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  • DesignerMom
    DesignerMom Member Posts: 730
    edited May 2011

    MBJ-  Thumbs!!  This just started!  It is on my BC side where I also got rads.  This week I woke up and my left thumb was sort of "cocked" and I could sort of snap it repeatedly like you might a rubber band.  Instead of a smoothe back and forth it just kept snapping  back and forth.  I think it is related to rads as I am feeling discomfort all along that arm, it almost feels like a bruise when I press on it.  Jeez, what surprise will I get next??

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    I didn't have rads so I blame it on the chemo.  My thumbs lock in place either straight or crooked and I have to manually move them.  It's awful when I reach for something because sometimes it falls out of my hand because my thumbs no longer work properly.  My chiro told me to pull on them and crack the knuckles and work the joint or I will have to have surgery.  I have only heard of one other woman with this side effect.  It happened quite a few months after my treatment.

  • althea
    althea Member Posts: 506
    edited May 2011

    I dont have thumbs getting stuck into certain positions, but I'm definitely more clumsy than I used to be.  I think part of it is neuropathy, esp in my right hand.  Ever since chemo, though, I feel like the part of my brain that tells me where the end of my fingers are is damaged.  I stub my fingers all the time and I knock things over a lot in the kitchen. 

  • samsue
    samsue Member Posts: 599
    edited May 2011

    hlth, the OMD is the one that introduced me to Bing di ling. Do you know anyone taking it?

    The thumbs might be like the "trigger" finger. The sheath around the tendons are involved.

  • Cyborg
    Cyborg Member Posts: 192
    edited May 2011

    Hey girls. I am trying to get rid of all products with lavender and tea tree oil and noticing a lot of products have that in them.I have been using aveda products for years and slathering myself with lavender oil and it has been sad not to do that at bed time. Have unasked found any products that are natural and do not have tea tree oil and lavender in them--- such as shampoo etc? I guess I am supposed to avoid soy topical stuff as well. It is weird how all of the things that I found to be healthy are estrogen feeding.

  • barbaraa
    barbaraa Member Posts: 3,548
    edited May 2011
    Cyborg, check your stuff out at www.cosmeticsdatabase.org .
  • vivre
    vivre Member Posts: 881
    edited May 2011

    cosmeticsdatabase is not a reliable source of information. They are an arm of the Environmental Working group, which is an arm of the George Soros Tides Foundation, a political money laundering organization that enables political contributions for left wing agendas. It is so sad how the holistic health movement has been infiltrated by creeps like Soros. I was shocked when I first started to discover this. We can't trust anyone these days. Both the cosmetics database and the EWG do no show any evidence that they are scientifically evaluating anything. In fact, companies pay them to be evaluated. So I wonder how much they have to pay to get a good rating?

    One of the best books I have read about safety of skin care is "You're Skin and You" by Bea Kinnear. She has done a lot of research that separates fact from myth when it comes to what is safe and what is not to put on our skin. The one thing that I do not think Bea addresses is that even though some of these ingredients may not be dangerous by themselves, the accumulation of many of them, and the build up in our system is what causes us problems. But she has a great index that explains what every ingredient is used for and why.

    I have changed to Usana's Sense line of skin care because it is paraben and formaldehyde free and they have done extensive research as to what ingredients cause skin irritations and they avoid these. I absolutely love the body wash and the hair conditioner. It is a little more expensive than some other brands ($15) a bottle, but it makes my hair feel incredible. Plus, the conditioner is great for shaving legs with. A little bit goes a long way, so the cost is not so bad because a bottle lasts me a long time.

    Beware of things that are "botanical". Not all plants are alike. Remember poison ivy is a plant. And try to buy products that come in tubes, not jars. Jars are easily contaminated. Also, stay away from these new mineral powder makeups. You are breathing in things like lead with some of them.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2011

    Why is Lavender and tea tree oil not good for you?

