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  • asschercut
    asschercut Member Posts: 73
    edited October 2010

    Love my olive oil...thanks for sharing MBJ

    ...and thanks to all you wonderful gals for your words of wisdom and great recipes. I will have to share some barramundi recipes when I get a chance. It's a popular fish to eat down under...and probably my favourite.

    Changing ze sub...

    When I was a baby I did not take to my mother's milk and was raised on goat's milk. The goat's milk came from a lovely Greek lady that had several grass fed goats on her property...purely for milking and making feta cheese. My father had to travel a fair way, daily, to get it. And now here I am years later...going back to my roots. I gave up cow's milk shortly after diagnosis and replaced it with rice milk...and most weekends, I travel to Red Hill to get organic goats milk again. The family I purchase my goats milk from only have about half a dozen goats that they milk...and I must say the milk has a kind of floral fragrance to it ...almost as though they've swirled a few rose petals in there - quite nice.

    And as for sleeping...Yep...Exercise!! I walk along the beach in the evenings....from 7.30pm to about 8.30pm, and I sleep like a baby. But when I finished radiotherapy, I was desperate to detox...and I went on a physical psycho rampage with a personal trainer and exercised myself to the point of rectal bleeding. (I know...pretty disgusting) Over exercising can result in micro tears in the wall of the GI tract. I was totally gobsmackedSurprised, and now exercise at my own pace....as I've done for years - maintaining my 56-58kg body weight.

    Victoria

  • amberyba
    amberyba Member Posts: 180
    edited October 2010

    wow, thanks for all the good info gals. I did not realize the scar tissue from surgery could be less noticible if topical iodine is applied, (lugols)

    Co Q 10 gets oxygen to the cells...and cancer hates oxygen, Since starting the CoQ10 my migraines have been remarkablely less...if I forget my doses for any length of time the headaches resume. I took excedrine, motrin and aleve for migraines, recently and noticed petechia (bleeding into the tissues) this occured only on the breast cancer side. so you can get your blood to thin so be ware. also my periods became more prolonged. CoQ10 is wonderful.

    I also notice i feel the best when my diet is high in fresh juices, and fresh produce. \

    I still have low vitamin D levels, I am out in the sun and supplement. Maybe I need more.  

  • MBJ
    MBJ Member Posts: 3,671
    edited October 2010

    asschercut:  I cannot imagine (well, I can but not where I live, LOL) being able to go to a neighbor for fresh, fragrant goat's milk!  How lovely! 

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited August 2013

    asschercut, that is wonderful about the goat milk! Mmmmmm.

    Here is the stuff I found about iodine and scar tissue regeneration... after seeing what it's doing with my scars, I'm a believer:

    http://www.ncbi.nlm.nih.gov/pubmed/19168293

    http://www.thyroidscience.com/cases/Derry.Iodine.Regen.6.7.08.pdf

    http://thyroid.about.com/library/derry/bl2a.htm

    BTW, earlier this week my pup jumped on me and I got two deep scratches. I decided to try an experiment of my own and painted Lugol's daily on one of them but not the other. Within three days, I couldn't see the Lugol's scratch, while the non-Lugol's one was still scabbed over. It makes me excited to try Lugol's on my mastectomy incision soon after my surgery rather than waiting as long as I did after my last re-excision. Apparently, iodine is most effective once the skin has scabbed over, but before a scar forms. (In the old days, people would put iodine on a fresh wound, but a fresh wound should just be cleaned carefully... iodine should be applied only once healing/scabbing has begun.)

  • vivre
    vivre Member Posts: 881
    edited October 2010

    In Dr. Brownstein's book, he writes about a civil war bride whose husband was brought home to die with severe wounds, and told there was nothing she could do for him but put iodine on his wound and make him comfortable. They did not tell her how much to use, and she put it on liberally all day long, and low and behold, he his infection went away and he lived. Iodine was that standard of care until drug companies came out with all those antibiotics and then moved to get iodine taken off the market. It is really disgusting how we have been manipulated by big pharma.

