natural girls
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KCrowe-I think that Cancer Treatment Centers of america have been approved to do a study of IV Vitamin C as a treatment. For a summary of alternatives, try cancertutor.com (org?) Also, you could look up Dr.Gonzales in NYC who uses diet and detox or go to one of the clinics like Sanoviv who do surgery but not chemo or radiation and also emphasize detox. I do know a gal who was treated at Sanoviv after a recurrance successfully.
Annette-There is a lot of uproar in the EU community because they are getting less and less access to non pharma treatments. CODEX has driven out everything, as the FDA continues to try to do here in order to give drug companies total control over our healthcare. This is the main reason I am against obamacare. They cannot get iodine in France anymore unless they go underground. Obamacare will put compounding pharmacies out of business. Say goodbye to BHRT and thermography, even as a choice. Plus, I do not want all of my private medical records on a govt computer that anyone can hack into or find access to. THere is so much garbage in that bill. It needs to be repealed and replaced with a bill that addresses the issues without making more of a bureaucratic mess. I want my healthcare to be between me and my doctor, not some govt paper shuffflers. If you think it will be better than what we have, ask doctors how great medicare is for them. Most docs won't take on medicare patients because they do not get paid. I have two docs who said they will quit rather than practice under obamacare. We will have a doctor shortage on top of all else. And I know personally, my husband's company has already said they will drop coverage completely. How does dumping people out of a system that works for them, improve healthcare? And who is going to pay for the whole mess?
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Thank you so much ladies for your kind words and your advice - much much appreciated in every way. Dib823 I agree and have done so much research on this drug and have found that some pepole have had allergy testing done and managed to find which was the culprit for there sensitivity. Need to ask my Oncologist if they can do this for me as just putting it in me again to see if I have a reaction seems a little Barbaric and am truly scared of having this reaction again.
Problem I have is they do not seem to mind keep putting me this and there only comfort is that I am a big strong young girl and I can take it apparently - which I am getting a little fed up with.
My oncologist is totally against any alternatives and does not support me in this way at all - just thinks I am mad. I would love to find another Oncologist that is more on my wavelength but live on the Isle of Man where I do not have any other choices.
I figure I'll work it out and truly believe that I can get through this and be well again. Biggest love to you ladies and thank you again for your support. Love kath
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Kath ~ Do not be afraid to take a firm, informed stand with your doctors! They are human beings, not gods! It's your body, and I don't think your fear of another reaction is the least bit unreasonable, nor should it be minimized. If you can't switch oncologists (my first choice for you), can you possibly talk to an allergist before you have the next chemo infusion? Perhaps a doctor who specializes in allergies and should hopefully be well read, will have come across some research to help you! This is your body, and it sounds like it's going to be up to you to get this figured out if you don't want to risk another anaphlactic shock reaction. Not to scare you, but my understanding is that they can get worse each time.
Also, since your chemo infusions are only every few weeks, are you absolutely sure you can't find a new doctor, even if you have to travel a bit to get to one? In your situation, even a second opinion might be helpful -- like at a major cancer center. Then you could take that info' back to your local onc for review, especially if it differs from what he's doing, or provides another solution to the risk you're facing. Just a thought ~ Deanna
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Hello Deanna
Thanks again for your help and advice. I actually have gone to the Royal Marsden in London for a second opinion but because of the holidays it all is taking a very long time. I am hoping to talk to them about Allergy testing to see what is the sensitivity and really am not that sure about moving forward with this chemo unless they can sort this out for me.
Isle of man is stuck in the middle of UK and Ireland and we do not have a full time Oncologist here - he comes over once a week which is not ideal. I have only seen him once since being diagnosed and that was over a month ago.
My kids are to young for me to spend precious time away from them having treatment in another country so it is all a bit frustrating - but I will get there in the end.
Love kath
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I cannot say for sure which med was included in my cocktail, maybe benadryl, to prevent just that, allergic reactions. Having multiple allergies, hay, food, etc., it worked well for me. Hope they find a solution for your Kath. You are soooooo lucky to live in such a very beautiful environment. Take a whiff of that precious atmosphere for me, will ya ?
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Hello Luan
Thanks for your post - They put Piriton, dexamethasone and Ritadene in the mix before putting it in to stop such a reaction but did not make any difference. Fingers crossed will find the answer soon.
