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  • vivre
    vivre Member Posts: 881
    edited May 2011

    Corian-I did take Myomin, but it made my eyes so dry and blurry. This is actually proof that it lowers estrogen, because estrogens help with eye health. I finally decided to not work on lowering hormone levels, but to put them in balance with diet and exercise, which has worked pretty well for me. IMHO the estrogen links to bc are overrated. I believe it is not that we have estrogen, but that we have an inbalance of hormones. I have tried to go for balance rather than just blocking all estrogenm which is essential for heart, bone an mental health. Blocking it all is like throwing out the baby with the bathwater. I also think that a working thyroid is a key. In my case, many of my health issues have been overcome with the addition of iodine and other key supplements.

    Victoria-It is always nice to hear from you. I have not even planted my cukes yet. It has been so cold and stormy. Everyday I have to get my  plants out of my greenhouse shed to harden off and put them back in at night. I sure hope it warms up soon. I can't wait for fresh cuke and tomato salad. We eat it almost daily when our crops finally come in.  Just add some herbs and a high quality of balsamic vinegar and olive oil. Yum.

  • corian68
    corian68 Member Posts: 86
    edited May 2011

    Asschercut & Barbara-



    Thanks for your response;) I am on a 14 day medical cleanse, when it's over and my hormone level results come in, I will start with DIM, PSK & Myomin.

    Can not wait to get started!

  • corian68
    corian68 Member Posts: 86
    edited May 2011

    Vivre-

    Interesting about the eyes! I am right there with you! Balance is the answer;)

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 166
    edited May 2011

    Asschercut, Thanks for the information on the cucumbers. I'll have to remember the silica as well. I lost about 1/4 of my hair volume last fall (and I didn't even have chemotherapy), but don't know what caused it, so I've been very careful to balance proteins, complex carbohydrates, fruits and veggies.  All hard to do on a GF lifestyle. I'll be sure to add Cucumbers to my repertoire, which gets more complex daily!

    Deanna, thanks for getting the information on MSM. I'm very cautious about taking it again, though my friend keeps telling me she thinks I picked up a stomach bug from her son. Hard to tell, but I really don't think I am up for another bout of nausea, BigD, and headache, so probably won't give it a try. I've heard it does wonders for joint pain, skin and hair, however.... just not for me! Wink 

  • althea
    althea Member Posts: 506
    edited May 2011

    I tried ashwaganda a while back.  It's an adapotogenic herb.  I think I saw it mentioned several times in articles about underactive thyroid and some people were feeling better after using it.  Personally, I got nothing but heartburn from it.  I tried it again later on, taking it only if I had a full stomach.  That alleviated getting heartburn from it, but I can't say I observed any benefits.  ...chances are, it could material that's past the point of being effective.  I'm learning that it's beneficial to be just as picky about supplements as I am about my food. 

  • corian68
    corian68 Member Posts: 86
    edited May 2011

    I know this is off topic but I was just reading about Myomin. this herb sounds pretty awesome! My N.D will be treating me soon with it for estrogen dominance, we are just waiting for more labs to come back. It is a Aromatase inhibitor, they uses it to treat Endometriosis ( I have) fibroids, Fibromyalgia and helps reduce belly fat....win! win! There are studies and has been used in China for a gazillion years ;) worth reading about for sure.

  • barbaraa
    barbaraa Member Posts: 3,548
    edited May 2011

    I am very happy with it. I am now at 110 pounds and my belly is not exactly flat but WAY less flabby than it was before. Now if I could just do more crunches.....

  • Sherbear
    Sherbear Member Posts: 68
    edited May 2011

    Since Myomin works like an AI, is it only good for post-menopausal women?  Can it be used when you're already on Tamoxifen and DIM?  I currently take both and am in chemo-pause right now, no idea if my cycle will return though.  Will ask my ND about it, but thought I'd ask here too.  Thanks!

  • barbaraa
    barbaraa Member Posts: 3,548
    edited May 2011

    Sher, myomin works to help metabolize the estrogen in your body to a 'good' estogen so I think it would be fine. Check w/your ND to be sure.

