natural girls
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DesignerMom -
It is very common for TSH to elevate initially on Iodoral - it happened to me, too. It will come back down within about 6 months. It's a shame your doc won't test FreeT3 and T4. TSH is not a good indicator alone of thyroid health.
If you go to the files section at yahoo iodine - they have info on this, I believe - that you could take to your doc. Brownstein also covers this in his book, if you have it.
Beth
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Deanna-
I take Quercitin. I learned about it's importance from Dr. Neil McKinney. He is a naturopathic oncologist in Vancouver, CAnada. He just came out with a new edition to his book - Naturopathic Oncology(original was called Naturally, There's Hope). It is a treasure trove of information.
Beth
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fairy-
Sending hugs and prayers your way. I'm so very sorry about your friend.
Beth
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I take quercetin with bromelain....about 3 times a week.
I also drink roobios tea..actually drinking a cup as I read that post.....guess I'll stop.
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Fairy
Hugs to you and prayer to Lex's family.
Deanna- how do you take quercitin? Can I pick it up at a health food store?0 -
hlth4513- Thanks for the feedback on elevated TSH. I have been madly researching and from what I can theorize, this is not uncommon. It is sort of a "false positive". I think when the thyroid finally starts getting enough iodine, it throws off some of the thyroid bloodtests.
fairy- So sorry about your friend. Someone told me that every time we feel a breeze, it is an angel wing brushing us. So many angels going ahead of us!
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I want to try to eat really healthy while on chemo. What did you girls eat? What dis you avoid? I have worked so hard to change my diet and ramp up my nutrition that the idea of keying go of all that--- not being able to eat, etc.... Just worked .
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Fairy...hugs and prayers coming for you and Lex's family. I am so sorry for all his suffering through so many recurrences and for his family and for your tragic loss of your friend.
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Fairy: So sorry to hear of your loss! I also lost a male friend 20 years ago to breast cancer that metastisized to his lungs and he was an amazing person, too. Many good thoughts coming your way and to all of his family and friends.
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Cyborg: I love Rebecca Katz' cookbook The Cancer Fighting Kitchen. I did my last chemo a year ago but still use her wonderful, healthy recipes. I also do as much all organic as possible.
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Lorraine, I'm so very sorry about your friend, Lex. Our August 08 chemo group lost a sweet & vibrant 43-year old member last week -- a Mom with 2 teenagers. Not quite the same as your close friend, but also devastating and so hard to comprehend. I am praying for his family and for you. I'm so sorry for your loss.
Cyborg, I don't know the answer to your question about Quercetin. Maybe Barbara, Beth or EastCoastGirl can tell us how much they're taking and how. As far as what to eat while on chemo, it's really hard to plan anything because your taste buds and sense of smell are so off. Personally, I craved comfort food (grilled cheese, tomato soup, graham crackers), but I know sometimes people crave spicier stuff. When do you start your chemo? Deanna
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Fairy, prayers going up for you and Lex's family.
Cyborg, I buy it in my health food store and take 500MG 2/day plus 1000 mg bromelain 1/day. They complement each other so take them together.
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I wasn't comfortable with using my real name, Sheila, so I've changed it so that hopefully no one I know will be able to find me with a search engine. Only my immediate family know I was Stage III and I want to keep it that way. I'll change my avatar eventually too.
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Cyborg
As far as Quercitin - It is a good idea to take it with something that helps the absorption - so I take NOW Quercitin with Bromelain- it comes in 400/100mg capsules. I take it with my meals. As far as supplements go - it is reasonably priced. I buy it from either vitacost or swanson - but you can find it in health food stores.
For the first 18 months after DX I took 800mg Quercitin/200mg Bromelain - twice a day. Recently I cut my dose in half, and I will up it if my allergies are troublesome.
Beth
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If you google quercetin and empty stomach, I think you will find that it like B12 and various other things are best taken on an empty stomach. I need to re-research all of mine...but I have been taking my quercetin with bromelain on an empty stomach so let me know if I am wrong on this...once I start the routine with a new supplement sometimes I forget the original research...or maybe I read it wrong. Pecta-sol-C says take on empty stomach and also my probiotics and IP6. But like I said I need to sit down and re-research each one. I take so many I could have easily gotten it confused in my head. I think I will make a cheat sheet for each of my supplements.
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Luna-
My bottle says to take Quercitin about 20 minutes before a meal - but that it is Ok for those with sensitive stomachs to take with a meal - and I fall into that category.
It is true that MCP should be taken on an empty stomach - the naturopathic oncologist at Life Extension told me that it can interfere with the absorption of other supplements - so to wait a minimum of 30 minutes and preferably an hour. I also take my probiotics on an empty stomach - but I had one integrative doc tell me that it was Ok with meals.
I do my B12 sublingual (except for what is in my multi) - so I think that way it is Ok to do with food - as it is absorbed differently.
