natural girls
Comments
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I agree Essa. Build the immune system. Forget this "war" with cancer. I just want peace. I hope that retirement will help bring me that. Of course, now they are offering to let me take a month off and then come back and continue working. That would be great financially, but I don't know when I'll feel better, how long it will take. I'm thinking about it and will discuss it with my therapist next week. I just don't know. It may be important to get away from this place. It may be important to let go.
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Essa-try painting that zit with lugol's iodine.
Check out this video from one of the docs I heard speak at the expo:
http://www.youtube.com/watch?feature=player_embedded&v=v1hrqrKcE3A#!
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essa: So sorry you are having to go through this..I pray that this mass is nothing but tissue, as you say, or B9 if it is anything. If you are feeling good, then your immune system must be intact and able to fight off any cells that are circulating in your body. Have any of your docs run a CTC test (circulating tumor cell test) to see if there actually are any cells circulating through your bloodstream? A lot of conventional docs don't believe in them, but they most recently got recognition at the ASCO meeting in Chicago, as an up and coming test to determine a patient's chance of recurrence. I had one done after my surgery and it showed no CTC in my body, so I was comfortable sticking with my alternate tx.
Sending you positive healing energy!
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thanks Dunesleeper, I've already been taking Passiflora Incarnata tincture for anxiety and insomnia, big bonus for BC as well
http://academicjournals.org/AJPS/PDF/Pdf2010/Oct/Ingale and Hivrale.pdf
ETA: Thanks Vivre for the refs, that conference must have been awesome. Really like listening to what Dr. Caldwell has to say on U-Tube
“God will not look you over for medals, degrees or diplomas but for scars.” ― Elbert Hubbard -- How somebody treats me is their Karma, how I react is my Karma
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Vivre, one thing I do know, it is not a zit. But I will paint it anyway. Also going to use bloodroot extract on it.
I am hopeful the CTC blood tests are one of many run for me yesterday by new cancer care center. They are forward-thinking, in top ten first centers to get the PET CT scans for cancer, and they are now into the oral chemo therapy. Of course, I am gullible too. If they didn't, I will start requesting. I would have thought Dr D did it in Feb but everything but the CTC.
The thing is I don't feel all right, I am exhausted too often, I just don't caare, that is how tired I am. But I keep moving and push through the exhaustion to the point where I will collapse - I am afraid to stop. There it is, I am not taking the total rest I need because I might miss something, the sunset, the afternoon with my daughter, a morning with Hubby, playing in the garden. So I keep going, feel like the world here will fall apart if I stop, there is so much for people to do to keep it all tied up in nice ends, you all know that.... dishes, laundry, garden, pets, showers, cooking, bills, research, work, and on adn on, there arre no moments left to really stop. I am so tired that if I stop and really rest and IF I am not all right then I think I might now get back on my feet like I am now, it will be worse. Bull, I know, but real to me. I do take naps 2 - 3 x a day often, have to, sometimes sleep 11 - 13 hours a night and wake exhaussted, but then the masses went away on the sides of cancer breast. Now they say this is in me larger than before by 5x and I don't think so but if it is, well, then are they alll just merging? It is unfair for them to say it is a mass when it may not be at all, puts me in a tailspin I did not need.
Now for all the other tests and the results which are a day afte last test, good not to wait.
Today I found a clinic closer so I can get the thermogram too. Good.
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Essa, when will you find out more?
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Tuesday is dr appt after all tests are completed by Mon.
I know, deep peace.... breathe.
A point I was trying to make on Stage IV and Alt Choices is this, so will crosspost it....
The healer I am working with said that in a shared 50 yrs of experience, sshe and her mentor find tht when someone has
parasites, virus, bacteria all strongly indicated from tests that there is always cancer.
Work on those, cancer cannot be there for some reason.
I don't know, but the detox sshe designed sure was effective on the candida aat least and these three small masses on right side of cancer breast.
Woke up this morning with a cyst shape in lower right stomach area, near skin. Very there. It was stinging perhaps from pressure of sleeping on that side. That is the only way I found this one but no denying its existence.