I love where I live soooooo much so I will give it some love from you - I really always feel lucky to live here
love kath
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Hey ladies! Great idea about the coffee grounds but be careful not to use too much as it is acidic. I have composted for many years and its all about balance. Just remember to also use your veggie scraps, grass cuttings, etc as well. My husband and I also are growing worms. They make soil for you! It's pretty fun. We started with a little dirt, some newspaper clippings and lots of cut up veggie scraps and they go to town!
I have lost 15.5 pounds since I started to eat more sensibly (mainly veggies/fruit/carbs, and just a little meat/dairy - I haven't been able to give it all up. Feeling a little guilty that I fell off the sugar wagon this weekend and had a big scoop of ice cream and now I'm craving sweets again. Urgh! But I do think the overall weight loss and eating this way is going to make a difference in the fight against cancer. Seems like my 6 month mammo is ages away. Nice to have forums like this to keep us all sane!
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NCkickphyllodes: I fell off the wagon this weekend as well and it was right on top of a big mound of praline pecan ice cream! First time I've had ice cream in almost 2 years......... I felt terribly guilty but the craving was more than I could handle.....lol. Today everything is back to normal. BTW, when I crave sweets I usually have a spoonful of organic almond butter and that does the trick for me...ummm, except for yesterday
Terri
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I too fell off the wagon this weekend with ice cream. And today I have craved sugar. My inner voice said not to do it and I did it anyway.
NcKickphyllodes-where do you buy your worms? I have read on those and find them interesting. This is my first round of composting and I hope I have kept it balanced.
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For those of you who have had healthier diets for a while now, do you find that indulging in the bad stuff causes some discomfort? My body does not react well with too much crap now!
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Yes! When you normally eat pretty clean, it's amazing how yukky you feel when you eat things you normally don't! I noticed it the day after Easter. I hadn't eaten anything really bad, but my body felt stuffed and sluggish from just a little bit of extra fat and salt. Now that I'm 95% off wheat, I really notice it with that, too. My intestines go crazy trying to digest it. And the great thing is, my DH notices it more with his body, too, and has made some surprising comments about wishing he hadn't eaten something he never would have said that about in the past.
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i gotta say if one is gonna fall off a wagon- ice cream is a nice soft landing! must have been somehting in the air this weekend- I asked my husband to run to the store and get me a pint of Haagen Daz Blueberry crunch last night- I was like a mad dog...but....i did make sure to leave on little teaspoon so as not to be piggish about it:) hahaha...it is true the better I eat the less I want *crap* but if I am going to have some, it has to be good. A treat to savor and I'm good to go for however long.
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pip - yes, when i have too much sugar --which, regrettably, i do too often-- i feel horrible - get hot flashes, sluggishness, etc.
and since tx, i cannot eat within HOURS of bedtime or i have horrible dreams and insomnia. weird. it doesn't matter if it's healthy food or not.
alcohol feels like antifreeze for me - gave it up months ago. i barely drank as it was, but even one cocktail had me up in the middle of the night, feeling as if i had a dose of A/C again!
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I can no longer eat before bed either. I have always known that it is not a good thing to eat late at night, but I couldn't stop. Now it just natural for me.
I was commenting to my dh on our walk tonight how different my body feels and reacts to things. Wish I had done this years before.
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We got our first batch at the bait and tackle shop. The worms got a reprieve! We haven't had to buy any more because they multiply like crazy!
Well, I'm glad, in a way, to see I'm not the only one who has fallen off the wagon. I have been good the past couple of days, but boy sometimes that sugar craving is a hard one to tackle!
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OMG... I cannot believe these are the kinds of "contradband" raids our tax dollars are funding!
http://www.washingtontimes.com/news/2011/apr/28/feds-sting-amish-farmer-selling-raw-milk-locally/
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Disgusting, Deanna. Just another example of government run amok.
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More FDA absurdity, and interesting stats on the # of additives in seemingly simple foods...
http://www.huffingtonpost.com/kristin-wartman/food-additives_b_853751.html
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Has anyone read this Health Book Supported by Scientific Evidence?
WHAT YOUR DOCTOR DOESN'T KNOW CAN KILL YOU by William Kent
Preface by Nobel Laureate Sir John Vane, Ph.D.Book Reviews by Leading Scientists:
"A terrific book!"
Dr. Walter Troll, Professor of Environmental Medicine
"Amazing and valuable."
Dr. Hideo Fujiki, Head of Saitama Cancer Res. Center, Saitama, Japan
"I recommend this book highly!"
Dr. Aurel Lupulescu, Professor of Medicine, Endocrinologist
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Ruth-in-Singapore, you wrote:
"...its funny to witness the reversal of terminologies, just by traveling by plane for 2 hours.. in my mother's hometown.. what we call as alternative is actually what is called conventional....."