It does get almost impossible to keep track of when to take things. I really liked Dr. McKinney's book, because he will often say which supplements shouldn't be taken together and which are synergistic. For example, it was from his book(which I confirmed with him by email) that you shouldn't take alpha lipoic acid if you are taking curcumin. He said it won't do harm, but that the curcumin will wipe out the effect of the ALA.
Beth
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Deanna: Thanks for sharing this!
Cyborg: I agree with Deanna, I craved things I usually don't plus after 14 years of being a vegetarian I began eating meat again because my body just craves protein! Chemo does change your taste buds-one of the best things in the Rebecca Katz book is she has wonderful suggestions for getting through chemo and also how to make your food taste better. In it's simplest form she recommends adding sweet, lemon or salt to make foods taste better.
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Cyborg: The one thing I really tried to avoid was dairy as it's mucous forming and therefore not great for the immune system. But if that's all someone can stomach, well, then you have to eat, right? I also used a protein powder every few days to make sure I was getting enough. Overall, I just ate what I normally would as my digestive system and taste buds got through it pretty well (I was on probiotics and AHCC). Best of luck!
Fairy, so sorry to hear about your friend.
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dlb823, found this on quercetin. I do no mean to scare you ladies, everything gets really confusing sometimes
"There are, however, studies that do appear to show an increased risk of tumors with quercetin administration"
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Thank you Luan
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Really interesting, Luan. Thank you very much for finding that.
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Fairy-
So sorry to hear about your friend. It's so difficult to think of the lives that have been lost to cancer. My heart goes out to you and your friend's family.
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Beth...Thank you. I need to get D. Mckinney's book. Thanks for the info about ALA as I usually have 2 tsp or organic tumeric and 2 super bio curcumin from Life Extension and 2 Jarrow curcumin per day. Might as well not waste my $ on ALA.
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About iodine:
I did the iodine deficiency test recently and the results are surprising. I am high in iodine/creatinine. Mine is 513 and the optimal is 100-300. So I don't need to supplement. Anyone else found that they don't need supplementation? Apparently there are only about 5% of the population who are not iodine deficient.
I also did the estrogen test. All is within the optimal range.
My dh suggested I do the testosterone test. I wish I hadn't! I am way over the optimal range. I wonder why; I don't have big muscles, no beard and I don't hit the golf ball further than my DH (I only do about 190 yards) LOL. Have to check this one out pronto.
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Fairy, I'm so sorry to hear about your friend. My heart goes out to you. {{{{{{{{Lorraine}}}}}}}}}}}}
designermom, people on the iodine list frequently report an increase of their TSH levels after commencing with iodine supplements. If it goes on longer than 6 months, there's a number of thyroid hormone tests that could be explored in addition to the baselines that TSH, free t3 and free t4 tests provide.
painterly, did you get your bromine levels tested? It's a test that can be conducted from the same urine sample you send in for the iodine saturation test. It's also very common for people to show saturation or near saturation levels for iodine at the same time they're carrying toxic loads of bromine.
re quercitin, I've been using Lance Armstrong FRS energy drink lately, which has quercitin in it. I'm finding it more and more difficult to feel alarmed by reports that warn us about the dangers of consuming foods with phytoestrogens. LOTS of foods have phytoestrogens. Besides, Lance knows a thing or two about being a cancer survivor, so if he thinks it's ok to put quercitin in the supplements that he uses himself, that carries a lot of weight with me. The first time I tried his drinks, I thought they tasted awful. The orange one nowadays tastes pretty good to me. It does have some sugar in it, but my guess is not a huge amount because I can really pull myself through an afternoon with his orange drink when I feel a big fizzle coming on.
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Althea,
No I didn't have the bromine test. I had my test at ZRT who do routine testing and they didn't suggest that I do the bromine test. The notes just said that the higher range was considered optimal and consistent with people who supplement with iodine or consume iodine-containing foods (e.g. eggs, milk products etc.).
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From what I understand, warnings about phytoestrogens only apply to ER positive breast cancers. All other forms of cancers and pre-menopausal women with low estrogen may benefit from them.0
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Painterly: My iodine levels came back high as well and after my consult with Dr Flechas, he concluded that I wasn't metabolizing the iodine (just peeing it out) and that's why my levels were so high. He suggested I take ATP Cofactors. You might want to look into this. Maybe you are not metabolizing it either??? I hope not for your sake. Taking an extra pill is not what I needed. I take so many! And also, I guess that means I have to take the loading test all over again..........
Terri
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Hi Terri,
I phoned the compound pharmacy here in Sarasota where I ordered the iodine test to ask for the bromine test. They phoned ZRT Lab who did the test and were told that I do not need a bromine test because the test that they gave me would have shown bromine if I had it. Phew, so that's a relief.
I hadn't started taking iodine because BCO were out of stock, that's why I went ahead and did the iodine deficiency test while I waited to order iodine. So there's one supplement that I don't need.
It's really hot down here and we will be heading north next week. Hope the weather is nice!
Glenis
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