Lymph nodes load up w toxins and die of in any detox is toxic, cancer die off, parasite remmanants, bacteria, etc. Now I am going to study the lymph areas more, is ther one there.....
Eating quick before going back to bed to sleep more then heading for PET CT scan. Radiation but the mosst throrough of them all, so bring it on and get it over with. Brain mri tomorrow, US of both breasts and BOTH axillas next, forget what is on Monday. But no mammograms, no way, not after last time.
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I have a wonderful doctor blogging for me, who survived BC without chemo, rads or surgery. Check her out on my website.
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Sooooo, cancer feeds on sugar, on estrogen AND on glycine, what else do we have to be wary of ?
I hope no one is taking glycine supplementation - looking for sources.
Study shows cancer cells' appetite
Analysis of data from breast cancer patients showed that those with the same glycine-metabolising enzymes had poorer outcomes. This suggested that glycine's role in driving aggressive cancer was not confined to the laboratory.
The research, published in the journal Science, points the way to future therapies which suppress cancer cells' ability to "feed" on glycine.
http://health.msn.co.nz/healthnews/8473379/study-shows-cancer-cells-appetite
The CAAT model concentrates on the depletion in the body of only one of the four amino acids, glycine. A glycine deficiency alone can inhibit DNA synthesis.
An amino acid-deprivation diet can stop the growth of cancer cells because proteins are the major structural components of almost all cells, including cancer cells. Before a cancer cell can divide, it must double both its DNA and its entire protein content. Here again, reducing the precursor pool of certain amino acids-especially any of the essential amino acids-can impede the cancer cell's ability to produce sufficient proteins to self-replicate. An amino acid-deprivation diet also inhibits the tumor's use of angiogenesis to grow. Depriving cancer cells of glycine affects the building of new blood vessels because blood vessels are composed primarily of proteins.
The amino acid-deprivation diet also thwarts the growth of cancer cells by inhibiting their production of various TGFs.
https://www.apjohncancerinstitute.org/physician-information/doctors-oncologists?page=physician.htm
P.S. Just checked my powdered whey and, of course, it does contain glycine
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That's quite a fantastic find Maud. The CAAT diet is in line with everything I've been learning and researching this last year. It has a lot more too so I'll look at it tomorrow as it's late here now.
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I've never heard of glycine before. So is it used to sweeten things up?
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I'll have to check my whey when I get home. This is all it says about it online:
Beyond Whey is a high quality, unique Whey Protein Concentrate (organic certification pending). It is a source of technically advanced, newly developed High stability & absorption amino acid compounds, providing valuable nutrients for muscle support & recovery, energy, improved gastrointestinal function and deep immune system support. A great source of fuel for cell, organ and tissue growth, it promotes endurance, strength, and lean muscle mass during intense workouts, or for recovery from illness. Tastes great without sugar or flavoring, perfect for infants, children, athletes, and the elderly.
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Kira, I've not had a chance to read much on glycine. What I understand it to be is one of the non essential amino acids which make up protein, therefore everywhere !! So taking extra protein in the form of whey (which I had read was very important because I barely eat meat and have to go out of my way to eat protein) might not be a good idea at all !! It is not a sweetener. Will be spending more time on the subject and will pass on info. Right now, I'm most concerned with sources of glycine, the largest ones.
Dune, so you've been taking whey too hein ?
Yes Joy, the world is full of wonders, isn't ?
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http://www.cancure.org/CAAT.htm
MAUD - interesting and life giving info. I am sstill reading. Above link is it in layman's terms. I am now looking for a detailed food plan.
OK here it is, details on food, ETA but now I see Maud added it below, was right on their site...... found a link explaining this costs $900 month but the formula, I cannot find. Would be nice if ins paid for it or that was $90.
http://www.pdazzler.com/archives/1954 FOOD PLAN CAAT
ETA found this writing during reads, like this drs info.
http://www.mbschachter.com/Approaches%20to%20cancer%202001.htm
BREAST CANCER TALK http://www.mbschachter.com/prevention_and_complementary_tre.htm
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I applaud you Maud for all the great articles you've been posting lately. I need a day at least to take in the implications of this diet. It has a few things that are not in my diet, such as fructose, though they say it can be replaced by vinegar. Grapefruit can be replaced by an orange. It seems glycine is fine in a normal diet but their aim is to deprive cancer of essential elements to starve it by depriving it of Glycine, Phosphorous, B6 and Tryptophan and using other strategies to starve it.
