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  • lexislove
    lexislove Member Posts: 277
    edited April 2009

    Deanna,

    There is also Kamut pasta. I found out I have allegies regarding gluten and have tried the rice,corn pastas ect. The Kamut is the one that tastes the most "normal" to me.Smile

  • lexislove
    lexislove Member Posts: 277
    edited April 2009

    P.S....

    I'm a loooooovin that Chanel recipe! I must give it a go!

    Thanks VivreSmile

  • PatMom
    PatMom Member Posts: 322
    edited April 2009

    I've found that my whole family will eat the Barilla Whole Grain pasta and not complain.  It uses durham wheat and semolina flour, and adds oat fiber to that, so it is a bit healthier than the standard white pasta, but it doesn't solve the problem of allergies to wheat. 

  • Springtime
    Springtime Member Posts: 3,372
    edited April 2009

    PatMom, we have also done the switch over to healthier pasta and nobody is saying boo. ha!!!!

  • Lili46
    Lili46 Member Posts: 102
    edited April 2009

    Deanna...I have celiac disease so I can't eat anything with gluten in it and have tried many different pastas. My favorite brand is Tinkyada. They carry all shapes...penne, fusilli, lasagna noodles, etc...I use the penne when I make baked pastas and the only time my family notices that it isn't "regular" pasta is when they see me eating it. Tinkyada is a rice pasta.

    Li 

  • FloridaLady
    FloridaLady Member Posts: 158
    edited April 2009

    Good info on pasta! I love pasta with stem veggies. So I need to try some of these products.

    Flalady

  • dghoff
    dghoff Member Posts: 237
    edited April 2009

    RE: Apples.  I've definitely read a lot that the skins of the apples are the crucial thing. You can just as easily toss out the flesh. All the good stuff about an apple is in the skin, so organic is clearly the way to go with them.

    I was reminded today of the power of green juice! I haven't juiced for a few weeks as I mostly do green smoothies in the morning, but today, I started the day with a big glass of green lemonade (apples, lemon, ginger, romaine, and kale all juiced). I was just zooming from it. I bounded up the stairs at work like I haven't in a long time. I just felt so darned good! It was awesome! I think I might have to work them back into my daily routine!

    DeAnn

  • amberyba
    amberyba Member Posts: 180
    edited April 2009

    DeAnn, that sounds wonderful....i need that boost too!

  • mandy1313
    mandy1313 Member Posts: 978
    edited April 2009

    Organic apples may be the  way to go, but it is hard to find ones where the skin has not been "waxed."  Whole Foods (at least where I  live) waxes alot of their apples. They say the was is ok, but I am not convinced.   So ask your organic supplier whether they wax their apples.

  • Springtime
    Springtime Member Posts: 3,372
    edited April 2009

    OK so the skins are the thing, and here I am peeling my non-organic apples to avoid the toxins!

    Mandy, What's with the wax? Is that bad for us? Or can we just polish and eat an organic apple?

    Must find organic apples now, it seems. Always something!

    Spring.

  • mandy1313
    mandy1313 Member Posts: 978
    edited April 2009

    Spring: I don't know if the wax is bad but I don't want to eat something that is not part of the fruit. I have found a smaller organic store where I can get unwaxed apples so I know they do exist.

  • susan13
    susan13 Member Posts: 102
    edited April 2009

    Valjean-I use "Avalon Organics" Vitamin C face wash, and moisturizer.  No parabens, and it smells like citrus!  I love it, and it really does put a glow on your face.  I get it at either Whole Foods or Wegmans, some grocery shops carry it in their organic isle too.

  • valjean
    valjean Member Posts: 1,110
    edited April 2009

    I'll look for that Susan, thank you! Love your avatar by the way  !!!!!    :P

    ((hug))

    Val

  • fairy49
    fairy49 Member Posts: 536
    edited April 2009

     I found this on Sloan-Kettering's website, I know a lot of people take this or drink Essiac tea so just wanted to post this.

    Clinical Summary

    Essiac was developed in the 1920s by Rene Caisse, a Canadian nurse. It is a formulation of four botanicals: burdock root, sheep sorrel root, slippery elm bark, and rhubarb root (1)(2). Despite insufficient clinical evidence (13), many cancer patients use Essiac tea as an alternative treatment based on anecdotal evidence.

    Essiac demonstrated antioxidant (12) and cytotoxic properties in vitro (6)(11), but stimulated growth of human breast cancer cells both via estrogen receptor (ER) dependent and ER independent pathways (3). Data is conflicting on Essiac's antiproliferative effects on prostate cancer cells (7)(8). A retrospective study of breast cancer patients found that Essiac did not improve quality of life or mood (10). Well designed clinical trials are needed to evaluate Essiac.