  • vivre
    vivre Member Posts: 881
    edited May 2011

    Sherry-Lavender and Tea tree oil are both estrogenic and can add to build up of estrogens in our bodies. They can both be skin irritants for some people.

    But lavender is great for keeping the bugs away. I grow lots of it in my garden and put springs in my pantry.

    Also if the smell helps you to sleep, you can add a little dried lavender to an eye mask. I make these with silky material. I also add beans. They are very cooling and relaxing, and help to keep the light out for a deeper sleep.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2011

    I had no idea that Lavender was estrogenic, I love the scent and use lots of lavender bubble bath, bath salts and lotions. crap, my favorite.

    Vivre, thanks for the info and don't you have a website?  if so will you post the link again I would like to see it.

  • Valgirl
    Valgirl Member Posts: 28
    edited May 2011

    I had lots of lavender products - lavender essential oil, lavender soap, and on and on.  I threw everything away after diagnosis.  I also had Tea Tree oil.   I am finding it difficult to find natural products that don't have either lavender, tea tree oil or soy......

    I've used the foodforbreastcancer.com site for recent articles,studies, links etc on what to eat, use for ER+PR+.  It also has information for each subtype of BC.

  • michaeltdeans
    michaeltdeans Member Posts: 1
    edited May 2011

    At www.scienceuncoiled.co.uk, find details of my research, describing how selenium supplementation works to prevent breast cancer.

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    michaeltdeans:  If you are selling something it is against the rules to solicit on here.  Many of us already use selenium supplementation as part of the iodine protocol.

  • DesignerMom
    DesignerMom Member Posts: 730
    edited May 2011

    Cyborg-Aromatherapists have used essential oils  like lavender and tea tree for thousands of years.  What studies are you basing your decision this on?  Could you please post the article?  Unless it is based on evidence, I am not jumping on yet another bandwagon to eliminate lavender and tea tree.

    Anyway, I am busy enough trying to avoid the plastics, parabens and chemicals which I believe are the real culprits.

  • GirlFriday
    GirlFriday Member Posts: 203
    edited May 2011

    vivre:  You have a fountain of knowledge on alternative products.  I do have a concern with Usana, though.  Are you a sales person for them?  Like so many of the MLM's out there, so much of the information comes from the company store...I've seen this several times most recently with Reliv and LifeForce products.  C dx often brings these types of marketers to a door step, and since I've been paying attention to your posts, I'm was just wondering...how much of your info is from Usana?

  • vivre
    vivre Member Posts: 881
    edited July 2012

    Girl Friday. I appreciate your concern. I have not kept it a secret that I have recently joined Usana, but I only did so after over 2 years of my own research and trying everything out there. Even with products that my doctor promoted, like Metagenics, I have not had the results (bloodtests) that I get from Usana. And I looked in depth at third party evaluations such as the Nutrisearch guide. Plus doctors that got me on the road to holistic health, Ray Strand, and Christiane Northrup are Usana doctors. I will admit, some people get very zealous with marketing. This really turns me off. I hate the business part of it all. But as the wife of a salesman for a huge company, I understand marketing, the good with the bad. I have been around this forum for a lot longer than I have been using Usana. But since I have started using their products, I have dumped all the other stuff, so why should I recommend something else. It was such a relief to find the usana skin care line. There is so much research behind it and nothing is hidden. I can access specific information for everything because they have a forum called "ask the scientists".

    I am not doing this for financial gain. In fact, I only market the products to those who ask me. I am mostly working with a couple of doctors who use Usana and  I assist them with informing their patients about breast health and with seminars we plan together, which are always free. I would be happy to just sit and write all day, because my main goal is to keep my website going and to finish my book. But there are just not enough hours in the day!