    Yes, iodine made my surgery scars disappear and softened the hard knot from the radiation boost. Scar tissue is damaged cells. Damaged cells can become cancerous, so iodine on scar tissue is important. Yet, when I went for my check up with my surgeon and told him how much iodine was doing for my scar, he barely bothered to look. He was too busy chastising me for not having a mammogram for him to look at. I had sent him THREE thermographs, which he refused to even look at because he said it was not the standard of care. That was the last time I will ever go to see an allopathetic doctor. Total waste of money, IMO.

    Hey, Victoria, will you please speak English. How much is a kg? LOL

    Don't forget that olive oil is only good if it is not used for cooking. It has a low burn rate, and burnt oils become acidic. I only use coconut oil for cooking. All the other oils, like canola nd vegetable oils are No No's.

    Crunchy-I am looking forward to learning about the bone broth soup, but I already make great Italian soup with neck bones and chicken soup with the carcass of a roasted chicken. The problem is, it is a lot of work! And it makes such a huge amount, I get tired of it. I guess I need to can my broth to preserve it.

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited October 2010

    In Dr. Brownstein's book, he writes about a civil war bride whose husband was brought home to die with severe wounds, and told there was nothing she could do for him but put iodine on his wound and make him comfortable. They did not tell her how much to use, and she put it on liberally all day long, and low and behold, he his infection went away and he lived.

    Vivre, yes, that was Col. John B. Gordon who later became governor of Georgia. She was told to apply iodine 3-4 times per day to all his wounds (he had MANY severe wounds), and she faithfully did. He lived a long, productive life, so obviously iodine worked! Your Italian soup sounds DELISH!!!

  • samsue
    samsue Member Posts: 599
    edited October 2010

    vivre, is this the same iodine that is red and leaves a stain? If it is how do you keep from getting it all over your clothes? Or am I way off base with this?

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited October 2010

    Samsue, yes, it is red and leaves a temporary stain on skin... I put it on right after I shower and let it dry before I put clothes on, so it doesn't stain my clothes.

  • asschercut
    asschercut Member Posts: 73
    edited October 2010

    I remember my mum always kept iodine it the medicine cabinet. She told me that iodine was a miracle cure...she had learned of its healing properties, way back in her nursing school years. Also my grand aunt and my grandmother used to put a drop of iodine in a jug of water daily for decades. They always said it purified the water and their blood. But I was young, and frowned at the brownish coloured water. They were both old school matrons, and knew what they were on about as did my mum. I now wished I had paid more attention. *bangs head on the wall*

    Vivre: kg is the abbreviation for kilogram. I am currently 57 kilos.

    I have a European background...and we consume olive oil like it's water. My mother has it imported from family members in Greece, and my father makes his own olives and olive oil...yearly.  We drizzle it on just about everything. It's a much healthier approach.

    Victoria

  • seaotter
    seaotter Member Posts: 642
    edited October 2010

    I read somewhere that Walmart sells decolorized iodine. I'm going to ask the pharmacy if they have it next time I go. I have been using iodine on my moles (dark ones) and they disappear!!! The stuff is great! I don't use neosporin any more.

    Blessings, Patty

  • PatMom
    PatMom Member Posts: 322
    edited October 2010

    One of the most important things that everyone on this thread has done is to look at our lives and lifestyles, and choose to make significant changes.  I don't think that we have the answers yet about exactly what would constitute the "perfect anti-cancer" lifestyle and diet, so we each make the choices that we think will work for us while maintaining quality of life. 

    I am amazed at the number of women who are diagnosed with BC, are willing to put themselves through all kinds of tortuous treatments, then return to all of the diet and lifestyle habits that they had before diagnosis, and are shocked that the cancer returns, or a new primary cancer develops.  They still have all of the risk factors that led to the initial diagnosis.  The same gene pool, the same environmental exposures, the same diet, the same stresses, and they are older, with cancer risk rising with age.  Surgery, radiation and chemotherapy address none of those issues, and none of them (except possibly some surgeries) is considered a "preventative".

