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  • seaotter
    seaotter Member Posts: 642
    edited June 2009

    Rosemary - I looked up alpha lipoic acid and it said could alter thyroid levels. Have you heard of that? Also the magnesium citrate just makes you go poo right? Does it do us bc girls any good other than not being constipated. I am serious here and not being sarcastic! Thanks

  • luckofthedraw
    luckofthedraw Member Posts: 15
    edited June 2009

    Seaotter, since you mentioned protein powders, have you or anyone else read The China Study by T Colin Campbell?  I highly recommend it!  He's one of the most learned nutritional scientists on the planet.  He says absolutely no dairy, absolutely no animal protein, and total protein at 5-10% total. He's got a ton of scientific data behind it to back him up.  Those of us with BC should avoid ALL oils, even flax and olive.  There goes whey protein, soy is out....  It's enough to make a gluten-intolerant girl's head spin.  There's not much left to eat.  And just wait till you read about his experiences with the drug and food lobbies.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    Seaotter,

    No I didn't see that but I'll look tomorrow.  About the magnesium.  Magnesium is one of our electrolytes.  We can get them out of balance when we take a high dose of calcium without taking magnesium, and the others.  Magnesium helps in keeping us from forming kidney stones which can happen if we're on a high dose of calcium.  Especially if the calcium is carbonate.  It's also needed for calcium absorption in the bones.

    They did a autopsy (this one is my favorite) on 6 cadavers.  What they all had in common was they died of heart disease.  Every one of the 6 had another thing in common, hardly no magnesium was found in their muscles.  Extremely magnesium deficient and extremely dead. 

    Magnesium can cure jumpy leg syndrome and leg cramps, as you can see from the story above, it's important to pay attention to muscle pains in legs. 

    It's been known to help depression, its calming, and there was less cancer in our world when people drank natural mineral water high in calcium and magnesium. 

    Alpha lipoic acid could interfere with thyroid meds that's probably what your read:

    http://www.umm.edu/altmed/articles/alpha-lipoic-000285.htm

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    Luck,

    Why did he say oil is bad for us?  He's a big supporter of the Gerson Therapy, and part of the that program is taking organic flaxseed oil.  Without oil, or fats we wouldn't absorb vitamin K1 or 2.  That makes no sense to me.

  • haykat57
    haykat57 Member Posts: 14
    edited June 2009

    Althea - I see you live in the coastal bend so maybe we can get together.  Don't know about the avocados, only planted all the trees this spring, except for the lime which went in last fall.  So far the figs are all that are producing.  And no, Deanna, I didn't prune it last year, since it only went in a few months ago which is surprising that it is already producing.  Forgot to mention the banana trees.  Nothing on them yet either, but hopefully next year I should have an abundance of fresh fruit.  Still want to get a pomegranate and orange tree.  My husband has really gotten involved in the gardening, which has been suprising.  He loves the idea of eating for free.  I also have a nice little herb garden and more tomatoes than I know what to do with.  Will have to can some.

    Allie - the salad you mentioned sounds like a waldorf salad.  It is one of my favorites.  However, I am trying to make my system more alkaline so it will better absorb nutrients like iodine so I am avoiding walnuts and peanuts.  I use a lot of almonds and almond butter instead of peanut butter.

    I have a pretty decent insurance plan, which will pay for just about whatever conventional medical treatment my doctor recommends, but things like vitamin and mineral supplements and chiropractic adjustments (really helps with the aches and pains) have to come out of a very tight budget.  Real health care reform would allow us to use our insurance benefits as we see fit.  Some plans that give dollar amounts to be spent as the patient sees fit do cover such things, but unfortunately that isn't the type of plan I have.  There is a clinic in Mexico I would have liked to have gone to for treatment which uses alternative medicine, but my plan wouldn't pay for that so I am trying to find a middle ground between what my insurance will pay for and what I really want.

