Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

natural girls

1329330332334335338

Comments

  • purple32
    purple32 Member Posts: 1,767
    edited July 2012

    Diana NM
    Buyer beware on the GSE.  Thx for the warning!

    http://foodforbreastcancer.com/foods/grape-seed-oil

  • [Deleted User]
    [Deleted User] Member Posts: 205
    edited July 2012

    In case anyone is taking pyruvate in a supplement that muscle builders use:

    "(glucose and pyruvate) on mitochondrial function and proliferation in breast cancer cells. We demonstrated that cancer cells proliferate more rapidly in the presence of exogenous pyruvate when compared with lactate. Pyruvate supplementation fuelled mitochondrial oxygen consumption and the reserve respiratory capacity, and this increase in mitochondrial function correlated with proliferative potential"

    http://www.biochemj.org/bj/444/bj4440561.htm

    Natural sources:  http://www.livestrong.com/article/317492-sources-of-pyruvate/

    On the other hand:  "Specifically, the importance of citric acid cycle-generated intermediates in the regulation of cancer cell proliferation has been recently appreciated" 

  • DianaNM
    DianaNM Member Posts: 62
    edited July 2012

    I think there is an argument against almost any supplement, do a search for "suppversity" and D3. I don't follow a lot of that guys' stuff, but he makes a good argument against supplementation for D3.

    Purple, read a little further down in your article. It says GS oil is bad, but GSE has been working. Though they don't recommend supplementation either. Would be nice if we could get all these micronutrients from our food, but pretty sure we would have to spend all our time eating. 

    On the other hand, I might not be able to take it either. It's only been a few days since I started, and my BP was the lowest it's been since I was in the hospital. It's supposed to lower BP, apparently it works. Not a good thing for me. 

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited July 2012

    Have been doing a little reading in Dr. Love's Research Foundation.  Found these tidbits....Dr. Susan Love Research Foundation
    http://www.dslrf.org/breastcancer/content.asp?CATID=0&L2=3&L3=2&L4=4&PID=&sid=165&cid=65

    ..........large randomized studies with as much as 20 years of follow-up have shown that both approaches-mastectomy and lumpectomy followed by radiation-result in the same survival rates.

    .............Many women have the misconception that a mastectomy will guarantee that the cancer will never come back again. But a surgeon can never be certain that all the breast tissue has been removed. This means cancer can come back again in the scar or the chest wall.

    ..............Studies have found that radiation does make a cancer less likely to recur. But radiation does not appear to increase survival. (my note, read all so not taken out of context, she is not against rads)

    ...........If you are having an axillary lymph node dissection because you learned after your breast cancer surgery was completed that you had a positive sentinel node, the surgeon will make an incision about two inches across the armpit and then remove the wad of fat in the hollow of the armpit, which should contain most of the lymph nodes. This lump of fat is defined by certain anatomical boundaries and usually contains at least 10-15 lymph nodes. Studies have shown that the chance of missing a positive lymph node if we remove the tissue in the lower two levels of the armpit is less than 2 percent.

    ............removing nodes that contain cancer can help prevent a recurrence in the armpit. There is no evidence, however, that removing and examining lymph nodes affects survival.

    _________________________

    Am trying to decide the plan since the biopsies revealed there are still three nodes w cancer.  Onc said one lg, one small.  The radiologist specialist for RFA and cryoablation said there are definitely THREE.  He looked at the images on PET CT for that info.  I am done w the onc.  Told me he is prescribing 1) surgery, 2)radiation, 3)hemo if onctype shows beneficia, 4)Arimidex in that order.  

    Did he write a rx for Arimidex or even try to?  No, he said that the rx would be after all other tx.  I am  confused.  

    Onward.

  • Kaara
    Kaara Member Posts: 2,101
    edited July 2012

    Diane:  Based on my own research and my BS's recommendations, surgery and a SNB is a must.  He said that he never took more than the SN because there was no indication that the outcome was better when more nodes were removed, and once you remove them and they contain no cancer, you have subjected yourself to LE.  Radiation was recommended for me, but my research revealed that in women my age (over 70) there was no benefit or increased survival, so I opted out much to his disappointment; however, he later attended a symposium that stressed the same study that I looked at, and he came back and said maybe I was right to avoid the rads and just do tamoxifen which I am doing.  Rads only protects the area where the cancer is located...tamoxifen protects both the local area and distant areas from recurrence, and it is less toxic than an Al.