    Also, most of my information comes from my obsessive reading of books. You should see my stack! I especially focus on books by doctors who think outside the box. That is why I was drawn to Dr. Strand and Dr. Northrup, and I learned so much from Brownstein and Dr. SS who wrote Anti Cancer. And the founder of Usana, Dr. Myron Wentz is a world reknown microbiologist, who has won the Einstein award. His new book "The Healthy Home" is on the best seller list now and all of the profits go to the children's hunger fund. I admire this man so much. He has built hospitals all over the world that offer integrative medicine and he takes no money as the CEO of Usana. He does not need the money. He retired from Gull labs with royalties for all the test kits he invented for virus' such as Epstein-Barr. He is from my town, and has given back to our community. He is a man I know started a company to help others, not to profit off of us.

    Off my bandwagon. Can you tell I am very passionate about this subject!  lol

  • hlth4513
    hlth4513 Member Posts: 161
    edited May 2011

    samsue-

    I have been taking Bing De Ling for about 20 months - since shortly after my diagnosis. I also take alot of other supplements - but the Bing De Ling is aimed at improving natural killer cell count and immune function.

    My TCM doc is known for specializing in cancer patients and has a lot of patients taking Bing De Ling. It also comes in a liquid, but I take it in capsule form - one capsule - 2x a day.

    I also take San Shen Wan - which is a formula he developed to decrease phlegm - which chinese medicine believes leads to cancer.

    When I asked him how long I should take it - he told me nine years.

    I am seeing Dr. Zhao tomorrow - let me know if there are any specific questions you would like me to have him address on Bing De Ling.

    Beth

  • Jules59
    Jules59 Member Posts: 148
    edited May 2011

    Valgirl, thanks for the reference to foodforbreastcancer.com.  I have been looking for this kind of info and this is a very good website.  It even tells what to eat and what to avoid during chemo, which is of great interest to me because I'm still in treatment.  Why don't oncologist tell us this stuff?

  • GirlFriday
    GirlFriday Member Posts: 203
    edited May 2011

    vivre: I'm so happy to hear you say that!  I'm glad you getting such good results AFTER having researched and tried other products.  I've been a fan of Christine Northrup for years, and was horrified when I was almost duped into participating in one of her "opportunity" talks.  I heard she was "speaking"  via a rather alternative store, and signed up for the talk, and then got the Team Northrup information via email.  I immediately declined. I'm definitely down on MLM's, in fact you could say jaded, and it's not that I've been given an impression you are selling anything, but I just needed to clear the Usana air.  What type of book are you writing?

  • althea
    althea Member Posts: 506
    edited May 2011

    Hey ladies, I finally ditched my tagline that said "my idea of a balanced diet is a cookie in each hand".  It was actually someone else's tagline from another forum years ago, and after she passed away, I took it as my own as a way to remember and honor a very special woman. 

    I just came across my new quote "listen with a questioning ear" from George Ohsawa, who originated the macrobiotic diet.  While I haven't completely eliminated sugar from my diet, it's definitely being phased out, and I now use organic unrefined sugar for any recipe calling for sugar.  I'm steering clear of gluten also, to prepare myself for the possibility of going gluten free at some point.  All these things are a process, not an event.  

    And while we're on the topic of supplements, I've tried some usana products, and I especially like their vitamin C.  So many of the vitamin C products available are derived from corn, more than likely gmo corn.  But even if it's not gmo, all of us can benefit from variety, and corn is ubiquitous in today's food choices. 

    Another thing I really like about usana is what it DOESN'T have, which is magnesium stearate.  Take a good look at your labels, all the way to the bottom.  I was made aware of this ingredient just a few months ago.  Basically, it's added to the supplements to keep materials from sticking to the machines during processing.  Once it's inside of people, it creates a biofilm that interferes with absorption of the supplement and anything else we consume.  So if you need a challenge for this week, go to your nearest vitamin aisle and try to find a single bottle without magnesium stearate.  ....and then if you do find one, look at the label again, and see if it says titanium oxide.  Titantium oxide serves the same purpose as the magnesium stearate.  

