natural girls
Comments
-
{{{DianeEssa}}}
0 -
((( Essa ))) This is crappy news for sure. You have reason to be upset. I understand now better than ever the problem of insufficient finances in treating ourselves. Supplements are not cheap. Fortunately, healthy food is relatively cheap (as opposed to processed foods). Would it help to soak in a baking soda bath? I'm just asking because I don't know. Would the bicarbonate enter into the body via the pores? That could help make you more alkaline, and any possible cancer cells won't like that. Definitely, you need to stop and meditate or pray. Cancer loves stress as much as it loves sugar. Write down what your various options are and see if you can develop a plan around that. I'm really sorry this has happened!
0 -
DianaNM: Thank you...I will order some because my D levels dropped again from 57 to 37.
0 -
I did a lot of experimenting, and research over the years about the form to take vitamins in. The problem with liquids is that as soon as the bottle is open, Vit D starts to break down. By the time you get to half a bottle, it is exposed to so much air, you are not getting nearly the amt that is listed on the bottle. This really hit home to me when my D level went up and down when I switched to drops. I only use tablets now. Liquid vitamin suppliers will tell you that they absorb better. True they do not need to dissolve, but they break down in the stomach and research has shown that more nutrients are absorbed in the small intestine, rather than the stomach. As for capsules, I just hate them. They kinda make me gag, and I do not like the idea of taking in all those gel caps.
Diana-we all totally understand what you are going through. The waiting is terrible and you live on pins and needles day by day. But I think you are just overthinking it all too much. The way I was able to cope is by getting out and walking everyday with my favorite music in my ear. I went to some of the beautiful parks in my area and just walked away the worry. It is so important to handle the stress with fresh air. And I have continued to do so through the years. I walk or bike whenever I am stressed and I feel so good afterwards. When we exercise, our bodies make serotonin, the feel good hormone, and in turn, serotonin raises melatonin levels. Hang in there. You will get through this. I like to say that I walked away from cancer, step by step. Try it! Eventually you will never look back. And one more thing, check out Suzanne Somers book, Knockout. She was hospitalized and dx'd with mets but her daughter did not believe it because she had just had a full bloodwork done a couple of weeks before. They literally sneaked her out of the hospital because they wanted to start chemo immediately. Turns out, she actually had an infection, not cancer. So have heart.
Also, the Euros have been researching lymph node removal and no longer recommend it as the standard of care. The thinking is that it jeaopardizes the immune system. Gee, sure seems logical to me. Too bad there is no logic here.
Springtime-There is so much evidence that AI inhibitors do more harm than good. I have been going 5 years without any drugs. I try to minimize my exposure to hormones in food and xenoestrogens as much as possible, which are in abundance in skincare products and certain foods. Xenoestrogens mimic estrogens. We do need some estrogen. That is why people who use AI's have such horrible side effects like joint pain, vision loss, brain fog, etc.
Exercise will help balance estrogens, along with wt loss, and specific supplements. And the iodine protocol is becoming more and more well known. I have hardly known anyone with bc who did not have thyroid issues first, sometimes un dx'd like mine, though I can look back and see I had all the symptoms. I think it is just a matter of time until iodine will be the standard protocol over drugs. But is will take a lot of women like me to keep speaking up about it before the drug companies will let go of their cash cow. I just posted a great article on my website about why broccoli and i3c help to balance hormones. If anyone is interested let me know.
Sorry I did not address everyone by name, but I was way behind so had to go back a few pages.
0 -
Vivre- overthinking? No. My arm is swollen to four sizes largerrr now, cannot close fist, ripping pain in tissue at back of arm. They ripped chunks out of a possible cancer lymph node annnd left it open to infiltrte system, it was a node to capture the cancer. No, not overthiking. I am upppset and will remain so. I walk andd Ii am pissed. I gaarden andd I am pissed. All I asked for was a needle biopsy to check, against myyy better judggement and they cannot get it right, they do what they want w my body and leave me wide open for cancer to be worse if it is thereLE without warning me of the issues facing me so it got worse than ever before I knew it was LE, no path reporrrt for 6 wweeeks, positive margins, . This is not over thinking, this is a meltdown qquietly and slowlty, pissed off and no wher eto turn bcz ea andd every one that is in med professssion that I try to trust do not desserve my trust. And when I try to find alts to do, my finannnnces are blocked becasue I cannot even work, let alone type correctly to do my jooob, but no assisstance for me.
Estrogens? Maybe I have too much tonight. But assured, Iam not sittting around thinnnking.
Diane nickname Essa.
