, I have to say they do look fabulous! Maybe I can sell them and donate the money to people on here who need to see a naturopathic MD but don't have the funds! I was going to sell cookies, but I am a horrid baker!

    L

    ox

  • fairy49
    fairy49 Member Posts: 536
    edited December 2009

    Vivre! Just saw your post about Meet the Natives! I am in Orange County and can only imagine how ridiculous that episode is going to be!  After seeing briefly, The Real Housewives of Orange County I have to say that is NOT the real Orange County and the Meet the Natives seems to be of the same vein, should be interesting!

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited December 2009

    Merilee, WHEW, that's great news!!

    I just got home from having an MRI-guided biopsy on my LEFT breast (the right one is the "bad" one). The MRI a few weeks ago had shown an abnormality.

    I hadn't worried about it, but the doctor said it's a 7mm mass. Now I'm starting to think... crap... after all this half-breast-ectomy business, what if the other boob is the bad one? *sigh* Well, I guess I'll find out on Monday. 

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    Merilee - great news! What a tremendous relief. Wonderful news! We actually just got back from seeing my husband's surgeon at Columbia. Great news on that front too. His margins are all clear and there was no sign of anything outside of the kidney. No need for any further treatments. F/U in 6 months! The best news we could have received. Plus, my US yesterday showed nothing remarkable. It is a great week for us too.

    Crunchy, I am so sorry to hear you may be dealing with more than you had originally thought. We are sending you the most positive of vibes and {{{{HUGS}}}} for your news to be as good as ours! Try not to let this take over your weekend. So hard to do, I know. Thinking of you...

  • Merilee
    Merilee Member Posts: 734
    edited December 2009

    God I hate Cancer!  So stressful! Crunchy, hang in there. I will keep lighting candles in the morning for you.

    Ladies, thank you for celebrating along side me, you guys are so awesome.

    Deni, so glad to hear your news. FEEEEW! What a relief eh?

  • Springtime
    Springtime Member Posts: 3,372
    edited December 2009

    Merilee, Yay!!  Congratulations! 

    Fairy, BLECH!!! Processed "cheese food". ewwwwwwwww. 

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    Great news, Merilee! So happy for you

    Julia: Hang in there. I know this whole testing and retesting thing is the pits. I am so scared, because mine is fast approaching, but I have all these positive vibes with me, Thank God.

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    ....And in the GROSS department: It is bad enough that we have *paper*??????? in our food. But, guess what's in our ice cream?????? Here we go:

    Carmine (pronounced /ˈkɑrmɪn/ or /ˈkɑrmaɪn/), also called Crimson Lake, Cochineal, Natural Red 4, C.I. 75470, or E120, is a pigment of a bright red color obtained from the carminic acid produced by some scale insects, such as the cochineal and the Polish cochineal, and is used as a general term for a particularly deep red color of the same name. Carmine is used in the manufacture of artificial flowers, paints, crimson ink, rouge, and other cosmetics, and is routinely added to food products such as yoghurt and certain brands of juice, most notably those of the ruby-red variety.

  • my560sel
    my560sel Member Posts: 399
    edited December 2009
    Merilee, I'm so happy for you ! PHEW! Go celebrate!

    Deni, Good news about your DH!

    Fairy: That's disgusting...I stopped eating Kraft products a while ago but that's enough to make me never ever even fathom eating one again!

    Vivre: Never heard of 714X - very interesting article...Never heard of the girl but good for her for not taking her Dr's advice and taking matters into her own hands. More proof that we should make our own decisions!

    Julia: Hope everything comes back negative...hang in there. I'll be praying for you.

    Terri

  • rgiuff
    rgiuff Member Posts: 339
    edited December 2009

    Merilee, glad to hear that, so I guess your ovaries are in safe territory now?

    Deni, glad your husband is doing well.  I see his surgery was done at Columbia.  I also had my lumpectomy done there.  Great hospital without an uppity attitude!

    Nan, that Oncology site was very interesting.  I could spend hours reading the articles on there.  I have seen that tamoxifen article before that talks about the possible development of TNBC.  I don't like the idea of doing 5 years of it, will probably only do 2, then decide from there.  I've done almost 13 months so far.  I feel that if it does have a benefit to it, I want to get some of that benefit, but not stay on it long enough for problems to develop.  I still get thoughts in my mind sometimes, about this whole thing being a crap shoot no matter what treatments or alternatives you go through, that some people will be lucky and others won't.

