natural girls
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I have to say my SE's have been mild so far on the AL's, but boy the heart stuff scares the you know what out of me. The only reason I'm using them is my Oncotype score is 16% even using the meds. I am really trying to change my life style, but I have a long way to go. This summer has been hard with all the garbage I have had to deal with, but since I'm finally healing physically I'm ready to try to make the changes.
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Deanna,
How interesting that you took only 1/2 a pill and that you passed out. Mine was only 1/2 a pill too. I noticed on one post you mentioned that you were on HRT and perhaps that is why you had bad se's. I was on HRT also, so maybe you have a point there. I imagine we became er+ because of the HRT. and now that we are no longer taking the HRT we are on a better health plan as well as all the other good things we are doing.
Glenis
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Deanna-I read MedPage regularly too, even though it looks to be mostly funded by drug companies because I find there are a lot of doctors there who are starting to speak up. I also feel that when they actually report a drug as dangerous, it is a real coup since the allopathic industry often seems to be silent until a drug kills a lot of people. The sad thing is, anyone who does a study that dares to refute drugs and shows promise for any alternative is not even allowed peer review because the review board that publishes papers decides who gets to present them. While they will allow things like exercise or meditation studies be presented, if a supplement or herbal study shows promise, it is blackballed. Hence,we have lots more evidence from drug studies.
The statement that there is no cure for metastic breast cancer is a lie. People are cured of stage 4 cancers, there is just no magic pill, and some of the treatments are outside the box so they get no respect. Heaven help us if a mixture of herbs and a combination of other holistic treatments would be proven to cure cancer. What in the world would the the ACS and their clones do for $$$? Thousands can die from drug treatments but if a few survive, it is called a success. Thousands can survive with alternatives, but if one person dies, it is called quackery. The only way this is going to change is for more of us to get involved. I know some of you hate politicis, but you need to know the issues and harass your congress critters to know them. Otherwise, they are only fed info from lobbyists for drug companies. This is how S510 just got rammed through. The manifestations of this bill scare the hell out of me. Get involved! Learn what this bill will do for our freedom to choose and join me in speaking out against it. If you really care about the freedom to choose natural health, you will get involved with trying to make sure we do not loose what little power we now have.
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I agree with you, Vivre,
If the mainstreamers are blowing the whistle on Arimidex, it must even be worse than that.
Thank you, Deanna for the great find! Let's keep reposting the link.
http://www.breastcancer.org/treatment/hormonal/new_research/20101210.jsp
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Hi vivre, I've read both Breakthrough and Knockout and I was SO impressed with both books. I am so glad SS is willing to step forward with the information she accumulates and take the heat that ensues. I was largely unimpressed with an earlier book of hers for recipes, but good grief, isn't anyone worth a second look for the sake of gleaning great information? And of all people, for HER to be misdiagnosed with cancer when the real problem was something else, well, lord have mercy on us all. Her story in Knockout is very compelling. It's beyond my comprehension why so many people assume she's the same dumb blonde she played on tv and are critical without taking the time to even read what she's written.
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I had to quit taking my ALS because of so much pain and a racing heart, dr prescribled propoxypehne (darvon/darvecet) for pain and now that is in recall to for heart attacks and deaths too, its so scary who/what to trust these days- thanks for the article deanna
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So, ladies, any resolutions for the new year? I have two big ones.
First, I want to launch a new career and become a certified health coach. I feel like I've set a record for SLOW in the recovery department. I felt like crap literally for YEARS after rads knocked me flat. I've been tweaking this that and the other thing the whole time and finally feel GOOD! Now I want to touch the lives of others in a meaningful way. My state has half of 2010's fattest cities. Going to the grocery requires detective skills in order to acquire the healthiest food. The benefit of my very slow recovery has been the vast arsenal of information I've acquired in the process. There will be plenty of people I can help right here in my own community.
The school that caught my attention last year when I looked is Institute for Integrative Nutrition. They've just recently provided a distance learning program, which at least puts it within reach for me. Now my obstacle is dollars. It's $5K and includes all the learning materials. I hereby send my wish to the universe in anticipation of a favorable response!