0 -
Diane, I think the core biopsy works with more advanced imaging tech, they will get a better reading of the tissue, if I'm not mistaken.... In the meantime, are you taking the Protocel ? I'm really sorry about your arm - I didn't know they could biopsy lymph nodes..? Did they not wait for MRI results ?
I have to agree with you that despite our wishes, they do what they want with our body. I have to suffer my BS ridiculing me because I want US, no mammo and no MRI. He implies I'm acting like a spoiled child....!!!
0 -
wasn't given option for MRI of nodes, he nneeded a bioppsy he saiiiid no other way. My memory mmesses me up when attempting to discuss, I act ignorant, know nothing bcz i cannot remember waht I want to tell. Sometimes cannot remember to even say no or whyy.
Chart for ANGIOGENISIS some foods proven stronger than drug thereapy. click to read article about dr. Li.
0 -
Thank Diane for the great info! I am putting together a document of anti-tamoxifen information to share with my oncologist when I decline it and this is great info.
Grace
0 -
Thanks Diane, what a great find ! Turmeric, green tea extract...read they were estrogenic...this chart appears to show some correlation
but then soy extract is at the bottom, don't know....Grace, my own experience with my onco is that when I questioned my treatment, he became all defensive. I told him at my last appointment that I would show him all the studies, but you know what, I won't even bother next week when I see him, because I'm sure he knows all about them
0 -
Good point Maud. Why bother. The one thing that rises to the top for me and might be the only thing I share with her is the manipulation of the statistics for tamoxifen benefits. I think that's been mentioned earlier in this thread too. 4% of women out of 1,000 got cancer with placebo and 2% with tamoxifen. That means tam improves your chances by 2%. But they took the actual number of women who got cancer from each study (24 and 42) and said 42 is 43% more than 24, so tam improves your odds by 43%. That's manipulation of statistics if you ask me. Grrrr.
0 -
Grace, I'm glad you're good with stats, am not....if you hang around the alternative and the complementary forums, you'll discover tons of info on replacements for Tamox and AIs, i.e. DIM, grape seed extract, calcium D-glucarate, etc.
0 -
I had so much anxiety over the drug issue. My docs were pushing arimidex because of my age. When I read the side effects I was astounded. I had a friend on it, 10 years younger than me who could not get out of bed in the morning, her joints ached so much. I started researching it and going to my doc constantly with facts. I would get responses like "stop reading stuff, you won't hear about the successes because people only write about complaints". I even read about body builders using the stuff to bulk up. I had lost weight for the first time in years because of my lifestyle changes, the last think I wanted was to bulk up. I was a complete mess with this issue. My doctors even suggested I get on Zanax! Meanwhile, I was physically in great shape and getting through radiation with NO side effects because of my healthy regime. I was feeling so good from all the exercise I was doing, the supplements and the diet, but I was getting no pats on the back. They only saw me as non compliant it seemed. I took the pills for a few days, and they made me a raving lunatic. I finally had had enough. I tossed the things and never looked back. I felt like a two ton wt was off my shoulders. When I told the onc I was saying no to drugs because I read that exercise lowered your risk by 50%, and I was choosing exercise, she just kinda smiled like it was no big deal. So I think in the end, she probably agreed, she just cannot admit it because she has to follow standard of care protocol.
There was a time when I really respected my doctors. I realize they have to follow the rules or they lose their liscense, but how do they sleep at night? What happened to "first do no harm?" If they really believed in the hippocratic oath, one would think they would be advocates for truth.
0 -
AMAS TEST - I would have paid for this before and perhaps without needing the PET CT, MRI, biopsies. Cancer is cancer, in the alt world there if often not an attack on the one place it is, there is a systemic whole body concern and this test shows if there are antibiodies fighting cancer cells in your system or not so you know if the need is there again or not, though imo it never ends. Says it is often pd for by private ins and Medicare. Test at chiro would be $300, but some are $600 from article references. Interesting.
ETA - this test coupled with the BIA Bioelectrical Impedance Analysis for cellular health function which measures cellular health function via body mass, muscle mass, cellular water mass and phase angel antiaging index. Today my phase angel was half what isa normal low. $60 for test, chiro says it is his go-to above all others.
My problem is remembering this tomorrow then again tomorrow afternoon. I am my own advocate but w/o the brain, what good am I. But now we have chosen a gem of a chiro whose passion is holistic and esp cancer. If Hubby can remember to get me there every 2 weeks for whatever and to the other integrative md for IVs, I should be good to go. They can do it, they know what they are doing. More next post on me today. Just thought you would want to know about the AMAS and BIA. Links below.
http://www.kronosinstitute.org/news/media/DelawareOnline_041707.pdf
http://www.pathguy.com/malignin.htm
Anti-malignin antibody in serum and other tumor marker determinations in breast cancer.