It looks like this diet would have to be followed to the letter and it would be pointless trying to follow in part only. I love their summary...
CAAT is an amino acid- and carbohydrate-deprivation therapy, using scientifically formulated amino acids, that arrests the growth of tumors and causes them to regress by altering or impairing the development of cancer cells. It is a six- to-nine month course of therapy (on average) that enhances chemotherapy and/or radiation, as well as lessening their toxic effects. CAAT, which is designed to be taken in the comfort of one's home, has also been proven to be effective alone.
I'm curious about the background of this cancer institute and will look for critical reviews, but as always, the only requirements for any diet is that it doesn't harm. Judging by the junk food most people consume I fail to understand why anyone objects to these anti-cancer diets. If it can reduce tumours then the question is, does it leave many stem cells that can then continue growing given a chance? I need to read all the references to see what clues are there.
I'll make a point by point summary of the diet so that I can understand it more easily. Boy, will I be busy today!
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I'm supplementing with B6 and B12 and a lot of other stuff. I don't get how that can help feed cancer cells, but I'm open to the information.
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Essa, here's the protocol, looks doable at first glance
https://www.apjohncancerinstitute.org/caat-protocol
Joy, you sound just like a scientist Lol
Dune, about the Bs, the institute states the following:
"The growth of cancer cells requires certain amino acids (like glycine) and nutrients (like vitamin B6) for replication of the cancer cells' DNA"
Out with the whey and my extra B caps
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Ha Ha Maud, I've been accused of having no credentials or education so someone must think I'm trying to emulate something! I'm definitely not a scientist. Chemistry isn't my forte. Diet and nutrition is a special interest of mine as I see it is for you too. Well it sure beats being a junk food addict.
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I was told by integrative md to take b complex, but the bioenergetic test and kinesiology alway came up w no to the B-Complex I had. Now I can see a glimmer of why.
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This seems to be the main hurdle to following this diet...
The CAAT Formulation
The most important component of CAAT is the scientifically formulated amino acid supplement, which consists of eight (seven essential) amino acids, citric acid, and small amounts of sodium benzoate.
It's likely they will only supply this supplement to those who sign up for their diet plan. If the ingredients of their amino acid supplements was known then it might be possible to emulate the protocol. That's why I hope to look at the details today if I get time.
Disclaimer: I have no medical or nutritional qualifications and this is not medical advice. See your health professional for personalised advice.
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Joy, I have emailed them for info using my cancer dx and experiencees thus far, we will see what they tell me and send then. When reading, I think they do outline each amino acid so putting 2 and 2 together could equal the close formula to emulate. Looking forward to see what you find. I am searching out a plan that can really make a difference long term like forever. To say not to eat sugar for life doesn't cut it for me, I want to know there is scientific terms behind the plan and that it can be longterm. You are right, what stem cells ar left? Bcz so many do a food plan llike mmacrobiotics and when they stop that they have the cancer knocking almosst immediately.
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Essa, they say this food plan protocol is only for 6 to 9 months. Any longer would deprive people of vital nutrients and cause harm. I'd love to hear what they send you. I'm thinking they may be expensive. Unfortunately it may not be possible to buy individual ingredients making up their supplement. Non-essential amino acids aren't usually sold as a supplement. In Australia some amino acids can't even be imported, probably due to abuse by weight-lifters.
It's important that no one takes parts of this diet out of context. Cutting B6 out of our diet for any length of time would cause health problems.
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I've been out most of the afternoon. So far I've done an extensive search to see if this is problematic, and this is listed once on the QW skeptic site but no page or explanation of why it's listed.