My other commitment that I've made to myself is to activate a domain name I stumbled upon and acquired in pink october. It's rethinkthepink.com. Now that I'm a fully functional human being again, I want to share with the world my journey to restored health. The pinkwashing in October gives me mixed emotions. I despise how it's been rendered into a consumer event. Yet, isn't it wonderful how we can freely speak of our illness without shame. My father died of stomach cancer back in 1962. Back in those days, cancer was whispered if it was mentioned at all. I think we forget how far we've come. I've decided it's a better state of mind to bring in a new wave of pink than to rail against the flaws of the existing one. ...vivre, and anyone else who's already blogging, I have an open ear for blogging advice!
2011 -- bring it on! May it be the best year ever for all of us.
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Althea- rethinkthepink is really a great idea i like that!!
Since moving a few months ago to a new state and recovering from all tx i have put off doing things i enjoyed, so after the holidays are over im going to sign up for guardian ad litem working with abused children, i did that in hawaii for a couple of years and as sad as it was i enjoyed it, also going to do wheels on meals- since i dont work i have lots of time on my hands. It feels great to get involved, on christmas day i helped serve food to the homless and it was very humbling.
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althea- Good for you! You can do it! I am hoping the money drops in your lap....right from the universe!
I hate making resolutions, because I usually don't keep up with them. However....mine include: exercise regularly, get my supplement program going and stick with it, launch my natural body and skincare line, maybe, maybe give up dairy (oh that's a tough one), and declutter my home and life. Dang, I have high heels from the 80's in my closets (grant it, they are Charles Jourdan, but still!).
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Deanna, I found that link about AIs interesting. But what caught my eye was THIS:
Although significant, the absolute increased cardiovascular risk across the population of the studies was small -- increasing from 3.4% to 4.2%, Amir explained.
I'm sure it has to do with the age of the women who generally take AIs (post-menopausal). Still, the cardiac risk was the big reason I opted out of chemo (besides my favorable prognosis factors). Fortunately, I've had two stress ECHOs since coming off AIs (for pre-op stuff) and my heart is in great shape.
Althea, you go, girl! Become a health coach. You know so much, and can guide objectively. That's the key. Give the information, and your clients will do with it what they will. But your influence, and their trust in you, will have a huge impact. And, patent that rethinkthepink thing!! Whatever it takes.
Anne
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I am going to try the Coconut Oil. It sounds like a good solution to dry skin, plus good to cook with..... I've been using Apricot Kernel Oil from Whole Foods. It's got a nice texture to it-- a bit slick when I put it on, but it absorbs and my skin really looks pretty good, but I'd like to give the Coconut Oil a try as well...
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althea you go girl that would be great. I told you I use to live in Rockport so I know how many Mexican restraunts there are in CC not exactly lowcal and healthy. You could def do some good for people.
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althea good for you that sounds great. Can't wait till I'm feeling better again and can start looking to the future!
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Dianna, to answer your question. I leave the coconut oil in my hair then blow dry. It's working for me.
I't made a huge difference with the feet since here in FL we don't wear sock all that much and the heals get really rough from wearing sandals all the time.
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Thanks, samsue. I'm going to try that. I occasionally use Argon Oil, but the smell is a bit much for me. And the longer I'm without estogen, the drier my hair (and everything else!) seems to be getting. By the way, I am using the vaginal estrogen that Lorriane recommended on another thread, and it's wonderful for that and also as an occasional facial moisturizer. It kind of plumps up your skin.
I also tried coconut oil on a baked sweet potato last night, and it was so good. I think Mandy had suggested that.
Anne, the quote you mentioned also caught my attention. What struck me was that when touting a drug, pharmaceutical companies always quote relative risks -- such as, "a 50% risk reduction," if the increase is from 1 to 2 patients. Now, when they have a 25% negative risk on their hands, they start tossing around the absolute risk -- "...3.4 to 4.2 percent." Their obvious scrambling would be far more amusing if this wasn't our lives and future health at stake. But for oncologists to now say that A/I's may not be right for everyone is, IMO, a rather stunning reversal.
Althea, becoming a certified health coach sounds like an ideal path for you! And the specific program you mentioned really looks top-notch.
Happy, healthy New Year, everyone! Deanna
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Deanna, What a good idea for the coconut oil. I agree my hair is getting very dry and it's only been 2 months. Is the vaginal estrogen Estriol suppositories? I wonder what my Onc. would say about using that stuff.