    Because Essiac inhibits cytochrome P450 (CYP450) enzymes (6), it can interfere with some chemotherapy drugs (4). Cancer patients should use caution.

  • amberyba
    amberyba Member Posts: 180
    edited April 2009

    Thanks Fairy, that is good to know!

  • bdaniel
    bdaniel Member Posts: 3
    edited April 2009

    Hi.  This is my first time posting to anything but I have been poring over support sites to find information that would be helpful.  I was diagnosed in January 2009 after a lumpectomy with HER2-, ER+ PR+ 0 node involvement, apparently early stage 1b.  My treatment is to be 33 radiation treatments and I fought for IMRT treatments and have been given three so far.  I don't know if I am a "health nut" but my doctors seem to think so.  I have been taking many vitamins/minerals and natural supplements for many years to thwart the family history of heart disease and alzheimers only to be blindsided by a non-family history breast cancer.  I received a letter from my surgeon yesterday stressing the "detrimental side effects" of these "unregulated medications" I am taking.

    My radiation oncologist is in agreement with my surgeon.  I do not want to sabotage my own treatment but am I making a mountain out of a molehill when they ask me to stop these "remedies" immediately?  My research so far indicates that some of my supplements are helpful.  Any suggestions?  Thank you for your help. 

  • FloridaLady
    FloridaLady Member Posts: 158
    edited April 2009

    Welcome to the mainstream doctor mind set bdaniel.  But your doctor's are getting a bit extreme.  My oncologist or rads doctors did explain to me that if I take mega dose of certain things I could "possibly" interfere with my treatment but there is NO proof that supplements have "detrimental side effects".  I have a big issue with what you are telling us...for example your surgeon does NOT treat your cancer.  Your oncologist does! Their job is to cut it out PERIOD!  As for the radiologist there is a fine line about "antioxidants" and rads. Are you under the care of an oncologist yet???  If not I would get to one and blow these two off.  Only the oncologist truly understands your cancer pathology.

    Your right about your research there is no proof that supplements have any major negative effects on treatment.  I've been to four different oncologists and none ever told me to stop.  Even in the big research clinic's I've been to, never told me to discontinue supplements.

    You may learn that you are better off not telling your doctor's what you are taking.  I hate this but it's a fact if they don't know why you take it and instead of researching it they will tell you to stop.

    Flalady

  • bdaniel
    bdaniel Member Posts: 3
    edited April 2009

    Thank you so much, Florida Lady.  I am only getting radiation and no chemo just for precaution.  I tend to believe like you "don't tell" but I already opened my big mouth so all I can do now is lie and tell them I stopped and don't stop or just stop taking anything.  I am trying to find as much as I can about supplements and their effect on radiation but I am limited.  I only have a radiation oncologist and I am due to meet with him this afternoon.  Do you suppose they would refuse to treat me if I refused to stop taking my supplements?

  • FloridaLady
    FloridaLady Member Posts: 158
    edited April 2009

    They can not refuse you treatment because of your supplements. I would ask the rads oncologist what he/she would feel are the more important ones they may want to discuss and why.  Don't go in wanting too argue, just let them have their say and ask for something to back it up. This still is a free country and you can make your own decision about your health care.

    Flalady

  • lisasayers
    lisasayers Member Posts: 144
    edited April 2009

    Well said Flalady!!!!!!  As always!

  • florbo
    florbo Member Posts: 32
    edited April 2009

    Vivre,

    My mom has several friends who've done chemo for other cancers and they see a homeopathic doctor along with their medical team.  The homeopath told them bathing with apple cider vinegar in a hot bath helps with detoxing from chemo.  

     I love all the new information I'm learning on this thread. 

  • mizbabygirl4
    mizbabygirl4 Member Posts: 42
    edited April 2009

    bdaniel, can I ask what supplements you are taking that they want you to stop?

    Janet

  • JeninMichigan
    JeninMichigan Member Posts: 51
    edited April 2009

    I have received several different answers on taking supplements when going through both chemo and rads.    My first oncologist told me no supplements when on chemo because it is defeating the purpose of destroying cells if you are taking supplements to rebuild and make your cells stronger.  Same goes for my first radiologist group.  However, my current oncologist was all for me taking antioxidants and supplements during chemo.   She didn't agree with the isoflavones but everything else was all good.    My second radiologist (University of Michigan) had no issue with my supplements.     