    The definition of insanity is to keep doing the same thing over and over, expecting a different outcome.  The women on this thread may not yet know the "best" combination of changes to make, but we are all researching and making changes, and right now, that is the best thing we can do.  I hope that someday, we know exactly what diet and lifestyle changes are the real keys to preventing BC.  In the meantime, we each make the choices that work for us, and respect the choices that others make for themselves. 

  • samsue
    samsue Member Posts: 599
    edited October 2010

    Crunchypoodlemama, thanks for the info. I have a tube of iodine and will try that. I was thinking maybe I had the wrong iodine. My scar needs "help" and also the discoloration from the rads under the arm is still very dark. (from the extra boost).

  • MBJ
    MBJ Member Posts: 3,671
    edited August 2013

    crunchypoodlemama:  I tried Lugols on my entire breast (recommended by a friend) as a cancer preventative and to control the growth of my tumor before surgery and during chemo--I had a rash and later my skin peeled so I quit using it.  I am going to retry it just on my scars and see how it goes!

    Victoria:  I bet those are local olives and olive oil, too!  I did research on olive oil and found that most that we purchase in the states are considered equal to lamp oil by European standards!  Here it's best to look for organic, in a dark bottle, buy from the back off the shelf where it hasn't seen much store light, look at the date, buy it locally if possible (California has much to offer in local, organic), and avoid mass made products.  Much of the olive oil supposedly from Italy has come from elsewhere and they wouldn't touch it in Europe!  Because I don't like all of my food to taste like coconut, I also cook with grapeseed oil.

    seaotter:  I have used it on moles that were really dark and it lightened them!

  • MBJ
    MBJ Member Posts: 3,671
    edited October 2010

    Patmom:  The first thing I did was look at what I was doing to contribute given the fact that there wasn't anything hereditary indicated.  I quit my insanely stressful and abusive job situation and really started reading the labels on things instead of eating just "healthily".  I believe my job contributed the most to me getting ill and if I could prove it, I would be collecting Worker's Compensation!

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited October 2010

    I am amazed at the number of women who are diagnosed with BC, are willing to put themselves through all kinds of tortuous treatments, then return to all of the diet and lifestyle habits that they had before diagnosis, and are shocked that the cancer returns, or a new primary cancer develops.  They still have all of the risk factors that led to the initial diagnosis.  The same gene pool, the same environmental exposures, the same diet, the same stresses, and they are older, with cancer risk rising with age.  Surgery, radiation and chemotherapy address none of those issues, and none of them (except possibly some surgeries) is considered a "preventative".

    PatMom, I completely agree!! Sometimes I look at recurrence stats and I'm amazed that they aren't even higher, since so few people even bother making any substantial diet/lifestyle changes after their diagnosis. I have a good friend who is a stage II survivor, and it breaks my heart that she keeps eating the same high-sugar, processed food she ate before her diagnosis.

    That is amazing about iodine and moles! I only have one small mole, but I always hated it. Will start dabbing a bit of Lugol's on it when I'm "painting myself red" from now on.

    asschercut, it's stunning to me that something that was once common knowledge, both among medical professionals and regular folks, has been lost. No doctors I've ever had have ever even mentioned iodine.

    Iodine used to be what they used to use to sterilize skin before surgery. My hospital gave me a packet of some kind of chemical goo and told me to wipe down my breast with it before surgery to sterilize the skin. Um, no thanks, I will be using iodine!

    MBJ, I think I remember reading that iodine can make the skin peel, and that it happens because fresh skin is being created underneath. It said if it gets too irritated to use coconut oil (another "wonder" item, as we all know!). My breast skin hasn't started peeling, but the hand I use to apply it did, but a little coconut oil cleared it right up.

    Now I'm thinking of applying iodine to an area of my face where I've had acne scars for the last 20 years!! Hmm, could it be almost like a natural version of a chemical peel?? We shall see!

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited October 2010

    Aye yai yai. I just Googled "iodine and acne scars," but "iodine and acne" popped up before I finished typing it, so I clicked just to see what people are saying about it.

    A whole lot of people out there think iodine causes acne!!