    Usually the anti hormonal therapy follows the surgery and other tx which is why your doc didn't write the rx. 

  • purple32
    purple32 Member Posts: 1,767
    edited July 2012

    Though they don't recommend supplementation either.


    Diana NM
    I just cant believe this !  My ' normal" BP is 90-60!  I cannot afford to have it drop or  get dizzy.

    What they HEY CAN I take ???

    (aaaargh!!!!!)

  • SelenaWolf
    SelenaWolf Member Posts: 231
    edited July 2012

    @Kaara ... I would disagree with you that tamoxifen is "less toxic" than an aromatase inhibitor. 

    Both drugs act in different ways to prevent breast cancer cells from proliferating and have different side effects.  Tamoxifen can lead to the development of thromboembolism, an increase in triglyceride blood levels, fatty liver syndrome, changes in the uterus that can lead to unterine/endometrial cancer and reduced cognition.  An aromatase inhibitor can lead to the development of osteoporosis, jaw necrosis, arthritis, cardiac problems, kidney disease, liver dysfunction, and adrenal insufficiency.  Each is "toxic" in its own way.

  • Kaara
    Kaara Member Posts: 2,101
    edited July 2012

    Selelna:  I stand corrected...what I should have said is "less toxic for me" because I have had a hysterectomy I won't have the uterine problems, and because I could tolerate the birth control pills for many years with no ill effects, no thromboembolism issues.  

  • purple32
    purple32 Member Posts: 1,767
    edited July 2012

    Kaara

    I hope you are right, but the older we get , the higher our stroke risk is.  You may have been fine while on BC pills, but I am not sure that is the best indicator of what your body is like at the age of 70.  Things have changed.

    I do respect you and wish you the best, and I think what you have going most in your favor is your age and fabulous diet as well as supplements.

    There are reports that say women over 60 with BC do not really benefit from hormones.

  • Sherryc
    Sherryc Member Posts: 4,503
    edited July 2012

    After many months of struggling with trying to get my WBC up it has finally gone up.  It always seems to stay right at or below the normal threshold.  It went up to 5.4 then creep back down and last time was 3.53.  This time it was finally up to 6.3.  I get fever blister quiet often and I could tell I was not having the outbreaks that I usually have had.  I have been taking Astragalus and Zinc.  So hopefully I will be able to maintain this or even get a little higher.  Would be nice to not get every little stomach bug that I come in contact with.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited July 2012

    Sherry - I just startted to again take the E-Spirit immune support, had some in cabinet and forgot.  It too has astralagus.

    Today am working on what to order.  Last night Hubby sold some of his guns so we could order tx for me.  But I don't know which to choose.  Go figure.  Am writing  both the integreative MD and the holistic chiro now, suggestions.

    I found this info in the pdf written by a doctor in Canada.  This is a link to company, but not suggesting using 714X, that is a personal decision.  http://www.cerbe.com/english/prod_714X.html#donneesscientifiques

    The info on B-12 is not on the link, it is on a pdf the co sent me upon request, I can email it to you if you pm me, since I do not know how to do a link to a pdf attachment.  But this is a quote on Vitamin B-12.

    B-12  --- Vitamin B12 accelerates cellular division (especially blood cells) without distinguishing healthy cells from immature cells. There is nothing to be gained by stimulating cell division in an already hyperactive organism.

    Well, that must be why I always tested for NO on the B-complex w B-12, always.  The things we learn from the alternative doctors that mainstream does not want to listen to.  I appreciate the info.

  • purple32
    purple32 Member Posts: 1,767
    edited July 2012
    Sounds great sherryc!
  • NNBBFL
    NNBBFL Member Posts: 20
    edited July 2012

    I am posting this both on the hormonal treatment thread and the natural thread as I am not sure which is working (or maybe both are) but for me it is a good, no, great news day. I have been on Arimidex (getting from Arimidex Direct program) since April after being dx Stage IV in Nov. 2011. Didn't see an oncologist until March for lack of insurance til then but started on the Budwig Diet in January and have continued that even after starting Arimidex. I just received the results from the tumor marker tests from last weeks visit to my ocologist.