Thornthwaite JT.
SourceCancer Research Institute of West Tennessee, Henderson, TN 38340, USA. jtt@aenear.net
AbstractIn this study, 154 healthy volunteers and 76 patients were tested using the anti-malignin antibody in serum (AMAS) test. Of the 154 volunteers, three were AMAS positive. After further examination, two were positive for cancer and one had a history of ulcerative colitis. Tumor biopsies of 43 suspicious mammography patients revealed that 32 were cancerous and 11 were benign by pathology. For the cancer patients, 31/32 were positive for the AMAS test, while 4/11 of the pathological benign cases were AMAS positive. In comparison to cancer antigen tests, AMAS was more sensitive (97%) in detecting breast cancer than CEA (0%), CA 15-3 (10%), CA 19-5 (5%) or CA 125 (16%) in the same patients.
http://www.ncbi.nlm.nih.gov/pubmed/10680591BIA - $60 at the chiro took 5 min..... http://www.biomedcentral.com/1471-2407/9/37/
an ehow that is simple info http://www.ehow.com/facts_5037869_meaning-angle-breast-cancer-treatment.html
0 -
anyway..... today went to new doctor, the chiropractor. I can work with him, he is informative, talkative, tells all he knows. Passion is holistic, we are on same page. He is the opposite from my integrative md who is quiet, well-informmed to a date, thenn he seemed to stop reading so I have to bring him along but he researches and adds to his protocols but passionate just the same as chiro. They offer different tx, and the chiro offers noninvasive testing critical to knowledge of what is working.
After initial exam and the BIA analysis, I took home the new liver detox medical food I will be using for the next month or so, 2 weeks as a fast. Metagenics. UltraClear plus pH. I am to start slow, then go to the fast. We will then be looking for allergies as I readd foods. I'm game. If my body is too toxic the immune system will just spin even with thet new drugs or supplements foro the immune system to work at its best. So I detox.
SECOND DOCTOR OF DAY - went to the oncologist. Not so good. I basically cannot stand this man, his colleaguues, the 'clinic' which is like a grand spa with their money well spent on decor and spaciousness, all that insurance money and Medicare monies with no where to go?
Onc said I have cancer in right axilla. Th eleft neck node was an infection in node. But cancer in two nodes in right armpit. This is where 1 positive node and 10 neg were removed Nov 2011. I think it is residual cancer cells from then, and I aask why could not the same preps have been made for that surgery as now, so they would know.
Onc has no answers, he refers me for everything to everyone, he doesn't do this and that, he only does what he does. HE is a scientific doctor, he says. He says he can CURE this for me if I follow his protocol. Yes, he used that word.
1) surgery. 2) radiation. 3) tests would reveal if I am to respond to chemo. 4) chemo, if applies. 5) Arimadix for 5 yrs.
We all know, those who know me.... I have the answers I was seeking from the onc depart. I knew something was wrong. I also know that in the last three weeks I have been better than I was so I have done something that improved me yet again.
Now to ponder surgery and where to find a bs spec w a laser or similar, the less on this LE arm the better. But the rest, no thanks.
0 -
0 -
Nice pic ! love love spices and spicy food. Got this book, extravagant, but priceless, with recipes
'Dr Aggarwal has brought an outstanding overview of the health value of spices'
D. Heber, Director, UCLA Center for Human Nutrition
0 -
Although I opted to take tamoxifen - and I'm having, absolutely, no serious problems with it - I am, also, interested in complementing the tamoxifen naturally. I don't want to take more pills - even in supplement form - so I'm learning about getting the most out of my diet. I just couldn't ignore the benefits - however small - that tamoxifen could offer for my personal situation, but I, also, want to "rev up" my diet, so that it can take over when I stop taking tamoxifen in five years.
0 -
Good plan Selena
0 -
Maud let me know what you think as you read that book more. I was going to get it and then I read that the author was accused of manipulating/falsely reporting the results of his studies
so I just pushed it to the bottom of my reading list and went onto other books instead. 0 -
Graced, retractions are very common in the scientific world....
Lead author of major breast cancer study announced at ASCO co-authored two corrected papers with Anil Potti
One of the biggest stories so far out of the American Society of Clinical Oncology (ASCO) meeting that just ended in Chicago was that of T-DM1, which, according to Ivan's Reuters colleagues, "extended the length of time breast cancer patients lived without their disease getting worse." (The news was even the subject of an embargo break.)
