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  • Kaara
    Kaara Member Posts: 2,101
    edited September 2011

    I went to my appointment today and was told to take all records to Florida for further evaluation since that is where we reside most of the time.  Still no diagnosis, but my PCP in N. Carolina was very calming and said a couple of months would not make any difference but to make the app't now so I won't have to wait, which made good sense.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    Kaara good luck and keep us posted. And your PCP is right.  a couple of months will not make a difference.

  • my560sel
    my560sel Member Posts: 399
    edited September 2011

    I came across this video on skin cancer and the use of cannabis oil to heal it....I hope I'm not offending anyone by posting this  but it is worth a look-see.

    http://dotsub.com/media/fc4e051a-1709-4e63-8a2c-912b09486c9f/e/m

  • MBJ
    MBJ Member Posts: 3,671
    edited September 2011

    Sherryc:  A safer alternative to taking testosterone is trying .5 mg of Pregnenolone.  If you take it after you have had your morning coffee/tea, breakfast and shower it works best.  Beware: It can give you some irritability and you may need to start with a half a dose. 

  • Suzanne3131
    Suzanne3131 Member Posts: 2,000
    edited September 2011

    Terri you look great!  Love the new pic!

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    MBJ thanks for the info.  I went to the endocrinologist yesterday and he is checking my adrenal glands and pituitary gland and a bunch of other stuff as I am too young to have this low of testosterone I go back in two weeks to get the results and try to figure out what is going on.

  • MBJ
    MBJ Member Posts: 3,671
    edited September 2011

    Sherry:  So glad to hear they are checking these.  I have adrenal exhaustion and it's a long road back to health.  My testosterone is fine it's my adrenals that are shot.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    MBJ I read on that and also addisons disease.  Addisons really sounds more like what I am going through but I guess I'll know for sure in a couple of weeks.  On what I read on adrenal exhaustion and diet I already do so at least I don't have to learn new things there. I'll keep you posted. I was just so glad the Dr did not take any of it lightly and listed and asked me losts of questions.

  • impositive
    impositive Member Posts: 102
    edited September 2011

    my560sl, I have had melanoma and have watched that video.  If I could get my hands on that cannabis oil, I would definitely give it a shot!  There are many studies showing its efficacy.   It's a shame they do not make it available (at least not in my state.)

  • MBJ
    MBJ Member Posts: 3,671
    edited September 2011
    SherryC:  I take a lot of supplements recommended from the www.DrLam.com site.  The site has everything you ever wanted to know about your adrenal glands.  Glad to hear your dr. is taking this seriously.
  • dlb823
    dlb823 Member Posts: 2,701
    edited September 2011

    MBJ ~ Thanks for posting that link!  Great information!  I'm seeing my Naturopathic doctor today, and wanted to ask her about adrenal fatigue, which I learned about here.  Now, after watching Dr. Lam's video on it, I understand it much better.  What especially caught my attention is that being on TSH for the past 6 weeks, has made me feel worse, which is something Dr. Lam mentions in his video.  And, if it's caused by stress, I don't see how we could not have some degree of adrenal fatigue after dealing with bc.     Deanna

    PS ~ Althea, I also wanted to wish you a great trip to NYC!  I'm sure you'll have a blast, and I'm thrilled to know that you'll be meeting DesignerMom!  Happy to see you following your dreams! 

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    MBJ thanks for the link, I'll probably have time this afternoon to check it out.

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 166
    edited September 2011
    Hi ladies, I posted this elsewhere on this site, but am really upset as I think I've created an imbalance. I am almost 2 years out from Dx, and I finally felt like I was "balanced" hormonally speaking..... regular, 30 day periods, few breakouts, no tenderness.  I accidently took chasteberry in a multivitamin that I purchased (who knows what else it had in it, come to think of it).  Now I have no period, cycle's thrown off. 

    Do I jump start it with natural progesterone? Let it be? Worried sick about it, because I am envisioning that estrogen has taken over! Ugh.
  • althea
    althea Member Posts: 506
    edited September 2011

    Hi ladies, I'm back from NYC!  I had such an awesome time.  Deepak Chopra's keynote address was exceptional.  Lots of people were in the audience, but still, being in the same room with him was magical for me.  IIN brought other top notch speakers too.  Mark Hyman, Joel Fuhrmann, Sally Fallon, Pierre Dukan, David Katz.  I made new friends, saw some sights, ate delicious food (not all of my food choices were top notch, but I enjoyed every delicious bite). 