    I'm sure what's happening is that when they bump up their iodine intake, their body is detoxing, and acne might be one of the ways that manifests. So they stop taking it and their acne goes back to being "just" bad instead of worse. Conclusion: iodine must cause acne! Arrrrrrgh. Thankfully, a few sites also popped up that debunk that nonsense.

  • Claire82
    Claire82 Member Posts: 490
    edited October 2010

    I wonder what the statistics of recurrence are compared to people who change their lifestyle to those that don't change it.

    Do people who have healthy lifestyles to begin with get cancer?

    I'm not against changing. That's why I clicked on this thread, not that I was all that unhealthy to begin with, but I feel I have to do something.

    I think some people with cancer feel that the causes for cancer are really unknown. It seems the researchers decide it can be one thing and then change their minds. The only thing my doctors told me to change was my intake of vitamin D. And my vitamin D level was in the correct range.

    Who knows - maybe iodine causes cancer or too much vitamin D. Maybe it's something we did as kids. All we can do is try...

  • PiscesMoon
    PiscesMoon Member Posts: 17
    edited October 2010

    hello ladies :-)  while i wholeheartedly agree that changing one's diet and lifestyle could help in keeping bc away i have to wonder something.  or maybe ask something.  i seem to be asking a lot lately.  it seems that there is a need to blame something on why we got cancer in the first place.  i'm a person who thinks that my weight and where i live contributed to my cancer, for instance.  i plan on making what changes i can, but of course my cancer could come back no matter what i do.  it seems to me there is a common denominator throughout all of the threads on this site - we are dangerously close to blaming the victim.  there are many (online and in real life) who would say, well, you didn't do x, y, z (radiation, chemo, surgery, change diet, excercise, quit smoking, etc) and your cancer will come back so it'll be your fault.  i think we really have to not go to that dark place.  there are women who are fit and healthy and active and don't drink or smoke and eat well and still get cancer.  there are those who are junk food junkies, smoke, drink, do drugs and have no cancer.  i guess what i'm trying to say is that we have to be careful to not blame ourselves.  i mean, where does that get us, really?  i always get a feeling of us vs. them when trying to figure out how to fit together complementary treatment and standard treatment.  there are no guarantees out there for any of us.

    i don't know.  i think i'm rambling again.  did i make sense?  i just don't want us to blame ourselves and get down on ourselves.  because if we did everything we thought was right then how would we feel about ourselves if the cancer came back again?  would we think 'it's my fault because i ate the salmon, or because i didn't meditate enough, or (in my case) i didn't take the armidex they wanted me to?

    i just wish that they would find the damned trigger that causes this and just fix it already.  Yell  we are all doing what we can do and it pisses me off when we blame ourselves for something that is not in our control.

    okay.  i think this turned into a tantrum or something.  Embarassed  sorry.  i'm not trying to get anyone angry.  i hope i came across as at least a little bit coherent.

    health to me and all of you

    ~M

  • althea
    althea Member Posts: 506
    edited August 2013

    Claire, as I read more research, and learn more about how it's conducted, I have to wonder what kind of study could possibly capture the myriad of variables that each person encounters over the years.  Is it our food?  Power lines?  Nuclear power plants?  Electro magnetic fields?  Sedentary lifestyles?  Stress?  Just this week I watched an interview with Michael Caine.  He had a funny story from his youth and that made him decide he wasn't going to ever exercise again.  Then he said he never exercised again.  Then two sentences later he said he walks 4-5 miles a day.  LOL!  

    Contrast this with my own mom who thinks elevating her feet for 20 minutes is exercise.  She is a 30-year survivor this year and turns 83 next week.  I've been to some doctor appts with her, and her heart doctor asked about diet.  Her reply was low-fat.  Then they moved on to the next question.  ????  wtf??  How is that enough information to make any kind of meaningful assessment of her eating habits?  

    My best suggestion to anyone wanting to improve health is to forget about getting proper advice from a physician.  They're not health advocates.  They're disease managers.  The lowest level of 'normal' for a vitamin D test is 30, and that's not the optimal level.  It should be much higher than that.  There's lots of women here in bc.org who were the picture of health when they were dx'd. 