    I am going with the doctors that said go for it with the supplements.   First radiologist group subsequently denied my radiation therapy because I am stage IV which was a blessing because I went to the University of Michigan who immediately approved my radiation.   My first oncologist said we are not treating me to cure me with my stage IV and said he would just try to give me a qualify of life.  My current oncologist says she is treating me as aggressively as a stage II.   She believes many stage II are stage IV and are not ever picked up because often times PET scans are not done only CT scans.  My mets were picked up on a PET after a CT came back clean.   

    I totally believe you need to heal your body while you are getting treatment. 

    Jennifer 

  • amberyba
    amberyba Member Posts: 180
    edited April 2009

    Jennifer,

    what a testimony, it does vary from oncologist to oncologist....I am glad your current doctor is fighting BC aggressively.....you just never know where those cancer cells are hanging out....lol....and I totally believe as you said a strong body helps in all treatment.

    Best,

    Amber

  • crazy4carrots
    crazy4carrots Member Posts: 624
    edited April 2009

    I think it's a real shame that medical docs are not taught about nutrition and supplements which could complement and enhance the therapies they prescribe.  Perhaps the first thing a newly-diagnosed patient should ask her oncologist is "Are you knowledgeable about nutrition and complementary or holistic therapies?"  And "Could you refer me to someone who is (nutritionist, naturopath etc.) so that we can work together?"

    Cheers to the medical facilities which actually do provide this info and practitioners as part of their overall treatment facilities.  Sure wish there were more of them...Frown

  • Springtime
    Springtime Member Posts: 3,372
    edited April 2009

    My surgeon suggested I "interview" several oncologists as "it is a mixture of art and science". ha.

    My onc said no antioxidants b/c the thought is they may "protect" the cancer. 

    I started them up again as SOON as chemo and rads were over...

    Spring.

  • FloridaLady
    FloridaLady Member Posts: 158
    edited April 2009

    Jennifer,

    I would defiantly go with Univ Michigan said.  This clinic does a lot of research and I would feel comfortable with what they say.  I'm glad doctor's are now understanding that stage IV patients have to support their body through treatment or the treatment it's self will kill us before the cancer ever does.

    Flalady

  • sunyata
    sunyata Member Posts: 1
    edited April 2009

    I've just joined the group and am very encouraged by so many who are also choosing complementary/alternative medical care (CAM). I am totally in favour of keeping up the 'natural girls' discussion.

    Might I add to Stacey's and others' suggestions that it remain not only sarcasm- and negativity-free, but also judgment-free? I also think comments relating religion and politics could be delegated their own thread for those who would like to discuss along those lines (even though they may have a connection with the natural healing topic).

    My focus on healing is to do it naturally, free of the conventional chemo/radiation scenarios that I have already been through and now choose to decline - not that I am not supportive of anyone going through that :) Tough decision, but one I will stand by and champion.

    I would like to contribute here as much as possible. However, the truth is, I am already spending too much time on the computer, and would prefer to meet with others either in person or by teleconference or something similarly 'live' on a scheduled basis.

    Is there anyone who is interested in forming such a live discussion group, that is, of those who have chosen to heal from cancer using CAM? Does anyone know of one in the Ottawa area. Should this topic be started with another thread? (I'm new at this).

  • bdaniel
    bdaniel Member Posts: 3
    edited April 2009

    Mizbabygirl4, I am sorry to be so long in getting back to you, my life and my mind wanders...My Radiation Oncologist went through my list again and allowed my multi-vitamin/mineral supplement, niacin, omega fish oil, calcium with D, glucosamine with MSM. 

    He said NO to COQ10, Turmeric, D3, Red Rice Yeast, Magnesium with Zinc, Vitamin E, Lecithin, Chelated Calcium/Magnesium, Gingko Biloba, 5HTP (serotonin), Lysine, Cayenne, Melatonin, Valerian Root, MEGA-T Green Tea capsules, b12 with Calcium, Black Cohosh, Alpha Lipoic Acid, Ester C...  I know I take a lot of stuff but I have been trying to stave off family history of heart disease and alzheimers for years.  He blew his stack right off when I first showed him my list and told him I had been taking DHEA and Estroven, which I stopped in January prior to diagnosis. 

  • Springtime
    Springtime Member Posts: 3,372
    edited April 2009

    bdaniel,

    Did he say no to all that stuff B/c your currently in Rads? I assuem? Not no altogether, forever? (I take a lot of that stuff!)

    Spring.