  • Sherbear
    Sherbear Member Posts: 68
    edited May 2011

    Thanks so much Barbara, I definitely will.  

  • vivre
    vivre Member Posts: 881
    edited May 2011

    Shearbear. YOu do not need myomin and Dim. Just one or the other. They are very similar. For some reason, Myomin seems more effective on post menopausal women, but it is best to find what works for you own metabolism. Also, studies have showed that using I3C instead of tamox has the same effect with the hormones. But of course, doctors will not recognize this because they prefer the drugs. You can google tamox vs I3C or Dim and find lots of info. Also, Dr. Epstein has some info on his website. He has written many books and runs the cancer prevention coalition.

    Dr. Epstein and Dr. Chi (distributor of Myomin) will both be at the Health and Freedom Expo in June, in Chicago. This is going to be a great event. Hope to see some of you. It is well worth the trip. If you have any questions for Dr. Chi, let me know and I will try to ask him.

  • Carola32
    Carola32 Member Posts: 44
    edited May 2011

    And I thought I was going a bit nuts! My neuropathy started about a week ago (have hade 2 Taxo so far, 2 more to go), tingling, burning sensation, and the feeling that my fingers were not 'my own'. Straight after the IV I get clumsy, and it's just getting worse. But, I found squeezing a stressball, playing the piano (certainly not my folk guitar with hard strings!) and massaging fingers and palms gently but thouroughly improves mobility.

    Anyway; I was lying in bed close to my DH, my hands in his. I got scared a moment, because I couldn't figure out which hand was mine! I had this horrible feeling of numbness in my hands and my brain must have sent the wrong signals or something, it was like it got mixed up! It's hard to explain this sensation, but it definitely is not a cool one! 

  • luv_gardening
    luv_gardening Member Posts: 362
    edited May 2011

    Deanna, I've been googling Ashwagandha (Withania somnifera) and it's been shown to consistently have anti-cancer properties in in vitro research.  It needs a lot more research but looks promising.  Active component Withaferin A.

    http://www.asco.org/ASCOv2/Meetings/Abstracts?&vmview=abst_detail_view&confID=100&abstractID=60578

    Effect of withaferin A on breast cancer apoptosis through inhibition of estrogen receptor-alpha expression and stimulation of p53 expression

    Conclusions: WA induces breast cancer apoptosis in part through inhibition of estrogen receptor alpha and induction of p53 expression in vitro.
    2010 Breast Cancer Symposium - Presenter: Mark Steven Cohen

    --------------------- 

    http://www.ashwagandhawithania.com/withaferin.html

    Withaferin A from Withania somnifera herb

    Withaferin A is a withanolide chemical constituent from ashwagandha herb. It has been reported for its tumor cell growth inhibitory activity, antitumor effects, and impairing metastasis and angiogenesis.
    The present findings clearly indicated that withaferin A exerted a strong anti-inflammatory effect against gouty arthritis.
    Taken together, our results indicated that the JNK and Akt pathways and inhibition of NF-kappaB activity were key regulators of apoptosis in response to withaferin A in human leukemia U937 cells.

    ------------------

    http://www.cell.com/chemistry-biology/abstract/S1074-5521(07)00152-4
    25 June 2007
    The Tumor Inhibitor and Antiangiogenic Agent Withaferin A Targets the Intermediate Filament Protein Vimentin
    These findings identify WFA as a chemical genetic probe of IF functions, and illuminate a potential molecular target for withanolide-based therapeutics for treating angioproliferative and malignant diseases
    .

    -------------------------- 

    http://www.enzolifesciences.com/BML-CT104/withaferin-a/    More links on this page. 

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    Chinese herbal supplements DIM and Myomin are claimed to reduce excess estrogen, shrink fibroids and reduce significantly the adenomyosis symptoms. DIM is a blend of cruciferous vegetable extracts including broccoli, cauliflower, cabbage and brussel sprouts. Research shows it helps metabolize unhealthy circulating estrogens (estrone, estradiol) into the good form (estriol). Myomin is an all natural formula of Chinese herbs that has been shown to help metabolize unhealthy estrogens and promote proper hormonal balance. Studies show that it also inhibits aromatase, an enzyme that converts androgens (testosterone) into estrogen.In addition to that, it competes with estradiol at the estrogen receptors of target cells. This is why Myomin is so effective for estrogen-dominant conditions such as cysts and fibroids (International Journal of Integrative Oncology. Mar 2008; 2(1):7-15).