    Julia, praying for a good result for you!

  • Luna5
    Luna5 Member Posts: 532
    edited December 2009

    Merilee and Deni and Deni's Husband...YAY!>>YAY!>>>YAY!

    Crunchy...so sorry you are having to worry again...sending you all positive thought that everything will be fine!!!!! 

  • revricki
    revricki Member Posts: 51
    edited December 2009

    DeAnn - Thank you for sharing your beautiful website. I found the photos encouraging and the music soothing. Best of health to you. 

  • revricki
    revricki Member Posts: 51
    edited December 2009

    Can anyone suggest a list of "must take" daily vitamins and minerals? I am done with chemo and 4 sessions away from being done with rads!! Thank you. Ricki

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    Rose - We were very happy with our surgeon at Columbia. They actually used a DaVinci robot to do the surgery. Amazing technology. My husband's incision is surprisingly small considering they did a nephrectomy! By the way, I really like your new avatar! Nice photo of you!

    Revricki - Welcome! I think the best thing to do would be to read back in this thread. I think it was around page 90 we recently all listed the supplements that we take. There is so much info in this thread, you will not be sorry that you did!

  • Jennyi1
    Jennyi1 Member Posts: 81
    edited December 2009

    Good morning Ladies,

     Merilee. glad everything looks good.

    Thank you Vivre for the group hug SmileSorry I didn't get back to answer your question right away about the time zone. It is Central. I am actually doing ok, sore and weak, but ok. Thank you ladies sooo much. I will join ya'll when I feel a little better. "BIG HUG"!

    Jenny. 

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    Jenny - thanks for checking in! Go rest. Glad you are on the other side of the surgery!

  • vivre
    vivre Member Posts: 881
    edited December 2009

    Jenni-Hope you are doing well, and on the mend. There is a smoother road ahead.

    Julia-Hugs to you dearie. God bless.

    Merillee-Here's to continued good news.

    Hope everyone is getting some global warming. It is freezing here! I guess the only hot air is coming from the politicians, as usual. But I am enjoying the snow. It is beginning to look a lot like Christmas. I love the holidays, even with all the stress it is a great time to be thankful to be alive.

    Ricki-I just found out about a supplement that is supposed to get rid of the effects of radiation. My dentist just gave the name to me, but I have to find it! I will let you know when I do. In the meantime, try to find a doctor or ND who can help you with a detox. You need to get the gunk out.

  • motheroffoursons
    motheroffoursons Member Posts: 80
    edited December 2009

    Just a note about the paper filler discussion.

    The main component of paper is cellulose, which is also the main component of dietary fiber.  Cellulose is composed of glucose sugar units connected in a chain which the body cannot break down.  (However, mircorganisms in termites and cows can).  So all paper and all wood, including your furniture, are basically glucose sugar that we cannot digest.  So are dietary aids such as metamucil and benefil.

    Adding ground paper as fillers, while not improving taste of products, would not be harmful. It does provide more fiber.

    HOWEVER, I want to add the caveat that the paper is not bleached or treated with other industrial chemicals.

    All this can information can be easily supported by researching a basic biochemistry book and or basic internet resources.

  • lucy88
    lucy88 Member Posts: 100
    edited December 2009

    I once heard a speaker at a conference describe an experiment.

    One group of mice was given water and fruit loops to eat exclusively.

    The other group was given water and the shredded box the fruit loops came in exclusively.

    Guess which group lived longer?

    Yup, the box-eating mice.

  • Suzanne3131
    Suzanne3131 Member Posts: 2,000
    edited December 2009

    Lucy ~ Wow, that is amazing!  And frightening as far as what "they" call "food"!

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    Lucy: This is amazing. But I don't get it:  Does this mean that in the end it was healthier for those mice to eat shredded boxes instead of fruits??????

    Update: OOOOOOOKKKKKKK, it took a while, but I am finally getting it. OH, MY GOD! The food supply is this unhealthy?

  • Springtime
    Springtime Member Posts: 3,372
    edited December 2009
    Vivre, would you share that supplement, the one to get rid of the bad effects of rads?? Please. (ugh).
  • RunswithScissors
    RunswithScissors Member Posts: 69
    edited December 2009

    Yazmin,

    My conclusion?  The  fruit loop  study proves that WAY too much money is spent  on pointless research!