I'm wondering what my Onc. will say after this report. He was quite happy to tell me I would get a 25% reduction using Femara 2 months ago. Of course thats a relative risk which he never mentioned.
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I just had an AH moment. Talked with a friend this AM and she was telling me how her Arabian horse was doing so much better...Actually she kept saying a dramatic change - over the past three years. I listened and kept thinking, whow this is us! She had to switch her horse hay because Arabian couldn't tolerate anything but timonthy and she had to switch the feed because each month the feed she was buying changed depending on the company supply of ingredients. ie one month they might have more corn than barley or something else. Anyway she also changed the supplements she was giving the horse and was getting such great results. This is because the Arabian was originally a desert horse.... do you get my drift? The quarter horse that she had and the part mustang needed different kinds of food otherwise one of them got some kind of rash and the other had joint problems.
It had all to do with what she was feeding the horse!
OK, now to us. I'm thinking the blood type diet (or way of eating) has a huge impact on what we should or shouldn't be eating. This could include the supplements and meds that we are taking. I'm going to do further research with this. I've read this stuff before but when she was talking about her horse and how it was greatly impacted on what it ate and how it responded to different supplements than the others...
That's why when I'm instructed to take an A with the same dosage as someone else that may or may not weigh 25-100 lbs more than me, it makes me wonder. I know I've personally been trying to add one new supplement or food (if I haven't had it before) to my diet just to see what the results are, pos/neg. This truly is a personal trip for each one of us. Thanks everyone for your 2 c worth. I always appreciate what you're input.... knowing I can take it or leave it.
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Just wanted to share this link I spotted in the research news forum:
What I found especially interesting in this report was:
"Intriguingly, breast cancer patients who were not on tamoxifen or an aromatase inhibitor had significantly lower risks of MI (P = .003) and all fractures (P less than .001) than were matched controls without breast cancer. This novel observation warrants further study, Dr. Ligibel continued."
Maybe the reason for this "novel observation" that warrants further study (LOL) is as simple as these patients take care of themselves and avoid pharmaceuticals? Deanna
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Just got my new jar of coconut oil from Tropical Traditions along with a new book called the Truth about Soy. So many books, so little time. . .
Anyway want to have a virtual New Years Eve Party tonight online at my website? We could all toast to our health and talk about our goals for 2011. How about 10 pm central time. I have not used this feature before, so I hope it works! All the champaign is on me. Dom Perignon of course. Only the most expensive for us thrivers!
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Happy New Year to all!!! Was this the thread that I read about cooking steel oats in a crock pot? I just received my first ever crock pot for Christmas and really want to start eating the oatmeal that I love without standing over it for 30 minutes every morning. If you could please repeat it for me I would love you even more.
Thank you and here's to a very blessed 2011 for us all.
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Here you go Irish and Happy New Year!!
http://kalynskitchen.blogspot.com/2009/05/recipe-for-steel-cut-oats-in-crockpot.html
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MLB- I made your coconut, cocoa, almond flour refrigerator cookies for a potluck dessert party today and they were the first things to go! Nobody could believe they were healthy. My 12 YO is eating them like popcorn. I tweeked your method a bit. I took a round measuring teaspoon, put a toasted almond sliver in the spoon, then scooped the cookie mix, packed it tightly against the side of the bowl, then plopped it into a mini cupcake paper. Who says we can't eat yummy things and stay healthy?
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For those of you who are HER2+....
While searching for avocado oil for my skin (and to eat!) I found this;
Extra-virgin olive and avocado oil lowers the risk of developing cancerous breasts in those who carry a particular genetic trait involved in about 20 to 30 percent of breast cancers.
Researchers from the University of Granada in Spain wondered why a Mediterranean diet rich in olive and avocado oil appeared to lower breast cancer risk in some studies but not in others. They theorized that the answer could depend on the type of cancer. Their research found that two chemicals in olive and avocado oil -- lignans and secoiridoids -- block the HER2 protein that is associated with acidic cancerous breast tumors that then to grow more rapidly than other forms of the acidic condition.
"Our findings reveal for the first time that all the major complex phenols present in extra-virgin oil drastically suppress overexpression of the cancer gene HER2 in human breast cancer cells," wrote study authors Javier Menéndez from the Catalan Institute of Oncology and Antonio Segura-Carretero from the University of Granada.Source- http://articlesofhealth.blogspot.com/2009/01/olive-and-avocado-oil-prevents-breast.html
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designermom: Aren't they amazing??!! My DH loves them too and he is hard to please. He even asks me to make them for him and he doesn't really do sweets like I do!