    I am so IINspired!  I complete my class in February, and I really like the structure of the learning experience.  Part of it is starting to see clients while still in school.  When we were first told to do this several weeks ago, I was like, who, me?  The conference gave me a giant boost and kickstart.  Now I feel rarin' to go.  Kicking off my first issue of my newsletter is on my to-do list.  If anyone wants to subscribe, just send me a pm and I'll send you a link.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    Althea I'm so glad you had a great time and came back inspired.  You will do great.  I think I am on your newsletter list but if not send me a link you have my email.

    Marianna I don't know anything about chasteberry, but I would be freaking as well if I had worked so hard to get it all straight. urgh

  • DesignerMom
    DesignerMom Member Posts: 730
    edited September 2011

    Althea-  I'm so glad you had a great, inspiring trip to NYC.  I believe you are positioned perfectly to help people get healthy.  Even people who never connected the food to health link are hungry for help.  Just yesterday two elderly ladies stopped us in the grocery store asking us to confirm if the vegetable they were holding was endive.  They told us Dr. Oz said it could help prevent cancer and wanted to try it.  Yesterday on Dr. Oz his guests were Dr. Andrew Weil and Deepak Chopra.  I have a feeling we will no longer be the "fringe" movement, it is going mainstream.  About time!

  • Hindsfeet
    Hindsfeet Member Posts: 675
    edited September 2011

    my569sel, actually I think my chiropractor used it for his skin cancer. He used it a few years back. He said it was illegal and he purchased it from another country. His face worsen before it got better that is when using the oil. The cancer did disappear from his face. I am so glad you posted it because this chiropractor is deceased, and I wanted to ask him where he got the oil.

    To add, my chiropractor died in June of lung, bone and brain cancer. He contributes his last bout of cancer to his heavy smoking. I couldn't believe he was once a naturalpath/chiropractor and smoked. He was the nicest guy ever...miss him. The film is great...I'm going to post it on my holistic site.

  • MBJ
    MBJ Member Posts: 3,671
    edited September 2011
    my560select:  www.PhoenixTears.ca/ is a link regarding hemp oil.  It is supposed to "cure" many cancers and it doesn't get you high.  This site shows you how to make it.  If I were to discover mets I would be looking into this as it certainly couldn't hurt!
  • jessamine
    jessamine Member Posts: 123
    edited September 2011

    hello! I haven't been on here in ages and I'm not caught up, so sorry to drop in the middle this way, but I have a question for you savvy ladies! Specifically, iodine knowledgable folks. Under my nutritionist's guidance, I have been taking a high dose of Iodoral (37.5....uh whatevers. Is it mg? mcg?) for about 18 months, and we finally retested to see how things were going. My levels went from 63% to...66%!! Basically no improvement. It seems clear to me that I'm not absorbing it but my provider was stumped. Has anyone heard of this, do you know of things that can disrupt iodine absorbtion?

    I am switching to a liquid form but I don't think it's that simple-- the reason we retested is that I thought I maybe had high enough levels now, b/c I had started having excess heat when I take it. Meaning, it's not just passing through me, it's being at least partially assimilated, it just isn't...working.

    I wanted to ask on the iodine forum but I can't find it for some reason! So also, if anyone knows where that is, that would be helpful. Thanks all!

  • dlb823
    dlb823 Member Posts: 2,701
    edited September 2011

    jessamine, do you know what your TSH is?  I'm no expert, but that's something my naturopathic doctor recently picked up on for me.  Mine was technically in the "normal," range (per my conventional docs), but way off from ideal.  I believe this impacts how the iodine is metabolized.    Deanna

  • vivre
    vivre Member Posts: 881
    edited September 2011

    Jessamine The iodine protocol is pretty complicated, in that there is no one size fits all. That is why Stephanie's iodine group is going non stop with people questioning the protocol. It takes a lot of trial and error, and personal dedication to figure it all out. That said, the amt of iodine you are taking may seem like a lot, but is actually low. In fact, most people work up to a minimum of 50 mg daily of iodoral or lugols. It takes a lot if you are especially full of toxic halides. And you must take the companion nutrients of selenium, magnesium, vit c. etc, and do the sea salt loading to flush out the toxins.   I know it is a long way, but Stephanie will be speaking at the ThinkBeyondThePink event I am planning in the Chicago area Oct. 21-23. You should try to come and hear her speak. She also has docs on her yahoo group that explains a lot about the protocol. You guys should try to send your ND's. I am trying to put together a doctor's workshop with Stephanie so that we get more docs who understand how to help patients with iodine.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    Has anyone every done a foot detox soak?  Just curious about it and wondered what any of you thought.