  • vivre
    vivre Member Posts: 881
    edited June 2009

    hyakat- I am so envious! All those fruit trees! I got a cutting yesterday of my cousin's fig tree. We'll see if I can get it to grow! My tomatoes are still less than knee high. But I still have screeining on my garden because the blasted cottonwood is still shedding on everything! My whole yard is such a horrible mess.

    I too get so mad that insurance will not pay for any alternatives. They will pay $400 for a mammo, but not $150 for a themograph. They will pay $300 for arimidex, but not $30 for iodine. And I was talking to my chiro and he said that national healthcare will put most holistic doctors out of business, and we will have no choices. He says that nothing he does will be covered and that the whole push to national health care is beging led by big Pharma and companies who want to get rid of any alternative practioners, compounding pharmacies, etc. We will have NO control over our health. It is really really scary!

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    Does anybody here use shampoo or cosmetics that are "natural" and free of all the gorp that is bad for us? Paraben free, etc?

    Please advise what type you've found that you like if you do... Thx. !!

    Rosemary, thanks for all the great info on Magnesium and the Alpha Lipoic acid. 

    Althea, I also was interested to see the info about progesterone and the imbalance as compared to estrogen. I don't recall any actions though. Makes me wonder if there is a natural way to increase our progesterone? 

    Spring.

  • vivre
    vivre Member Posts: 881
    edited June 2009

    Springtime-I use castile soap for my hair and shower. I get it at Trader Joes. and it has a peppermint smell.

  • fairy49
    fairy49 Member Posts: 536
    edited June 2009

    Spring!, I dumped all of my lotions and potions, I was the queen of products LOL! I use Spectrum Organic Virgin Coconut Oil as body lotion, Kiss My Face toothpaste a bunch of Burts Bees stuff, only the ones that are 99% natural, crystal deodrant (the one that looks like a lump of salt), Alba shampoo and conditioner, I also tossed most of my makeup and found last week that Physicians Formula now has an organic line.  Its flippin hard work not to mention expensive replacing everything, and maybe it doesn't help but it makes me feel better to do something!

    L

    ox

  • kfinnigan
    kfinnigan Member Posts: 490
    edited June 2009

    I was shocked that my insurance Kaiser through my employer has a discount program (Affinity program) that complementary medicine doctors can be a member of and offer discounts!!  I pay a $10 copay for chiro (after paying a lot of $$ through the years).  I did call a couple of acupuncurist/herb centers yesterday and they are still kinda pricey for me $75 for initial consult/treatment and $60 for each treatment thereafter.  I'm on a budget so will have to save up cause I'm really interested in seeing one.  This program also has affiliates offering massage discounts and gym memberships...still kinda pricey, I checked them all out.  But its a start and some good news for a change!!  (should mention that this discount program does not apply to individual Kaiser memberships, just thru my employer)

  • kfinnigan
    kfinnigan Member Posts: 490
    edited June 2009

    Be careful with some of the organic products for the face even...I had switched years ago and tried several different lines of the organic stuff and my face really broke out and my pores got all clogged up.  So weird, but chemo made my face so smoothe...even a coworker commented!  I am not recommending chemo as a beauty regimen! LOL

  • havehope
    havehope Member Posts: 77
    edited June 2009

    Springtime:I use Aubrey Organics.

    http://www.aubreyorganics.com/

  • luckofthedraw
    luckofthedraw Member Posts: 15
    edited June 2009

    Rosemary, he did not say, specifically.  I thought I had flagged that comment, but cannot find it now.  Maybe I chemo-brain dreamed it?  ??? 

    These are some of his comments on BC:

    ~"Alcohol consumption increases breast cancer incidence by 41% for women consuming 30-60 d/gay compared to non-drinking women."

    ~"It also is well established that rapid growth of young girls often leads to greater adult body height and more body weight and body fatness, each of which is associated with higher breast cancer risk."

    ~"Although high BMD (bone mineral density) is linked both to increased breast cancer risk and decreased osteoporotic risk, breast cancer and osteoporosis nonetheless cluster together in the same areas of the world and even in the same individuals."