  • corian68
    corian68 Member Posts: 86
    edited May 2011

    I love you ladies that do your research! aw... love learning :)

  • Merilee
    Merilee Member Posts: 734
    edited May 2011

    I hate to be a buzz kill here but I had a recurrence while on DIM.

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    Merilee:  I am sorry for your recurrence.  I don't have hormone positive BC, but I am curious:  how long were you on DIM and how long before your recurrence?  My personal belief is if all of the cancer cells are not out of the body, then the alternative therapies won't prevent a recurrence.  I was also doing many supplements and therapies but it was too late as the cancer was already in my body and growing hence surgery and chemo.  Because my BC isn't ER/PR+, I am on bioidenticals but after hearing about Myomin, especially with my history of uterine fibroids & BC, I think I should be using this!  DIM works differntly then Myomin from what I read above.

  • Merilee
    Merilee Member Posts: 734
    edited May 2011

    I was on DIM for 6months before my recurrence. I had a bilateral mastectomy before that and thought that would do it. My tumor was only 1cm.   I Started on DIM after a very bad experience with Tamoxifen, which I was on for only 6 weeks. Then another tumor grew in my arm pit of the same side.

  • Cyborg
    Cyborg Member Posts: 192
    edited May 2011

    Thanks for the above information on dealing with hair loss. I am very worried about that in my future. I am on TC treatment now and I understand I will be looking at tamixifin for the next five years after that. I don't want to have to be bald on top if everything. I am Er and Pr +. so I hope the potion by Zenna will not affect me

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    merilee:  Wow, that was very small and yet it came back fast!  I always wonder, when I hear a story like yours, if they cleared the margins or if there were still cancer cells in the body for it to reappear.  I know that I did many proactive things before and after my MX, but I also did chemo.  So far so good, but mine is a very aggressive and sneaky BC so it's very common for it to reappear.  I guess we all try and do the best we can with the info we have at the time but there are truly no guarantees and there certainly isn't a cure yet.  What are your dr's doing for you now and are you still on DIM?

  • MBJ
    MBJ Member Posts: 3,671
    edited May 2011

    Cyborg:  You can look at the ingredients on line--no mystery to it: I believe it's a malted vinegar, wintergreen & spearmint to hide the smell of vinegar and some other non toxic ingredients.  It just keeps your hair on your head.  I have been using it a long time including after my TC treatments when I was trying to regrow my hair.  I also use Nioxin products and there are also other products with Biotin (vit b's) in it that are helful.

  • Cyborg
    Cyborg Member Posts: 192
    edited May 2011

    Thanks MBJ

  • pip57
    pip57 Member Posts: 7,080
    edited May 2011

    My concern with taking a supplement INSTEAD of an AI is that the ingredients in over the counter products are not necessarily consistent or pure.  I am relying on a lot of supplements to keep me healthy but I am not confident enough to give up my Arimidex.  However, I am finding my supplements help keep the SEs quite mild.  Otherwise I would probably take another look at stopping it.

  • asschercut
    asschercut Member Posts: 73
    edited May 2011

    Hi Merilee: I've been thinking about your reoccurrence and was wondering how long it can take for tumours to reoccur.  When I was diagnosed with atypical ductal hyperplasia in 2004, my BS told me that my cells were behaving abnormally around a fibrous mass, and that it was highly likely that they could eventually develop into cancer in 5 years' time. So I had a lumpectomy with clear margins. I understand that you may feel let down with some of the alternatives...just as I did with aspirin. I thought that aspirin would somehow prevent cancer from developing...but I actually developed cancer while taking it for 5 years. My blood became sooo thin that my biopsy was a bloody mess, and I had to delay surgery.