    There's no guarantee that someone who has a squeaky clean lifestyle will not get cancer, once or again.  In reading through threads listing all the stupid things people have said, you'll see lots of comments that 'blame the victim', but imo that just reflects on the person making the comment.  It also depends on how it's communicated too.  I had a friend I love and miss every day since his passing in 06.  He could have been a poster child for unhealthy lifestyle choices.  He was diabetic, overweight, wouldn't exercise, drank, smoked, would get bent out of shape over social injustice.  I loved him dearly and even though he might've 'had it coming', he was imminently worthy of compassion, as is anyone with a serious health condition.  Blaming the victim is real, and imo, it resides in people I probably wouldn't want to spend much time with.  The only thing I can do about blaming the victim is educate people if they seem interested in the information, or steering clear of the source.  

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 312
    edited October 2010

    Do people who have healthy lifestyles to begin with get cancer?

    Sometimes they do... and then again, there are others (like me) who thought I had led a healthy lifestyle, but I now realize all the many things I did that contributed to my cancer. I suspect there are people who get cancer who swear up and down they have lived a perfectly "clean" lifestyle, but maybe they're using the USDA or their doctor's wrong idea of what a healthy lifestyle is.

    The way I see it, if everyone lived a perfectly healthy lifestyle, cancer rates would drop to what they were prior to the 20th century. Yes, cancer still happened sometimes, but it was extremely rare. People who would get cancer would be ones with a hereditary predisposition and/or who had been exposed to carcinogens so powerful that their healthy eating wasn't enough to overcome it. But this would be RARE. 

    That's why, even though "They" haven't come up with a definitive answer for why people get cancer, I am trying to mimic that pre-20th-century way of living and eating to the extent possible (cutting out processed foods, eating whole foods that are fresh-from-the-organic-farm, minimizing stress, etc.). As we've discussed numerous times, whatever is causing cancer is obviously somewhere in the modern industrial lifestyle, so the more we can go back to a more natural lifestyle, the healthier we will be.

    PiscesMom, when I was talking recently with a fellow breast cancer survivor about all the reasons I think I developed breast cancer, she finally told me, "Well, you can't blame yourself." I was taken aback by that reply... I wasn't ever in any way blaming myself... instead, I blame modern mega-industries for pushing unhealthy food and lifestyle choices on us through mass advertising and PR campaigns, while hiding the facts about the harm they can cause.

    So, I don't think of it as "blaming the victim" to try to figure out what may have allowed us to get cancer. Actually, I personally find it incredibly empowering... because it means I can DO something to prevent a recurrence. If I were one of the "oh, it's just a crap-shoot" types, I think I'd be too depressed to deal... all I'd have to trust in would be doctors and the Cancer Industry... and it's quite obvious from rising cancer rates that they don't have the answer!

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 166
    edited October 2010

    Ditto on the blame game. I don't play it, though time after time after I was diagnosed, I did wonder what "I" did or what "I" took that could have caused me to be diagnosed with BC. And I was one of the ones who was the picture of health..... fanatic about exercise, always a low BMI, breastfed all 3 of my kids, ate only organic meats and vegetables. I had a few strange things happening before I got diagnosed (low energy levels, unable to recouperate after my daily runs, hard to run after my kids without being wiped out) that in retrospect should have warned me that I had something going on, but I really was starting to figure that feeling a bit exhausted was normal for a working mother of 3.... go figure, it was NOT normal, especially when I compare how I feel now with that previous energy level.

    The only thing we can do is embrace as many healthy habits we possibly can. I believe in the iodine theory, and I believe in Vitamin D's healing powers. I believe in exercise.... so I'm putting my faith forward that I won't have a recurrance. Having hope is all we can do!!!

  • dlb823
    dlb823 Member Posts: 2,701
    edited October 2010

    Great post, Crunchy!  It's so true that when we say "healthy lifestyle" now, we're talking about something that's evolved far beyond our pre-bc healthy lifestyle, and that's often a hard concept to convey.  Afterall, most of us here have spent many months reading and researching and forming our beliefs, and if someone isn't open or motivated to look for answers, I can see how "crap shoot" or "genes" would answer the, "Why me?," question with much less angst.    