    ~"At the University of Illinois Medical Center in Chicago, another research group was working with mammary (breast) cancer in rats.  This research showed that increasing intakes of caesin promoted the development of mammary (breast) cancer.  They found that higher caesin intake promotes breast cancer in rats dosed with two experimental carcinogens."  (Caesin is up to 87% of cow's milk protein)

    ~"...caesin affects the way cells interact with carcinogens, the way DNA reacts with carcinogens and the way cancerous cells grow."

    ~"Let there be no doubt:  cow's milk protein is an exceptionally potent cancer promoter in rats dosed with afloxin." 

    ~"...high consumption of aflatoxin, a mold toxin found n peanuts and corn, caused this problem.  Afloxin has been called one of the most potent carcinogens ever discovered." 

    ~"Foci  development was almost entirely dependent on how much protein was consumed, regardless of how much aflatoxin was consumed!"

     ~"So the next logical question was whether plant protein, tested in the same way, has the same effect on cancer promotion as casein.  The answer is an astonishing 'NO'.  In these experiments, plant protein did not promote cancer growth, even at higher levels of intake."  

    ~"...if we eat less fat, then we'll lower our breast caner risk.  Most scientists made the conclusion and some surmised that dietary fat caused breast cancer....  They show that breast cancer was associated with animal fat intake but not with plant fat."

    ~"What Carroll's graph really shows is that the closer a population gets to consuming a plant-based diet, the lower its risk of breast cancer."

    ~"Findings from rural China showed that reducing dietary fat from 24% to 6% associated with lower breast cancer risk. However lower dietary fat in rural China meant less consumption not only of fat but, more importantly, of animal-based food."  

    ~"Higher fat consumption is associated with higher blood levels of estrogen during the critical years of 35-46 years and higher blood levels of the female horomone prolactin during the later years of 55-64 years..  These horomones are highly correlated with animal protein intake and milk and meat."  

    ~quoting a Harvard study: "For breast cancer, our findings [representing eight prospective studies] suggest a possible modest increase in [breast cancer] risk with egg consumption....breast cancer risk was found to increase by 22% with every 100-g per day increment of egg consumption [about 2 eggs].  [There was a 67% increase in risk for the Nurses' Health Study.]

    ~"When disease is discovered at an earier age it is less likely to lead to death within five years, regardless of treatment.  As a cosnequence, we may have improved five-year survival rate simply because women find out that they have breast cancer earlier in the disease progression, not because our treatments have improved over time."

    From his "How to Eat" chapter:  

    MINIMIZE: refied carbs, added vegetable oils (including olive oil), fish

    AVOID: meat, poultry, dairy, eggs

  • rgiuff
    rgiuff Member Posts: 339
    edited June 2009

    Luck of the draw, what, now olive oil is out!  How can that be?  It's a plant based fat, as is flaxseed oil and our bodies need some good fats.  I'm confused 

  • vivre
    vivre Member Posts: 881
    edited June 2009

    Luck-I agree with Rose. The list is ambiguous. First it says plant based is okay, then no. How can fish be out? Doesn't seem like he leaves much left to eat!

  • dlb823
    dlb823 Member Posts: 2,701
    edited June 2009

    For those of us who have refused Tamox or an A/I, I had something happen this a.m. I wanted to share with you.  I'd stopped in to see my rad onc about a small lumpy area that's developed in my reconstructed breast since rads, and her RN was asking me all the usual follow up questions, including if I was on a hormonal treatment.  When I told her I had tried Femara but couldn't tolerate it, and that I was doing natural things to balance my estrogen, I fully expected to be challenged about the wisdom of what I'm doing.  But to my surprise, she asked me if I could write out what I take so that would have it to share it with other women who have a hard time with A/I's!  I was so surprised, and once again thought that we are definitely onto something that the medical establishment is completely aware of, but won't admit -- how bad those drugs are for us, and how doing it naturally -- as long as we get to that conclusion on our own -- is something to which many of them don't object at all.   