    I don't know how long it took for my cells to become ADH...but from then on it took 5 years for my mutant cells to develop to a 1cm+ cancerous mass. My BS was spot on. Do you think it's possible that your reoccurrence was a tiny tumour that had been growing for a while...undetected? I was listening to recent interviews by Kylie Minogue, and Olivia Newton John...and they were both misdiagnosed twice. Eventually Kylie ended up seeing the same BS I was/am seeing. She's great and very thorough.  I finished rads Christmas 2009...and I'm still seeing my team of specialists every 12 weeks. Can't wait for it to become every 6 months/one year!

    My neighbour has also just had a reoccurrence. She had chemo, rads for stage 1 BC, and one year after she finished 5yrs of tamoxifen she developed tumours in both breasts. I don't know what stage she is now...but her brother tells me it's more aggressive this time around.

    This beast is unpredictable.

    All the best...x

    Victoria

  • asschercut
    asschercut Member Posts: 73
    edited May 2011

    Have you all noticed how thick and creamy Greek yoghurt is?

    Some of you may know that although I'm an Aussie I have a Greek background. Growing up I watched family members make Greek yoghurt from sheep/goats milk. But it was never consumed purely that way. They would buy thickened cream and pour it into the yoghurt and mix it up first to take away the bitterness and make it creamier. It was also traditional to break up pieces of bread and mix it with yoghurt and eat it that way. My father said that it was popular with Greek peasants for hundreds of years to eat creamy yoghurt with bread when times were tough. And centuries later it became a favourite with Greek people...especially the elderly. I don't think eating bread with yoghurt is as popular with today's generation. Anyway...our love for creamy yoghurt has become a worldwide hit, and now Greek yoghurt is everywhere. Greeks just love it because they no longer need to add the cream. But if you are watching your weight...you may want to have Greek yoghurt on occasion and perhaps look at consuming yoghurt made from sheep or goat milk - because the Greek yoghurt nowadays is made from cow's milk with additional cream. I love Greek yoghurt too...and have it on occasion....but I mainly eat grass fed goat/sheep yoghurt.    

    Here's some info on Greek yoghurt...

    http://www.wisegeek.com/what-is-greek-yogurt.htm

    Victoria

  • asschercut
    asschercut Member Posts: 73
    edited May 2011

    Vivre: Always a pleasure to hear from you too!

    It'll warm up soon enough...so you can enjoy your fresh home grown fruit and vegies. In the meantime it's great that you have a greenhouse. This year I grew my cucumbers too close to some of my moss roses...and poor William Lob and Mme de la Roche-Lambert were almost strangled to death. I don't think I'll grow the large continentals next year - might try the Lebanese.  Isn't it awful the way they wrap the continentals in plastic at the supermarkets?

    Have a lovely day...x

    Victoria

  • Sherbear
    Sherbear Member Posts: 68
    edited May 2011

    Asschercut~ I love greek yogurt!  Don't eat a ton of dairy anymore really (organic cheeses and organic milk for my tea), but I treat myself to yogurt every now and then, it's like dessert to me!  Thanks for the info. 

    Anyone here drink/use raw milk?  I know it's probably tough to find as it's illegal, I think there are a few places here in Ontario that provide it, but I've never tried it. 

    Vivre~ Thanks for the clarification on DIM, Myomin, and I3C, really appreciate it! 

  • pip57
    pip57 Member Posts: 7,080
    edited May 2011

    Greek Yogurt is the only dairy I eat now.  We use it to make soups and our own 'ice cream' too.

  • samsue
    samsue Member Posts: 599
    edited May 2011

    Sherber, when I was growing up we always used raw milk. My dad got it from a farmer near where we lived. Then when my kids were young.. not that long ago. We had a Jersey cow and milked her. I didn't do the pastarization for the milk. I could if I wanted to by heating to 170 (I think that was the temp) then cooling down in the frig. I had more control over how my cow was fed and taken care of so I'm not sure about the possibility of buying from others. We didn't have a problem drinking our milk.

  • [Deleted User]
    [Deleted User] Member Posts: 323
    edited May 2011

    Samsue, I love Jersey cows, they are soooo pretty, how lucky you are, my grand-father had one among his holsteins and it was my favourite !  Was brought up on raw milk until we moved from the farm at age 6