    CA 15.5         March 100                   May  49               July  25 (which is considered normal)

    CEA                        6.8                          2.8                     1.9

  • Kaara
    Kaara Member Posts: 2,101
    edited July 2012

    NNBBFL:  That is good news!  I think you continue doing what you're doing!

  • purple32
    purple32 Member Posts: 1,767
    edited July 2012

    Awseome news....celebrate!!!!

  • dunesleeper
    dunesleeper Member Posts: 1,305
    edited July 2012

    That is wonderful, fantabulous news NNBBFL! Congratulations!

  • NNBBFL
    NNBBFL Member Posts: 20
    edited July 2012

    Thanks Kaara, Purple32, and dunesleeper--it feels like an early birthday present. I turn 64 in a few weeks and I will appreciate this birthday more than I ever have before! 

  • DianaNM
    DianaNM Member Posts: 62
    edited July 2012

    So wonderful that you are normal! Celebrate!

  • Sherryc
    Sherryc Member Posts: 4,503
    edited July 2012

    NNBBFL those are great numbers.  Congrats and keep doing what you are doing.

  • Springtime
    Springtime Member Posts: 3,372
    edited July 2012

    NNBBFL, awesome! Good for you! :)

  • NNBBFL
    NNBBFL Member Posts: 20
    edited July 2012

    Thanks Springtime, Sherryc and Diana. I have been celebrating, went to sweet tomatoes with friends because it is a restaurant that actually has food I can eat! I also went to Macy's for the 50% off swimwear sale and got 4 new tankini tops...they are great because they look like regular tops with capris if I need to run out to do errands. In this heat there are days that I live in my swimsuit. I'm lucky since my unit is literally 10 steps to the pool out my back patio so many days I'm in the pool multiple times. For me swimming is the only exercise that I really stick to.

  • Kaara
    Kaara Member Posts: 2,101
    edited July 2012

    NNBBFL:  The pool...a good place to be in Fl in the summertime!  Enjoy!

  • Springtime
    Springtime Member Posts: 3,372
    edited July 2012

    Just a note. I am away from home with no compurer access. Can only access via phone so will catch up with you all early next week! Please welcome any newcomers. PM ing dates to add is best.



    Spring

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited July 2012

    NNBBFL - so good to hear.  Nice to find a combination that yields results.  I hear you about swimming being the only one you stick to, me too... when we had a pool last year I was in and doing laps and aerobics every day, loved it.  I would love to get an 'Endless Pool' but is kind of hard when we will be moving every 2 - 6 months while traveling.

  • dunesleeper
    dunesleeper Member Posts: 1,305
    edited July 2012

    I need to do some exercise. I got to the gym one day this past week but was made so miserable by the heat that I have not been back. If I am not going to go to the gym I ought to just quit it. Makes me mad! Maybe I can go today.

  • onvacation
    onvacation Member Posts: 521
    edited July 2012

    I need to workout too, just can't seem to find my mojo!

  • dunesleeper
    dunesleeper Member Posts: 1,305
    edited July 2012

    I got to the gym today and it wasn't so bad. Hopefully I will get back again this week a couple times. No real mojo, but I'm hoping that will come.

  • Kaara
    Kaara Member Posts: 2,101
    edited July 2012

    dunesleeper:  I have never liked the gym in all the years I've been doing it.  It's like swallowing pills...I don't like it, but I know if I don't do it, my health will suffer, so I soldier on!  I use any excuse to avoid...lol!  The objective is to do it routinely so that your body begins to look forward to it, even though you don't...lol!

  • my560sel
    my560sel Member Posts: 399
    edited July 2012

    I've been going to the gym for the past 8 months and I've lost 6 lbs! Can't seem to get the weight off. I'm stopping my iodine pills for a couple of weeks. The last time I stopped them for 3 weeks because I was having surgery and the Dr said to stop all my pills I lost the 6 lbs. Has anyone read that iodine makes you gain weight? I'm up 17 lbs from when I was first diagnosed :(

  • Kaara
    Kaara Member Posts: 2,101
    edited July 2012

    my560sel:  I'm taking iodine pills and I've had not had weight gain...actually I've lost weight, but it's from following a diet that is rich in protein, veggies, fruit, nuts and seeds and very low in white carbs like pasta, sugar, potatoes, bread, etc.  White carbs convert easily to sugar and that is your enemy for many reasons, but particularly with cancer because it feeds on sugar.