In the paper, "Retraction Publications in the Drug Literature," which appears in Pharmacotherapy, Jennifer C. Samp, Glen T. Schumock, and A. Simon Pickard take a look at previous studies of retractions, including those by Grant Steen and John Budd, both of whose work we've covered. They also identify 742 retractions in the biomedical literature from 2000 to 2011, 102 of which were of drug studies, to analyze.
http://retractionwatch.wordpress.com/
This book is a cookbook, how to use spices and their origins, etc. Recipes are awesome !
P.S. The good doctor was accused of manipulating images...
0 -
Selena, I also take Tamoxifen, and have few SEs. I have finished almost 3.5 years. I take all sorts of supplements, as well as all those spices above (and other dietary things like mostly plant based and no dairy). Also exercise vigerously 4-5x a week and serenity practices. My ONC wants me to take 5 years of an AI once this is done, and I am thinking NO at the moment....
0 -
Tamoxifen (10mg) daily is my one compromise with my conventional doctors to avoid a recurrence. I'm on a fairly strict anti cancer diet and supplementation program, as well as exercise three times a week. Right now, I'm feeling great!
0 -
I feel like I'm going round and round with my supplements lately, and it's very expensive!
Here's the latest: I finally got some "real" Activin grape seed and started taking it. I had bought two other bottles before this. Now I'm reading that grape seed oil is very high in Linoleic acid (omega 6) which is BAD for breast cancer. Yet there was a clinical trial for this supplement, no results available.
I also just spent $30 on Hyaluronic Acid supplements because I thought they would help with my Sjogrens symptoms. Then read that this supplement is a no-no for cancer.
Sheesh, off to read more about grape seed.
0 -
DianeNM - I had same issues, sometimes still do, and it is so confusing for me. W memory issues, I read a page on what to do but when done I know nothing. So I give up often. Wish there was a list, just a list, not why or how but what. I was the one most likely to wriite the book on it, but now cannot think so it's not going to happen. So mush $$$ wasted, but Hubby can take some of it.
0 -
kaara - you are my idol! I hope to be a strict as you! I know I can do, mind over matter!
0 -
OK, don't know why, but grape seen extract and grape seed oil have different nutrients. The GSE are also supposed to help with swelling so will keep taking it. Still have a donut under my arm where my nodes were taken.
Diane, I know you have so much on your plate now. Are you using coconut oil and taking b12? Those really helped me when I couldn't remember anything. Also, using oxygen at night! Turns out I was deprived of oxygen and not getting good sleep. The fact that I live two miles up doesn't help any.
0 -
Kim: It really isn't that hard once you get into the program, and the benefit is that you feel so much better and have so much more energy! PM me anytime if you have questions.
0 -
Diane(s)
I remember going through so much confusion about supplements when I first got started. I ended up going to an Osteopath in town who is very into supplements - (she is also an endocrinologist), and this has saved me. She advised what to take, and I add the anticancer things, and she loves those as well: Super curcumin, Vit D, Calcium D-Glucarate, DIM, Green&White tea, Detox, Iodine and the companion nutrients, etc. I feel fantastic and look great. I'm a believer. Oh Exercise is my main thing... When my regular docs raise eyebrows at my supplement list, I tell them what Doc I see in town to manage the suppements, and that's the end of that.
Over time, I have tried different places and brands online for supplements. I am always looking for the best quality and the best deal. Amazon.com has "subscribe and save". You save 15 percent off and they do have some great quality vitamins there. Very easy to manage if you want an extra or to skip a shipment. Also - always free shipping! Has saved me a ton of $$. I try to order everything I need to make it through the warm months, so I'm not "baking" my supplements in the shipping!
0 -
Thanks, Springtime. That is a big part of my frustration, I do have an appointment with an Integrative doc that would help me with this - in late September! Started out with an appointment in May, got rescheduled to late July, now rescheduled again. Next time they call to reschedule I'm saying NO!
I do buy most of my supplements through Amazon, subscribe when I can. It's a nice deal.
So here's a question, what multi do you guys take? Or do you take one?
0 -
"Now I'm reading that grape seed oil is very high in Linoleic acid (omega 6) which is BAD for breast cancer. "
Not another catch 22 Diana ?
I can barely stand it !
I'm a few days away from ordering the activin. I have all but made up my mind over DIM or 1C3 and now this ?!
THX for the info :>(0