  • PS73
    PS73 Member Posts: 171
    edited December 2009

    Agreed.  That sugeon general has a pretty cake job it seems..

    This is an intriguing subject to me. I love musk personally but then I learned about it. Not pertaining to the woody musks, but the sweaty and animalic musks.  In the food world, this is taken from beaver sex glands.  How about Sumatra coffee beans? It has been passed through the bowels of african cats (the real sumatra). Anyway, there are tons of nasty things that consumers consume.  If you want to ensure of the quality and processing conditions of your food - grow it and make it in your kitchen.  The ingredients in all products are questionable and researchable.  This also prob goes for supplements.  ..and garments.  By demanding quality and simplicity we control the industry. Its socially responsible consumerism.   We the consumers set the trend for this in all industries.  Unfortunately quality costs more.  Now it does sure. .. but eventually there will be more demand for higher quality standards through simplified products. Eventually, cheap and fast will be a thing of the past.  Unfortunately, right now, if you walked past a beverage that has not been flavored, colored and/or processed you could get really sick from drinking it.  That is if you wanted to even touch it.  It would look nasty and brown and taste like acidified sugar water.  Certain food products will never be unprocessed - they just cant and its to protect the consumer from getting sick.  

    Note that there are some companies already hitting this demand (which is not a NICHE, I like to consider it more of a MOVEMENT) and there are smart and responsible developers creating products for these consumers.   

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited December 2009

    If you want to ensure of the quality and processing conditions of your food - grow it and make it in your kitchen.  

    Yep... hence my efforts to go "Little House on the Prairie" (as much as feasible at this point, anyway... and buying from a local organic farm for most of the rest). 

    Unfortunately, right now, if you walked past a beverage that has not been flavored, colored and/or processed you could get really sick from drinking it. That is if you wanted to even touch it. It would look nasty and brown and taste like acidified sugar water.

    If it looks and tastes like that without chemicals and processing, I'd rather not drink it! (Wait, doesn't Coca-Cola already look nasty and brown and taste like acidified sugar water?! Laughing)Nature gives us cues as to what's safe to eat and what isn't. When that is bypassed with the use of potent chemicals (to make nasty stuff taste good, to keep food from decomposing naturally, etc.), we ingest garbage that the human body was NEVER meant to consume.

    I used to be addicted to that toxic garbage (which played a big role in my getting cancer). Now, I drink only triple-filtered water, or organic herbal tea brewed with triple-filtered water. Every once in a while, a small glass of organic, sulfite-free red wine.    

    Lucy, that's sad yet hilarious. Was he using that as a fictitious example or did it sound like there actually was a study? (Honestly, it wouldn't be too hard for a 7th grader to do that as a science project, except for the animal cruelty ethics of course. It should be considered cruel and inhumane to feed anyone Froot Loops cereal!!!!!!)

  • robyn33
    robyn33 Member Posts: 16
    edited December 2009

    I finally got my 2:16 test results back from Quest Diagnostics.  Is there anyone out there that can help me decipher what some of these values mean?  I "get" the ratio part of it--seems I barely eeked my way into the "normal" range with a 2.88.  But, what do the separate values mean?

    2 hydroxy--33.7 ng/mg

    16 hydroxy--118 ng/mg  (Seems to be waaaaaaay out of range or doesn't make sense...  if the number is 118, then the ration calc. isn't right.  I found that if I assume the decimal was off and the # is 11.8, that makes sense)

    Creatinine--86 mg/dl

     What (if any) is the significance of these?

    Thanks for any help you can give!  :-)

  • Nan
    Nan Member Posts: 49
    edited December 2009

    Dear robyn33,

    Quest Diagnostics  are notorious for innacurate results.. Is this a vitamin D level testing or for calcium levels? I see where you wrote Creatinine.

    http://consumerist.com/2009/01/quest-says-nearly-10-of-its-vitamin-d-tests-were-inaccurate.html

    http://preventdisease.com/news/08/090308_vit_d.shtml

    This is what my vitamin D level test from Mayo Medical Laboratories looks like. My vitamin D levels are 66.

    25-hydroxyvitamin D2 and D3, S

    25-Hydroxy D2                         <4.0    ng/mL

    25-Hydroxy D3                           66     ng/mL

    25-Hydroxy D Total                     66     ng/mL