natural girls
Comments
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You really need to get tested at FFP lab run by Dr. Flechas. He is one of the experts in the world and will interpret your test for you on a phone consult for free.
ZRT is an okay lab for hormones but not knowlegeable on iodine or bromide. I can say this because I had a conversation with the ZRT people and they didn't understand the whole protocol that the iodine doctors use.
ZRT also didn't understand if a breast cancer patient tests high on the first test--- the iodine isn't getting absorbed and ends up in the urine. Non absorption of iodine is why some of us got breast cancer in the first place.
Some old timers here will tell you the same thing.
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oh no....back to my thinking/worrying position!
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Painterly, I don't think it is something to worry about. Just talk to the most respected doctor who has been doing this longer than anybody and iodine deficiency can be fixed so easily.
Have you seen Dr. Flechas' video from the medical conference? He is so modest. He is really doing this a s a labor of love.
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It is not necessary to take an additional pill (atp cofactors) if you are already taking a high quality supplement containing the B's, selenium and magnesium as well as vit c. This is another reason I went to Usana. It is all in their essentials.
BTW, I am orgainzing a breast health retreat for the fall, in case anyone is interested. I will try to keep the cost as low as possible(it will be totally not for profit). So far I have two great docs willing to speak about hormones and thermography. My dentist is pretty confident he can get Dr. Hal Huggins to come, and my compounding pharmacist is working with me to get Dr. Brownstein here. The plan is for a Friday night of inspirational speakers, doctor lectures on Sat, Sat night pajama party with all kinds of fun, and a Sunday morning Walk for the Health of It through our forest preserves. I am hoping that some of you might want to gather a few gal pals and come. If you share a room, it will not be so expensive. I am also going to approach my chamber of commerce to see if they want to sponsor some thrivers instead of promoting all the pink stuff. I am really excited about this! It will be the weekend before Halloween, so save the date.
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Vivre,
I like Usana products but none of their vitamins has the right amount of non-flushing niacin (500 mg B3) that the ATP Cofactors does. Plus the B2 cofactor is 100 mg.
I suppose you could buy the nonflushing niacin and B2 separately from the health food store in the right doses. Could you get Usana to make a comparable product?
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Vivre-where would the retreat be held?
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OMG! Imagine my surprise to find that I think I belong here with you ladies. I thought my new approach to eating and living was fairly sensible and reasonable. I am now discovering that I am considered to be that "odd duck" that dabbles in voodoo science. LOL!
I did the SOC tx and would do it all again. But now I am doing whatever I can to hopefully keep the monster from returning. I have a lot of reading to catch up on here.
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PiP, welcome to voodoo land. People do get really weird about using complementary therapies on BCO for some odd reason.
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Ahh...a familiar face already. I didn't know that you were one of 'those people' Barbara. LOL
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Yes, I use supplements and feel great. I have medical issues in my family history that make me very wary of the AI's or Tamoxifen so I had to find another way. So far so good. These natural gals have great ideas and experiences.
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Welcome sister Pip !!
Other good threads, i.e. "survivors who have used only alternative medicine" and one I just started "hormonal girls", good food for thought
No precious waste of time or energy here sista !
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Is this the cure for stage IV? See the thread titled Dr Nobuto Yamamoto.
I've gone way past my bed time researching this. I have other links to old studies with other cancers, also flawed, and I still need to keep searching tomorrow night.
http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/ Flaws in the research in the above article.
http://aras.ab.ca/articles/scientific/icar2011/3-Punzi-Morucci.pdf New promising Italian study March 2011
Immunotherapy of metastatic breast cancer patients with vitamin D-binding protein-derived macrophage activating factor (GcMAF) Flawed 2008 study, there is doubt about the metastatic status.
-Sheila-
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Sheila, I'd say go for the D (taken with fat for absorption) but let Yamamommotttoooo try his vaccine on guinea pigs
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Hi Pip57,
You said, "I thought my new approach to eating and living was fairly sensible and reasonable. I am now discovering that I am considered to be that "odd duck" that dabbles in voodoo science. LOL! "
No, you're definitely not an odd duck, and I wouldn't really consider your approach voodoo science! I'd consider it well-researched and sensible, actually! There are some good nuggets here, but you might be surprised how many of us use a similar approach to yours. Sometimes the odd ducks aren't as numerous as they seem - they just quack louder.
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I think this is my new home as well. I've been trying to get all the junk out of my diet, and must say most of the time I feel great. I've taken a few pounds off, and have even found I no longer crave the sugar like I did in the past. Still have a long way to go.
Wish I could go off the Femara, but still not quite ready to take that plunge.
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Mollyann, I have no pull with Usana. They have a whole team of scientists, they are not about to listen to little ole me. But I am campaigning to get a breast health formula with iodine that includes the companion nutrients. I met the company VP recently and am hoping to get her to come to our retreat. She is an amazing woman who is so inpsiring. I think her story will really help empower other women. She talks about how her mother was able to provide for her children by selling a beauty product, and she put all her kids through college.
Sherry-The weekend will be in the Chicago area. I got a lot of intersest in sponsorship this past week, so I am hoping I can really keep the price down.
Sheila-Here is the thing about the "cure". It is not a one size fits all protocol. There is no chemo or magic pill cure, but there are natural cures that work on different people. The trick is to find the things that work for each person's chemistry. I am having a nutritionist do one of my lectures this week. He follows the Kelly/Gonzalez protocol for treating cancer with nutrition. It is not for the faint of heart as it involves those coffee enemas, but the last time I heard him speak, he was with a man who was told his cancer was untreatable and he had very little time left. He is still here, two years later, and he said he has never felt so happy and healthy in his life. His story was very compelling. And Dr. Kelly lived for 40 years after he was told he had a few months to live with pancreatic cancer. Of course, they called him a charlatan and that his cancer was misdiagnosed. It is maddening that if half the people die on a chemo it is called a success but if half the people live on an alternative protocol, it is called quackery.