    Kari ~ Our health insurance (through my DH's work, which is a medical company, so great coverage, thank God) also has some of those benefits (chiro's, health clubs, etc.), and I've noticed it even covers "vitamins,"  but I'm pretty sure that's only when they're RX'd by a doctor.  It seems like the more progressive companies are starting to include some of these preventive benefits, so it's probably a good idea for all of us to check our coverage, so that we aren't missing something we could be getting.   Deanna

  • kfinnigan
    kfinnigan Member Posts: 490
    edited June 2009

    Thanks to you gals I wrote my new pcp about vitamins, here's what she emailed back:

     Kari,
    Welcome. I would recommend a regular multivitamin for you. If you don't eat meat/ leafy greens, then I would recommend the mvi with iron.
    2. I've ordered some routine blood tests for health maintenance for you to do. Please fast 12 hrs, okay to take meds and water only. Go to lab anytime after fasting. I'm checking your vitD. Vit D is important for bone health and immune function( ie cancer surveillance cells).
    Dr. Kuo

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    Luck,

    Well then, we'll just order a pizza and eat the box.  Yes, the good Dr. has pretty much left us with nothing to eat except going 100% vegan.  I won't be giving up olive oil any time soon. 

    This is not a correction, but Campbell might not be reporting everything, but only what he wants to see.  In the Nurses study, women who drank and had a high folate level in their blood, didn't get breast cancer as much as other woman who just drank.  Also, women who drink one glass of something alcohol each day, has less heart attacks.  Not that I'm sticking up for women who like to imbibe, which I am, but the facts are the facts and they should also be reported. 

    He should have reported on the above also, if not, then he's only reporting on what he wants us to know, and leaving out maybe some very valuable information.  Especially how healthy olive oil is for us.  Something is wrong with his findings.  Hmmm, not his findings, better said, his conclusions.

  • ddlatt
    ddlatt Member Posts: 39
    edited June 2009

    rosemary44 - LOL about the pizza and box.  i used to be completely baffled and upset by all the conflicting information out there about what to eat, not eat, drink, not drink. i've been a vegetarian since 1999 and loved tofu. then after my surgery i was told no tofu! then i was told tofu is okay because i'm triple negative. then no wine! then yes, drink wine! so now i'm just amused by the whole thing and have decided to enjoy food and drink in moderation and not add more stress to my already very stressful life as i'm going through treatment and (always in the back of my mind) wondering about recurrence. i don't feel like i have time to waste anymore, and if i let myself, i will spend too much time reading all these completely conflicting studies, when really nobody knows all the answers. 

    this might be of interest: larry norton, who is deputy physician-in-chief for breast cancer programs at sloan kettering, addresses the issues of food and wine and grilled meat, etc., in a recent speech and Q&A session: 

    http://www.mskcc.org/mskcc/html/92358.cfm 

  • luckofthedraw
    luckofthedraw Member Posts: 15
    edited June 2009

    LOL.  Yeah, Rosemary, that's kind of the way I felt, after reading the book. I'm in trouble, because I am thoroughly confused as to what I can eat. 

    Most carbs are out for me, and he says minimal protein, minimal oils.  What's left if carbs, proteins, and oils are all out?  He also discourages the use of supplements, except for B12 and folic acid; suggests vitamin D via sunshine.  Yep, that leaves us eating the box.  I did find that he has a website, but it has no recipes or menu suggestions on it.  

  • luckofthedraw
    luckofthedraw Member Posts: 15
    edited June 2009

    LOL...I just told DH about the pizza box comment.  He said "Nah, that has too much cellulose." 

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    dd,

    I listened to the Dr. at Sloan speak, and what a thorough lesson on what breast cancer is, and does, and what's coming along in therapy.  I think that video should be given to all women who are newly dx'd.  I didn't get to the Q & A yet, I'm saving it for tomorrow.  Thanks for sharing that.