    The third thing I like about usana is the way each supplement has a unique appearance.  I'm having a heck of a time getting my mom up to the level of supplements that just her doctor wants her to take, let alone the ones I want to add.  The ones that are a capsule filled with white contents all look the same once they're out of the bottle, and this is problematic with a forgetful 83 year old who balks at every supplement I add to the routine.  

    Unfortunately, I can't say I have rave reviews for all the products I tried.  So I'm continuing on my resolve to find all the supplements I need that are each free of magnesium stearate.  There's some good quality supplements at http://www.beyondhealth.com/   I have confidence in the kind of research Raymond Francis does. 

    I just read his book, Never Be Sick Again, and this is a man who came especially close to death's door years ago.  He became so sensitive to chemicals that he had to run his books and magazines through a low temperature toaster oven outdoors just so he could physically handle the material without getting sick from the ink.  None of the products at his site have magnesium stearate either.  Many times in the past I've browsed his site and the prices were a deterrent. 

    It's another part of the process I reckon.  I never used to pay extra for organic produce.  Now I do.  Paying more for quality supplements is where I'm heading next.  In the long run, I reckon I'll come out ahead because I won't have to factor in compromised productivity from feeling like crap all the time like I did for the first five years post treatment.  

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2011

    althea my DH is allergic to wheat so we try to do as much gluten free as possible for him.  A little wheat does not bother him, but too much and he gets bloated and in general does not feel good.  I bought several cookbooks and now just have one that I use regularly.  If you want any info on it I'll be happy to share. 

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited May 2011

    Althea, tks so much for ure post, in all the years....and i never knew about magnesium stearate !!!



    Vivre, i,ll have to see if i can find Usana in Cnda, love C. N. too :)

  • samsue
    samsue Member Posts: 599
    edited May 2011

    hlth, one of the TCM dr's in town uses the Bing De Ling but mine doesn't. He is using a couple of other herbs instead. I guess it depends on the body - cold/warm, etc.  I had a treatment today and feel very relaxed. When I first started after the rads, I could actually taste the metal during a session.  Amazing!

  • NCkickphyllodes
    NCkickphyllodes Member Posts: 21
    edited May 2011

    I'm with DesignerMom on this one. I work with a lot of statisticians and they say that many observational studies are rubbish because they don't replicate. That's why you see studies that one day say coffee is bad for you, then the next day, a study comes out saying it's good for you. So, unless there is overwhelming evidence, I say use the lavender oil and tea tree oil.

  • NCkickphyllodes
    NCkickphyllodes Member Posts: 21
    edited May 2011

    Oh, by the way "Forks over Knives," a documentary that was mentioned on the Dr. Oz show that has is all about eating right for your health (to fight/prevent cancer, diabetes and many other diseases) is debuting in several cities this weekend. Just thought I'd mention it. It's not here in NC yet, but I plan on seeing it when it does.

  • annettek
    annettek Member Posts: 1,160
    edited May 2011

    does anyone know if whole foods carries the bing de ling?

  • Sherryc
    Sherryc Member Posts: 4,503
    edited May 2011

    Got to meet Althea today. What a treat to get to meet others from BCO. Annette maybe we can meet up when u take your son to camp.

  • luv_gardening
    luv_gardening Member Posts: 362
    edited May 2011

    Woo hoo to Sherry and Althea!  Where's the "like" button?

    Cool Laughing Tongue out 

  • hlth4513
    hlth4513 Member Posts: 161
    edited May 2011

    annettek-

    I have never seen Bing De Ling at WHole Foods - but you could call and ask. You can order it from the website: http://anfala.com/bingdeling.aspx

    Beth

  • mollyann
    mollyann Member Posts: 148
    edited May 2011

    Our natural girls, Sherry and Althea met????

    I'm so envious. Surprised  Do you kids remember our upcoming virtual road trip?  That we're all supposed to meet at Althea's place in Texas at Thanksgiving for pheasant under glass? Bring your own pheasant and, um, your own glass. We will toast Mom!