A friend of mine posted this on Facebook:
if this link doesn't work:
USDA Certified Organic's Dirty Little Secret: Neotame | Farm Wars farmwars.infoIt is amazing how low Monsanto will go to poison our food supply! No wonder everyone has cancer!
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This really is tragic. Thanks MBJ for this information. I used some of the bad sweeteners for years thinking they were OK - because the the reports from the "industry". We are being told so many lies by the FDA and food companies.
We can't believe what is being told to us about our medications and now the foods too.
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MLB- That's too scary! So the FDA lets them put something dangerous or toxic into foods labeled organic and they are not required to be listed as an ingredient? So how are we supposed to avoid this ingredient? Just like the FDA allowed the milk industry to not include the hormones in the cow milk because "there is no difference in the nutritional quality of milk". Tell that to an ER+ BC survivor! My Onc actually said "do you think the FDA would aprove a drug that wasn't safe?" Guess what DH and I exclaimed in unison?
Just saw a story on 60 Minutes about a woman who was employed by Glaxo Smith as a quality inspector. After she repeatedly reported problems in the PR factory (including wrong drugs in bottles) and no one was stopping the shipment of drugs (also Bactobran antibiotic ointment tainted with bacteria from bad water), she reported it to FDA and the plant was shut down. They paid multiple millions of dollars in a settlement. One of the drugs that was made was Kytril (which I took during chemo). JOY!
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Not sure what to think about that farmwars site. She does not site any proof for her statements. She seems like some kid of conspiracy theorist too. It is hard to find the truth sometimes on the internet. You have to look at the source of some websites. This one did not seem very legit. Anybody can blog about anything, but they need to back up their statements.
I guess I am just getting suspicious because I seem to be finding a lot of sites these days are not what they seem. I started looking into the environmental working group when some of their information seemed to be contradictory. The EWG was one of the "charities" orginally started by the Tides Foundation. The Tides foundation is nothing but a money laundering scheme started by billinonaire George Soros. They funnel charitable donations from oversees to influence politics. They can make donations to candidates and no one knows the source of the money. It is illegal for American pols to take money from overseas so that foreigners cannot influence US elections. This is a way to get around it.Many of their "charities" proport to do good work as a cover so people will support them. Google Tides foundation and George Soros and you will see how this man has used his billions from hedge funds to destroy the economies in Europe and is intent on doing the same thing in the US. He is a former nazi who seems intent on destroying the countries that stopped fascism by destroying them from within.The man is pure evil. And it sure looks like our country is on it's way to his means.
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MBJ, that link you posted to the story on Farm Wars is so disheartening. I live in a highly agricultural area, so plan to write to our Congresswoman, Mary Bono Mack, to see what she has to say about it. In the mean time, please keep us posted if you hear of any other ways we can make our dissatisfaction about this situation known. Deanna
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Irish...
Here's my recipe for the crock pot steel cut oats. It's so easy. No stirring involved just set it up the night before and wake up to creamy goodness!
Put 1 cup steel cut oats in a 4-cup Pyrex measuring cup (or something that holds about the same volume), add 3 cups water to the cup. Place the measuring cup in a slow cooker and pour water around the cup...about 1/4-1/2 way up the cup (a water bath). Put the cover on the slow cooker and cook on low for 8 hours or so. You can substitute apple juice for the water if you want it sweeter, add apples, raisins, pumpkin, whatever floats your boat. It's so creamy delicious and it's ready when you get up. I save the leftovers and either reheat or pan sear and put a little maple syrup on them the next morning. Enjoy!!
Li
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Part of my New Year resolution is to finally buy all my vitamins and supplements and take them regularly. A friend also gave me her trampoline. So far my son is using it more than me! I have to get a better bra! As money is beyond tight, I will have to economize buying supplements. I know some of you posted about things (fillers I believe) to avoid in supplements, but I can't find the post. Also, Dr. Oz just did a whole story on testing your vitamins to make sure they dissolve (put in a glass of vinegar for 30 minutes, if they don't break down, they won't be absorbed). Do any of you have opinions on good quality, reliable, affordable vitamins?
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