    Luck,

    Please don't go by what Campbell is saying.  I add foods to my diet that have been researched to be tumor fighters.  But I eat anything I want.  I drop things that I know are unhealthy, but that doesn't mean I won't eat them eventually.  I just won't do it often.  I tend to go more for healthy stuff because we begin to crave them once we get started on them.  So, go slow, start adding something good, and see how you do.  One thing leads to another.

  • haykat57
    haykat57 Member Posts: 14
    edited June 2009

    I liked the Dr. from Sloan's talk as well. Very informative.  I listened about half way through the question and answers and one question came up about finding tumor cells with new diagnostic measures earlier than before and that they might not turn into full fledged cancer, but just calcium deposits.  He said the problem was telling which ones might go the cancer route and which might resolve themselves.  I read about a study in Parade magazine between women who got mammograms every year compared to a similar group that only got them every three years and the second group had much less cancer.  The supposition was that the many of the tumors discovered in the first group would have resolved themselves if left alone.  I know my doctors meant well, but I wish I would have waited and had more testing before getting surgery and chemo. If I would have had that information before hand I very likely would have.

  • haykat57
    haykat57 Member Posts: 14
    edited June 2009

    Oh, I forgot to mention that there is definitive proof that corn causes death.  Most people eat corn and all the people who eat corn eventually die, therefore eating corn causes death.  If the diet seems too extreme, it probably is. 

  • vivre
    vivre Member Posts: 881
    edited June 2009

    I found this video-vindicates us! Diet does matter!

    http://www.youtube.com/watch?v=mJkCiYnuVw0&feature=related

    Corn is really hard to avoid. High fructose corn syrup is in everything! I try to avoid it when it is an additive and corn oils, but I still have to have some corn on the cob now and then!

  • AllieM22
    AllieM22 Member Posts: 188
    edited June 2009

    Rosemary--love the pizza comment!

    I'm his research probably has merit but can't believe or get behind his conclusions--as someone mentioned the difference between the two, which was very wise. Lots of other studies show great benefits of olive oil. If you read too about the early research that concluded that fat was the culprit in heart disease, you'll see how faulty it was and now they say that the results were really inconclusive. Read In Defense of Food by Michael Pollan. FASCINATING story about how food became such a nutrition industry rather than just food and how the scientists came up with the food pyramid and other recommendations that we all took as gospel.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    There is a story behind the first food pyramid and how unhealthy it was.  They've changed it a couple of years ago.  Whoever came up with the first one was looking for customers, otherwise called patients.  It looks a heck of lot better today.

    Actually, eating the right type of fats, does heal.  Fats from raw nuts, avocados, fish, and olive oil lowers cholesterol.  Without them it's harder then hell to naturally get those numbers down.  When was the last time any Dr. said well here's your diet, these are things you must eat, or just handed out a script for a statin?  By the way, they've ruined raw almonds by pasturizing them now.  There is no real nutrition left in them.  They are the latest in junk food.

    Whoops, before I give all raw almonds a bad name, small growers do not have to pasturize them.  So there still are healthy raw almonds out there.  And I know where to get them:

    http://www.nutsonline.com/nuts/almonds/organic.html

  • reen
    reen Member Posts: 45
    edited June 2009

    I asked my onc are there any ways to keep the cancer from coming back.  (as far as nutrition)  She said no.  So there idea is you can't eat healthy to cure cancer.  I was very disappointed in her reply.  Is this a common answer from the medical society?

  • havehope
    havehope Member Posts: 77
    edited June 2009

    reen:

    I asked my onc the same thing before I started chemo. I wanted to make sure I keep my blood in check WBC and RBC and she said no, there is no diet. I proved her wrong. I had my own diet and I didn't have to take neulasta and I finished chemo with WBC of 7.5. The RBC was borderline  3.5 and the plateletes numbers were always very good. Due to swine flu she did an immune check and everything was perfect. When I was done with chemo she said that I am a very healthy person since my body reacted so well to chemo. I told her that might be true but it was also my died. She said for sure that helped too.

  • reen
    reen Member Posts: 45
    edited June 2009

    simvog:  What was your diet?  Good for you staying so healthy.