    You know, a very spiritual life-coach friend of mine shared an idea that in some way is related to this, although it took me a while to understand it.  She believes that illness and accidents happen to teach us something we need to know.  And I think that ties into what you're saying -- that you, I, and some of us probably needed to learn to slow down, relax, and get back to eating pure, clean, wholesome foods, and that's what our illness was telling us -- that something wasn't right in our bodies, and that we need to make changes.     Deanna

  • MBJ
    MBJ Member Posts: 3,671
    edited October 2010

    What if the lack of Iodine in our soil, because we are eating foods grown with chemical fertilizers, is the only reason we are getting sick?  Dr Derry seems to think so.  When I went to my holistic Dr. for 4 months prior to my diagnose and he finally ran a bunch of tests on me because what he was doing wasn't working and he was surprised and amazed by how good my numbers were!  Then I found the lump.  The only unhealthy thing was my job!

  • Claire82
    Claire82 Member Posts: 490
    edited October 2010

    My job is unhealthy too. But I need the health insurance - another issue lol

  • samsue
    samsue Member Posts: 599
    edited October 2010

    My two cents worth...

    Before my diagnosis. I was eating tons of sugar at work because it helped with the stress. The dark chocolate was eaten in excess! Gained 10 lbs the first year there.

    I also started having heartburn, not something that I had been bothered with. It was a constant problem for the past 5 years. My GI Dr said it was a result of stress and hernia. Gave me meds for it.

    Last year I just was feeling tired, not particular reason so my Dr said I needed to exercise more. The exercise helped but I was still tired. Yes, I take meds for a low thyroid but this seemed to be similar to the onset of my thyroid diagnosis.

    Yes, I used chemicals to clean houses, had a stressful marriage, went back to school, money was tight. All the stuff that happens.

    I also breast fed my children, didn't do the HRT, ate somewhat healthy (not compared to what I've now learned) raised my own beef, eggs, and even milked a cow at one point. Had a small garden and tried to gets some crops from it.

    I also think Dianna's friend has something I believe in also. This is truly a learning experience and I'm the student. And, I can't go back and relive the past I can only put one foot in front of the other and move forward the best way possible. Yes, it saddens me that we're all having to learn this lesson but perhaps we'll be able to help the ladies that follow. We can also become great teachers.

  • DesignerMom
    DesignerMom Member Posts: 730
    edited October 2010

    Thanks for all the comments on "the blame game".  I think we all need to remember that sometimes bad things happen to good people.  That also means cancer can happen to people doing all the "right" things.  I think it is easy for people to "safeguard" themselves by placing blame.  That way they can say "it won't happen to me because..."  I have had the great sadness of watching one of my best friend's 15 year old son die of Leukemia.  He was first diagnosed as a 1 year old.  After a 2 year fight, he remained in remission for 12 years until it returned.  It is just wrong (not to mention unproven) to say he or his mother did anything to cause this.  By no means am I saying we should not all try to live the healthiest life.  But life is full of mystery.  Unfortunately, sometimes the reason we get sick is mysterious too.

  • vivre
    vivre Member Posts: 881
    edited October 2010

    I do not understand how trying to figure out one's own root cause of cancer is somehow blaming the victim. First of all I do not feel like a victim. Everything does happen for a reason. I often wish I had gotten cancer when my kids were young. Perhaps my search for answers would have meant I could have incorporated healthier habits into their lives. Now that they are adults, they will have to learn the hard way just as I did.

    I too was one of those who swore they did everything right and still got bc. But having that mindset was very scary to me. It meant that I would never be free of the fear of more cancer. I will never forgive my doctors for telling me I would never be cured. All I can say to them is BULLSHIT!

     I was never sick. Had perfect attendence in school and as a teacher, rarely got a cold, seldom drank, never smoked and had no history of bc in my family. I was mad as hell I got cancer. But I decided I was going to get to the bottom of it instead of waiting for another bomb to drop. There is a reason I got this and the only way I could be assured it would never happen again is to find out why it happened in the first place. So I became my own sleuth.