I found this on Memorial Sloan-Kettering Cancer Center
Clinical SummaryAn amino acid and carbohydrate deprivation protocol. Controlled Amino Acid Therapy (CAAT) was developed by Angelo P John of the A. P. John Institute for Cancer Research. The objective of the therapy is to impair the development of cancer cells by altering cell formation through structure, energy, blood vessels, growth hormones and cell functions. The regimen consists of a carbohydrate and protein restricted diet with added supplements. In addition, supplementation with Superoxide Dismutase, curcumin, parsley, quercetin, lycopene, Vitamin D and green tea extract is encouraged. (See individual monographs for more information about those supplements.) The protocol is meant to be maintained for six to nine months as an adjunct to conventional chemotherapy and radiation (1). Whereas the Institute's website describes studies that support the theories behind the protocol, no studies have been conducted to determine the safety or efficacy of the regimen itself.
Also I found some very vague feed back from people with limited experience.
Edited to add another link.
So basically the only concern is there's no proof or safety information as the full protocol is not researched, like most alternative therapies. Also some of the research behind this is very old.
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Joy, so what other protocol have you sunk your teeth into and pulled apart so feverishly ?
AND you cite quackwatch ????? there goes your credibility as far as I'm concerned
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Maud & others: Here's my question....if you're more than six to nine months into your bc tx, and haven't done this diet, what's the point? I've followed a strict anti cancer diet that restricts carbs and sugar, but I am taking supplements, one of them being Vitamin B12, so it's probably a moot point that I should further restrict. I'm also about 95% gluten free as well. The vitaminB12 gives me energy. We utilize rice protein for our protein shakes. It's a special formula that we purchase from our ND. I'll have to check the ingredients for what's actually in it, but I know that he specifically didn't want us using whey protein.
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AAARRRGH. I never use that cringe-worthy QW word. I just wanted to see if they had anything on this protocol so I could pre-empt any criticism. I despise that site but they can provide information even if it's often exceedingly biased.
Check out the early pages of Thatslife's stage IV thread or the sugar thread and you'll see I have spent the last year on and off investigating low sugar, low carb, glycolysis, ketones, mimetics, low Ph, intermittent fasting, tumour environments, etc and have built up a big file of information. After all, what else can we do but try to starve the cancer? This CAAT information includes another factor, that is the amino acids and information about a different way to starve the cancer. That's exactly what I'm researching, thanks, great find.
When will you get it that I'm on your side? Questioning my credibility? Sheesh. Why did I bother sharing the knowledge when I may as well just keep it to myself, help myself and leave everyone else in the dark? Why did I bother defending all the alternative ladies from those heartless detractors only to be constantly attacked for my efforts? Notice the detractors are very quiet lately? Time will tell if my efforts made any difference.
I have invested so much time in this but I have more important things to do than post here only to be criticised.
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JoyLiesWithin,
I hardly ever post or even come to this site anymore, but will say when I do I always find you to be very positive. When I first found I had BC you were one of the most helpful people I found, and I see you still are. I can only thank you from the bottom of my heart for all the research you have done over the last few years. Your desire for knowledge and understand of what you find is amazing.
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Joy, my sincere apologies if I misunderstood your intent here. I do recall however that you adamantly argued against graviola/PawPaw (despite the fact that we have Kat here who is stage IV and is taking the nutrient) so much so that I abandoned that thread. I come back to this thread which I consider my 'home' to find you posting in the same manner. This time you even included a disclaimer !!
What I get from your interventions is that there is no room for discussion as you dismiss a lot of info out of hand. You, yourself said on one thread that you put yourself on the fence between conventional and alternative, but that you are foremost conventional but open to alternative and that comes across very strongly on many alternative threads.
My only purpose and intention here is to share what I have found and find myself being discouraged most of the time, maybe I need another break from this place.
I truly appreciate that you are 'defending all the alternative ladies from those heartless detractors', I really do
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COME ON LADIES! This is ridiculous...we have to be able to accept another's point of view without taking it personally.
We offer up our best advice and/or research on this thread...for others to consider. It's always good to have both sides of an issue explored.
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Apology accepted Maud. I obviously am not making myself understood if anyone thinks I am critical. I do have a bad habit of always putting the opposite viewpoint to "keep a balanced view" Clearly I need to be more tactful.
My apologies too if I've come across too argumentative.
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