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Well, I am definitely not doing the coffee enema thing!!!! But it makes sense to keep my body in the best fighting shape as possible.
I am feeling quite at home here with you 'ducks'! LOL
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I have done a summer for the last couple of years. I got my first fresh squash I will eat for supper tonight. Tomatoes will be plentiful. I am going to try for a year round garden to keep my diet full of fresh veges from my garden. Also started a composting pile which will be great for the nutrients
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Hi SherryC
Speaking of composting, did you know you can get spent coffee grounds from Starbucks to add to your compost? They're a great nutrient-rich addition, free, Earth-friendly, and practically unlimited quantities!
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thenewme, What a great idea with the coffee grounds. I had no idea you could get them from Starbucks. I have one about 1 mile away. I will be talking to them about their grounds.
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Hi Kira, some Starbucks stores actually bag them up neatly and have them in baskets near the door, and other locations will just give you the whole big bag they dump the grounds into, if you ask. It's amazing how many grounds they go through!!! Sometimes I'll stop by several stores on my way home, and they always have lots to give me. It's a definite win-win.
http://www.starbucks.com/responsibility/environment/recycling
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Hello Peeps - i am new to this forum but not new to breast cancer. I am 36 years old and have been diagnosed with Inflammatory Breast cancer stage 3b. I battled breast cancer 4 years ago and had lumpectome and lymph node removal followed by 6 months chemotherapy and radiotherapy and tomoxifen. Then had 4 years ok and then diagnosed with Inflammatory breast cancer in March this year.
When I had chemo before I had a very rough time when my kids were only 1 and 3 years old. Was sooooo sick nearly stopped my chemo because they could not control with meds and then Anaphilactic shock to Docetaxel and then Septicemia from Docetaxel. So nearly died a couple of times from chemo.
Have just had my second chemo this time with Paclitaxel and had anaphilactic shock again and now they want to use Abraxane which is still a paclitaxel drug.
I am terrified of chemo and having done it before and had such horrid reactions to it - I fear I may die of chemo. My kids are now 5 and 7 and I can not bring myself to go through and try it and see approch to chemo - please help - I am thinking of just not doing chemo and trying everything else plus diet change etc in the hope that I can stay alive.
Maybe you can help with your opinions as my brain is fryed.
Love kath
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Kcrowe I am sorry u had a rough time with the chemo. I start on Monday. Glad I am. Knowi will probably feel crummy.
Does anyone know why vitamin c would be reccomended for ladies who have or have had breast cancer?0 -
Kcrowe
I hope you find the answers you need here. Hugs.0 -
DLB- just catching up on the missed posts and I saw the link to the NIH-CAM. We are going to see more and more of that as time goes by with all the new healthcare laws-in many ways I think we willmore closely resemble Europe and their pharmacies. When I was in Ireland I ran into a drug store and was amazed that right alongside the prescription counter was one for alternatives. The government has cut a lot of funding for many things but research thus far has been spared. It willbe interesting to watch as it all evolves over the years to come.
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kcrowe- Oh my! You have been put through it, haven't you? Anaphylactic shock is nothing to mess with, no wonder you are scared and worried about doing more chemo. Only you can decide what to do. Regardless of whether you do or do not take chemo, there is lots of excellent information here on ways to help fight BC and support your body. I'm so sorry you have to fight this again. Hoping you have lots of friends and family to help you with your little ones.
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kcrow: I have a very dear friend who also had a very rough time with all of her different chemos and she is Stage 4 mets to the liver and bones. Abraxane is working really well for her-brought her cancer tumor marker levels from the high 1300's down now to the low 300's. She couldn't get through any of her other chemos either yet this one has worked for her. I am hoping you have the same success!
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Kath, is there possibly a way for your docs to figure out exactly what in the chemos you've had caused the aniphilactic shock reactions? Have you ever had a serious allergic reaction to anything else in your life? Sometimes there are fairly obvious links -- like some drugs are derived from compounds that are present in or related to common foods, like shellfish or nuts. As you probably know, Abraxane does not have the same preservative that Taxol and Taxotere do, and that's the component to which some people seem to be allergic -- not the Taxol drug itself. If I was in your situation, I would definitely see if there's anyway for your oncologist to figure out which element you're so terribly allergic to -- the drug itself, or something in the compound besides the Taxol. Also, if you developed IBC after getting Taxotere, I'm wondering why they're doing another Taxol drug now? I'm not a doctor, and the rationale may be obvious; but that's something I would need explained. Please stay with us and let us know what you find out!
Cyborg, I've always assumed high dose C therapy was RX'd to give our immune systems a boost, but there might be more to it than that. Hopefully, someone who's actually had C infusions can clarify. Deanna
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One doctor told me that stucture wise Vit c looks alot like sugar. She says it fills the cancer receptors in place of sugar ( which cancer loves) and then once inside the cancer cell it causes cell death. I have not seen the research backing this up. Nor could I find it with a search engine. Another PA told me that it may protect the cancer cell from chemo because what they want is for the chemo to be filling up the cells and the C may compete. So I opted out of that just because I am not clear on it and do not want anything to interfere with the chemo. Not some thing I want to repeat now or later. I am going to University of Michigan tomorrow and was planning to ask about this.
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thenewme-that is great to know about starbucks, unfortunately I live in a small rural area and no starbucks. The closest one is 50 miles away. But I do use my own coffee grounds which my husbands seems to provide lots of
Kath-so sorry about your reaction to the chemo. I hope that they can find something that will help you fight this nasty desease.
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