     I looked into all the little health issues I had, that my doctors never seemed were important, and I started to read like a research scientist and was amazed at how much had been missed. I was probably hypothyroid my whole life. I was probably iodine deficient my whole life. I know my exposure to chlorine, both as a lifeguard in my younger days, and as a Mom who was constantly trying to sanitize my bathroom mold, was a trigger. Even though I prided myself on taking care of my teeth, I went to a dentist who put in plenty of amalgams without caution and the root canal I had done in my 20's was full of bacteria that had my immune system in overdrive. I know my diet, while better than most, still lacked essential nutrients and I was never careful about hormones or antibiotics in my diary products. I can look back now and see how I had a lot of hormonal inbalance, that should have been addressed. There were lots of answers for me when I started to look. The more I discovered, the more empowered I became. Only when you know the cause, can you know the cure. I never felt like I was blaming myself. I was just reeducating myself. I was, and still am taking the fear out of cancer because I am in control, not cancer.

    Cancer is multifaceted. It is caused by a combination of things, and for each person, it is different and personal. That is why there will never be "a cure". But cancer IS curable. However, no cure will work the same for two people, just as no two people will need the exact same path to prevention. And the cure will never be some magic little pill.

    This is why I felt compelled to start my own website. We can talk about it here until we are blue in the face, but WE are not the ones who need the information. We are the ones who need to encourage others to find their own truth. We need to show by example that there is not only life after cancer, but there is a better life after cancer.

    Most of all, we need to somehow get people who THINK they are healthy, just as we did, to start taking their health more seriously before the reality bite. That is why I keep putting so much information on my website, which is not always welcome much around here. WE need to get our friends to start reading this information. They are not going to want to hang out on a breast cancer site, but they will on a wellness site. So please encourage them to check out my site. I know it has already made an impact on some of my friends who are amazed at the information there. I know, the amount of info I have amassed can seem overwhelming to some, but I just tell them to go to one part and learn it a bit at a time. I built that site so I can lead the horses to it, but is sure is hard getting them to drink. But I will never give up trying.

    We can spread the word that this is a totally PREVENTABLE disease. I sure hope you will all join in my crusade.

    PS-I was out walking with a friend yesterday, who for a long time was adament that her doctors were the only ones she would listen to. I never tried to convince her of anything, I just kept telling her about different things that were making difference for me. I finally convinced her to check out an article on on my site about the dangers of tamoxifen, especially for long time users. She is a 5 year survivor, and is doing great emotionally, but she has not changed a lot because she feels so safe with her little pill. I am getting her to take a baby step in my direction. I know that once she does, she will be walking with me all the way. That is how we all must lead. Be patient. Be gentle but persistant, and let our own passion and good health be the walking testimonial.

  • PiscesMoon
    PiscesMoon Member Posts: 17
    edited October 2010
    well i was afraid that when i used the phrase 'blame the victim' it may have been taken out of context.  sorry about that.  Embarassed  it was not meant to imply that we are victims.  i couldn't think of a better way to put it, i guess.  i understand about being empowered and researching and taking control of our decisions.  i'm there.  anyway, just wanted to make that a little clearer.
  • kira1234
    kira1234 Member Posts: 754
    edited October 2010

    I have a silly question to ask, a few months before my BC was found some of my favorite foods became distastefull to me. Has anyone else ever had this happen? The other thing is I have had exema for the last 7 years, and since the lumpectomy I've had no breakouts, and this is very unusual. Am I nuts, or was my body trying to tell me something?

  • MBJ
    MBJ Member Posts: 3,671
    edited October 2010

    vivre:  We could line up our diagnosis side by side and your story could be my story!  I have never blamed anyone, including myself.  I did, though purchase several books and started educating myself.  With the help of an amazing integrative dr, I am on the right track.  The problem is none of this information is in the same place.  It's great that you have a wellness site!  Can you please re-post the link?

    samsue:  I too was doing alot of dark chocolate and had the weight gain to go with it.  Stress is a killer!