....which made me think of one section of Dr. Servan-Schreiber's book Anticancer, where he says this:
I asked my doctor friends in [and I believe Dr. Servan-Scheiber was in Bhutan at that time] whether they would choose "alternative" or "conventional" treatments. They looked at me like I was an idiot. "... of course, if you are dealing with trauma, the only way to go is "conventional" but if you are facing a chronic illness, you have to go for "alternatives".
I am not citing Dr. Servan-Scheiber word-for-word, here, but that's basically what he said.
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And Deanna, I am reading this in your link:
" .....There are only a few studies that evaluate the combined effects of food additives. One 2006 study published in Toxicology Science concludes that the combination of several common additives appears to have a neurotoxic effect"
There again, Dr. Servan-Schreiber said it at one of his conferences in New York, which I attended:
"....What blows my mind with my "conventional" colleagues' way of thinking is the way they keep coming up with studies showing that one single natural food does not prevent cancer; they should know better: they are the ones that ALWAYS use chemotherapeutic agents in groups of 3 at least. Precisely because just one chemo agent would never stand the slightest chance of killing cancer cells...."
It looks like we are just starting to discover that most substances work "synergetically" with other substances to be effective (in a positive or negative way). That's true for chemo. That now appears to be true for toxic food additives. And that was always true for natural nutrition in general.
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One of my favorite non dairy treats (actually had it last night) is raisins, with semi sweet chocolate chips and almonds. Sometimes I melt the chips with a tiny amount of olive oil over low heat and add the raisins and almonds. Plop on a cookie sheet with wax paper and put in the fridge....yummy candy in 1/2 hour! And since I'm not adding sugar (and I don't think there is much in the semi sweet choc chips) - it satisfies the sugar tooth without tons of sugar.
When I'm really lazy (like last night) I just through it all in a bowl and munch on it without melting. Even the kids and my husband enjoy a handfull.
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Copied from a new thread here this a.m.... I thought this was interesting enough to re-post here:
http://www.redorbit.com/news/video/technology/7/detecting_breast_cancer_with_water/24171/index.html
And here's the place where it's being done:
http://www.karmanos.org/app.asp?id=582
I wonder if this technology will ever replace mammos & screening MRI's?
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kcrowe- Like Deanna said, you need to take charge of your health situation. Please research more about anaphylactic reactions. I was a nurse and can not imagine any doctor would be willing to continue experimenting with your situation. Anaphylactic allergic reactions usually get worse each time. Initially it can be a mild rash, your body becomes sensitized to the allergen. The next time your body is exposed, you usually have a more severe reaction like breathing difficulty. If they continue and give it again, the reaction can actually close the airway and be fatal. I don't mean to scare you, but it doesn't seem your doctors are taking this matter seriously enough. Please see if you could get a second opinion. Make sure you use the words "anaphylactic reaction". This usually gets immediate response. Good luck.
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I just heard a great talk from a nutritionist about eating for your metabolism. He explained why not everyone thrives on a vegan diet or on an all protein diet but when one finds the right balance, that is when we thrive. As Deanna mentioned, many of us now get really upset stomachs when we eat poorly. He explained that when our digestion is a mess, we are so use to feeling lousy that we do not take note of each food's impact on how we feel. But once we get our digestion working well, it is very noticeable when we eat something wrong for our metabolic type. I think we can all identify with this.
In case some of you missed this link before, I am posting it again. We talk a lot about supplements and there is so much confusion. I just heard that the editor for the Nutrisearch Guide to Supplements is coming out with a summary of what we should take to prevent bc. If you do not have this guide, it is a must. You can get it on Amazon or from his website:
http://www.nutrisearch.ca/index.php?option=com_content&view=frontpage&Itemid=1
He is not comparing over 2000 different supplements in North America. He maintains that ALL supplements should use pharma standards, but most are only food grade. There are companies like Life Extension that have learned to use pharma standards for their multi products, which is mostly what the guide compares, but they do not for every product. I found the best thing to do was to check my own blood tests to see if they were actually working.
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What do you all think about Stevia for a sweetener? Good? Bad? and Why?
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I love it but not for coffee...yuck!
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I use it quit a bit and like it.
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Wow! Detecting breast cancer with water? I can't WAIT for this technology to replace mammograms......
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Does anyone know if Stevia is safe? Does it feed cancer the same way that sugar does?
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