  • althea
    althea Member Posts: 506
    edited September 2011

    jessamine, you didn't mention what kind of test.  Was it an iodine loading test?  I've had two or three since starting iodine therapy in 08.  I have lousy absorption rates.  It's a common problem.  Iodine is a halide.  Other halides are bromine, chlorine, flouride.  Bromine especially is highly pervasive in our dailiy lives.  It's in fire retardents (carpets, fabrics, electronics, new cars).  All the halides compete for the same receptors.  Also, poor absorption can indicate what's called a symporter problem.  Extra vitamin c is warranted in the case of damaged symporters.  Taking the entire protocol is important -- vitamin c, magnesium, selenium, and unrefined salt.  The iodine forum is a yahoo group.  Look out for a lot of emails.  It's a very active group.  I'm so glad the list owner will be speaking at vivre think beyond the pink.  There's a lot of bad information in circulation about iodine, and the iodine group will hopefully lead to getting the correct information into the light of day. 

  • dlb823
    dlb823 Member Posts: 2,701
    edited September 2011

    sherry, I did one of those foot detox baths shortly after I finished chemo.  I don't believe the sludge that ends up in the pan is truly all from our bodies.  In fact, I saw an expose type piece on TV later that basically said the sludge is mostly caused by a chemical reaction in the metal electrodes that are part of the setup.  But at the time it felt good, and I felt like I had eliminated some toxins.

    My sister, who has a fairly significant case of LE, got an LE massage at the same place at the same time, and that turned out to be a disaster.  The were very rough with her arm (the way it's done in Europe, according to them), and it made her LE a lot worse for a good week.  So that probably also contributes to my negative opinion about my experience.    Deanna 

  • jessamine
    jessamine Member Posts: 123
    edited September 2011

    Thanks for iodine feedback! That gives me some ideas to work with. xo

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    Deanna that does sound disastrous.  I would not have let just anyone do a full body lymphatic massage on me except this massage therapist I have used for years and trust her.  I knew that she would be honest about whether we should try it or not.  Her husband is a PT and she use to work in a PT clinic.    I also read on the foot soak about the metal electrodes, but it was a groupon and cheap so thought I would try it.

  • AnniN
    AnniN Member Posts: 7
    edited September 2011

    Hi girls! I am new to this forum and am very pleased to find it! I have BC stage 4, mets to the lungs. Just found on about the mets on Monday. I was initially very devastated and my first reaction was to refuse treatment of any kind. My onc recommended we give it a week and then I come in and see her again, so I see her next Monday. In the meantime I kicked my own butt and have made an appointment with a naturopathic clinic to discuss complementary options. I am very interested in the iv vitamin c and mistletoe therapies in conjunction with my upcoming chemo. Any thoughts or experiences out there? I should say that my gut is telling me that as long as I take control of my treatment, I will prove the doctors wrong in their prognosis! I really am a stubborn old bag of 53 years! This forum is the most optimistic one I have found yet, really do not want to be dragged down by the gloom and doom folks out there. :)

  • MBJ
    MBJ Member Posts: 3,671
    edited September 2011

    Annin:  I did both vit C  25,000 iu in between my chemo treatments and I also did the mistletoe injections during this time.   I did pretty well all throught my chemo and treatment doing this and also the Iodine protocol plus tons of supplements. 

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited October 2011

    Annin: I didn't do IV injections of vitamin C. I took them orally in pill form and juiced fresh oranges. And yes please be stubborn and never let the doom and gloom people get you down.

    I missed that Dr. Oz show but wanted to see badly. I'll lurk on youtube and see if it's posted yet.

    Off topic, I just had the best argula and spinch sald ever. I chopped a roast chicken breast over it, grinded some smoked peppers over it, then drizzled some lemon poppyseed dressing. Lovin this combo.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited September 2011

    MBJ I went to the endo this week and all my adrenals and thyroid are very good.  My testosterone is low but he does not want to treat me for it because I have a high family risk of cardiac disease on both my father and mother's family.  But he did say I am going through menopause and almost finished with it.  I had my uterus removed years ago for a B9 issue so never have a clue about my cycles.  But what is strange is that in Jan my test said I was no where near menopause.  I started tamox in Feb and now I am almost finished with menopause.  I don't care what the Dr's say I think it is the tamox. But I am 49 and it was going to happen anyway.  But he wants me back in 6 months and he is going to run everything again.  He said if I started feeling fatigue or out of wack to call and come back sooner for the blood test.